Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

13,384 members • 24,364 posts

All posts for March 2020

Too much prednisone?

I know it is bad, but I was so desperate. I've felt pain in the PMR places for a week, and today it was just too much. I'd taken my25 mg in the morning, but...

I know it is bad, but I was so desperate. I've felt pain in the PMR places for...

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COVID 19 - WEDNESDAY 1ST APRIL

Please put all covid related chat on here. You just press reply and ask your question, comment or put information about covid 19. These are links to virtual...

Please put all covid related chat on here. You just press reply and ask your que...

YellowbluebellAmbassador

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Hello and thankyou

Hello, I am new to the site . I wished I had discovered it sooner- I have found more helpful info here than from any GP etc. I am 12months into PMR //...

Hello, I am new to the site . I wished I had discovered it sooner- I have found...

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Bizarre

Well, Yellowbluebelle, Seems to me, my post was directly related to PMR ... did you not actually read it . Or did you just see the word COViD and hit the...

Well, Yellowbluebelle, Seems to me, my post was directly related to PMR ... did...

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Tapering Pred, on methotrexate

Hello all Hope you are all keeping as well as possible. I'm hoping someone will be able to give me advice here. I started on 10 mg pred and 15mg MTX in...

Hello all Hope you are all keeping as well as possible. I'm hoping someone will ...

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Do you live/work in the UK? Have you received your letter about risk for Covid 19? If not ...

https://healthunlocked.com/vasculitis-uk/posts/143078196/covid-19-risk-assessment-vuk?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=notification&utm_mediu

https://healthunlocked.com/vasculitis-uk/posts/143078196/covid-19-risk-assessmen...

PMRproAmbassador

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Does prednisone dose in PMR patients modify severity of COVID 19?

Good day all, I have had PMR for several years and I am on 15 mg Pred. I have been ill with a respiratory infection for 9 days. I am awaiting Covid test...

Good day all, I have had PMR for several years and I am on 15 mg Pred. I have b...

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On my Final Month ! ( I Hope🙏)

Hello, lovely People at Health Unlocked. Hope you are all doing well, during these awful times. Just a bit of help/ advice please. Was diagnosed Sept 2018 ....

Hello, lovely People at Health Unlocked. Hope you are all doing well, during the...

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Domestic Cleaners

Hi, I’m bit confused as to where this query belongs so please forgive me if it isn’t here. Is the general feeling that we should not have our cleaners because...

Hi, I’m bit confused as to where this query belongs so please forgive me if it i...

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Prednisolone for 14 months.

Started on prednisolone at 25mg & reduced to 15mg after a couple of months. Found it difficult to reduce at that rate after reaching 15. Now down to 12mg after...

Started on prednisolone at 25mg & reduced to 15mg after a couple of months. Foun...

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THINK BEFORE YOU POST 2.......from JINASC

By jinasc Poopadoop added...it might be pred head, brain fade, age or sheer panic but think before you post.

By jinasc Poopadoop added...it might be pred head, brain fade, age or sheer pan...

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Covid Chat Tuesday 31st March- "As an isolated older person, I've been deeply moved by the sacrifices of others"Dorothy Byrne

Today's chat suggested by Rache and is a discussion article with Dorothy Byrne, long time GCA advocate who has appeared discussing her GCA experiences on...

Today's chat suggested by Rache and is a discussion article with Dorothy Byrne, ...

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Tapering and change of status

So I started off ( in January) on 40mg prednisolone which was then upped to 60mg. I have been tapering and was on 30 when my gp told me I was classed in high...

So I started off ( in January) on 40mg prednisolone which was then upped to 60mg...

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Why does PMR burn out eventually ?

Does anyone know why PMR and GCA burn out eventually, when many autoimmune conditions are lifelong? Just curious about the mechanism and wonder if the science...

Does anyone know why PMR and GCA burn out eventually, when many autoimmune condi...

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Do I really have PMR or was it Pneumonia

In December my GP put me on steroids after I described the pain etc, associated with what he decided was PMR The pain went away for a few days but came back...

In December my GP put me on steroids after I described the pain etc, associated ...

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Adrenals

I have GCA. started October 2018 at 60prednisone. Now on 12.5. What about my adrenals? Clicking in now?? Too soon ?? Thanks.

I have GCA. started October 2018 at 60prednisone. Now on 12.5. What about my a...

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Should you be shielding or just being REALLY strict about keeping away from people? A flow chart from Addenbrookes to work it out

https://healthunlocked.com/vasculitis-uk/posts/143069641/chart-to-work-out-if-you-are-high-risk?uid=eaba7d6c-c725-415f-81b4-a26e00dcd92d&utm_source=notification

https://healthunlocked.com/vasculitis-uk/posts/143069641/chart-to-work-out-if-yo...

PMRproAmbassador

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Fell down. Increase prednisone dose?

As if there isn't enough to worry about, I fell down when walking on Friday. I landed on my left side, on the scapular area. I definitely did something to my...

As if there isn't enough to worry about, I fell down when walking on Friday. I l...

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Actemra side effects

I had to be taken off of Actemra, it caused Diverticulitis & a abscesses on My bowl & stomach, way to many side effects. Sorry for the negative reply but I...

I had to be taken off of Actemra, it caused Diverticulitis & a abscesses on My b...

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New HU search function

https://healthunlocked.com/latest/posts/private/143068973/new-%E2%80%98most-positive%E2%80%99-search-and-improved-colour-accessibility?

https://healthunlocked.com/latest/posts/private/143068973/new-%E2%80%98most-posi...

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Can you give me the best definition for PMR to share with others?

Good Morning from Michigan. I often have people who do not know what PMR is say \"I hope you feel better soon.\" Could you give me a great way to let them...

Good Morning from Michigan. I often have people who do not know what PMR is say...

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Deliveries

I have just read that the virus can stay on some things for 72 hours. Can someone please tell me how we can have groceries delivered without these things...

I have just read that the virus can stay on some things for 72 hours. Can someo...

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Covid chat "OFFICIAL" - 30th March.. 5 Top Tips from an "expert" remaining on Rockall in the Atlantic Ocean provided by skinnyjonny

I hope you don’t mind but I’d like to share the story below which I’ve put out to PMRGCAuk North East members, and on Facebook, and it’s been received with a...

I hope you don’t mind but I’d like to share the story below which I’ve put out t...

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Actemra

Has anyone been on it for GCA? What was your experience?

Has anyone been on it for GCA? What was your experience?

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PMR

Can you have a relapse from tapering off of prednisone after 3 months?

Can you have a relapse from tapering off of prednisone after 3 months?

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Normalisation of blood pressure

Just a happy observation to share...3.5 years of PMR now on 3.5, going onto 3.00 mg....with the Covid 19 calamity and us in NZ. On lockdown my blood pressure...

Just a happy observation to share...3.5 years of PMR now on 3.5, going onto 3.00...

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Blurred vision - alternatives to Tocilizumab

One of our PMRGCAuk members has sent the following question: \"My mother has GCA which unfortunately resulted in 50% sight loss across both eyes. She has been...

One of our PMRGCAuk members has sent the following question: \"My mother has GCA...

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K2

I am reducing from 25mg of prednisone and am now at 3&1/2-4. Was taking 250 mg of magnesium and vitamin K2. Had a personal problem so stopped the magnesium to...

I am reducing from 25mg of prednisone and am now at 3&1/2-4. Was taking 250 mg o...

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Clarifying the current Covid posts position....again

If a post mentions how X and y helps, hinders, or relates to covid then please put it in the covid chat...or be prepared to have replies turned off. We may...

If a post mentions how X and y helps, hinders, or relates to covid then please ...

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How long did you have PMR symptoms before your Diagnosis?

Thinking about how long I had PMR symptoms before my Diagnosis, the best I can come up with is about three years. Never heard of PMR until my Diagnosis. I...

Thinking about how long I had PMR symptoms before my Diagnosis, the best I can c...

LIVEORDIEHEREIAM

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