Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for May 2017

I'm a bit confused.........

.......... which happens sometimes!! I started my first three week reduction on Sunday and followed the doctor's suggestion of reducing from 15mg to 12 and a...

.......... which happens sometimes!! I started my first three week reduction o...

Janann25

•7 years ago

15 Replies

PMR have I reduced to much to fast ?

H i All , I thought I was doing so well , after a 2 year slow reduction from 20mg I was down to 2mg not a big fan of cutting tablets so 2 weeks ago I went for...

H i All , I thought I was doing so well , after a 2 year slow reduction from 20m...

Gaz227

•7 years ago

21 Replies

Advice on timing of lower doses

I have been on 5/6mg this month as month has gone on finding big difference in energy levels between 5 and 6 days. Start on 5mg Thursday take pred about 9am...

I have been on 5/6mg this month as month has gone on finding big difference in e...

olive2709

•7 years ago

8 Replies

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Moon face, weight gain. Only into month two of GCA

Hello All, Thanks again for the posts. I've been following most of them, especially regarding the side effects of prednisone and weight gain. I am on 60 mg...

Hello All, Thanks again for the posts. I've been following most of them, especi...

Tj2017

•7 years ago

23 Replies

wedding pred

My daughter gets married on Saturday and my other daughter is flying over this weekend with my grandson for 2 weeks' celebration so I can already feel the...

My daughter gets married on Saturday and my other daughter is flying over this w...

kezzybabes

•7 years ago

13 Replies

Can anyone advise

Hi. I am a 71 yr old female and before PMA and GCA was pretty fit, I thought! My diagnosis was confirmed by biopsi in 23 march. I have been on 70mg...

Hi. I am a 71 yr old female and before PMA and GCA was pretty fit, I thought! ...

Hidden

•7 years ago

14 Replies

pins and needles

Can anyone enlighten me about the above where does it come from, is it connected to PMR, or something else

Can anyone enlighten me about the above where does it come from, is it connected...

kingharold11

•7 years ago

9 Replies

Up date on hip/ back pain

Just an up date on things. Well I increase the steroid up to 10 mg from 7.5 mg as suggested by mr Dr. last Wednesday after the paracetamol did nothing. And...

Just an up date on things. Well I increase the steroid up to 10 mg from 7.5 mg ...

9lives

•7 years ago

7 Replies

GCA treatment

I was diagnosed with GCA in Sep 2015. I was on 60 mgs of pred for 6 weeks til my blood pressure sky rocketed, then it was dropped to 35 and told to keep...

I was diagnosed with GCA in Sep 2015. I was on 60 mgs of pred for 6 weeks til my...

simoncla

•7 years ago

18 Replies

Rapid reduction update!

Hi all, I hope you are having a good Bank Holiday weekend, just thought I'd check in and let you know how things are going, still anxiously awaiting my...

Hi all, I hope you are having a good Bank Holiday weekend, just thought I'd che...

Trixiechamp

•7 years ago

8 Replies

Walking stick anyone?????

Today, Viv over on VasculitisUK shared this article from the Guardian....

PMRpro

Ambassador•7 years ago

57 Replies

Hi All, First time poster on this forum! Similar to most complicated case theme!

I recently stumbled across this website while desperately searching for some explanation into PMR after my farther was diagnosed with it about 5 weeks ago...

I recently stumbled across this website while desperately searching for some exp...

Sonofjimmy

•7 years ago

11 Replies

What a difference .5mg makes !

Previous post yesterday described awful pain in shoulders and feeling really under the weather. I took an extra .5mg this morning going back up to 5 mg and the...

Previous post yesterday described awful pain in shoulders and feeling really und...

Pamela60

•7 years ago

4 Replies

Is this PMR

Hya everyone. GCA diagnosed 19 months ago I've successfully reduced pred to 5mg but just dropped to 4.5mg over a week ago and I'm in terrible pain....

Hya everyone. GCA diagnosed 19 months ago I've successfully reduced pred to 5m...

Pamela60

•7 years ago

20 Replies

Finally made the move back to New Jersey.

If you recall I could not find a doctor to treat me for GCA in Florida. So since June 2014 I have been through 7 rheumatologist and a trip to the mayo clinic...

If you recall I could not find a doctor to treat me for GCA in Florida. So sinc...

Nap1

•7 years ago

8 Replies

Update after trip

Hi everyone, You may remember from my last update that I was having temple pain and was checked out at hospital for suspected GCA which, they said it was not...

Hi everyone, You may remember from my last update that I was having temple pain ...

PatB1948

•7 years ago

4 Replies

I cant find my post

Hi everybody, this may sound stupid but I posted on here a day or so ago and now I cant find it I am Sailorman and having problems with PMR and reducing my...

Hi everybody, this may sound stupid but I posted on here a day or so ago and now...

sailorman

•7 years ago

10 Replies

GCA

Hello, I am new to this group, found the forum by accident earlier this month. I was diagnosed with GCA last October having previously been told the pain in my...

Hello, I am new to this group, found the forum by accident earlier this month. I...

Freddie01

•7 years ago

6 Replies

Catchup on Autoimmune Condition that I may have

Dear All I've got GCA-Reading through the posts that so many of you sent in answer to mine, I realised that there are some questions that I should have...

Dear All I've got GCA-Reading through the posts that so many of you sent in answ...

GCA1947

•7 years ago

1 Reply

Naughty

Hi folks have been a naughty person I took an extra 5 mg of steroids this morning and it is getting me through the day so much easier feeling it very strange...

Hi folks have been a naughty person I took an extra 5 mg of steroids this mornin...

Rusty8

•7 years ago

13 Replies

How much to bump up?

I have been at 12.5 for some months. I am currently taking plaquenil for 6 weeks in hopes that it will reduce inflammation and I will be able to then reduce to...

I have been at 12.5 for some months. I am currently taking plaquenil for 6 weeks...

bunnymom

•7 years ago

8 Replies

Pred and foot problems

Hi there I am experiencing regular problems with my feet for the past few months. Like walking with lumps under your feet, walking on glass and feeling...

Hi there I am experiencing regular problems with my feet for the past few months...

1602

•7 years ago

15 Replies

Calcichew*D3 Forte

Hello folks, I have been reading the thread of another post about taking the calcium and vitamin D3 supplement and have read through the SIX page printout I...

Hello folks, I have been reading the thread of another post about taking the cal...

Zebedee44

•7 years ago

17 Replies

Journey begins with polymyalgia Rheumatica

I am posting for the first time. After the doctor thought I was having back problems and was sent to have an MRI and then to a back surgeon. He wanted to try...

I am posting for the first time. After the doctor thought I was having back pro...

JoanElaine

•7 years ago

16 Replies

Tea and chat, Woodbridge, Suffolk

Tea/coffee and chat on Thursday 29th June at 2.00 Wyevale Garden Centre Woodbridge Suffolk All welcome. Sue

Tea/coffee and chat on Thursday 29th June at 2.00 Wyevale Garden Centre Woodbri...

Soosie56

•7 years ago

2 Replies

GCA little light at the end of the tunnel !

I am sharing this in case others are on a similar path. I have had GCA for a year and gone from 40mg prednisolone to my current level of 4mg. No problems...

I am sharing this in case others are on a similar path. I have had GCA for a yea...

DevonMichael

•7 years ago

17 Replies

So is this GCA?

Hi, I am new here and find extraordinary comfort in reading the experiences and advice of fellow sufferers. I took the initial diagnosis of PMR very lightly,...

Hi, I am new here and find extraordinary comfort in reading the experiences and ...

Cookiekelly

•7 years ago

11 Replies

3 week check-up and another question

Well, I saw the doctor this evening for my first check-up since being diagnosed with PMR. I explained that the steroids had performed their usual "miracle" and...

Well, I saw the doctor this evening for my first check-up since being diagnosed ...

Janann25

•8 years ago

43 Replies

Research into causes of GCA

Today I received a letter of invitation to take part in a research project being undertaken by the University of Leeds who are looking into the causes of GCA....

Today I received a letter of invitation to take part in a research project being...

DevonMichael

•8 years ago

10 Replies

Was doing so well now back/hip problem

Hi everyone I'm really frustrated as had been doing really well since the new year. I was diagnosed a year ago this week with PMR.and started on 20mg. since...

Hi everyone I'm really frustrated as had been doing really well since the new ye...

9lives

•8 years ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2017

I'm a bit confused.........

PMR have I reduced to much to fast ?

Advice on timing of lower doses

Moon face, weight gain. Only into month two of GCA

wedding pred

Can anyone advise

pins and needles

Up date on hip/ back pain

GCA treatment

Rapid reduction update!

Walking stick anyone?????

Hi All, First time poster on this forum! Similar to most complicated case theme!

What a difference .5mg makes !

Is this PMR

Finally made the move back to New Jersey.

Update after trip

I cant find my post

GCA

Catchup on Autoimmune Condition that I may have

Naughty

How much to bump up?

Pred and foot problems

Calcichew*D3 Forte

Journey begins with polymyalgia Rheumatica

Tea and chat, Woodbridge, Suffolk

GCA little light at the end of the tunnel !

So is this GCA?

3 week check-up and another question

Research into causes of GCA

Was doing so well now back/hip problem

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