Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,918 members • 39,404 posts

All posts for May 2024

Covid vaccine or not ?

Thoughts on whether or not to vaccinate for covid please ? Any relevant data out there ? My last jab was October 2023 , I got covid in December. Given I got it...

Thoughts on whether or not to vaccinate for covid please ? Any relevant data out...

Pastamama

•3 months ago

56 Replies

Tapering again.

Hi all 👋 It's been probably 18 months since I last dabbled in tapering. My rheumy has been keen for me to drop from 10mg per day to 9mg for months but I...

Hi all 👋 It's been probably 18 months since I last dabbled in tapering. My rh...

IdasMum

•3 months ago

15 Replies

Side effects

Hi all, Mum takes cortisol acertate for adrenal insuffiency. I understand you take hydrocortisone for arthritus. I think it has the same side effects, like...

Hi all, Mum takes cortisol acertate for adrenal insuffiency. I understand you ...

quicklyinsignificant

•3 months ago

11 Replies

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PMR and Itching

Hi Group, Any thoughts on itching skin as a result of tapering? I am down to ½ mg pred/day, and itch mainly at night. I take pred around 8am. It's been 5+...

Hi Group, Any thoughts on itching skin as a result of tapering? I am down to ½...

rj74

•3 months ago

7 Replies

taper from 2

how on earth do you taper from 2 and not exceed 10%??? I was going to go to 1.5 after few weeks but terrified!!! Having knee replacement in June. Hoped to be...

how on earth do you taper from 2 and not exceed 10%??? I was going to go to 1.5...

Booch

•3 months ago

14 Replies

cataracts

I had a routine eye test yesterday and apparently I now have cataracts. Another side effect of steroids. Bah. Sorry , just needed a moan.

I had a routine eye test yesterday and apparently I now have cataracts. Another ...

Yellow-dog

•3 months ago

37 Replies

Side effects of Prednisone

I started taking Prednisone in March 24 for Polymyalgia . Immediately pain free but have put on a bit of weight (not a problem) have been reducing Prednisone...

I started taking Prednisone in March 24 for Polymyalgia . Immediately pain free ...

budgies4

•3 months ago

51 Replies

Kellgren Centre, Manchester Royal Infirmary - is anyone on here under their care please?

I have both GCA & PMR and am looking for alternative treatment to just Pred… eg TCZ. I have made an appointment to see Professor Ben Parker privately after...

I have both GCA & PMR and am looking for alternative treatment to just Pred… e...

AmberGamble

•3 months ago

8 Replies

PMR flare? Reluctant to keep on highish doses of steroids.

Diagnosed in Feb 2022 Started with pain right hip and slightly in ankle, before it became generalised and responded dramatically within 3-4 hours to 20 mg...

Diagnosed in Feb 2022 Started with pain right hip and slightly in ankle, before ...

turquoiserainbow

•3 months ago

15 Replies

Reducing Effects

I just read DL’s very helpful article, Reducing Steroids & Activating the Adrenal Glands. So grateful for all the information and support here. It would’ve...

I just read DL’s very helpful article, Reducing Steroids & Activating the Adrena...

Lenore58

•3 months ago

19 Replies

Cardiac arrhythmia

Does anyone know the problem with cardiac arrhythmia on Pred? Specially at night? I am currently on 15mg, started with 20mg.

Does anyone know the problem with cardiac arrhythmia on Pred? Specially at night...

Swizzly

•3 months ago

19 Replies

Free of polymyalgia

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took...

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I ...

Rosshigh

•3 months ago

69 Replies

Appointment with Professor Dasgupta

After being ill for two years with 'atypical' PMR and waiting nearly a year for an NHS appointment, my Rheumatologist has said he is baffled and doesn't know...

After being ill for two years with 'atypical' PMR and waiting nearly a year for ...

FleetRose

•3 months ago

15 Replies

Further developments in the 'back muscle strain' saga

Last October when changing bed sheets, I injured my back. Went to A & E in excruciating pain and they sent me off with a single dose of morphine deciding it...

Last October when changing bed sheets, I injured my back. Went to A & E in excru...

strawclutching

•3 months ago

81 Replies

losing weight

Hi all, I know the usual gripe is about gaining weight on pred, and certainly the first time round I gained a huge amount which just wouldn’t shift. This time...

Hi all, I know the usual gripe is about gaining weight on pred, and certainly t...

artisam

•3 months ago

11 Replies

decrease in Pred after hospital admission

I had been admitted via A&E to hospital with a small rupture to the large intestine and diverticulitis flare, it was a rough time and on lots of meds to...

I had been admitted via A&E to hospital with a small rupture to the large intest...

Crwbin1

•3 months ago

16 Replies

PMR flare?

Good morning ....my saga with rheumatologist and strange symptoms continue.I was succesfully tapering Pred got right down to 17.5mg, after a few attempts and...

Good morning ....my saga with rheumatologist and strange symptoms continue.I was...

Den73

•3 months ago

5 Replies

Post Moderna covid vaccination

I had my covid vaccination just over a week ago, it was Moderna, my first time for this brand. I had been feeling really great. However I now feel dreadful,...

I had my covid vaccination just over a week ago, it was Moderna, my first time ...

KASHMIRI1

•3 months ago

4 Replies

GCA dizziness

hello , I am asking this question to help my brother who has just been diagnosed with GCA. He had the classic symptoms so was put on 50 prednisone daily. He is...

hello , I am asking this question to help my brother who has just been diagnosed...

Chopin002

•3 months ago

12 Replies

Rheumatologist appointment

After seeing the doctor today for the first visit, I would like to get the thoughts of some of the knowledgeable people on this forum. He didn’t rule out PMR,...

After seeing the doctor today for the first visit, I would like to get the thoug...

Aqua47

•3 months ago

17 Replies

GCA-Diagnosis

So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with...

So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went...

LRevell

•3 months ago

11 Replies

Hello methtextrate

So another visit to eye clinic and AGAIN they are going to drop my pred...BUT due to oral thrush. and the other flipping side effects the opto lady said she...

So another visit to eye clinic and AGAIN they are going to drop my pred...BUT d...

Alliekat65

•3 months ago

32 Replies

Hair loss

I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have lost half the volume of my hair. (gauged by the thickness of my pony tail now...

I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have ...

proactive

•3 months ago

35 Replies

Flares trying to get from 9 mg to 8 mg

I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st,...

I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and h...

proactive

•3 months ago

14 Replies

What to do

Posted lately about shoulder pain .just wondering if you could have chronic pain in upper arms only in PMR . Well slight niggles in back and knees but not...

Posted lately about shoulder pain .just wondering if you could have chronic pain...

daisylazy

•3 months ago

11 Replies

GP has suggested an increase in prednisone

As I had requested this it seems that the GP is willing to give it a try., Am up now to 15mg from 10mg. Been on now for 6 days cannot say much improvement as...

As I had requested this it seems that the GP is willing to give it a try., Am up...

gillsky8

•3 months ago

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withdrawal of prednisolone

Hi, I am just over a week of going down to 5 and a half mg. I have done a very slow taper over nearly 2montgs at 6mg. I have had stomach issues since the...

Hi, I am just over a week of going down to 5 and a half mg. I have done a very s...

lennysmummy

•3 months ago

28 Replies

How soon to resume taper after cardiac ablation?

I was on 7mg prednisone, easing into 6.75, when I had my cardiac ablation on April 15. Went back to 7 mg however, upped it with cardiac inflammation, 5 mgs...

I was on 7mg prednisone, easing into 6.75, when I had my cardiac ablation on Ap...

Karenjaninaz

•3 months ago

1 Reply

PMR tapering

Hi there, I had polymialgia for nearly 2 years, it started August 2021 and by June 2023 I was polymialgia free.I too started with 15 mgs of Prednisalone and I...

Hi there, I had polymialgia for nearly 2 years, it started August 2021 and by Ju...

Smilie67

•3 months ago

14 Replies

Basal cortisol test

I am currently on 1mg Prednisolone and have been for the past 12 weeks. I have always reduced this drug very slowly on the recommendation of this extremely...

I am currently on 1mg Prednisolone and have been for the past 12 weeks. I have ...

Billswife

•3 months ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Covid vaccine or not ?

Tapering again.

Side effects

PMR and Itching

taper from 2

cataracts

Side effects of Prednisone

Kellgren Centre, Manchester Royal Infirmary - is anyone on here under their care please?

PMR flare? Reluctant to keep on highish doses of steroids.

Reducing Effects

Cardiac arrhythmia

Free of polymyalgia

Appointment with Professor Dasgupta

Further developments in the 'back muscle strain' saga

losing weight

decrease in Pred after hospital admission

PMR flare?

Post Moderna covid vaccination

GCA dizziness

Rheumatologist appointment

GCA-Diagnosis

Hello methtextrate

Hair loss

Flares trying to get from 9 mg to 8 mg

What to do

GP has suggested an increase in prednisone

withdrawal of prednisolone

How soon to resume taper after cardiac ablation?

PMR tapering

Basal cortisol test

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