Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,272 members • 37,962 posts

All posts for March 2020

Too much prednisone?

I know it is bad, but I was so desperate. I've felt pain in the PMR places for a week, and today it was just too much. I'd taken my25 mg in the morning, but...

I know it is bad, but I was so desperate. I've felt pain in the PMR places for...

Trevgrrl

•4 years ago

13 Replies

COVID 19 - WEDNESDAY 1ST APRIL

Please put all covid related chat on here. You just press reply and ask your question, comment or put information about covid 19. These are links to virtual...

Please put all covid related chat on here. You just press reply and ask your que...

Yellowbluebell

•4 years ago

58 Replies

Hello and thankyou

Hello, I am new to the site . I wished I had discovered it sooner- I have found more helpful info here than from any GP etc. I am 12months into PMR //...

Hello, I am new to the site . I wished I had discovered it sooner- I have found...

moorfield

•4 years ago

13 Replies

Want to take advantage of all our features? Just log in!

Bizarre

Well, Yellowbluebelle, Seems to me, my post was directly related to PMR ... did you not actually read it . Or did you just see the word COViD and hit the...

Well, Yellowbluebelle, Seems to me, my post was directly related to PMR ... did...

rockyandzeus

•4 years ago

4 Replies

Tapering Pred, on methotrexate

Hello all Hope you are all keeping as well as possible. I'm hoping someone will be able to give me advice here. I started on 10 mg pred and 15mg MTX in...

Hello all Hope you are all keeping as well as possible. I'm hoping someone will ...

Melti

•4 years ago

14 Replies

Do you live/work in the UK? Have you received your letter about risk for Covid 19? If not ...

https://healthunlocked.com/vasculitis-uk/posts/143078196/covid-19-risk-assessment-vuk?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=notification&utm_mediu

https://healthunlocked.com/vasculitis-uk/posts/143078196/covid-19-risk-assessmen...

PMRpro

Ambassador•4 years ago

38 Replies

Does prednisone dose in PMR patients modify severity of COVID 19?

Good day all, I have had PMR for several years and I am on 15 mg Pred. I have been ill with a respiratory infection for 9 days. I am awaiting Covid test...

Good day all, I have had PMR for several years and I am on 15 mg Pred. I have b...

rockyandzeus

•4 years ago

1 Reply

On my Final Month ! ( I Hope🙏)

Hello, lovely People at Health Unlocked. Hope you are all doing well, during these awful times. Just a bit of help/ advice please. Was diagnosed Sept 2018 ....

Hello, lovely People at Health Unlocked. Hope you are all doing well, during the...

Stifffingers

•4 years ago

34 Replies

Domestic Cleaners

Hi, I’m bit confused as to where this query belongs so please forgive me if it isn’t here. Is the general feeling that we should not have our cleaners because...

Hi, I’m bit confused as to where this query belongs so please forgive me if it i...

Thelmarina

•4 years ago

84 Replies

Prednisolone for 14 months.

Started on prednisolone at 25mg & reduced to 15mg after a couple of months. Found it difficult to reduce at that rate after reaching 15. Now down to 12mg after...

Started on prednisolone at 25mg & reduced to 15mg after a couple of months. Foun...

Hidden

•4 years ago

10 Replies

THINK BEFORE YOU POST 2.......from JINASC

By jinasc Poopadoop added...it might be pred head, brain fade, age or sheer panic but think before you post.

By jinasc Poopadoop added...it might be pred head, brain fade, age or sheer pan...

Hidden

•4 years ago

10 Replies

Covid Chat Tuesday 31st March- "As an isolated older person, I've been deeply moved by the sacrifices of others"Dorothy Byrne

Today's chat suggested by Rache and is a discussion article with Dorothy Byrne, long time GCA advocate who has appeared discussing her GCA experiences on...

Today's chat suggested by Rache and is a discussion article with Dorothy Byrne, ...

Hidden

•4 years ago

26 Replies

Tapering and change of status

So I started off ( in January) on 40mg prednisolone which was then upped to 60mg. I have been tapering and was on 30 when my gp told me I was classed in high...

So I started off ( in January) on 40mg prednisolone which was then upped to 60mg...

Phoenix51

•4 years ago

12 Replies

Why does PMR burn out eventually ?

Does anyone know why PMR and GCA burn out eventually, when many autoimmune conditions are lifelong? Just curious about the mechanism and wonder if the science...

Does anyone know why PMR and GCA burn out eventually, when many autoimmune condi...

Daisyfield

•4 years ago

5 Replies

Do I really have PMR or was it Pneumonia

In December my GP put me on steroids after I described the pain etc, associated with what he decided was PMR The pain went away for a few days but came back...

In December my GP put me on steroids after I described the pain etc, associated ...

yorkieme

•4 years ago

6 Replies

Adrenals

I have GCA. started October 2018 at 60prednisone. Now on 12.5. What about my adrenals? Clicking in now?? Too soon ?? Thanks.

I have GCA. started October 2018 at 60prednisone. Now on 12.5. What about my a...

alvertta

•4 years ago

28 Replies

Should you be shielding or just being REALLY strict about keeping away from people? A flow chart from Addenbrookes to work it out

https://healthunlocked.com/vasculitis-uk/posts/143069641/chart-to-work-out-if-you-are-high-risk?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=notification

https://healthunlocked.com/vasculitis-uk/posts/143069641/chart-to-work-out-if-yo...

PMRpro

Ambassador•4 years ago

103 Replies

Fell down. Increase prednisone dose?

As if there isn't enough to worry about, I fell down when walking on Friday. I landed on my left side, on the scapular area. I definitely did something to my...

As if there isn't enough to worry about, I fell down when walking on Friday. I l...

Navion

•4 years ago

11 Replies

Actemra side effects

I had to be taken off of Actemra, it caused Diverticulitis & a abscesses on My bowl & stomach, way to many side effects. Sorry for the negative reply but I...

I had to be taken off of Actemra, it caused Diverticulitis & a abscesses on My b...

beringer

•4 years ago

3 Replies

New HU search function

https://healthunlocked.com/latest/posts/private/143068973/new-%E2%80%98most-positive%E2%80%99-search-and-improved-colour-accessibility?

https://healthunlocked.com/latest/posts/private/143068973/new-%E2%80%98most-posi...

HeronNS

•4 years ago

2 Replies

Can you give me the best definition for PMR to share with others?

Good Morning from Michigan. I often have people who do not know what PMR is say "I hope you feel better soon." Could you give me a great way to let them know...

Good Morning from Michigan. I often have people who do not know what PMR is say...

singingloud

•4 years ago

31 Replies

Deliveries

I have just read that the virus can stay on some things for 72 hours. Can someone please tell me how we can have groceries delivered without these things...

I have just read that the virus can stay on some things for 72 hours. Can someo...

Constance13

•4 years ago

6 Replies

Covid chat "OFFICIAL" - 30th March.. 5 Top Tips from an "expert" remaining on Rockall in the Atlantic Ocean provided by skinnyjonny

I hope you don’t mind but I’d like to share the story below which I’ve put out to PMRGCAuk North East members, and on Facebook, and it’s been received with a...

I hope you don’t mind but I’d like to share the story below which I’ve put out t...

Skinnyjonny

•4 years ago

32 Replies

Actemra

Has anyone been on it for GCA? What was your experience?

Darcy2000

•4 years ago

6 Replies

PMR

Can you have a relapse from tapering off of prednisone after 3 months?

Najalara

•4 years ago

4 Replies

Normalisation of blood pressure

Just a happy observation to share...3.5 years of PMR now on 3.5, going onto 3.00 mg....with the Covid 19 calamity and us in NZ. On lockdown my blood pressure...

Just a happy observation to share...3.5 years of PMR now on 3.5, going onto 3.00...

Kaaswinkel

•4 years ago

6 Replies

Blurred vision - alternatives to Tocilizumab

One of our PMRGCAuk members has sent the following question: "My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been...

One of our PMRGCAuk members has sent the following question: "My mother has GCA ...

Skinnyjonny

•4 years ago

12 Replies

K2

I am reducing from 25mg of prednisone and am now at 3&1/2-4. Was taking 250 mg of magnesium and vitamin K2. Had a personal problem so stopped the magnesium to...

I am reducing from 25mg of prednisone and am now at 3&1/2-4. Was taking 250 mg o...

Robinsnest72

•4 years ago

17 Replies

Clarifying the current Covid posts position....again

If a post mentions how X and y helps, hinders, or relates to covid then please put it in the covid chat...or be prepared to have replies turned off. We may...

If a post mentions how X and y helps, hinders, or relates to covid then please ...

Hidden

•4 years ago

1 Reply

How long did you have PMR symptoms before your Diagnosis?

Thinking about how long I had PMR symptoms before my Diagnosis, the best I can come up with is about three years. Never heard of PMR until my Diagnosis. I...

Thinking about how long I had PMR symptoms before my Diagnosis, the best I can c...

LIVEORDIEHEREIAM

•4 years ago

52 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2020

Too much prednisone?

COVID 19 - WEDNESDAY 1ST APRIL

Hello and thankyou

Bizarre

Tapering Pred, on methotrexate

Do you live/work in the UK? Have you received your letter about risk for Covid 19? If not ...

Does prednisone dose in PMR patients modify severity of COVID 19?

On my Final Month ! ( I Hope🙏)

Domestic Cleaners

Prednisolone for 14 months.

THINK BEFORE YOU POST 2.......from JINASC

Covid Chat Tuesday 31st March- "As an isolated older person, I've been deeply moved by the sacrifices of others"Dorothy Byrne

Tapering and change of status

Why does PMR burn out eventually ?

Do I really have PMR or was it Pneumonia

Adrenals

Should you be shielding or just being REALLY strict about keeping away from people? A flow chart from Addenbrookes to work it out

Fell down. Increase prednisone dose?

Actemra side effects

New HU search function

Can you give me the best definition for PMR to share with others?

Deliveries

Covid chat "OFFICIAL" - 30th March.. 5 Top Tips from an "expert" remaining on Rockall in the Atlantic Ocean provided by skinnyjonny

Actemra

PMR

Normalisation of blood pressure

Blurred vision - alternatives to Tocilizumab

K2

Clarifying the current Covid posts position....again

How long did you have PMR symptoms before your Diagnosis?

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A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

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