Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,293 members • 38,017 posts

All posts for May 2016

Pacing - I'm always on about it in PMR/GCA, here are some tips

Every month on the Lupus UK forum they publish a "topic of the month". This month it is about going on holiday - and how to enjoy it! One of their points is...

Every month on the Lupus UK forum they publish a "topic of the month". This mont...

PMRpro

Ambassador•8 years ago

13 Replies

Relief after steroid injection - does this mean anything?

Hello All: I have been suffering from morning stiffness, pain in my hips, neck, shoulders, wrists and hands. Plus sensitive left temple, brief left temple...

Hello All: I have been suffering from morning stiffness, pain in my hips, neck, ...

softekcom

•8 years ago

14 Replies

Not a happy chappy. Got PMR for a second time.

First time lasted 2.5 years and affected arms and shoulders. "Clean" for three years now back and affecting my legs, hips and hands. The first time I started...

First time lasted 2.5 years and affected arms and shoulders. "Clean" for three y...

Bob-Doc

•8 years ago

6 Replies

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Visual disturbance and urgent appointment - advice please

Hi Ive not posted on here for a while since I was diagnosed with PMR (aged 51) in March and got invaluable support and advice from you then, so I'm back...

Hi Ive not posted on here for a while since I was diagnosed with PMR (aged 51) i...

lucy65

•8 years ago

9 Replies

GCA ?

I have been taking Pred for over a year now in up and down doses. My GP is treating me for PMR but from reading peoples symptoms on this site, I don't have...

I have been taking Pred for over a year now in up and down doses. My GP is trea...

Mintymow

•8 years ago

5 Replies

pain, crippling, even with a stick,20 min sleep at 9,11,3,8,bed at 10,pain in feet,legs,shoulders,forearms

I am in my 3rd year of reducing the PRED to nearly 11mg-been reducing on a 7-8 wk cycle. Generally doing OK and then diagnosed with Spinal Stenosis -thought at...

I am in my 3rd year of reducing the PRED to nearly 11mg-been reducing on a 7-8 w...

Hidden

•8 years ago

2 Replies

New Diagnosis

Hi everyone, Many months ago i came on this site when a specialist thought i had PPRG and i was started on a weeks trial of steroids which made no diference....

Hi everyone, Many months ago i came on this site when a specialist thought i had...

yorkshiregirl44

•8 years ago

3 Replies

Achilles Tendons

Hi All, does anyone else get problems with pain in the Achilles' tendons, I was diagnosed with Pmr last October then in November I started with a flare up in...

Hi All, does anyone else get problems with pain in the Achilles' tendons, I was ...

Pebble-Sue55

•8 years ago

18 Replies

Blood shot eye???

Hello, I'm hopeing it's nothing, but in the last 10days I've had first my right eye became bloodshot, checked in an opticians and he said it was ok, probably...

Hello, I'm hopeing it's nothing, but in the last 10days I've had first my right ...

isabella2015

•8 years ago

11 Replies

Bath Cafe Meet Up June 6th

Members who are in the area would be most welcome to join us at 2:30pm at Garfukels in Bath for a cuppa and a supportive chat with others. Pat M

Members who are in the area would be most welcome to join us at 2:30pm at Garfuk...

Hidden

•8 years ago

3 Replies

Hip pain

After several months of getting stiffer and stiffer..knees,arms,feet,hands I realised I was totally exhausted and took myself to my GP. He gave me...

After several months of getting stiffer and stiffer..knees,arms,feet,hands I rea...

juliaselsey

•8 years ago

13 Replies

Prednisolone reduction causing depression

Hi, lovely people, I have a question regarding depression on Prednisolone reduction. It is unbelievable the difference from taking 10mg on which I felt well,...

Hi, lovely people, I have a question regarding depression on Prednisolone reduc...

annettepackham

•8 years ago

11 Replies

My story so far

This is my first post and story so far........ I was diagnosed with GCA and PMR in July last year after one month's illness. I was put on 40mg of Prednisolone...

This is my first post and story so far........ I was diagnosed with GCA and PMR ...

LizMitchell

•8 years ago

21 Replies

Reducing Prednisilone and Azathioprine

I have now reduced from 60 mg Prednisilone to 50mg in two steps and at the same time taking AzathioprineI as a new med. Does anyone know what the Azathioprine...

I have now reduced from 60 mg Prednisilone to 50mg in two steps and at the same ...

christine2715

•8 years ago

5 Replies

Advice on PMR and cancer

Diagnosed with PMR in March this year and been on pred ever since - now 14mg. I hadnt heard of it previously so bought Kate Gilbert's book on PMR and GCA to...

Diagnosed with PMR in March this year and been on pred ever since - now 14mg. I ...

CarrieP

•8 years ago

12 Replies

Hi everyone

Hi everyone, my name is Jenny, I'm 42 and have PMR, arthritis, sciatica and bursitis. I was diagnosed with PMR about 6 weeks ago and my symptoms were severe,...

Hi everyone, my name is Jenny, I'm 42 and have PMR, arthritis, sciatica and burs...

Jenlouh

•8 years ago

17 Replies

Alternative to Prednisolone

Hello all, wondering if anyone can advice me please? Diagnosed with GCA in 2013 managed to get off pred for about 3 weeks in 2015 but needed to go back on as...

Hello all, wondering if anyone can advice me please? Diagnosed with GCA in 2013 ...

suszannah

•8 years ago

6 Replies

PMR and The Lighter Side - The ‘Boss’ holds Delicate Negotiations with the Adrenal Department

So, enough’s enough. As the 'Boss' around here, and after 12 months with PMR, I need to re-mobilise the Adrenal Team after their long lay-off. But how...

So, enough’s enough. As the 'Boss' around here, and after 12 months with PMR,...

markbenjamin57

•8 years ago

59 Replies

gca and Actemra

Anyone on Actemra monthly infusions and what can you tell me? Started 60 mgs. of pred. back in December of 2014 got down to 15 jan 2015 but since Feb back on...

Anyone on Actemra monthly infusions and what can you tell me? Started 60 mgs. o...

cassey1879

•8 years ago

12 Replies

What are the early signs of gca

I have had PMR for 2 years and am down to 4g of pred this week my left temple is affected by a very Slight pain now and again being that I am becoming hypo...

I have had PMR for 2 years and am down to 4g of pred this week my left temple is...

granelliheywood

•8 years ago

4 Replies

So Tired all the time

I was originally diagnosed with PMR last June and after an initial dose of 15 mg of Pred which only had an improvement of 70%, my dose was upped to 30 mg....

I was originally diagnosed with PMR last June and after an initial dose of 15 mg...

Dobermanlover

•8 years ago

8 Replies

Dosage upped today and told I must take Fosamax.

Hello all, Well finally saw new Rheumy today, the one that the Neuro Opthomologist referred me to and now both confirmed definite PMR and mild GCA. He said...

Hello all, Well finally saw new Rheumy today, the one that the Neuro Opthomologi...

Shastring

•8 years ago

22 Replies

Alternative therapy, the continuing story

If anyone wants background on this, please refer to my previous posts, available by clicking on my profile. For the past few weeks my visits to...

If anyone wants background on this, please refer to my previous posts, available...

HeronNS

•8 years ago

11 Replies

Any idea ?

Why is it I always feel bit better after a glass of wine. Or two ?? 💐X

Emilytom52

•8 years ago

22 Replies

General Anaesthetic😕

Hi everyone, further to my 'women's problems' that I posted about a few weeks ago I now have to have a general anaesthetic in two weeks time. Just wondered how...

Hi everyone, further to my 'women's problems' that I posted about a few weeks ag...

mamma1027

•8 years ago

8 Replies

Stowmarket coffee meeting

Will be upstairs at The Lime Tree Cafe, 1 Market Place, Buttermarket, Stowmarket, on Thursday, 26th May. Join us if you are in the area.

Will be upstairs at The Lime Tree Cafe, 1 Market Place, Buttermarket, Stowmarket...

Vanner460

•8 years ago

1 Reply

WHAT MEDICATION TO TAKE FOR COLDS

Hi I have a cold and am not sure what medication to take with Pred- on 10mg at present for PMR. You may think a strange post but the last time I had a cold I...

Hi I have a cold and am not sure what medication to take with Pred- on 10mg at p...

r-o-y-1

•8 years ago

15 Replies

Newbie needs some advice

Hello to all, I am new here but have been reading posts for the last two weeks. Diagnosed with PMR beginning of February with text book blood levels. Lots of...

Hello to all, I am new here but have been reading posts for the last two weeks. ...

bunnymom

•8 years ago

28 Replies

INTERESTINGLY!!

hi i last wrote when expecting my appt with rheumatology i had this and had blood tests and xrays.she wrote to my doctor and said i had a inflammatory...

hi i last wrote when expecting my appt with rheumatology i had this and had blo...

tootired424

•8 years ago

Be the first to reply

Pain in shoulder joints and on top

I've had PMR 2 1/2 years now and just tapered to 0mg Medrol, mostly out of fear of what steroids will do, as it's already caused osteoporosis. I still have...

I've had PMR 2 1/2 years now and just tapered to 0mg Medrol, mostly out of fear ...

tiasbear

•8 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2016

Pacing - I'm always on about it in PMR/GCA, here are some tips

Relief after steroid injection - does this mean anything?

Not a happy chappy. Got PMR for a second time.

Visual disturbance and urgent appointment - advice please

GCA ?

pain, crippling, even with a stick,20 min sleep at 9,11,3,8,bed at 10,pain in feet,legs,shoulders,forearms

New Diagnosis

Achilles Tendons

Blood shot eye???

Bath Cafe Meet Up June 6th

Hip pain

Prednisolone reduction causing depression

My story so far

Reducing Prednisilone and Azathioprine

Advice on PMR and cancer

Hi everyone

Alternative to Prednisolone

PMR and The Lighter Side - The ‘Boss’ holds Delicate Negotiations with the Adrenal Department

gca and Actemra

What are the early signs of gca

So Tired all the time

Dosage upped today and told I must take Fosamax.

Alternative therapy, the continuing story

Any idea ?

General Anaesthetic😕

Stowmarket coffee meeting

WHAT MEDICATION TO TAKE FOR COLDS

Newbie needs some advice

INTERESTINGLY!!

Pain in shoulder joints and on top

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