Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for March 2021

PMR - Influenza Vaccine

Hi I’ve just read this article and wondered if anyone had developed PMR shortly after receiving the flu vaccine? Interesting article now that we are having...

Hi I’ve just read this article and wondered if anyone had developed PMR shortly ...

Liby57

•4 years ago

77 Replies

PMR question

Has anyone had their dr/rheumie suggested the pain is most likely residual ? I was a 2mg, but then neck on both sides started to be painful, so went up to 4,...

Has anyone had their dr/rheumie suggested the pain is most likely residual ? I w...

remission

•4 years ago

7 Replies

50 year old Female - Newbie

Good morning, newbie here :-) Awaiting confirmation of diagnosis for PMR. I was just wondering how many other members of my age group there were out there....

Good morning, newbie here :-) Awaiting confirmation of diagnosis for PMR. I wa...

Cluck71

•4 years ago

9 Replies

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Tapering Prednisolone

Morning all, I have just had a video consultation with my Rheumy. Thankfully all going well with ESR and CRP back to normal and joints much better. From10mg I...

Morning all, I have just had a video consultation with my Rheumy. Thankfully all...

Pinkly

•4 years ago

14 Replies

Reducing advice

At the end of January I started on 9.5mg of Pred and after four weeks dropped down to 9mg, after about 10 days I had a dull pain in my lower back so going by...

At the end of January I started on 9.5mg of Pred and after four weeks dropped do...

Lacelady

•4 years ago

12 Replies

On Pred now

Hi all ...finally I have a confirmed diagnosis of PMR....saw my specialist last night , as my body responded so well to the steroid injection she has now put...

Hi all ...finally I have a confirmed diagnosis of PMR....saw my specialist last ...

Toobusyforthis

•4 years ago

23 Replies

A New Member to the GCA Club!

I have had about eighteen months of being prednisolone free, feeling really well and PMR seemed to be a thing in the past when I felt tired a couple of weeks...

I have had about eighteen months of being prednisolone free, feeling really well...

anniekins1

•4 years ago

12 Replies

Felt better after blood taken

Hi all, had blood taken this morning and have felt great since full of energy , have not had this much energy or felt this good for months, just wondering if...

Hi all, had blood taken this morning and have felt great since full of energy , ...

Hidden

•4 years ago

19 Replies

Wound healing

I've had a cut on a finger for a couple of weeks now, it's still red, oozing, a little swollen and tender around it - it doesn't look infected but I'm aware...

I've had a cut on a finger for a couple of weeks now, it's still red, oozing, ...

Fiddlersmum

•4 years ago

14 Replies

Update to ? Tocilizumab

I recently wrote for advice prior to starting on Tocilizumab as I was little nervous about side effects. I have now had 3 injections and my CRP is back to...

I recently wrote for advice prior to starting on Tocilizumab as I was little ner...

Hiland

•4 years ago

11 Replies

IBS and steroids

Anyone got bloating and worsening of IBS since taking pred?

Tayzee

•4 years ago

8 Replies

Blood test results Disappointing

So I had the results of my blood test my CRP is now 22 so just reduced by 3. The doctor thinks that I do not have PMR, unfortunately I have just googled what a...

So I had the results of my blood test my CRP is now 22 so just reduced by 3. The...

Cats64

•4 years ago

6 Replies

CBD oil

Has anyone used this with success for pain ? It’s v expensive as a “ food supplement “!

Has anyone used this with success for pain ? It’s v expensive as a “ food supple...

Breconblue

•4 years ago

15 Replies

Hooray!

It was announced yesterday that adults living with anyone severely immune suppressed would be able to get the vaccine by mid April. I feel this is a very...

It was announced yesterday that adults living with anyone severely immune suppre...

Devoid

•4 years ago

2 Replies

Prednisone Tapering

I am trying to taper from 2.5 mg Prednisolone and as advised cut 2.5mg in half and added 1 to get 2.25mg. I am tapering very slowly in the hope of getting to...

I am trying to taper from 2.5 mg Prednisolone and as advised cut 2.5mg in half a...

Liby57

•4 years ago

12 Replies

Missing a dose of prednisone

I will have to miss a dose of 7.5mg mg because of a procedure that doesn't p.ermit anything by mouth beforhand for 12 hrs.Will missing this dose cause much...

I will have to miss a dose of 7.5mg mg because of a procedure that doesn't p.erm...

ancientprune

•4 years ago

10 Replies

How days go from good to bad

Hi all, I know I've said this before but went back to 12mg about wk ago and after a wk of taking blood pressure readings at home needed to up my BP medication...

Hi all, I know I've said this before but went back to 12mg about wk ago and afte...

Hidden

•4 years ago

1 Reply

Households of adults with weak immune systems to be vaccinated

Good news https://www.bbc.co.uk/news/health-56566892

Phoenix51

•4 years ago

2 Replies

New girl on the block

I'm newly diagnosed with pmr and am still trying to get my head around it, where it appeared from and why, that sort of thing. My blood results show low...

I'm newly diagnosed with pmr and am still trying to get my head around it, where...

penstress

•4 years ago

33 Replies

Update Alendronic Acid

Hi to everyone on this beautiful sunny day here in UK. Following on from my post four days ago, with regard to Alendronic Acid. I had my telephone appointment...

Hi to everyone on this beautiful sunny day here in UK. Following on from my post...

Tinasleepyhead

•4 years ago

10 Replies

PMR or not PMR?

Hello everyone. I was diagnosed with PMR last summer without being seen due to COVID. I was 51 at the time and put on 15mg go pred by the MSK consultant I had...

Hello everyone. I was diagnosed with PMR last summer without being seen due to C...

Pippz20

•4 years ago

27 Replies

Aloe vera

Has anyone tried taking aloe vera liquid to help reduce Pred dose and if so what was the result?

Has anyone tried taking aloe vera liquid to help reduce Pred dose and if so what...

Bagadash

•4 years ago

6 Replies

When to taper

So happy, have tried splitting the dose as suggested. I take 10mg at 2/3am and the further 10mg with breakfast, and fingers crossed I am now 3 days virtually...

So happy, have tried splitting the dose as suggested. I take 10mg at 2/3am and t...

Jooster

•4 years ago

7 Replies

Flare or not!?

Hi, everyone. Fingers crossed were moving towards a safer world! I'm puzzled about increased pain in knees (didn't have that with early PMR) and shoulders...

Hi, everyone. Fingers crossed were moving towards a safer world! I'm puzzled abo...

grannyouch

•4 years ago

5 Replies

Blood test

My work wont let me back till i have had a Blood test including blood count. I've had blood test before about my PMR but work Occupational health are saying...

My work wont let me back till i have had a Blood test including blood count. I'v...

rustyrussell

•4 years ago

6 Replies

Tapered too fast?

Hope you are all well. In pain since Friday. I started off on 40 mg in August which i quickly tapered down to 10mg. I continued on this for several months...

Hope you are all well. In pain since Friday. I started off on 40 mg in August ...

softekcom

•4 years ago

10 Replies

Anyone able to tell me about an MRA Scan please?

Im booked in for an MRA Scan in a couple of weeks time arranged by Rheumatology to check my blood vessels. I understand this is slightly different to an MRI...

Im booked in for an MRA Scan in a couple of weeks time arranged by Rheumatology ...

HappyDiamonds

•4 years ago

11 Replies

Have I reduced too soon?

I have been on 15mg Pred for three weeks following PMmR diagnosis. GP has reduced dose at end of the three weeks to 12.5mg and am now on my third day at that...

I have been on 15mg Pred for three weeks following PMmR diagnosis. GP has reduce...

Decsgran

•4 years ago

4 Replies

Polymyalgia flaring up

My polymyalgia condition affects my shoulders, very stiff and achy, stopping sleep. Stiff arms and hands, pins and needles. I am going to move my Prednisolone...

My polymyalgia condition affects my shoulders, very stiff and achy, stopping sle...

Farkelife

•4 years ago

7 Replies

Question re LVV

Just preparing myself for a consultant phone appt as I have to be ready due to the fact, 1) she tells me this will only be for one year, 2) my inflammation...

Just preparing myself for a consultant phone appt as I have to be ready due to t...

Sophiestree

•4 years ago

13 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2021

PMR - Influenza Vaccine

PMR question

50 year old Female - Newbie

Tapering Prednisolone

Reducing advice

On Pred now

A New Member to the GCA Club!

Felt better after blood taken

Wound healing

Update to ? Tocilizumab

IBS and steroids

Blood test results Disappointing

CBD oil

Hooray!

Prednisone Tapering

Missing a dose of prednisone

How days go from good to bad

Households of adults with weak immune systems to be vaccinated

New girl on the block

Update Alendronic Acid

PMR or not PMR?

Aloe vera

When to taper

Flare or not!?

Blood test

Tapered too fast?

Anyone able to tell me about an MRA Scan please?

Have I reduced too soon?

Polymyalgia flaring up

Question re LVV

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