Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk
10,436 members18,969 posts

All posts for January 2020

Back to square one. Big flare up.

I’m so fed up as I thought I was getting there but I’ve just seen my GP and it’s...

having a good day today

Still on 35 mg, but slept lastnight from 1:00 to 6:30, nice. going to change my ...

Biosy

So after almost 2 weeks of no appointment coming through for me to have the bios...
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Update having seen GP

Saw GP yesterday bloods lovely she said. Now wants me to taper from 15mgs by 1mg...

On Actemra and 8mg Prednisone....trouble with tapering. Please help!

I started Actemra at the end of October and was on 10mg Prednisone. I was able t...

My pain in shoulder switched sides?

It is possible that the pain traveling to other sides of my body? I have had hi...

GP now on board with Pred back up to 7mg

I visited my GP who is an awesome female internist! I have been back up to 7mg ...

Insomnia from Pred or Lack of Melatonin?

My Mum has lost all light perception due to late diagnosis of GCA. I have been ...

Another post on low carb eating - theory and evidence

Well, at last, I'm impressed with the latest NHS diet advice, they've finally ch...

Toes

Has anyone had a flare in their toes?

Seem to running some infection?

Hi all - just want some advice. I seem to be running some infection started last...

Urea and Electrolytes

Serum Sodium range 133 - 146 Can I have some help please? In the last 5months my...

DF

Just thought I would share with people who understand. I‘ve been on 5 mg for 6 w...

6month update

Since last time I posted anything 6m ago, I have come down to 6mg pred and worki...

Reminder for no political posts

Dear members, please remember that our guidelines state no political posts which...

Taper question...

Do I continue to taper with shingles or do I hold at a steady dose or increase?

Now adding methotrexate

Well here I am went to the rheumy today, I called to give her update and she sai...

Thanks for good wishes ;(

The shingles are still blossoming...blistering and dripping...I'm really not fee...

Gca

Hi , I've been on prednisolone for suspected GCA ,started on 40mg .managed to ta...

Has anyone heard of this

I have had PMR 3 years. Could never get below 8 mgs of pred. Took methotrexate a...

Shingles and Prednisone

Looking for advise all your previous information has been so helpful. Backgroun...

Eye pain and GCA, Neurologist thinks are connected.

Had GCA since February 2016. During last 18 months have experienced stabbing pai...

Different presentations of PMR

Hi everyone. I have recently had a relapse, increased my steroids, ESR came dow...

Another frightening thing is happening to me.

For about the last week I have been waking up anywheee between 2 and 4 in the mo...

PMR no sleep at night

On 40 mg for one week, now on 35mg on my second week. Can only get around two ho...

Ear problems

Has anyone had trouble with their ears when reducing steroids for GCA. I had exc...

Sugar levels

Hi folks Just had my blood test results back and my glucose is down from 41 (pr...

Advice about handling work

I need some help in how i manage my PMR in terms of work. I am 54, had PMR for ...

Strange symptoms with taper

I’ve been on 13.75mg of prednisone for 10 days, tapering from 15. Overnight I de...

GCA mentioned on telly

On Trust me I'm a Doctor https://www.bbc.co.uk/programmes/articles/5qMFMJMZW5cZf...