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PMRGCAuk

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A bit confused about when to take various tablets: Pred, EvaCal, Vit K2 Mk7, Vit D3 and a question about Alendronic Acid

GP has now confirmed PMR after blood test results last week and has prescribed EvaCal tablets and Alendronic Acid in addition to Lansoprazole and Prednisolone...

GP has now confirmed PMR after blood test results last week and has prescribed E...

Preposterous

•11 days ago

21 Replies

Ozempic, Wegovy, Mounjaro, etc?

hi. My mom (F, 80) has had diagnosed PMR for about 4 years. She’s been able to taper to a pretty low dose of prednisone-but this last flare was bad. I’m...

hi. My mom (F, 80) has had diagnosed PMR for about 4 years. She’s been able to t...

Snowescape

•25 days ago

6 Replies

Adrian Chiles and a Pill Box

I really enjoy reading Adrian Chiles columns in the Guardian. He talks his way through all manner of life and his viewpoints... This one cracked Liz and I......

I really enjoy reading Adrian Chiles columns in the Guardian. He talks his way ...

discoballs

•1 month ago

13 Replies

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Best time to take pred?

I was Recently (3 dys ago) diagnosed with PMR and started a 15mg dose of pred. it immediately helped but on 2nd day I was a bit achy - still much better than...

I was Recently (3 dys ago) diagnosed with PMR and started a 15mg dose of pred. i...

Digory

•4 months ago

22 Replies

Methotrexate or not?

I had my second appointment with my new rheumatologist this morning, he is very thorough, and I'm to have chest xray, hip and leg ultrasound and shoulders and...

I had my second appointment with my new rheumatologist this morning, he is very ...

Kiwisufferer2019

•10 months ago

24 Replies

A supplementary question about Lansoprazole

Following the responses to Donaloge’s thread, I’m wondering if I need to be taking an ’azole at all. I always have yogurt and/or kefir with my breakfast (2-3...

Following the responses to Donaloge’s thread, I’m wondering if I need to be taki...

calibriel

•1 year ago

4 Replies

extra pred

hi - haven’t been on for a while. Been coping in two pred per day. Had covid in oct - no problem at all! Then sixth jab recently. Have got a terrible bug (not...

hi - haven’t been on for a while. Been coping in two pred per day. Had covid in...

Pongo13

•1 year ago

3 Replies

Cold Achoo for 3 weeks...

I am really disliking this cold I've had for three weeks! Grrr... It seems like Sinusitis as my nose is forever blocked and when I blow my nose bleeds at...

I am really disliking this cold I've had for three weeks! Grrr... It seems like...

discoballs

•1 year ago

7 Replies

LDN (Low Dose Naltrexone) for PMR?

Has anyone had experience using LDN for their PMR? Following my initial PMR diagnosis fall of 2021 I was put on 15mg of prednisone. I couldn't tolerate it,...

Has anyone had experience using LDN for their PMR? Following my initial PMR di...

mppk

•1 year ago

12 Replies

Can Blindness be caused by using Aldara (Imiquimod) with GCA?

My dermatologist is once again pushing Aldara (in the US, it's called Imiquimod) to help control my pre-cancerous skin "spots" (Actinic Keratosis) on my head....

My dermatologist is once again pushing Aldara (in the US, it's called Imiquimod)...

LIVEORDIEHEREIAM

•2 years ago

4 Replies

DOES ANYONE HAVE EXPERIENCE TAKING METFORMIN AS A PREVENTIVE MEASURE

I AM A 66-year old female who was in top condition 18 months ago. It was a year before I received the PMR diagnosis and it's been 12 weeks since I've been on...

I AM A 66-year old female who was in top condition 18 months ago. It was a year ...

CroquetGirl

•2 years ago

10 Replies

Methotrexate

Has anyone taken methotrexate to reduce or become completely off prednisone and then stop taking methotrexate for PMR? Or did you need to stay on MTX to...

Has anyone taken methotrexate to reduce or become completely off prednisone and ...

Macadoo

•2 years ago

16 Replies

oral NSAIDs vs topical NSAIDs

I always wondered if topical NSAIDs were gentler on the body than oral NSAIDs. This is an interesting article:...

I always wondered if topical NSAIDs were gentler on the body than oral NSAIDs. T...

kulina

•2 years ago

7 Replies

1000 mg of B3 a day?

My dermatologist is pushing me to take 1000 mg of oral Nicotinamide, a form of vitamin B3, a day because it can ward off skin cancer. I am Scandinavian by...

My dermatologist is pushing me to take 1000 mg of oral Nicotinamide, a form of v...

LIVEORDIEHEREIAM

•2 years ago

2 Replies

Actemra and chest discomfort

Tomorrow will be my third injection of Actemra as I attempt to taper from 40 mg daily down to 30 mg daily. I have more headaches than usual but nothing I...

Tomorrow will be my third injection of Actemra as I attempt to taper from 40 mg ...

91066Jackson

•2 years ago

7 Replies

Does this ever go away on its own?

Does anyone ever get over this PMR? if so, can you tell me how long it took? how did you taper steroids. Did you just live with the pain and not do steroids at...

Does anyone ever get over this PMR? if so, can you tell me how long it took? how...

ifeelold

•2 years ago

80 Replies

Curveball: Actemra and Fosamax!

I got a second opinion on my PMR situation and the new doc immediately wanted to put me on Actemra and Fosamax. I didn't agree to do it yet, so I could query...

I got a second opinion on my PMR situation and the new doc immediately wanted to...

Greytree

•2 years ago

72 Replies

Information on reducing steroids

I found this information thought it may be helpful for this forum thanks

Woody1951

•2 years ago

21 Replies

Alternative to prednisone

I am about to be tapered off prednisone and put on the biologic medication Actemra (Tocilizumab) as my rheumatologist says the long term effects of prednisone...

I am about to be tapered off prednisone and put on the biologic medication Actem...

Strelitzia

•2 years ago

21 Replies

Availability of Tocilizumab [TCZ] on NHS

The original NICE gidance on Tocilizumab , TA518, was to be reviewed in 2021. Has that review taken place? Have there been any indications that the 1 year...

The original NICE gidance on Tocilizumab , TA518, was to be reviewed in 2021. H...

GCA-TCZ

•2 years ago

8 Replies

Getting frustrated!

Hi all, I’ve been on 2.5mg Prednisolone now since around August 2021, having started at 60mg back in November 2018. At my last conversation with the...

Hi all, I’ve been on 2.5mg Prednisolone now since around August 2021, having sta...

Lyndaki

•2 years ago

23 Replies

I’m being ahead of my game but....

I’m currently on a slow taper (DL’s regime] and have stayed on 4 mg for about 4 weeks now (having reduced very slowly by 0.5mg each time]. I’m definitely not...

I’m currently on a slow taper (DL’s regime] and have stayed on 4 mg for about 4 ...

Doraflora

•2 years ago

13 Replies

What about Pepcid (famotidine)?

I am in the US and take OTC Pepcid (Famotidine) for the stomach effects of Pred. I notice that in the forum, most of you are taking other acid reducers....

I am in the US and take OTC Pepcid (Famotidine) for the stomach effects of Pred....

LIVEORDIEHEREIAM

•2 years ago

35 Replies

Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?

I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ injections 8 weeks ago. I need to stop taking the pred. I’m wary as I have...

I have tapered down (from 40mg) to 5mg pred. I began a course of weekly TCZ inj...

Erikaknitssocks

•2 years ago

4 Replies

Any positive results from taking Methotrexate?

Does anyone have any positive results from taking Methotrexate? I am on 6 tablets 2.5 mg once a week. Plus I am taking 5 mg twice a day of Prednisone. I was...

Does anyone have any positive results from taking Methotrexate? I am on 6 tablet...

Chris0808

•2 years ago

29 Replies

Methotrexate study to be carried out

"About 1.3 million people in the UK are on methotrexate........ A previous study from Korea showed that a fortnight's break from methotrexate immediately after...

"About 1.3 million people in the UK are on methotrexate........ A previous study...

ignatz

•2 years ago

2 Replies

Help/ Advice needed on Biphosphonates

Would welcome some comments/advice from anyone with experience of biphosphonates. I've had my Dexa results - have mixed T score results. Spine is the worst...

Would welcome some comments/advice from anyone with experience of biphosphonates...

Humphreydonk

•2 years ago

36 Replies

Drug overload

I’ve been on prednisone for a year now, starting at 60mg , tapered to 7, had a flare and up to 15mg. Added TCZ about 6 months ago. Dr thinks I need to add...

I’ve been on prednisone for a year now, starting at 60mg , tapered to 7, had a f...

Tucki

•2 years ago

8 Replies

Drug Interactions……

Patients can often be confused about mixing Prescription Drugs with Supplements & Vitamins. Even Prescribed Drugs need checking against each other for...

Patients can often be confused about mixing Prescription Drugs with Supplements ...

MrsNails

•2 years ago

12 Replies

Help on dosing

Can I mix and match prednisolone tablets? eg. 5+2.5+1. = 8.5 or 5+1+1+1+1/2. = 8.5 Going to taper slower than rheumatologist says. Thank you.

Can I mix and match prednisolone tablets? eg. 5+2.5+1. = 8.5 or 5+1+1+1+1/2...

Crommie

•3 years ago

11 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Medications posts

A bit confused about when to take various tablets: Pred, EvaCal, Vit K2 Mk7, Vit D3 and a question about Alendronic Acid

Ozempic, Wegovy, Mounjaro, etc?

Adrian Chiles and a Pill Box

Best time to take pred?

Methotrexate or not?

A supplementary question about Lansoprazole

extra pred

Cold Achoo for 3 weeks...

LDN (Low Dose Naltrexone) for PMR?

Can Blindness be caused by using Aldara (Imiquimod) with GCA?

DOES ANYONE HAVE EXPERIENCE TAKING METFORMIN AS A PREVENTIVE MEASURE

Methotrexate

oral NSAIDs vs topical NSAIDs

1000 mg of B3 a day?

Actemra and chest discomfort

Does this ever go away on its own?

Curveball: Actemra and Fosamax!

Information on reducing steroids

Alternative to prednisone

Availability of Tocilizumab [TCZ] on NHS

Getting frustrated!

I’m being ahead of my game but....

What about Pepcid (famotidine)?

Does anyone know whether I will experience steroid withdrawal even though I’m on tocilizumab?

Any positive results from taking Methotrexate?

Methotrexate study to be carried out

Help/ Advice needed on Biphosphonates

Drug overload

Drug Interactions……

Help on dosing

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