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PMRGCAuk

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Hello newly diagnosed and awaiting referral

Hello my gp is fairly convinced I have GC and has referred me urgently to opthalmology. Been a few days and not heard anything. She started me on 40mg of...

Hello my gp is fairly convinced I have GC and has referred me urgently to opthal...

Dee101

•9 days ago

129 Replies

PMR Patient Videos

Some of you may be aware of - and some of you may have contributed to - our series of video stories from PMR patients. They have been created as part of the...

Some of you may be aware of - and some of you may have contributed to - our seri...

Fran_Benson

Partner•2 months ago

6 Replies

Feels like back to the beginning

I've reduced to 6 mg of prednisolone. My brain fog has improved quite a bit, but my symptoms have got worse in that I have have trouble lifting my body off a...

I've reduced to 6 mg of prednisolone. My brain fog has improved quite a bit, b...

Pris80

•3 months ago

12 Replies

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pmr help newbie

Hi, I came back from holiday with a stiff neck and shoulder pain it has lasted for 4 weeks .. I thought at first it was because the Airbnb I stayed at had only...

Hi, I came back from holiday with a stiff neck and shoulder pain it has lasted f...

Dedikodu

•3 months ago

22 Replies

Finally, at zero prednisone...still Actemra~!

I've certainly been off the grid with my trip to Maine and then an eight-day visit from my 19-year-old granddaughter from Canada. My brain and heart are just...

I've certainly been off the grid with my trip to Maine and then an eight-day vis...

Grammy80

•7 months ago

12 Replies

does physio help

I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg of Pred reducing slowly so that I’m now on 1.5mg. My doctor tells me this is a...

I’m a 73yr old woman who has had PMR for nearly three years. I started at 15mg o...

Gacaro

•7 months ago

13 Replies

Hands & Shoulders Pain When Tapering from 8mg

Hi All, I was tapering down great and doing a lot of cardio in the gym three times per week. As I got fitter, I started doing some lightweight repetitions. I...

Hi All, I was tapering down great and doing a lot of cardio in the gym three ti...

Lickle

•9 months ago

13 Replies

headache on top of head

I can’t remember posting this before?!? Bit of brain fog.. am 85 but no excuse. ?! I’m haveing problems with headaches on top of my head. Couple of times...

I can’t remember posting this before?!? Bit of brain fog.. am 85 but no excuse. ...

Bedwell

•11 months ago

18 Replies

switching to a carnivore diet has put my PMR into total remission

I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had...

I know the subject may be viewed as sensational or just plain wrong, but that is...

benhemp

•1 year ago

16 Replies

PMR flare, how much pain?

First, happy new year to the community Have not posted in a while, but wondering what a PMR flare feels like, how much pain should you expect vs something...

First, happy new year to the community Have not posted in a while, but wonderi...

Gilmor

•1 year ago

18 Replies

Is this PMR or something else?

Since coming back from holiday in November I have had lower back pain and in the hips which is affecting how I walk. Initially I put it down to lifting the...

Since coming back from holiday in November I have had lower back pain and in the...

Decsgran

•1 year ago

8 Replies

Covid

In early December I could only roll out of bed and not lift my arms in the morning. I would be waking up four or give times a night because of pain in one or...

In early December I could only roll out of bed and not lift my arms in the morni...

Birdlife

•1 year ago

14 Replies

What’s The Cause?

Just joined this group as I want to find out if anyone has been told by their consultant/specialist/doctor what causes PMR. I’m told it’s the immune system...

Just joined this group as I want to find out if anyone has been told by their co...

Pollymaggie

•1 year ago

33 Replies

Achilles tendinitis and neuropathy in feet

Dear All I know PMR pro had Achilles T in the past and I have had a few minor bouts and now a big bout Driving a lot lately to help my husband who cannot...

Dear All I know PMR pro had Achilles T in the past and I have had a few minor ...

bluegirl7

•1 year ago

14 Replies

Query Re First Few Days: Prednisolone :Edited

Firstly, a huge thank you for everyone's support/responses to my introductory post - I am bowled over, obviously feeling a little sensitive because I spent...

Firstly, a huge thank you for everyone's support/responses to my introductory po...

Hopeful66

•1 year ago

17 Replies

To walk or not to walk?

I've recently been diagnosed with PMR and started on 15mg of Prednisolone which has now been reduced to 12mg. The meds are defiitely working but the stiffness...

I've recently been diagnosed with PMR and started on 15mg of Prednisolone which ...

CupOfEarlGrey

•1 year ago

24 Replies

a wonderful read for everyone

just reading “the well lived life” by Dr. Gladys McGarey . 102 years old and 80 of them in medicine. A real make the most of it and healthy too. Highly...

just reading “the well lived life” by Dr. Gladys McGarey . 102 years old and 8...

Gossiplady

•1 year ago

2 Replies

Doctor won't diagnose PMR

I'm absolutely certain that I have PMR. But my blood tests all came back normal, including the erythrocyte sedimentation rate and the inflammatory marker...

I'm absolutely certain that I have PMR. But my blood tests all came back normal...

Creas

•1 year ago

41 Replies

Questions and Advice Needed

I’ve had PMR for a year now. Like many, it hit me overnight, striking my neck, shoulders and hips to the point where I could barely function. My inflammatory...

I’ve had PMR for a year now. Like many, it hit me overnight, striking my neck, s...

Lenore58

•2 years ago

20 Replies

Prednisone increase what is best time

Diagnosed with PMR in Dec 2020. Started 30mg Prednisone and with help of supplements came down to 2.5mg (not completely pain free) but was managing until...

Diagnosed with PMR in Dec 2020. Started 30mg Prednisone and with help of supplem...

Anic

•2 years ago

10 Replies

Extreme pelvic area pain when over extending

eg if I twist my leg whilst walking or perhaps have a fall whilst hiking or other activity I might twist my leg and it causes extreme pain in the hip area. I...

eg if I twist my leg whilst walking or perhaps have a fall whilst hiking or othe...

fast_peddler

•2 years ago

15 Replies

4/30 FLARE better but shoulder pain continues. Need feedback, please!

Good evening/ good morning/ good afternoon ALL! Hope you are enjoying spring. It’s cool here so spring has held on. The scent of mock orange and honeysuckle...

Good evening/ good morning/ good afternoon ALL! Hope you are enjoying spring....

Chicama

•2 years ago

4 Replies

Possibility it’s not PMR

Hi, I was diagnosed with PMR a few years ago and have been on Pred since then. I’ve been tapering off of Pred with a few flare ups but managed to get down to...

Hi, I was diagnosed with PMR a few years ago and have been on Pred since then. ...

SunshineJSM

•2 years ago

13 Replies

Tapering strategy

I guess this depends somewhat on how long you’ve been on steroids and how they are affecting your overall health. Is it better to allow some mild symptoms to...

I guess this depends somewhat on how long you’ve been on steroids and how they a...

Body_bonkers

•2 years ago

23 Replies

unsure how to increase prednisone with flare

Diagnosed with pmr on 1 November and started on Prednisolone 15 mgs. This was increased to 20 mgs after 3 days as the 15 hadn’t helped, Was on 20 mgs for 18...

Diagnosed with pmr on 1 November and started on Prednisolone 15 mgs. This was in...

Malaga47

•2 years ago

12 Replies

UPDATE; Overwhelmed; unbearable pain with a 'cascade of subsequent pain', can't figure out anything anymore? Does anybody else get this?

I would like to say a huge, heartfelt thank-you to everybody who has replied to my post in the last 48 hours. The incredible expression and wave of care and...

I would like to say a huge, heartfelt thank-you to everybody who has replied to ...

Poppy_the_cat

•2 years ago

22 Replies

Temperature and inflammation

I developed PMR around 18 months ago, and have been on prednisolone for 14 months. Like others, I would like to taper down and get off the steroids as soon as...

I developed PMR around 18 months ago, and have been on prednisolone for 14 month...

PRL1957

•2 years ago

23 Replies

First Rheumy Appointment......PLUS Surgery

Hi everyone :) I have been a bit busy with appointments and today a Rheumatologist appointment was booked for Feb 9th.... This will be the first for me as...

Hi everyone :) I have been a bit busy with appointments and today a Rheumatologi...

Hidden

•2 years ago

102 Replies

Knee replacement soon & on 8mgs pred

I am finally in the pipeline for one of my knee replacements in 6-8wks time. I have been reducing very slowly from 15mg and currently on 8mg. I have decided I...

I am finally in the pipeline for one of my knee replacements in 6-8wks time. I h...

Esradral

•2 years ago

24 Replies

What to expect on 3mg/day pred, and monthly tapering...

I've been on various doses of Pred since Sept 2021, and diagnosed with PMR Mar22. I'm currently tapering Pred by 1mg/month (at 3mg and two weeks in). My...

I've been on various doses of Pred since Sept 2021, and diagnosed with PMR Mar22...

PixiePMR

•2 years ago

10 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

PMR Symptoms posts

Hello newly diagnosed and awaiting referral

PMR Patient Videos

Feels like back to the beginning

pmr help newbie

Finally, at zero prednisone...still Actemra~!

does physio help

Hands & Shoulders Pain When Tapering from 8mg

headache on top of head

switching to a carnivore diet has put my PMR into total remission

PMR flare, how much pain?

Is this PMR or something else?

Covid

What’s The Cause?

Achilles tendinitis and neuropathy in feet

Query Re First Few Days: Prednisolone :Edited

To walk or not to walk?

a wonderful read for everyone

Doctor won't diagnose PMR

Questions and Advice Needed

Prednisone increase what is best time

Extreme pelvic area pain when over extending

4/30 FLARE better but shoulder pain continues. Need feedback, please!

Possibility it’s not PMR

Tapering strategy

unsure how to increase prednisone with flare

UPDATE; Overwhelmed; unbearable pain with a 'cascade of subsequent pain', can't figure out anything anymore? Does anybody else get this?

Temperature and inflammation

First Rheumy Appointment......PLUS Surgery

Knee replacement soon & on 8mgs pred

What to expect on 3mg/day pred, and monthly tapering...

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