Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for September 2019

Just diagnosed

I have just been diagnosed with PMR and GCA - I know nothing about these conditions, or what I should be doing apart from suddenly finding myself with a lot of...

I have just been diagnosed with PMR and GCA - I know nothing about these conditi...

gardenning

•5 years ago

12 Replies

Adcal

PMR since May 2018- am on 4.5 mg Pred-I can't take adcal as it upsets my stomach-has anyone tried osteoguard ultra?it contains Vitk 2, magnesium and calcium-

PMR since May 2018- am on 4.5 mg Pred-I can't take adcal as it upsets my stomach...

bakingD

•5 years ago

15 Replies

Tocilizumab

Soon to start on tocilizumab , any experience good preferably or bad , would be appreciated

Soon to start on tocilizumab , any experience good preferably or bad , would be ...

Devoid

•5 years ago

33 Replies

Want to take advantage of all our features? Just log in!

What is the slow taper method to reduce prednisolone?

I have today been started back on Pred but at a higher dose of 30mg in the hope that it will control the severe pain and stiffness I’m suffering from following...

I have today been started back on Pred but at a higher dose of 30mg in the hope ...

Andypan

•5 years ago

32 Replies

Lodotra

Have any of you on Lodotra been told to keep them in the fridge?

Constance13

•5 years ago

9 Replies

No inflammation now present in blood .

Hi , so my mother who has been suffering with PMR for 5 years ( Diagnosed) Her last bloods came back with no inflammation present. GP now says she didn't have...

Hi , so my mother who has been suffering with PMR for 5 years ( Diagnosed) Her l...

Silverfoxylady

•5 years ago

12 Replies

How common is PMR without flares?

I contracted PMR two years ago and have just tapered to 5 mg prednisolone. Since taking pred, I have not had a single flare. How common is that? I have...

I contracted PMR two years ago and have just tapered to 5 mg prednisolone. Sinc...

Joydeck

•5 years ago

8 Replies

PMR in the family

I have PMR and GCA diagnosed in March 2019. Still on prednisolone. I’m a female and I have both PMR and GCA. My father was diagnosed with PMR in the early...

I have PMR and GCA diagnosed in March 2019. Still on prednisolone. I’m a female ...

Hidden

•5 years ago

12 Replies

Imaging with Vasculitis

https://videocast.nih.gov/Summary.asp?Live=34791&bhcp=1 https://videocast.nih.gov/Summary.asp?Live=34791&bhcp=1 Great NIH talk on PET scanning and large...

https://videocast.nih.gov/Summary.asp?Live=34791&bhcp=1 https://videocast.nih.go...

PMR2011

•5 years ago

13 Replies

I think I might need a little help ...

About 8 weeks ago I achieved 5mg pred with no relapse on my tapering journey since December 2018. I then proceeded to 4mgs, unaware at the time that tapers...

About 8 weeks ago I achieved 5mg pred with no relapse on my tapering journey sin...

LemonZest11

•5 years ago

12 Replies

Forgot to take prednisolone this morning - all symptoms returned this evening - PMR and GCA

I forgot to take my prednisolone 8mgs and other meds this morning. I realised at 8.30pm.... because I noticed I was getting head pain.... temple pain, jaw pain...

I forgot to take my prednisolone 8mgs and other meds this morning. I realised at...

Hidden

•5 years ago

26 Replies

Relapse

GCA since November 2016 & PMR since 2018. I've been taking methotrexate for about a year now and managed to reduce to 4 mgs pred - the boom a massive relapse....

GCA since November 2016 & PMR since 2018. I've been taking methotrexate for abo...

Pamela60

•5 years ago

16 Replies

Badly Phrased

I didn't mean I'd appreciate it if it was happening to others; I meant I'd appreciate knowing if it happened to anyone else.

I didn't mean I'd appreciate it if it was happening to others; I meant I'd appre...

Christophene

•5 years ago

2 Replies

PMR, ANEMIA And FALLING

Has anyone been diagnosed with anemia? And experienced falling, tripping, rolling out of bed or any similar situations. We can all say that could happen to...

Has anyone been diagnosed with anemia? And experienced falling, tripping, rollin...

Christophene

•5 years ago

8 Replies

Threem from Canada

I am new here and was diagnosed with pmr early July '19. Getting the right dosage has been a challenge. Started with 25 mgs then in 2 weeks went to 20 and...

I am new here and was diagnosed with pmr early July '19. Getting the right dosa...

threem

•5 years ago

15 Replies

PEA Palmitoylethanolamide

Has anyone heard of this supplement being used for chronic pain.

cranberryt

•5 years ago

9 Replies

omeprazole And diarrhoea

Hi guys I have been taking 40mg if omerprazole for almost two weeks yesterday and today I have suffered terrible diarrhoea I have read this is a common side...

Hi guys I have been taking 40mg if omerprazole for almost two weeks yesterday an...

budley19

•5 years ago

17 Replies

Tapering down

Thanks to all for replying I will have a good think about it and probably try getting down to 5 as renal doc said but at the first sign of getting worse I will...

Thanks to all for replying I will have a good think about it and probably try ge...

Rusty8

•5 years ago

2 Replies

Ranitidine recall.

Some of you may have noticed some discussion about the recall of ranitidine and we thought we would post about it for those who haven't since we know a lot of...

Some of you may have noticed some discussion about the recall of ranitidine and ...

PMRpro

Ambassador•5 years ago

12 Replies

Can I stop omeprazole

I have Been on steroids since 2016 had one relapse and resumed steroids I wanted know if others take omeprazole before taking your steroids as I was worried...

I have Been on steroids since 2016 had one relapse and resumed steroids I wante...

Littlefish30

•5 years ago

11 Replies

What a year!

Started off this year with talks of moving house and then found out I was being made redundant in July. At that point I thought, no problem I'll get another...

Started off this year with talks of moving house and then found out I was being ...

Spittal9

•5 years ago

29 Replies

Pulled down by pain

I don't know what to do. I went back to 20. mg of pred (at about 4am) 6 weeks ago and stayed there for 2 weeks. Things went quite well apart from rough...

I don't know what to do. I went back to 20. mg of pred (at about 4am) 6 weeks ag...

spearce

•5 years ago

13 Replies

PMR and CGA

I am new on here. Recently diagnosed with polymyalgia. What does PMR and CGA mean?

I am new on here. Recently diagnosed with polymyalgia. What does PMR and CGA mea...

Myhandshurt

•5 years ago

3 Replies

Thank you

After suffering as you saw from my first post I agreed with my GP to go back up to 4mg. And we discussed giving it 3 weeks and going up again if needed. I am...

After suffering as you saw from my first post I agreed with my GP to go back up ...

BethandHoney2017

•5 years ago

3 Replies

1 mg tqblets

Please check with your other local pharmacies. in California, 1 mg tablets are readily available at national pharmacy chains and independent pharmacies. You...

Please check with your other local pharmacies. in California, 1 mg tablets are ...

Anniegal

•5 years ago

18 Replies

Tapering down

Hi I don’t know if I have asked this question before apologise if I have done If I could taper down would this slow all side effects down I have been taking...

Hi I don’t know if I have asked this question before apologise if I have done I...

Rusty8

•5 years ago

24 Replies

Getting too skinny- follow up

Thank you everyone for your suggestions and replies. I’m looking for a new GP and will follow up when I find one. I have an appointment with my rheumy...

Thank you everyone for your suggestions and replies. I’m looking for a new...

Mstiles

•5 years ago

11 Replies

Consultant wants me to taper quicker

My consultant suggested I try tapering by alternating from 10-9 mgs every other day for a month, then 9 mgs for a month then 9-8mgs etc. Prior to this I’ve...

My consultant suggested I try tapering by alternating from 10-9 mgs every other ...

Wraysbury

•5 years ago

39 Replies

Help for thin skin: Dermatuff clothing

Hi, I've been using Dermatuff socks and sleeves for about nine months now, for my very thin skin. My skin is so thin, the slightest brush with anything, (it...

Hi, I've been using Dermatuff socks and sleeves for about nine months now, for ...

misspops

•5 years ago

12 Replies

New member requiring advice

I have been recently diagnosed with PMR and have been on 15mg Prednisolone for 5 weeks together with Omeprazole, Adcal and Alendronic Acid. Any advice on...

I have been recently diagnosed with PMR and have been on 15mg Prednisolone for 5...

Retallack

•5 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2019

Just diagnosed

Adcal

Tocilizumab

What is the slow taper method to reduce prednisolone?

Lodotra

No inflammation now present in blood .

How common is PMR without flares?

PMR in the family

Imaging with Vasculitis

I think I might need a little help ...

Forgot to take prednisolone this morning - all symptoms returned this evening - PMR and GCA

Relapse

Badly Phrased

PMR, ANEMIA And FALLING

Threem from Canada

PEA Palmitoylethanolamide

omeprazole And diarrhoea

Tapering down

Ranitidine recall.

Can I stop omeprazole

What a year!

Pulled down by pain

PMR and CGA

Thank you

1 mg tqblets

Tapering down

Getting too skinny- follow up

Consultant wants me to taper quicker

Help for thin skin: Dermatuff clothing

New member requiring advice

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive