Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,318 members • 38,053 posts

All posts for October 2022

tapering increments

I have just successfully tapered from 8mg to 7mg using the NSNS method with a few small twinges along the way. Do you think I should start the next taper...

I have just successfully tapered from 8mg to 7mg using the NSNS method with a fe...

Storm-boy

•1 year ago

25 Replies

Are natural remedies effective instead of Prednisolone?

Hi. For the last three weeks I have experienced a return of Polymyalgia leaving extreme difficulty in raising arms, walking and bending down. Seven years...

Hi. For the last three weeks I have experienced a return of Polymyalgia leavin...

Twitcher1

•1 year ago

9 Replies

OK It is Halloween so I am being naughty and going off Piste.

https://www.jibjab.com/view/make/i_will_survive/2916ecd0-f2ef-457b-8968-7bb4fe17dddf?utm_source=cordial&utm_medium=email&utm_campaign=2022_10_20_randomizer_RS_2

https://www.jibjab.com/view/make/i_will_survive/2916ecd0-f2ef-457b-8968-7bb4fe17...

jinasc

•1 year ago

20 Replies

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Sick day rules and Covid

There have been a number of posts recently concerning the above topic. Assuming that I have followed the correct link ,the document attached detailing the...

There have been a number of posts recently concerning the above topic. Assuming...

MichaelW

•1 year ago

23 Replies

Stomach Pain

Hello fellow PMR sufferers. My first post and hoping you can help. I have a new symptom which is causing me significant pain/discomfort. The pain is right...

Hello fellow PMR sufferers. My first post and hoping you can help. I have a ne...

PipandDots

•1 year ago

18 Replies

sciatic or PMR

Diagnose in January this year . Come down to 24,mg by August & was reducing by 2mg every 5 weeks. Had morning &, evening stillness & small amounts of pain but...

Diagnose in January this year . Come down to 24,mg by August & was reducing by 2...

Vito5566

•1 year ago

34 Replies

Fibromyalgia v GCA/PMR

I was diagnosed with "probable GCA" by Rheumatologist just under 3years ago. I was feeling unwell (general malaise, aches and and pains, headache, low...

I was diagnosed with "probable GCA" by Rheumatologist just under 3years ago. I ...

Broomser

•1 year ago

10 Replies

Aleve/Naproxin?

My rheumatologist told me not to take Ibuprofen while on Prednisone. I am at 10/mg per day of Prednisone. Last night I had a headache due to returning to our...

My rheumatologist told me not to take Ibuprofen while on Prednisone. I am at 10/...

ProcrastiBaker

•1 year ago

6 Replies

Prednisone timing

I have been taking my prednisone at around 3.00 am, which has worked well for me. Am now at 7mg and reducing to 6.5. It seems sensible to move my first dose...

I have been taking my prednisone at around 3.00 am, which has worked well for me...

Jane424

•1 year ago

7 Replies

one and tingling in feet

Since being on prednisolone for one I have had a sort of tingling and mild numbness in the soles of my feet. It does not interfere with walking but wondered if...

Since being on prednisolone for one I have had a sort of tingling and mild numbn...

Stargiver

•1 year ago

17 Replies

The mother of all flares!

I have been having my worst flare ever in the 10 plus years of PMR. I have increased pred to 22.5 from 11 mgs and it is still not yet fully under control. I...

I have been having my worst flare ever in the 10 plus years of PMR. I have incre...

suzy1959

•1 year ago

49 Replies

Advice please

After 9 years since GCA diagnosis & finally down to 3.5mg prednisolone, I was beginning to feel that my GCA was going into remission. Then I contracted Covid a...

After 9 years since GCA diagnosis & finally down to 3.5mg prednisolone, I was be...

theresa49

•1 year ago

8 Replies

My rheumy wants me off of prednisone as soon as possible

First of all, thanks to everyone who replied me, and gave me valuable advice on my previous post. This is an update. Previously, I mentioned that I wasn't...

First of all, thanks to everyone who replied me, and gave me valuable advice on ...

Morningdew62

•1 year ago

39 Replies

Returning to lower dose again

Four years on reached 2mg prednisone 3 months ago using a slow taper. After six weeks I started a .25 mg taper reaching 1.25mg feeling okay though some...

Four years on reached 2mg prednisone 3 months ago using a slow taper. After s...

KinnearD

•1 year ago

6 Replies

GCA worries

I’m mildly concerned about my eyesight. I have been on Pred for over 3 years. It was started at 30mg for PMR, and GCA in the family. Down eventually to 6mg,...

I’m mildly concerned about my eyesight. I have been on Pred for over 3 years. I...

Abbeynan82

•1 year ago

20 Replies

Leflunomide side effects

I have been taking Leflunomide 10 mg for a few weeks and initially other than feeling more sleepy in the afternoon thought I was fairing o.k . This week I am...

I have been taking Leflunomide 10 mg for a few weeks and initially other than fe...

Devoid

•1 year ago

19 Replies

Off-Piste but helpful

Apologies for this but i have noticed an interest in writing. Probably all the time we seem to have not being so mobile and reflecting on the WHY of things. I...

Apologies for this but i have noticed an interest in writing. Probably all the t...

cycli

•1 year ago

12 Replies

Polymyalgia Rheumatica explained

This is a helpful video https://www.youtube.com/watch?v=QsHIle6u0BY Bert

This is a helpful video https://www.youtube.com/watch?v=QsHIle6u0BY Be...

Hidden

•1 year ago

19 Replies

No steriods,methotrexate only

wordering if anyone else has had my experience I am diagnosed GCA and PMR didn't take steriods except one injection at beginning (2 years ago)been on...

wordering if anyone else has had my experience I am diagnosed GCA and PMR didn'...

WaltzG

•1 year ago

12 Replies

not sure what happens now?

so, about 10 days ago I had my biopsy, after being on 40mg pred for a couple of weeks. Result was a bit inconclusive, I’ve also had my Rheumy consult with a...

so, about 10 days ago I had my biopsy, after being on 40mg pred for a couple of ...

Cfmad298601

•1 year ago

7 Replies

rheumatoid question

trying to get on the right site, but not having much luck. Any suggestions for someone recently diagnosed with rhuematoid arthritis

trying to get on the right site, but not having much luck. Any suggestions for ...

remission

•1 year ago

9 Replies

telephant consult

Waited from 8 a.m. till 3 p.m. for phone to ring . Doctor asked what dose of steroids are you on? 2.25 mg daily I said. So, you are on 2 25mg? It just went...

Waited from 8 a.m. till 3 p.m. for phone to ring . Doctor asked what dose of st...

Mazxstitch

•1 year ago

8 Replies

Is this an adrenal problem

I am now 5 years into my PMR journey, and currently at 4mg-I had a flare a few weeks ago, and had to go up to 10mg for 5 days, and then dropped back to 4mg,...

I am now 5 years into my PMR journey, and currently at 4mg-I had a flare a few w...

Purplegloss

•1 year ago

5 Replies

9am Cortisol Test & what happens if adrenal insufficiency is confirmed please

Feeling terrible and pretty sure its adrenal problems as Im on 5mg Pred about to reduce. I have a 9am cortisol test on Monday but just wondered what happens if...

Feeling terrible and pretty sure its adrenal problems as Im on 5mg Pred about to...

HappyDiamonds

•1 year ago

32 Replies

Rheumatoid arthritis

I had PMR for two years and when I finally got off of prednisone I was so grateful, thinking I. Now have my life back and then yesterday visit with my...

I had PMR for two years and when I finally got off of prednisone I was so gratef...

remission

•1 year ago

6 Replies

Here we go again. Back to 10mg

Just had a relapse last week. I was down to 3.5. I tried 4, then 5,then 8. Extreme pain in the mornings getting out of bed and getting dressed. finally called...

Just had a relapse last week. I was down to 3.5. I tried 4, then 5,then 8. Extre...

ifeelold

•1 year ago

7 Replies

Tapering but should I go further?

May I say how very useful I have found the questions and answers/advice I have found on this site...quite invaluable. I wonder if I could receive advice on my...

May I say how very useful I have found the questions and answers/advice I have f...

tempusfugi

•1 year ago

15 Replies

A Dilemma

I've had PMR for just over 2 years and up until May this year I have been able to reduce my prednisolone down to 2 mg. Since May I have had 3 flares and...

I've had PMR for just over 2 years and up until May this year I have been able t...

Callymac

•1 year ago

15 Replies

GCA and heart palpitations

Hello good people I Started on 60mg pred back in August currently tapering down at 35mg, now noticing I’m getting heart palpitations the last week which...

Hello good people I Started on 60mg pred back in August currently tapering down ...

WHL67

•1 year ago

8 Replies

Systemic sclerosis diagnosis for hubby after 2 years

After 2 years of waiting for the NHS, paying out thousands for private consultations and tests, only to be referred back to the NHS and have all the tests...

After 2 years of waiting for the NHS, paying out thousands for private consult...

Broseley

•1 year ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2022

tapering increments

Are natural remedies effective instead of Prednisolone?

OK It is Halloween so I am being naughty and going off Piste.

Sick day rules and Covid

Stomach Pain

sciatic or PMR

Fibromyalgia v GCA/PMR

Aleve/Naproxin?

Prednisone timing

one and tingling in feet

The mother of all flares!

Advice please

My rheumy wants me off of prednisone as soon as possible

Returning to lower dose again

GCA worries

Leflunomide side effects

Off-Piste but helpful

Polymyalgia Rheumatica explained

No steriods,methotrexate only

not sure what happens now?

rheumatoid question

telephant consult

Is this an adrenal problem

9am Cortisol Test & what happens if adrenal insufficiency is confirmed please

Rheumatoid arthritis

Here we go again. Back to 10mg

Tapering but should I go further?

A Dilemma

GCA and heart palpitations

Systemic sclerosis diagnosis for hubby after 2 years

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2022

tapering increments

Are natural remedies effective instead of Prednisolone?

OK It is Halloween so I am being naughty and going off Piste.

Sick day rules and Covid

Stomach Pain

sciatic or PMR

﻿Fibromyalgia v GCA/PMR

Aleve/Naproxin?

Prednisone timing

one and tingling in feet

The mother of all flares!

Advice please

My rheumy wants me off of prednisone as soon as possible

﻿Returning to lower dose again

GCA worries

Leflunomide side effects

Off-Piste but helpful

Polymyalgia Rheumatica explained

﻿No steriods,methotrexate only

not sure what happens now?

rheumatoid question

﻿telephant consult

Is this an adrenal problem

9am Cortisol Test & what happens if adrenal insufficiency is confirmed please

Rheumatoid arthritis

Here we go again. Back to 10mg

Tapering but should I go further?

A Dilemma

GCA and heart palpitations

﻿Systemic sclerosis diagnosis for hubby after 2 years

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Fibromyalgia v GCA/PMR

Returning to lower dose again

No steriods,methotrexate only

telephant consult

Systemic sclerosis diagnosis for hubby after 2 years