Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for May 2024

thank you

thank you everyone for all the help you gave me recently, my husband is improving but will never be better like before, but any improvement is better than how...

thank you everyone for all the help you gave me recently, my husband is improvin...

2013mayo

•14 minutes ago

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methotrexate advice

I’ve been on steroids for six months since being diagnosed with PMR. I’ve had a lot of difficulties with them and have been referred to rheumatology. The...

I’ve been on steroids for six months since being diagnosed with PMR. I’ve had a ...

Freshairfiend

•1 hour ago

2 Replies

Adrenal Problems I Think.

Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. Doc has got me reducing by 1mg a month and now down to 2mg. The trouble is, I...

Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. ...

Attic

•4 hours ago

6 Replies

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Tingling

In the last two weeks, I have noticed a high-frequency, low-intensity tingling in my skin on waking. It is not painful and I become less aware of it during...

In the last two weeks, I have noticed a high-frequency, low-intensity tingling i...

jayemmemm

•4 hours ago

2 Replies

To TCZ or not to TCZ??

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheumy is having a n ENRAD meeting next week to discuss my case and if I can have...

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheu...

Angelsmummy

•4 hours ago

11 Replies

flares and adrenals

hi folks me again I posted 2 weeks ago about statins. I am on 2.5 mg of prednisone and have been for a month. Last couple of days feel a lot more shoulder...

hi folks me again I posted 2 weeks ago about statins. I am on 2.5 mg of predniso...

Skier321

•5 hours ago

5 Replies

PMR flare or sciatica getting worse!?

All the original discomfort and pain of the first bout of PMR seems to have returned. In my hips and thighs, so very painful and I feel thoroughly exhausted....

All the original discomfort and pain of the first bout of PMR seems to have retu...

gillsky8

•7 hours ago

5 Replies

Results of our GCA and Tocilizumab Survey Published

Hi everyone, earlier this year we surveyed some GCA patients (members of the charity and on our forum here) who had previously been prescribed tocilizumab but...

Hi everyone, earlier this year we surveyed some GCA patients (members of the cha...

Fran_Benson

Partner•8 hours ago

2 Replies

I am back! In need of your excellent advice...

After successfully reducing to zero pred last autumn, the symptoms began to reappear. After advice about how to deal with a flare I increased the dose (to...

After successfully reducing to zero pred last autumn, the symptoms began to reap...

Sarnano

•9 hours ago

2 Replies

Pain from MRI SCAN

Has anyone had severe overall muscle pain after an MRI scan?

ScrubJayNorth

•18 hours ago

4 Replies

Private Rheumatologist in York

I need your help again. I have recently moved to York and have been talking to the Rheumatology nurses about my prescription for Barcitinib which can only be...

I need your help again. I have recently moved to York and have been talking to t...

Mamamia21

•20 hours ago

6 Replies

Testosterone Replacement Therapy

Hi all, this thread is really aimed at male PMR patients who are receiving or who are considering Testosterone Replacement Therapy (that's not to say that...

Hi all, this thread is really aimed at male PMR patients who are receiving or w...

OilyWiggles

•1 day ago

16 Replies

Is it back? 🙈

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. . I had my routine Rheumie appointment 2 weeks ago which was with a Registrar...

Hi Everyone, Tapered off Pred in Jan24 after being diagnosed with PMR May 18. ....

Croft9232

•1 day ago

27 Replies

A Good News Morning

Hi all. I went for my 75 years and annual MOT at the doctors this morning - first time on a f2f with the new ones.It's now official "I'm Perfect Peter!!" Blood...

Hi all. I went for my 75 years and annual MOT at the doctors this morning - firs...

Bcol

•1 day ago

10 Replies

Ibuprofen gel/cream

Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus IBS. I know it's not a good idea on preds. Could I use the gel on my neck,...

Morning, all. I don't take ibuprofen tablets for pain because of my GCAPMR plus ...

random901

•1 day ago

17 Replies

PMR - Tales of the Unexpected

I’d been suffering with what I thought was a severe PMR flare for weeks and weeks (very stiff leg muscles and sharp cramps especially in the thighs). I was...

I’d been suffering with what I thought was a severe PMR flare for weeks and week...

7DaysinMay

•1 day ago

11 Replies

Mum's journey with adrenal insuffiency and hypothyroidism

Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pain, on two separate occasions, to two different hospitals. Mum has a history...

Hi team, Mum was recently hospitalised with neck pain, pinkeye and then foot pa...

quicklyinsignificant

•1 day ago

4 Replies

Dorset Lady 5wk taper plan

please could you post Dorset Lady 5wk taper plan I photo copied it but missed bottom half of it .Thank you

please could you post Dorset Lady 5wk taper plan I photo copied it but missed bo...

Whippetygirl

•2 days ago

9 Replies

adrenal insuffiency

using dsns I’ve been at 4 mg for about 3 weeks. The last few days I felt weak, dizzy, lightheaded, and had diarrhea; couldn’t really function. Dr. Google...

using dsns I’ve been at 4 mg for about 3 weeks. The last few days I felt weak, ...

Twopies

•2 days ago

23 Replies

Should I up my dose?

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a 350km off road ride in Wessex. I’m currently relatively symptom free but wonder...

On Wednesday I’m starting a four day bike ride called the King Alfred’s Way - a ...

Mervetheswerve

•2 days ago

57 Replies

medical evidence/advice re. tapering at lower doses (below7mg)

Can any of you lovely people give me some references about tapering at lower doses and how symptoms not blood results should be the priority. I want something...

Can any of you lovely people give me some references about tapering at lower dos...

Mfaepink1973

•2 days ago

24 Replies

GCA tapering advice

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very grateful for all the replies I received to my previous post. I was tapering Pred...

Hi, I am relatively new to GCA and feeling very at sea with it. I’m very gratef...

Velofan

•2 days ago

46 Replies

METHOTREXATE

Hi I wrote a couple of weeks ago but I am looking for comments on the use of this drug for PMR.Saw Rhemy 2 weeks ago, he has recommended that after 7 years...

Hi I wrote a couple of weeks ago but I am looking for comments on the use of t...

SRIXON

•2 days ago

23 Replies

Are Massages okay with PMR?

I have a weekly body massage with oil for an hour at 9 a.m. However as of late I have felt very below parr for the rest of the day and have thought of...

I have a weekly body massage with oil for an hour at 9 a.m. However as of late ...

Motida

•3 days ago

13 Replies

15th May is International Vasculitis Awareness Day

Not that anyone takes much notice! https://www.vasculitis.org.uk/events/international-vasculitis-awareness-day#:

Not that anyone takes much notice! https://www.vasculitis.org.uk/events/interna...

HeronNS

•3 days ago

4 Replies

Meniscus tear/PMR flare update

I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I had requested more 5mg pred tablets on the MyGP app and last Friday got a call...

I am following PMRpro’s advice and this morning dropped to 6mg prednisolone. I ...

Mfaepink1973

•3 days ago

21 Replies

steroid reduction problems

I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specific way eg as when having a virus. After showering and dressing I need to sit...

I reduced to 11.5 mg from 12.5 mg 10 days ago. I don’t feel well in a non specif...

Sheeplegs

•3 days ago

8 Replies

Is it my lungs or PMR

I have gone back in my memory trying to figure out when my issues all began and in what order. I believe my PMR started in early 2019 when preparing for a dog...

I have gone back in my memory trying to figure out when my issues all began and ...

Dydee

•4 days ago

16 Replies

Feet, ankles, wrist pain

I had a flare and had to go up to 15mg pred 2 months ago from 4.5. I was pretty much pain free. Now, as I taper, the pain is coming back in my feet and my...

I had a flare and had to go up to 15mg pred 2 months ago from 4.5. I was pretty ...

Maggieart

•4 days ago

1 Reply

Weakness and heavy legs

I have had PMR since July 2022.I am currently on 5mg having had various flares and increased the pred. My pains in my shoulders and buttocks have decreased...

I have had PMR since July 2022.I am currently on 5mg having had various flares a...

simps999

•4 days ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

thank you

methotrexate advice

Adrenal Problems I Think.

Tingling

To TCZ or not to TCZ??

flares and adrenals

PMR flare or sciatica getting worse!?

Results of our GCA and Tocilizumab Survey Published

I am back! In need of your excellent advice...

Pain from MRI SCAN

Private Rheumatologist in York

Testosterone Replacement Therapy

Is it back? 🙈

A Good News Morning

Ibuprofen gel/cream

PMR - Tales of the Unexpected

Mum's journey with adrenal insuffiency and hypothyroidism

Dorset Lady 5wk taper plan

adrenal insuffiency

Should I up my dose?

medical evidence/advice re. tapering at lower doses (below7mg)

GCA tapering advice

METHOTREXATE

Are Massages okay with PMR?

15th May is International Vasculitis Awareness Day

Meniscus tear/PMR flare update

steroid reduction problems

Is it my lungs or PMR

Feet, ankles, wrist pain

Weakness and heavy legs

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