Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2019

Mosquitoes

I y in Tobago and doing ok, but I am plagued by mosquitoes. This is my third holiday here and it hasn't happened before. I am using repellent and wipes and...

I y in Tobago and doing ok, but I am plagued by mosquitoes. This is my third hol...

Jeanjean16

•5 years ago

17 Replies

Diagnosis (after a fashion)

Well, there we are then. Rheumatologist has decided that I have probable gca. Probable because of the negative biopsy and blood results. I'm to begin...

Well, there we are then. Rheumatologist has decided that I have probable gca. Pr...

Linda3009

•5 years ago

13 Replies

Impetigo

Hi everyone, I am still on Pred for PMR and should be meeting someone tomorrow who has been diagnosed with Impetigo. Would it be advisable to give them a wide...

Hi everyone, I am still on Pred for PMR and should be meeting someone tomorrow w...

Attic

•5 years ago

9 Replies

Want to take advantage of all our features? Just log in!

First post

Hello, this is my first post. I was diagnosed with PMR on 10 June this year and started on 20mg Pred daily for 2 weeks (it worked after the first dose, like a...

Hello, this is my first post. I was diagnosed with PMR on 10 June this year and...

Billswife

•5 years ago

12 Replies

Dry eyes

Hi I believe dry eyes are to do with PMR. Can anyone recommend eye drops for this please that you can buy over the counter in England. Thanks

Hi I believe dry eyes are to do with PMR. Can anyone recommend eye drops for thi...

Koalajane

•5 years ago

64 Replies

PMRGCA daily emails have suddenly stopped.

I have not received my daily community emails for 2 days now. I would be grateful if some one could look into this. El50.

I have not received my daily community emails for 2 days now. I would be gratefu...

El50

•5 years ago

3 Replies

So had PET scan still pain in every joint

Had my PET scan and the results were clear, I my specialist who did a series of Xray s basically all my joints, these were clear. He admitted he was at a loss...

Had my PET scan and the results were clear, I my specialist who did a series of ...

PMRHortons

•5 years ago

15 Replies

First split dose last night. No pain ,no stiffness, NO SLEEP! ☹️

Took my dose of 5mg Pred at 10:30 last night after eating a pot of yoghurt. Lay awake until 1:30 then got sort of mild tummy ache which lasted another two...

Took my dose of 5mg Pred at 10:30 last night after eating a pot of yoghurt. Lay...

Smokygirl

•5 years ago

23 Replies

When to taper down?

Help again please. Does anyone have a clever system to know when it is OK to reduce your prednisolone dose. Presently, every morning I record how I feel....

Help again please. Does anyone have a clever system to know when it is OK to red...

HamishPMR

•5 years ago

13 Replies

Update from BFP

Hi all. Having spent 3.5 weeks on huge steroids for flares in hospital, I have now been given just under 3 weeks in a rehab unit as lost tons of mobility. It...

Hi all. Having spent 3.5 weeks on huge steroids for flares in hospital, I have n...

Bfp1

•5 years ago

5 Replies

Dental with osteo on pred

I will call rheumy about this tomorrow. This weeks gastroenterology appt was about same as past. Reflux, dysphagia, esoph dysmotility & ?? Esophagitis again....

I will call rheumy about this tomorrow. This weeks gastroenterology appt was abo...

Spanky2019

•5 years ago

8 Replies

My finger nails are growing strong again!

Four plus years into this adventure and I have a good sign of some return to normalcy. I have always had strong nails and the splitting and shattering going...

Four plus years into this adventure and I have a good sign of some return to nor...

clieder

•5 years ago

19 Replies

Aching Arms

When I was diagnosed in Aug. 2018 my ESR reading was 25 and my CRP 53. My readings have come down to ESR 7 and CRP 3.2. This tells me the inflammation is under...

When I was diagnosed in Aug. 2018 my ESR reading was 25 and my CRP 53. My readin...

Robinsnest72

•5 years ago

12 Replies

Upcoming appointment

Hi all . So tomorrow I have an appointment with a rheumatologist. It's been 8 weeks since I first saw my GP. I want to make sure I get the most out of this....

Hi all . So tomorrow I have an appointment with a rheumatologist. It's been 8 we...

Linda3009

•5 years ago

14 Replies

Update on Melatonin for sleep

A few weeks ago, I posted regarding Melatonin as a sleep aid, promising to return with an update after a few... Well, here are the findings...non...

A few weeks ago, I posted regarding Melatonin as a sleep aid, promising to retur...

Purplecrow

•5 years ago

10 Replies

Snap, crackle, pop

Every since my muscles and joints began loosening up after taking prednisone, my neck sounds like a bowl of rice crispies whenever I turn it. Thought maybe it...

Every since my muscles and joints began loosening up after taking prednisone, my...

Hidden

•5 years ago

6 Replies

Vitamin k2

We are frequently told by the media now that taking vitamins can interfere with our medications. Thinking of ordering k2 but do wonder if it’s ok as I take a...

We are frequently told by the media now that taking vitamins can interfere with ...

Wayfair

•5 years ago

20 Replies

Knee Pain Only

Hello, I was tapering from a high dose of prednisone (suspected GCA) for 22 months now. Got down to 3.0 and crashed! I followed advice from all (going up...

Hello, I was tapering from a high dose of prednisone (suspected GCA) for 22 mon...

Pamk1949

•5 years ago

29 Replies

Advice please.

I've just completed my first full week on 7mg after a very slow reduction. For the last three days I have had slight niggles and pulsing on my right temple...

I've just completed my first full week on 7mg after a very slow reduction. For t...

maria40

•5 years ago

5 Replies

On Pred and going onto Methotrexate - help needed

HI, I am on 15 mg Prednisolone and my Rhuemy finally agreed to diagnose me with Palindromic Rheumatism )after 16 months on steroids) so he is putting me on...

HI, I am on 15 mg Prednisolone and my Rhuemy finally agreed to diagnose me with ...

Theziggy

•5 years ago

16 Replies

The magic came last night 80% — Hurrah! However didn’t last til morning.

So relieved to say that I had a much much better night last — my third night on Pred. Went to sleep at 12 midnight. I didn’t wake up as usual at 2:00am and...

So relieved to say that I had a much much better night last — my third night on ...

Smokygirl

•5 years ago

6 Replies

Methotrexate tablets or Injections

I have changed from Methotrexate tablets to injections. What a difference...no more daily nausea thankfully. Injections easy to do too. For me this has really...

I have changed from Methotrexate tablets to injections. What a difference...no m...

Blomps

•5 years ago

15 Replies

Mixed up

Thanks for replies I had breast cancer in 2008 but not being treated for that or anything else at the moment

Thanks for replies I had breast cancer in 2008 but not being treated for that or...

vlrdngh

•5 years ago

7 Replies

Jan

I started at 15 mg. Its a relapse aft 9 years started 3 months ago.Tried to go from 10 to 9 but aft four days my legs are burning and sore.Do i go back to 10?

I started at 15 mg. Its a relapse aft 9 years started 3 months ago.Tried to go f...

Hunter134

•5 years ago

4 Replies

ADRENAL GLANDS WORKING ?

Could you please help with the name of the test needed roascertain whether adrenal glands will take over if steroid medication ends ? Thank you x

Could you please help with the name of the test needed roascertain whether adre...

Polylinc

•5 years ago

26 Replies

Someone asked about Low Dose Naltrexone.

I thought I would post this on main site so that people can read. I have an unusual journey. I have been on LDN for about 2 weeks now. I am not sure if it has...

I thought I would post this on main site so that people can read. I have an unu...

lemarie1

•5 years ago

2 Replies

Late taker

This morning, I woke at 7am after sleeping through my intended 5 mg dosage, which I should have taken at 2am. My arms were aching ( that's what woke me up)...

This morning, I woke at 7am after sleeping through my intended 5 mg dosage, whic...

YuliK

•5 years ago

8 Replies

dexa scan and AA

Well this morning i made the visit to see my Dr regarding the Dexa scan. After reading it she said it would be advised for you to have AA, and i replied that...

Well this morning i made the visit to see my Dr regarding the Dexa scan. After ...

Blackcat1M

•5 years ago

8 Replies

Duration of PMR

In reply to another post, PMRpro has written "PMR only goes away in under 2 years for a third of patients". Is there any way of knowing whether one falls into...

In reply to another post, PMRpro has written "PMR only goes away in under 2 year...

Cross-stitcher

•5 years ago

37 Replies

First dose of methotrexate

Hi everyone , I'm feeling a bit nervous ...... I took my first dose of methotrexate today . Any words of advice , warning, observations would be welcome ! I'm...

Hi everyone , I'm feeling a bit nervous ...... I took my first dose of methotrex...

katiemills

•5 years ago

65 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2019

Mosquitoes

Diagnosis (after a fashion)

Impetigo

First post

Dry eyes

PMRGCA daily emails have suddenly stopped.

So had PET scan still pain in every joint

First split dose last night. No pain ,no stiffness, NO SLEEP! ☹️

When to taper down?

Update from BFP

Dental with osteo on pred

My finger nails are growing strong again!

Aching Arms

Upcoming appointment

Update on Melatonin for sleep

Snap, crackle, pop

Vitamin k2

Knee Pain Only

Advice please.

On Pred and going onto Methotrexate - help needed

The magic came last night 80% — Hurrah! However didn’t last til morning.

Methotrexate tablets or Injections

Mixed up

Jan

ADRENAL GLANDS WORKING ?

Someone asked about Low Dose Naltrexone.

Late taker

dexa scan and AA

Duration of PMR

First dose of methotrexate

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive