Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,314 members • 38,051 posts

All posts for June 2018

The chronicles of Ozzy and PMR

The chronicles of Ozzy part 1: I’m a bit grumpy today cos I have a fur coat on and I’m hot. I’ve been hiding in the broad bean patch all day as it’s shady. Now...

The chronicles of Ozzy part 1: I’m a bit grumpy today cos I have a fur coat on a...

peace_lover

•6 years ago

11 Replies

Brief Encounter

There is no mention of PMR in this other than to say I completely forgot it for at least an hour this morning. I'd got fed up with the never-ending dictates...

There is no mention of PMR in this other than to say I completely forgot it for ...

Slowdown

•6 years ago

43 Replies

Hip Pain and Prednisolone

Hello Linny I have almost identical awful hip pain to you - except that X-rays have subsequently shown that my hips are OK, and the pain us due to trapping of...

Hello Linny I have almost identical awful hip pain to you - except that X-rays h...

arthur463

•6 years ago

1 Reply

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Advice needed.

Has anyone started with GCA with these sympton? Sore mouth with very severe pain in throat , pain in face and side of head.. After nine years I have these...

Has anyone started with GCA with these sympton? Sore mouth with very severe p...

5lupins

•6 years ago

6 Replies

Co-proximal

I found Co-proxamol to be a wonderful pain killer 15 year's ago and then it became unobtainable. Have found various bits online about petitions etc to...

I found Co-proxamol to be a wonderful pain killer 15 year's ago and then it beca...

Wenben

•6 years ago

30 Replies

Getting to grips.

Hello fellow PMR sufferers. Thank you for all the helpful comments on this site. I feel that I am well on the way to getting to grips with this new and...

Hello fellow PMR sufferers. Thank you for all the helpful comments on this site....

Getwellsoon1

•6 years ago

32 Replies

can't tolerate steroids

What happens if, like me, you cannot tolerate steroids? What alternatives....?

verzura

•6 years ago

7 Replies

Tapering....need advice

I am currently at 13 mg Prednisone daily and I am going to attempt to taper, again. I had gotten down to 13 about two months ago but my test numbers went up...

I am currently at 13 mg Prednisone daily and I am going to attempt to taper, aga...

Hidden

•6 years ago

12 Replies

Wedding tomorrow!!

We are here in a very hot North Somerset for our sons wedding.I am a bit emotional but mainly because I only had 2 hours sleep last night.It was so hot and my...

We are here in a very hot North Somerset for our sons wedding.I am a bit emotion...

Sandradsn

•6 years ago

16 Replies

Exercise and PMR

Good Afternoon All I was wondering if anyone has suggestions for some exercises for the hip and thigh area. My pain areas are low back, hips and thighs. I can...

Good Afternoon All I was wondering if anyone has suggestions for some exercises ...

Linny3

•6 years ago

30 Replies

Tesco Bottled Flavoured Water

Dear Carol-mc By searching exhaustively I managed to find how to add a photo to a post though I had to start from scratch with a brand new one. It doesn't...

Dear Carol-mc By searching exhaustively I managed to find how to add a photo to ...

GCA1947

•6 years ago

22 Replies

After A Day On The Tiles!

Not to bad! Considering! Bit sore but better than doing F. All! Ahh! decision making & the stress of! Did a floor tiling fix. (I hope) See how it goes after...

Not to bad! Considering! Bit sore but better than doing F. All! Ahh! decision ...

Hidden

•6 years ago

15 Replies

Synthacthen results

I finally had a response from my rheumie. My cortisol level continues to be low and I should be hearing from the endocrinology department for help and...

I finally had a response from my rheumie. My cortisol level continues to be low...

Annimac

•6 years ago

6 Replies

Fun size Snicker

I don't know if this will translate across the pond but I tell my friends I am now like a bite size candy bar (sometimes called fun size here) I am essentially...

I don't know if this will translate across the pond but I tell my friends I am n...

bunnymom

•6 years ago

15 Replies

Service announcement re the “sighs” football ⚽️

I had to share this. Husband has just announced ruefully that there is no football on today. I can go back in the cool north facing lounge and read a book, or...

I had to share this. Husband has just announced ruefully that there is no footba...

peace_lover

•6 years ago

34 Replies

DIY Disaster!!!!

It seemed like such a good idea at the time... three, 3 foot long, white, photo shelves, spaced evenly along the 15 foot hallway wall! Easy Peasy, right?...

It seemed like such a good idea at the time... three, 3 foot long, white, photo...

Hidden

•6 years ago

60 Replies

Where am I gone?

My husband just asked me "oh where is my soft wife gone"? He wasn't being nasty - but yes where am I gone??!! I know what he means - over the last two years...

My husband just asked me "oh where is my soft wife gone"? He wasn't being nasty...

powerwalk

•6 years ago

100 Replies

Update on job interview

I had PMR for about 5/6 years finally off the steroids .I just have to sort the wieght out now ,I have RA and OE Underactive thyriod and at the moment...

I had PMR for about 5/6 years finally off the steroids .I just have to sort the...

patriciawhite

•6 years ago

9 Replies

Newbie questions - your patience required

Hi I read here that I needed calcium and vit D3 which it was suggested should be prescribed automatically with being put on steroids. So I rang my GP practice...

Hi I read here that I needed calcium and vit D3 which it was suggested should be...

Theziggy

•6 years ago

28 Replies

Is it early stage GCA or Pred side effects

I was diagnosed with PMR late February of this year. I’m taking 20 mg Pred daily. Seems lately I’m getting tingling on the sides of my head above my ear. And...

I was diagnosed with PMR late February of this year. I’m taking 20 mg Pred daily...

lizg0017

•6 years ago

10 Replies

decreasing by 2.5mg weekly

I'm at 50 mg pred... again. Has anyone here reduced weekly by 2.5 mg from high dosage and what has been your experience? I know we're all different, but just...

I'm at 50 mg pred... again. Has anyone here reduced weekly by 2.5 mg from high ...

gtate1914

•6 years ago

26 Replies

Why can’t I lose weight?

Week 3 of Weight Watchers diet (which I have stuck to rigidly) and no weight loss this week. Feel so despondent. Too much fruit perhaps, which is allowed on WW...

Week 3 of Weight Watchers diet (which I have stuck to rigidly) and no weight los...

Suet3942

•6 years ago

29 Replies

Steroids/antibiotics/UTIs

Having just had the most awful week, believed to be caused by reaction of antibiotics whilst taking steroids, I thought I would write a little cautionary...

Having just had the most awful week, believed to be caused by reaction of an...

Lin-lou

•6 years ago

14 Replies

All is Well

Hello, Firstly, let me give a sincere, heartfelt "Thank you" to all of you who sent me a private message, or put a comment on one of my posts, asking if I was...

Hello, Firstly, let me give a sincere, heartfelt "Thank you" to all of you who ...

Hidden

•6 years ago

127 Replies

Very apropos to our PMR journey.

THE FOLLOWING LINK HAS OPENED MY EYES TO WHATS REALLY GOING ON IN MY BODY. Hoping that in my wanting to share this information I am not breaking any rules...

THE FOLLOWING LINK HAS OPENED MY EYES TO WHATS REALLY GOING ON IN MY BODY. Ho...

Ta1ch1

•6 years ago

7 Replies

Anyone had Jaw stiffness

Dignosed with PMG/GCA actually seems to be Temporal Artritis. Had jaw stiffness when chewing breakfast. Seems to be ok except it is now loose on LH side...

Dignosed with PMG/GCA actually seems to be Temporal Artritis. Had jaw stiffnes...

Berylholley

•6 years ago

9 Replies

William Bednell

I'm down to 6 dropping half a mg every two months so learning from this group what to ask for that's what bI did this time so I'm trying to see my GP what a...

I'm down to 6 dropping half a mg every two months so learning from this group wh...

Wbednell

•6 years ago

2 Replies

Freaking out, sort of

I had an appointment with my rheumatologist yesterday. I am currently down to 6 mg prednisone and having some pain but it’s not bad. I was diagnosed last...

I had an appointment with my rheumatologist yesterday. I am currently down to 6 ...

Lanakay

•6 years ago

10 Replies

William Bednell

thanks for the reply s had a New rummy he is a bone man so that might explain his lack of knowledge so I will take it up with my hp

thanks for the reply s had a New rummy he is a bone man so that might explain hi...

Wbednell

•6 years ago

1 Reply

Look familiar to anyone?

☺️

Hollyseden

•6 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2018

The chronicles of Ozzy and PMR

Brief Encounter

Hip Pain and Prednisolone

Advice needed.

Co-proximal

Getting to grips.

can't tolerate steroids

Tapering....need advice

Wedding tomorrow!!

Exercise and PMR

Tesco Bottled Flavoured Water

After A Day On The Tiles!

Synthacthen results

Fun size Snicker

Service announcement re the “sighs” football ⚽️

DIY Disaster!!!!

Where am I gone?

Update on job interview

Newbie questions - your patience required

Is it early stage GCA or Pred side effects

decreasing by 2.5mg weekly

Why can’t I lose weight?

Steroids/antibiotics/UTIs

All is Well

Very apropos to our PMR journey.

Anyone had Jaw stiffness

William Bednell

Freaking out, sort of

William Bednell

Look familiar to anyone?

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