Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

13,055 members • 23,690 posts

All posts for January 2016

Hyperbaric treatment

Does anyone know if hyperbaric treatment would be beneficial for GCA? Apparently it does help with some conditions with inflammation. Many thanks

Does anyone know if hyperbaric treatment would be beneficial for GCA? Apparently...

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Hello everybody

I am new to the site and pleased to be in touch with everyone. One question I have - It is 15 months since I was diagnosed with GCA, I have done ok I think,...

I am new to the site and pleased to be in touch with everyone. One question I ha...

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Worried and confused

Hi, I was finally diagnosed a year ago my gp said I'd need to be off pred ASAP as it wasn't safe to take for long periods so I was up and down on my dosage...

Hi, I was finally diagnosed a year ago my gp said I'd need to be off pred ASAP a...

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light headed

Why do I feel dizzy and light headed all of the time?

Why do I feel dizzy and light headed all of the time?

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Finally trying to reduce Prednisone dosage

I was diagnosed with PMR/GCA in May 2015. I started on Prednisone 40mg, but went up to 60mg when I had a GCA flare. It's been a rocky road since May. I just...

I was diagnosed with PMR/GCA in May 2015. I started on Prednisone 40mg, but went...

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Light therapy update

So, as some reading this will already know I've been getting low level light therapy as an experiment to help reduce inflammation. It had seemed helpful as I...

So, as some reading this will already know I've been getting low level light the...

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Hi, I have come across an article entitled How to control inflammation with your brain by Dr Shawna Darou, and Hacking the nervous system,

I have come across 2 articles, How to control inflammation with your brain, by Dr Shawna Darou. Hacking the nervous system by Gaia Vince. Both interesting,...

I have come across 2 articles, How to control inflammation with your brain, by D...

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CANADIAN PMR AND GCA DISCUSSIONS

A discussions board was set up recently for PMR/GCA discussions for those living in Canada. The link is...

A discussions board was set up recently for PMR/GCA discussions for those living...

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More symptoms but are they of PMR?

Hi, I have been reducing predict since November and recently on several occasions one leg has just given way as I have been walking, it's like the muscle...

Hi, I have been reducing predict since November and recently on several occasion...

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ON 13MG OF PRED BUT VERY PAINFUL ARMS IN THE MORNING

I was diagnosed in September and put on 20mg which I have got down to 13mg - I take this 5mg at 10pm and 8mg at 8am but when I wake up in morning I still have...

I was diagnosed in September and put on 20mg which I have got down to 13mg - I t...

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Calcichew

Post on other forum lady had letter from GP telling her to stop taking this as proven not to do anything for bone health ???!!!!! Anybody have any information

Post on other forum lady had letter from GP telling her to stop taking this as p...

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No sleep and pain getting worse

Diagnosed Dec 15. 30 mg of Prednisone took pain away instantly. Doc reduced the dose by half and I had full flare. Back up to 20 mg but had to stop as...

Diagnosed Dec 15. 30 mg of Prednisone took pain away instantly. Doc reduced th...

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Hi I'm Tony.

Had 3 black outs Saturday early morning. After hospital went to see my Gp who gave me tablets for my low blood pressure. Would like to know how long before...

Had 3 black outs Saturday early morning. After hospital went to see my Gp who ga...

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Pmr blood test

How often for a blood test after taking prednisalone for about two years? Down to 2 and a half pred now.

How often for a blood test after taking prednisalone for about two years? Down t...

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Some unexpected good news

I have PMR which was diagnosed in 2009 when I was 54. It's the usual story of starting at 15 mg of prednisolone and decreasing very slowly with sticking points...

I have PMR which was diagnosed in 2009 when I was 54. It's the usual story of st...

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Just Diagnosed

Hello Although I have constant pain ranging from pretty awful to fairly manageable, I don't think it is as severe as those who are posting on here (thank...

Hello Although I have constant pain ranging from pretty awful to fairly manageab...

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Legs again.....

I posted few days ago about my leaking legs. The diuretic medication has really helped to reduce the swelling in the legs and amazingly I have lost eleven...

I posted few days ago about my leaking legs. The diuretic medication has really ...

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Mike Aston

I was diagnosed with PMR in Nov 15 went to bed perfectly OK and couldn't get out of bed or put my socks on in the morning, and also had pains in my jaw. I went...

I was diagnosed with PMR in Nov 15 went to bed perfectly OK and couldn't get out...

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PMR and carpal tunnel problems

Have any of you had carpal tunnel problems on top of PMR. I've tapered to 5 mg. prednisone per day over the past 18 months, but I am now having carpal tunnel...

Have any of you had carpal tunnel problems on top of PMR. I've tapered to 5 mg....

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Floradix Supplement

Someone recommended that I try Floradix supplement for fatigue - anyone on here tried it, when I looked it seems it is more for anaemia but wondered if it was...

Someone recommended that I try Floradix supplement for fatigue - anyone on here ...

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Update and managing (?) tests

Saw my lovely GP this morning. Thankfully this time she did not try to arm twist me into taking osteoporosis medication. I asked about the inflammatory...

Saw my lovely GP this morning. Thankfully this time she did not try to arm twis...

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Tray

Feeling pleased that I managed to make my second meeting at the Maidstone support group...lovely people...and great support so thank you.

Feeling pleased that I managed to make my second meeting at the Maidstone suppor...

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Maidstone Meeting

I have just returned from the Maidstone support group and wanted to say a big thank you to all there for sharing their stories and experiences of this illness....

I have just returned from the Maidstone support group and wanted to say a big th...

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MRI Scan and pred

Just got back from hospital after getting result of ultrasound scan have one every 6months ,they have found a area they can not read so Iam to have MRI head...

Just got back from hospital after getting result of ultrasound scan have one eve...

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blurry eyes

Anyone experience a Vaseline type feeling in eye or eyes. Seems to come on worse when I lower the prednisone. Originally on 60 Dec 2014 tot down to 14 two...

Anyone experience a Vaseline type feeling in eye or eyes. Seems to come on wors...

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ESR is Borderline - Need another blood test. Confused!

Hey Everyone, I had a blood test end of Dec due to chronic migraines - It looked at all the main things as I have not had a blood test since I was a Child....

Hey Everyone, I had a blood test end of Dec due to chronic migraines - It looke...

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PMR, Steroids, Nose Bleeds

Diagnosed in October 2015 here in Spain, purely on history and symptoms. No blood tests taken. Started on 10mg prednisone which I know is lower than a normal...

Diagnosed in October 2015 here in Spain, purely on history and symptoms. No bloo...

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Prednisolone information booklet?

Does anyone know where I could get information about prednisolone and its benefits/side effects? I would be grateful for any help. Thank you.

Does anyone know where I could get information about prednisolone and its benefi...

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First Rheumy Appointment on Tuesday

Hello everyone, I have been on Predisolone since 28th October (20mg a day) recently dropped to 15mg. I have my first rheumy appointment at my local hospital...

Hello everyone, I have been on Predisolone since 28th October (20mg a day) recen...

PMRMiltonkeynes

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GCA

hi, this is my first post since being diagnosed in Nov.15 and just want to thank everyone for helping me understand and know how to handle this horrible...

hi, this is my first post since being diagnosed in Nov.15 and just want to thank...

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