Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,270 members • 37,951 posts

All posts for April 2019

Hose me down!

Some of you may recall my post about continued hoarseness. Saw my GP today. He thinks it’s ongoing vocal cord inflammation post viral upper respiratory...

Some of you may recall my post about continued hoarseness. Saw my GP today. He t...

PMR2011

•5 years ago

17 Replies

Occasional temple pain

I sometimes experience intense temple pain especially on my left side. I have been diagnosed with PMR since August 2017 but my symptoms started in December...

I sometimes experience intense temple pain especially on my left side. I have be...

thepainterlyone

•5 years ago

32 Replies

PMR pain and Pain from damaged lumbar spine

Hello all. I 'm writing in desperation for some advice. Until recently my PMR pain was well controlled by pred. Down to 8mg per day. My Rheumy identified...

Hello all. I 'm writing in desperation for some advice. Until recently my PMR ...

Oxford8

•5 years ago

28 Replies

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Privacy considerations

Some concerns have been expressed recently about the posting of photos of chidren on the forum. This is just a reminder that any photographs you may choose to...

Some concerns have been expressed recently about the posting of photos of chidre...

PMRpro

Ambassador•5 years ago

Is it PMR?

I've recently been diagnosed but cannot take steroids due to having being hospitalised with pneumonia with complications 6 months ago - I've been told I could...

I've recently been diagnosed but cannot take steroids due to having being hospit...

Aamar

•5 years ago

7 Replies

Tapering

Started on 15 mg 17 months ago, and, on guidance of my GP, am now down to 2mg. Currently some tolerable pain in left thigh muscle in the first 2 hours of the...

Started on 15 mg 17 months ago, and, on guidance of my GP, am now down to 2mg. C...

Studland

•5 years ago

6 Replies

Will 9 mg steroid reduce risk of sudden blindnessdue to GCA?

Hi diagnosed February this year with PMR and successfully tapering fr9m 15 mg - currently at 9 mg Over Easter suffered with lot of shoulder and neck pain which...

Hi diagnosed February this year with PMR and successfully tapering fr9m 15 mg - ...

PMRfacebook

•5 years ago

5 Replies

Now a biopsy

Hospital rang me yesterday as I have to have a temporal artery biopsy under local anaesthetic. They wanted me at the hospital for 8 o’clock. I explained about...

Hospital rang me yesterday as I have to have a temporal artery biopsy under loca...

polymy

•5 years ago

10 Replies

New member

HI folks I am so glad to find this site. Everyone thought I was drama queen. I developed symptoms early January this year, but put off seeing a doctor until...

HI folks I am so glad to find this site. Everyone thought I was drama queen. I...

keepfitdoll

•5 years ago

16 Replies

A Good Way to Taper!?

This was an accidental taper for, but perhaps the easiest and best of all. Last week I was on 3.5mg - 2.5 in the morning and 1 at bedtime. For a number of...

This was an accidental taper for, but perhaps the easiest and best of all. Last ...

Charlie1boy

•5 years ago

14 Replies

New to the group

Hi. I am 59 years old and I was diagnosed with PMR in February by my primary care physician after a year of pain and many doctors. I have the added...

Hi. I am 59 years old and I was diagnosed with PMR in February by my primary ca...

Navion

•5 years ago

49 Replies

best mattress for pmr symptoms?

I am an 80 yes old sufferer from both GCA and PMR for 3-4 years, at present on 2mg a day. Blood tests reasonably under control but still suffering from muscle...

I am an 80 yes old sufferer from both GCA and PMR for 3-4 years, at present on 2...

astley123

•5 years ago

23 Replies

Keep moving folks.

So in hospital for pulmonary embolism and vein embolism. Steroid myopathy horrible. Can sit or stand. I’m done.

So in hospital for pulmonary embolism and vein embolism. Steroid myopathy horrib...

Nap1

•5 years ago

50 Replies

Prednisone and metabolism

I have tried researching what Pred. does to the metabolism but can't find any info. I was on high protein low carb liquid diet for about 1 week. Lost 10 lbs...

I have tried researching what Pred. does to the metabolism but can't find any in...

Linny3

•5 years ago

39 Replies

Has anyone seen an immunologist?

Pondering the fact that PMR is one of the many auto immune conditions out there does anybody ever get referred to an immunologist or do they not really exist...

Pondering the fact that PMR is one of the many auto immune conditions out there ...

Lochy

•5 years ago

13 Replies

How to tell your PMR has gone

I,ve had PMR for 4 years. I’m down to 5mg and have got stuck there. I also have osteoarthritis so get aches and pains in other places too. If my PMR does...

I,ve had PMR for 4 years. I’m down to 5mg and have got stuck there. I also have ...

Trulyscrumpious

•5 years ago

13 Replies

Bad day, turned worse!

Update: I posted about a bad day about ten days ago. Within a few days I landed in hospital. E-coli, kidney trouble, urinary tract inflammation, lots of...

Update: I posted about a bad day about ten days ago. Within a few days I lande...

Constance13

•5 years ago

18 Replies

Overweight.

I was wondering if anybody on here is overweight & do you put your weight gain down to taking Prednisolone?

I was wondering if anybody on here is overweight & do you put your weight gain d...

caroli123

•5 years ago

13 Replies

Food, herbs, spices & supplements.

If all these things have anti-inflammatory properties why don't they cure us? In fact - do they do anything at all?

If all these things have anti-inflammatory properties why don't they cure us? In...

caroli123

•5 years ago

16 Replies

Prednisolone taper.

After diagnosis PMR and nearly 3 weeks of Prednisolone 15 mg ( which has worked well - only really getting pain first thing and that is not enough to stop me...

After diagnosis PMR and nearly 3 weeks of Prednisolone 15 mg ( which has worked ...

jaycee444

•5 years ago

18 Replies

New Group Member

Hi everyone. I live in Arizona, USA. I found this group while searching for as much information as I can get. Diagnosed with PMR in March 2019. My Primary...

Hi everyone. I live in Arizona, USA. I found this group while searching for as m...

Summertimegolf

•5 years ago

9 Replies

Should I be concerned?

I am new to your group. Diagnosed with PMR in March. Started with the intense shoulder and girdle pain. So painful! Treated myself with Ibuprofen which helped...

I am new to your group. Diagnosed with PMR in March. Started with the intense sh...

Summertimegolf

•5 years ago

2 Replies

New diagnosis

Diagnosed with PMR 6 weeks ago. Started on 20 mgm Prednisone which resolved all pain within 48 hrs. After one month I am on 15 mgms for 2 weeks and then down...

Diagnosed with PMR 6 weeks ago. Started on 20 mgm Prednisone which resolved all ...

Summertimegolf

•5 years ago

2 Replies

Length of GCA

How long does GCA last?

Bioticnanna

•5 years ago

4 Replies

Moonface

I've been on 70 mg prednisone for pmr/gca for 3 weeks now. I eat healthy, not too much. Low carbs, no empty calories. no sugar, no preservatives. But, I have...

I've been on 70 mg prednisone for pmr/gca for 3 weeks now. I eat healthy, not to...

pollymarierose

•5 years ago

27 Replies

Feeling a bit okay.

Back to weekly digests via email I have just read a couple of posts which have made me feel very well! I am sorry that others are feeling bad, exhausted, fed...

Back to weekly digests via email I have just read a couple of posts which have m...

IdasMum

•5 years ago

12 Replies

Acute episode PMRGCA

I’m new to this group I was diagnosed with PMR about 5 years ago and with CGA 2 years ago. I have had two episodes both treated with prednisone both started...

I’m new to this group I was diagnosed with PMR about 5 years ago and with CGA 2 ...

PMRHortons

•5 years ago

26 Replies

Need advice or reassurance.

After my hospitalization and strong antibiotics for a perforated colon I had what I now know was a bad PMR flare. I had been down to 6 mg. A day after I was...

After my hospitalization and strong antibiotics for a perforated colon I had wha...

Lanakay

•5 years ago

15 Replies

GLA Biopsy - would you?

Hi - I am rather new to all this and long story short - 2 weeks ago tomorrow I started investigations for suspected GLA. 60 prednisolone. My sister has...

Hi - I am rather new to all this and long story short - 2 weeks ago tomorrow I s...

Pippah45

•5 years ago

12 Replies

Update on cataract's

Had first cataract done 20th February went well for first 3 weeks then got an infection in eye that spread to both eyes despite being very careful and was on...

Had first cataract done 20th February went well for first 3 weeks then got an in...

marigolds

•5 years ago

24 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2019

Hose me down!

Occasional temple pain

PMR pain and Pain from damaged lumbar spine

Privacy considerations

Is it PMR?

Tapering

Will 9 mg steroid reduce risk of sudden blindnessdue to GCA?

Now a biopsy

New member

A Good Way to Taper!?

New to the group

best mattress for pmr symptoms?

Keep moving folks.

Prednisone and metabolism

Has anyone seen an immunologist?

How to tell your PMR has gone

Bad day, turned worse!

Overweight.

Food, herbs, spices & supplements.

Prednisolone taper.

New Group Member

Should I be concerned?

New diagnosis

Length of GCA

Moonface

Feeling a bit okay.

Acute episode PMRGCA

Need advice or reassurance.

GLA Biopsy - would you?

Update on cataract's

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