Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,298 members • 38,026 posts

All posts for February 2017

Increasing pred dose

Hi everyone i will be staying with my daughter and family for a few days on Thursday which is normally stressful even before PMR. I'm thinking about...

Hi everyone i will be staying with my daughter and family for a few days on Thu...

Marlenec

•7 years ago

35 Replies

Missed my dose

I missed my dose of prednisone. First time in 2 years. I am trying to see what room I need to keep my medications. Before I had a studio and so they were on...

I missed my dose of prednisone. First time in 2 years. I am trying to see what...

Hidden

•7 years ago

19 Replies

Adrenal gland and tapering useful information

I came across this old article (Oct 2006) from a recent posting on a GCA Facebook site and found the article really easy to read and understand. I now feel I...

I came across this old article (Oct 2006) from a recent posting on a GCA Faceboo...

DevonMichael

•7 years ago

3 Replies

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GCA biopsy after sensations

Hi all, I would like to know if anyone experienced some sensitivity in the biopsy area after the biopsy. I had a biopsy done on January 26th and wonder if what...

Hi all, I would like to know if anyone experienced some sensitivity in the biops...

Akino

•7 years ago

9 Replies

Feeling disheartened

Hi all Been to 1st rhuemy appointment today saw specialist nurse first took all my details & symptoms wrote everything down took to rhuemy for her to read...

Hi all Been to 1st rhuemy appointment today saw specialist nurse first took all ...

Stanley123

•7 years ago

8 Replies

Hair smelling weird?

A minor issue, I know, but my hair seems to smell weird these days - no matter how often I wash it with sweet-smelling products it smells a bit (to me at...

A minor issue, I know, but my hair seems to smell weird these days - no matter h...

SusyTe

•7 years ago

4 Replies

Information booklet

Hi. I saw a post about a PMR/GCA booklet on the site. Anyone know where I can get a copy, please? Thanks.

Hi. I saw a post about a PMR/GCA booklet on the site. Anyone know where I can ge...

Cinka

•7 years ago

8 Replies

Prednisolone, GCA and Glaucoma dilemmas

The recent thread about GCA and Glaucoma has made me concerned that people think that Glaucoma is a minor detail compared with GCA. Please be assured that this...

The recent thread about GCA and Glaucoma has made me concerned that people think...

Roltuba

•7 years ago

5 Replies

Emergency help please?

Having been 'stable' for 6 weeks on 10mg I'm nervous I might be relapsing. Do I whack my pred back up to 15mg to get thru? My daughter had c- section twins...

Having been 'stable' for 6 weeks on 10mg I'm nervous I might be relapsing. Do I ...

Peggles

•7 years ago

12 Replies

Dentists and PMR/GCA

I was a bit surprised today to find that my dentist knew nothing at all about PMR or GCA. I thought he might know something about the long term use of...

I was a bit surprised today to find that my dentist knew nothing at all about PM...

Zebedee44

•7 years ago

10 Replies

Rheumatology referral

Can anybody recommend a Rheumatologist in West Wales and would it be worth trying to get a private consultation about my recently diagnosed PMR or should I...

Can anybody recommend a Rheumatologist in West Wales and would it be worth tryin...

Zebedee44

•7 years ago

1 Reply

Thrombocythemia (MPN)

Has anyone been diagnosed with Thrombocythemia MPN. This is linked I understand with GCA, which I was diagnosed with 8 years ago. I lost the sight in my...

Has anyone been diagnosed with Thrombocythemia MPN. This is linked I understan...

hwigston

•7 years ago

1 Reply

Banting Diet does it Help with PMR?

The Real Meal Revolution by Tim Noakes. He talkes about low Carb/high fat diet for weight loss. Do you think this can help us?

The Real Meal Revolution by Tim Noakes. He talkes about low Carb/high fat diet f...

cliveM

•7 years ago

7 Replies

MTX for pmr - a good idea ?

Following the excellent advice on this forum, I had tapered to about 4.5 mgs of pred. by Christmas 2016. At an appointment just before this, my rheumy took a...

Following the excellent advice on this forum, I had tapered to about 4.5 mgs o...

billdmith64

•7 years ago

10 Replies

new hip and groin pain after months of prednisone

well just a week or so ago, i developed some groin pain, and hip pain out of the blue, been on pred since oct, gp diagnosed pmr, although rheumy wouldn,t...

well just a week or so ago, i developed some groin pain, and hip pain out of the...

arvine

•7 years ago

8 Replies

Seizure

Been on pred for PMR for almost 12months and been doing fine and reducing slowly, down to 12mg from 20 last march. I have also recently started taking A.A...

Been on pred for PMR for almost 12months and been doing fine and reducing slowl...

jlyndauk2002

•7 years ago

9 Replies

2 5 diet while on steroids

With steroids causing weight gain, I wondered if anyone had any views on the 2 5 diet. (apparently its 2 days fast (i.e. 500/600 calories) and then 5 days...

With steroids causing weight gain, I wondered if anyone had any views on the 2 ...

Reethebeat

•7 years ago

20 Replies

Reducing after flare up.

Well it's been a year since I joined this group and you have been my rock. Felt a little guilty at times for when I started Prednisone it was like a miracle...

Well it's been a year since I joined this group and you have been my rock. Felt...

mikldiamond

•7 years ago

15 Replies

Polymyalgia Rheumatica

Hallo there, Ive got polymyalgia rheumatic, now down to 3 pred a day. But shoulder pain has really kicked in, and I now have elbow pain the same side. Any...

Hallo there, Ive got polymyalgia rheumatic, now down to 3 pred a day. But shoul...

Reethebeat

•7 years ago

7 Replies

Diagnosed 3 weeks ago - depression + knee pain.

Hi - would appreciate any input or advice. I posted this yesterday but had no response - also not sure if I posted it in the right place. Me15 hours ago Hi - I...

Hi - would appreciate any input or advice. I posted this yesterday but had no re...

Slosh

•7 years ago

35 Replies

Sciatica

Does anyone have osteoarthritis as well as PMR? I've had sciatica and Bursitis in right leg for years on and off and now got sciatica in left leg more severe....

Does anyone have osteoarthritis as well as PMR? I've had sciatica and Bursitis i...

heli13

•7 years ago

6 Replies

PMR....RA??

I was diagnosed with PMR by my GP 3 weeks ago and put on Prednisolone 30mg a day. Within 3 days I felt brilliant...all swelling had gone from my eyes, hands...

I was diagnosed with PMR by my GP 3 weeks ago and put on Prednisolone 30mg a day...

susyj

•7 years ago

35 Replies

Tai Chi

Hi. Can anyone recommend a Tai Chi class in Surrey, not too far from Weybridge? Am hoping Celtic might have some ideas as she recommended it for relaxation.

Hi. Can anyone recommend a Tai Chi class in Surrey, not too far from Weybridge? ...

SusyTe

•7 years ago

4 Replies

The Lighter Side of PMR - You asked for more.. ;-)

Well, as if John Wayne, Professor Unley Stanwin and Janet and John aren't enough, some of (the more reckless amongst?) you are still asking for more. Haven't...

Well, as if John Wayne, Professor Unley Stanwin and Janet and John aren't enough...

markbenjamin57

•7 years ago

49 Replies

Gravel in shoulders?

In the last few days in the process of reducing my Pred dose, I have noticed a slight increase in stiffness in both shoulders and a kind of clicking sound....

In the last few days in the process of reducing my Pred dose, I have noticed a s...

Steve2002

•7 years ago

6 Replies

Pmr gca and glaucoma

Does anyone know what is the lowest dosage of pred that it is safe to be on for GCA? I am currently on 15 but hoped to reduce further as I now have glaucoma...

Does anyone know what is the lowest dosage of pred that it is safe to be on for ...

lyndamcw

•7 years ago

19 Replies

Rheumatologist Recommendation, please

Hi everyone, this is my first post here. I'm writing on behalf of my mother-in-law how's been suffering from PMR for around 5 years. 'Suffering' is an...

Hi everyone, this is my first post here. I'm writing on behalf of my mother-in-...

Hidden

•7 years ago

8 Replies

Some media coverage of GCA for reference

Definitely one to get a copy of to show to sceptical doctors!...

PMRpro

Ambassador•7 years ago

18 Replies

One off episodes

I was diagnosed with PMR in November 2016 put on 20mg reduced to 15 couple of days later due to side effects then I had urinary infection and put on...

I was diagnosed with PMR in November 2016 put on 20mg reduced to 15 couple of da...

Hidden

•7 years ago

1 Reply

Experimenting with Pred dose with Rheumys ok

I had a flare up in mid January. I was reducing the dose of pred too quickly. That was under my Rheumy advice. I was at 3.5 then. I was in a terrible state so...

I had a flare up in mid January. I was reducing the dose of pred too quickly. Th...

Janll

•7 years ago

28 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2017

Increasing pred dose

Missed my dose

Adrenal gland and tapering useful information

GCA biopsy after sensations

Feeling disheartened

Hair smelling weird?

Information booklet

Prednisolone, GCA and Glaucoma dilemmas

Emergency help please?

Dentists and PMR/GCA

Rheumatology referral

Thrombocythemia (MPN)

Banting Diet does it Help with PMR?

MTX for pmr - a good idea ?

new hip and groin pain after months of prednisone

Seizure

2 5 diet while on steroids

Reducing after flare up.

Polymyalgia Rheumatica

Diagnosed 3 weeks ago - depression + knee pain.

Sciatica

PMR....RA??

Tai Chi

The Lighter Side of PMR - You asked for more.. ;-)

Gravel in shoulders?

Pmr gca and glaucoma

Rheumatologist Recommendation, please

Some media coverage of GCA for reference

One off episodes

Experimenting with Pred dose with Rheumys ok

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