Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,293 members • 38,017 posts

All posts for February 2021

Fingers becoming crooked

Hi there I have been diagnosed 3 years now with PMR and popped slightly positive for RA as the CCP test showed. I have always considered myself almost...

Hi there I have been diagnosed 3 years now with PMR and popped slightly positiv...

Leilagirl

•3 years ago

19 Replies

Can I apologise in advance...

I know this has probably been done to death, but I am curious as to the reasons for and against injecting TCZ before/after the vaccine? My Rheum Consultant,...

I know this has probably been done to death, but I am curious as to the reasons ...

Sophiestree

•3 years ago

24 Replies

PMR BAD

HI every one hope all are well and survived the virus have not been on for a long time.

HI every one hope all are well and survived the virus have not been on for a lon...

ballyboy

•3 years ago

1 Reply

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What about Coffee???

Charlie here, my husband, Mac, aka weatherman69 is asking about caffeine, is it okay to drink coffee. He was a 2 pot a day drinker, but now down to 2 some...

Charlie here, my husband, Mac, aka weatherman69 is asking about caffeine, is it ...

weatherman69

•3 years ago

7 Replies

OMG it's back

Hello, I had PMR about 5 or 6 years ago and now realise the pain I've been in is a return visit. I didn't know it could come back. I will try and contact my...

Hello, I had PMR about 5 or 6 years ago and now realise the pain I've been in i...

Hidden

•3 years ago

10 Replies

any info about using cobimetinib, an IL-6 inhibitor, for PMR?

I've been reading the posts on this forum about Actemra (tocilizumab) and suppression of IL-6, the cytokine causing the negative symptoms of PMR. Searching...

I've been reading the posts on this forum about Actemra (tocilizumab) and suppre...

benhemp

•3 years ago

1 Reply

Pain relievers for osteoarthritis

Thank you everyone for your replies and useful information. I’ve kept using the Tylenol with the heating pad but turned up the heat as high as I can stand it...

Thank you everyone for your replies and useful information. I’ve kept using th...

Mstiles

•3 years ago

13 Replies

Misdiagnosed with PMR??

So it appears that I may have been misdiagnosed. I started prednisone nearly two years ago when I was finally diagnosed with PMR after running around to...

So it appears that I may have been misdiagnosed. I started prednisone nearly tw...

Navion

•3 years ago

20 Replies

Aid for PMR

My Best Buy! Have been struggling getting walking boots on - hub has stepped in! Now I can manage again!

My Best Buy! Have been struggling getting walking boots on - hub has stepped in!...

Pongo13

•3 years ago

10 Replies

Just a little smile this Saturday morning.....

Good morning from the U.S.! I was diagnosed with PMR in September of 2020; started on 20mg prednisone and am currently on 11.25mg, planning on tapering to 10mg...

Good morning from the U.S.! I was diagnosed with PMR in September of 2020; start...

SallyLeon

•3 years ago

126 Replies

prednisone and nose bleed

prednisone....while i have your attention....and thank you all for responding about flares....anyone else suffering from major nose bleeds. at 72 i have only...

prednisone....while i have your attention....and thank you all for responding ab...

icu2

•3 years ago

8 Replies

PMR FLARES

prednisone want to understand what is meant by a “flare”. is it any PMR discomfort or something major?

prednisone want to understand what is meant by a “flare”. is it any PMR discom...

icu2

•3 years ago

10 Replies

Pred timing

Is it better to take Medrol at nighttime inside the time release capsules or in the morning? I had been taking at nighttime and after watching Dr Sarah...

Is it better to take Medrol at nighttime inside the time release capsules or in ...

kimsaunsc

•3 years ago

2 Replies

Should I be concerned about flashes of white light in my eye?

Emergency bloods were good, ie.. esr and crp within normal limits ( but then the last two were) gp seems to have accepted I may be among the 20% with no...

Emergency bloods were good, ie.. esr and crp within normal limits ( but then th...

merril

•3 years ago

6 Replies

COVID vaccine

I have lived with PMR for seventeen years, this last six months I have been able to reduce my meds to 3 mg, I’m so delighted. On the 5th February I received my...

I have lived with PMR for seventeen years, this last six months I have been able...

Ollie10

•3 years ago

40 Replies

Nurofantoin

I was prescribed this yesterday at A&E for a bladder infection. Have taken 2 200mg tablets yesterday and feel dreadful: icy cold and can barely drag my self...

I was prescribed this yesterday at A&E for a bladder infection. Have taken 2 200...

maria40

•3 years ago

24 Replies

Inflammation reducing diets

I’m wondering whether there is actually any published peer reviewed scientific evidence rather than anecdotal to show that ANY diet affects PMR and...

I’m wondering whether there is actually any published peer reviewed scientific e...

Breconblue

•3 years ago

11 Replies

I went to......

The chemist, the baker's, and posted a letter - and I felt I had achieved something! "Achieved something"??? What the hell has PMR and lockdown done to me?

The chemist, the baker's, and posted a letter - and I felt I had achieved someth...

Constance13

•3 years ago

27 Replies

Newly diagnosed PMR – returning to work.

Hi Everyone. I was diagnosed with PMR 2 weeks ago and I’m currently on 25mg of Pred, down from 30 last week and due to reduce to 20 next week (per GPs...

Hi Everyone. I was diagnosed with PMR 2 weeks ago and I’m currently on 25mg of ...

TLW1

•3 years ago

14 Replies

Update 're increasing pred on a flare

I thought already posted, not computer savvy, poor eyesight doesn't help! But to let you know my rheumatologist said I did the sensible thing with upping the...

I thought already posted, not computer savvy, poor eyesight doesn't help! But to...

Gettingonby

•3 years ago

3 Replies

Fatigue from tapering prednisone?

GCA dx 2 yrs ago. Prednisone from high (early 2019) of 80 mg and very slowly now at 4 mg. As I've written so many times I have multiple health issues. I've...

GCA dx 2 yrs ago. Prednisone from high (early 2019) of 80 mg and very slowly now...

Spanky2019

•3 years ago

64 Replies

Blood results

Had blood taken at 11,30 at gp surgery. My rheumatologist phoned at 6.30 tonight. Inflammation in normal range. Keeping me on 60mg pred for at least another...

Had blood taken at 11,30 at gp surgery. My rheumatologist phoned at 6.30 tonight...

Rosina1871

•3 years ago

6 Replies

Hi how do you judge energy levels I use to walk an hour a day but I’m nervous I’ll overdo and set myself back.

Advice needed

Uglow

•3 years ago

44 Replies

Prednisone Induced Myopathy PIM

Hello GCA buddies. I met with my new rheumy yesterday and she feels I might have PIM. Does anyone have experience with this? I am seeing her in person in...

Hello GCA buddies. I met with my new rheumy yesterday and she feels I might hav...

alvertta

•3 years ago

13 Replies

??Tocilizumab

I recently posted for the first time about a flare up of GCA symptoms and raised inflammatory markers. This resulted in raising my Pred. from 10 mg to 20 mg...

I recently posted for the first time about a flare up of GCA symptoms and raised...

Hiland

•3 years ago

27 Replies

COVID Shot/PMR Questions

All, Received my first dose of COVID vaccine yesterday. Yeah, on the to completing my goal to no longer be a prisoner in my house. Arm is a bit tender but...

All, Received my first dose of COVID vaccine yesterday. Yeah, on the to comple...

SARose

•3 years ago

6 Replies

Nausea

Hi everyone, I’ve been feeling terrible nausea and sore ears is the normal with prednisolone and pmr , I went up from 6 to 7 mg to see if that would help .

Hi everyone, I’ve been feeling terrible nausea and sore ears is the normal with ...

Rottsuzi

•3 years ago

6 Replies

What are the benefits of Invisalign braces over traditional metallic braces

I'm 17 years old, and I have misaligned teeth that have to be corrected by using braces. My friend is using metallic braces, and she is facing too many...

I'm 17 years old, and I have misaligned teeth that have to be corrected by using...

evia_20

•3 years ago

11 Replies

Covid Webinar

Hi I am new on here. I have had PMR for just over a year and been up and down with the pred as Rheumatologist altered things around and caused relapse which...

Hi I am new on here. I have had PMR for just over a year and been up and down w...

ValleysBoy

•3 years ago

1 Reply

Not the answer I was expecting

This is just an update on my recovery or transition to another condition. Despite the issues I still had 4 years after diagnosis I thought I was in the...

This is just an update on my recovery or transition to another condition. Despit...

JulieR2

•3 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2021

Fingers becoming crooked

Can I apologise in advance...

PMR BAD

What about Coffee???

OMG it's back

any info about using cobimetinib, an IL-6 inhibitor, for PMR?

Pain relievers for osteoarthritis

Misdiagnosed with PMR??

Aid for PMR

Just a little smile this Saturday morning.....

prednisone and nose bleed

PMR FLARES

Pred timing

Should I be concerned about flashes of white light in my eye?

COVID vaccine

Nurofantoin

Inflammation reducing diets

I went to......

Newly diagnosed PMR – returning to work.

Update 're increasing pred on a flare

Fatigue from tapering prednisone?

Blood results

Hi how do you judge energy levels I use to walk an hour a day but I’m nervous I’ll overdo and set myself back.

Prednisone Induced Myopathy PIM

??Tocilizumab

COVID Shot/PMR Questions

Nausea

What are the benefits of Invisalign braces over traditional metallic braces

Covid Webinar

Not the answer I was expecting

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