Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2018

Fuzzy 'steroid head'

Have been finding it hard to concentrate and stumbling over words in conversations since starting steroids in May 2016. I was particularly bad at 12 - 10 mg....

Have been finding it hard to concentrate and stumbling over words in conversatio...

Stroppymoo

•6 years ago

35 Replies

"There is a moon inside every human being. Learn to be companions with it." ~ Rumi

Silly me. This evening, I made the mistake of asking my husband if the shape of my face has changed. What do you think he said? #honestyisthebestpolicy

Silly me. This evening, I made the mistake of asking my husband if the shape o...

Hidden

•6 years ago

21 Replies

Prednisone and cholesterol

Does prednisone known to raise your cholesterol?

Kanguish

•6 years ago

27 Replies

Want to take advantage of all our features? Just log in!

The Lighter Side: A Tale of Bill & Ben - PMR and the Flower Pot Men. All is Well in The Garden...Or is it..? ;-) :-/

Greetings and Happy New Year to Poly-my-Lingerers and Pred Playmates everywhere. Ok, already! Yes, it’s been a while since my last silly ramblings (thank...

Greetings and Happy New Year to Poly-my-Lingerers and Pred Playmates everywhere....

markbenjamin57

•6 years ago

57 Replies

Websites - useful stuff, articles, resources

I've been keeping a Word doc on articles that I knew I'd want to refer back to. Not sure if anyone interested, but here it is. Please forgive the format, I...

I've been keeping a Word doc on articles that I knew I'd want to refer back to. ...

Insight329

•6 years ago

24 Replies

NICE and tocilizumab

I would just like to say a big thank you to everyone who responded to our straw poll on GCA. It was really useful and we used the results in answering...

I would just like to say a big thank you to everyone who responded to our straw ...

Polywotsit

PMRGCAuk team member•6 years ago

3 Replies

Tocilizumab

FYI http://www.dailymail.co.uk/health/article-4143332/Breakthrough-treatment-rheumatic-conditions.html

FYI http://www.dailymail.co.uk/health/article-4143332/Breakthrough-treatment-rhe...

HeronNS

•6 years ago

36 Replies

Fatigue

Does everyone suffer from fatigue with pmr?

Hidden

•6 years ago

5 Replies

Period problems

Since I started my Pred treatment for PMR, starting at 30 mg, now at 17,5, I have had a strange pattern with my period. Excuse me, all you men out there. I...

Since I started my Pred treatment for PMR, starting at 30 mg, now at 17,5, I hav...

Pirnilla

•6 years ago

7 Replies

Tell me lies, tell me sweet little lies...

Those that can't do... rant. https://rantingsofamadwomanblog.com/2018/01/31/tell-me-lies-tell-me-sweet-little-lies/

Those that can't do... rant. https://rantingsofamadwomanblog.com/2018/01/31/tel...

Hidden

•6 years ago

21 Replies

UK to Australia travel tips

Hi everyone I know many of you are jet setters so am asking for advice re travel insurance for our planned visit in September/October of this year. We want to...

Hi everyone I know many of you are jet setters so am asking for advice re travel...

Hidden

•6 years ago

12 Replies

In bitesized portions

Due to posting problems gonna do this in bits. Does anyone out there have difficulty walking unaided? I set off feeling fine then after ten or so steps I feel...

Due to posting problems gonna do this in bits. Does anyone out there have diffic...

fren

•6 years ago

23 Replies

Reduce or not?

Tomorrow first of the month I planned to start reducing slowly 1mg but today I am so desperately tired that I am wondering whether this is such a good idea? I...

Tomorrow first of the month I planned to start reducing slowly 1mg but today I a...

kathleen18

•6 years ago

26 Replies

Apologies in advance for more nonsense than usual

I am finding that as I type chunks of text disappear rendering what I write as nonsensical. Is anyone else finding this? I am using an iPad.

I am finding that as I type chunks of text disappear rendering what I write as n...

SheffieldJane

•6 years ago

7 Replies

sleepy time gal.

Second time round for PMR. Had it for three years 5/6 years ago. This is third week on pred which I swore I wouldn’t take again but kind Glasgow consultant...

Second time round for PMR. Had it for three years 5/6 years ago. This is third w...

janimaths

•6 years ago

18 Replies

Prednisolone & Long Haul Flights

I’m new to this group and am looking for some guidance! I’m 46 years old and was diagnosed with PMR around Christmas. I’m currently taking 20mg of...

I’m new to this group and am looking for some guidance! I’m 46 years old and wa...

GingerK

•6 years ago

29 Replies

Latest EULAR guidelines on imaging for Large Vessel Vasculitis diagnosis

http://ard.bmj.com/content/early/2018/01/19/annrheumdis-2017-212649 Found these interesting particularly because it talks about the distinction between...

http://ard.bmj.com/content/early/2018/01/19/annrheumdis-2017-212649 Found these...

Hidden

•6 years ago

16 Replies

War On PMR (Cont.)

I'd like to talk to as many peeps as I can find who have had PMR & are or have been in remission. I want to find out if there are any threads tying them...

I'd like to talk to as many peeps as I can find who have had PMR & are or have...

LarryLeek

•6 years ago

13 Replies

War on PMR.

I woke up the 1st weekend in July 2017 to start my vacation & noticed my I had no grip in my hands, the joints in my arms, shoulders & neck hurt especially if...

I woke up the 1st weekend in July 2017 to start my vacation & noticed my I had n...

LarryLeek

•6 years ago

9 Replies

Steroids reduction

Thank you all for your responses to my overeating. Feeling a bit better now, don't have the same hunger pangs. Coming get down to 5.0 5mgs tomorrow so will...

Thank you all for your responses to my overeating. Feeling a bit better now, don...

morrison

•6 years ago

7 Replies

Saw private consultant, not convinced I have PMR, but on 15mg of Prednisolone for 7 days to see if it relieves symptoms, any comments?

despite explaining I have extreme stiffness in pelvic area, and shoulders, so much so I can't wipe my bum, without pulling muscles in my side (pain lasted 7...

despite explaining I have extreme stiffness in pelvic area, and shoulders, so m...

Hidden

•6 years ago

15 Replies

GCA and Polymyalgia

Hi everyone This is a first for me but having read your letters and discussions I felt it would be a help to be able to be in touch with others living in this...

Hi everyone This is a first for me but having read your letters and discussions...

Charlie789

•6 years ago

10 Replies

PMR newly diagnosed

Hi everyone, this is my first post. I was originally following the Psoriatic Arthritis posts but last week have now been given a PMR diagnosis. To give you a...

Hi everyone, this is my first post. I was originally following the Psoriatic Art...

jacdo

•6 years ago

11 Replies

Post PMR pains??

Hi, I was diagnosed with PMR just over 3 years ago. Started on 15mg pred and reduced to nothing (last 12 months on 1 or 2 mg only) a few months ago. I must say...

Hi, I was diagnosed with PMR just over 3 years ago. Started on 15mg pred and red...

David_H

•6 years ago

13 Replies

The new format - and problems...

In general I think the new format is better than the old one - however, it does seem to have some teething problems. I noticed someone had a phone problem but...

In general I think the new format is better than the old one - however, it does ...

PMRpro

Ambassador•6 years ago

22 Replies

Septic Arthritis diagnosed as PMR

Has anyone in this community been diagnosed with PMR only to later find they had a form of septic arthritis due to bacteria in blood stream ? Have been...

Has anyone in this community been diagnosed with PMR only to later find they had...

Scarter

•6 years ago

2 Replies

Consistency of predniselone? 🤔

Feeling loads better today! (in spite of a heavy cold & cough - first one in over a year) I went back up to 5mg 5 days ago, because I felt so terrible -...

Feeling loads better today! (in spite of a heavy cold & cough - first one in ove...

NWFiona

•6 years ago

15 Replies

"Well, Hello Doctor!"

It's been 77 days since my official, semi-conclusive PMR/GCA diagnosis. That's 77 days after waiting 19 days for the headache to go away (Yeah, yeah, stupid,...

It's been 77 days since my official, semi-conclusive PMR/GCA diagnosis. That's ...

Hidden

•6 years ago

21 Replies

Can Peripheral Neurophathy be a side affect of PMR

I was diagnosed with GCA over 2 years ago and with PMR a year ago. Around this time I began suffering from a sore back which was accompanied by pain and...

I was diagnosed with GCA over 2 years ago and with PMR a year ago. Around this ...

strathearn

•6 years ago

24 Replies

Catch that bus

Today I saw my bus idling at the stop. Normally I'd speed up my pmr walk, from slow, to slightly less slow... I found I could actually run a little, for the...

Today I saw my bus idling at the stop. Normally I'd speed up my pmr walk, from s...

teesher

•6 years ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2018

Fuzzy 'steroid head'

"There is a moon inside every human being. Learn to be companions with it." ~ Rumi

Prednisone and cholesterol

The Lighter Side: A Tale of Bill & Ben - PMR and the Flower Pot Men. All is Well in The Garden...Or is it..? ;-) :-/

Websites - useful stuff, articles, resources

NICE and tocilizumab

Tocilizumab

Fatigue

Period problems

Tell me lies, tell me sweet little lies...

UK to Australia travel tips

In bitesized portions

Reduce or not?

Apologies in advance for more nonsense than usual

sleepy time gal.

Prednisolone & Long Haul Flights

Latest EULAR guidelines on imaging for Large Vessel Vasculitis diagnosis

War On PMR (Cont.)

War on PMR.

Steroids reduction

Saw private consultant, not convinced I have PMR, but on 15mg of Prednisolone for 7 days to see if it relieves symptoms, any comments?

GCA and Polymyalgia

PMR newly diagnosed

Post PMR pains??

The new format - and problems...

Septic Arthritis diagnosed as PMR

Consistency of predniselone? 🤔

"Well, Hello Doctor!"

Can Peripheral Neurophathy be a side affect of PMR

Catch that bus

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