Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,053 posts

All posts for November 2023

Frozen shoulder?

Since getting back from Cyprus where I saw a Rheumatologist but wasn't there long enough to get to the bottom of my symptoms, I've seen my GP who was appalled...

Since getting back from Cyprus where I saw a Rheumatologist but wasn't there lon...

Creas

•5 months ago

32 Replies

Raised calcium levels on prednisolone for pmr and long term lithium

my calcium levels are raised and have been for some time. At the last blood test they were 0.61. They have been 0.64. I’m not sure when the alarm bells will...

my calcium levels are raised and have been for some time. At the last blood test...

Elizabethjane7861

•5 months ago

2 Replies

Zolendroic acid after discovering compression fractures. Osteoporosis.

This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression...

This is an update and a thank you really, as well as info for others. Last time ...

Ebiker

•5 months ago

19 Replies

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Prof Tim Noakes and low carb diet benefits

I hope it's ok to attach a link to this Q&A session - it's clarified a lot for me and low carb is how I reduced my blood sugar when I was in the pre-diabetic...

I hope it's ok to attach a link to this Q&A session - it's clarified a lot for m...

Miserere

•5 months ago

10 Replies

what to do?

About 10 days ago, I developed a flare - it was my own fault. I was doing too much - so I decided to go from 5 mg to 10 mg and I’m now on day seven of doing...

About 10 days ago, I developed a flare - it was my own fault. I was doing too m...

Janann25

•5 months ago

8 Replies

alcohol as a diagnostic tool

I have posted many times regarding daily morning fatigue and weakness , this has happened every time i enter reduction below 6 mgs. The Synatchen and morning...

I have posted many times regarding daily morning fatigue and weakness , this ha...

Avadip12

•5 months ago

15 Replies

PMR - Leg Pain?

Hello All, I've been persisting with tapering and finally settled at 3mg for the last three months. Yesterday I experienced pain in my right lower leg. Last...

Hello All, I've been persisting with tapering and finally settled at 3mg for th...

Cinnamon716

•5 months ago

13 Replies

Fostair

As Fostair may lead to adrenal deficiency, could it be responsible for the flare I've been experiencing since taking it in September? I had reduced to 2mg pred...

As Fostair may lead to adrenal deficiency, could it be responsible for the flare...

Q-owl

•5 months ago

13 Replies

Headaches with GCA

Do you get headaches anywhere in your head or just in a certain place? And painkillers don't work.

Do you get headaches anywhere in your head or just in a certain place? And paink...

Caulkhead63

•5 months ago

29 Replies

Does anyone skin condition with PMR?

i was diagnosed in January 2023 with PMR (4th family member to get it - am 58 yrs old). I was on Pred but the side effects were too great for me and managing...

i was diagnosed in January 2023 with PMR (4th family member to get it - am 58 yr...

Donotgogentle

•5 months ago

10 Replies

What’s The Cause?

Just joined this group as I want to find out if anyone has been told by their consultant/specialist/doctor what causes PMR. I’m told it’s the immune system...

Just joined this group as I want to find out if anyone has been told by their co...

Pollymaggie

•5 months ago

33 Replies

Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?

I’m an autoimmune vasucliits patient . My inflammation in the eye was relatively managed well with immunosuppressants. But since having the Prevnar 13 , my...

I’m an autoimmune vasucliits patient . My inflammation in the eye was relati...

Udupik

•5 months ago

8 Replies

After 2 yes and a taper to half a mg daily, now have infections and started a full flare up

Advice please, don't know what dose to take? Posted a couple of weeks ago, as I had tapered slowly over two years and was on last half a mg Prednisolone...

Advice please, don't know what dose to take? Posted a couple of weeks ago, as I...

Allum

•5 months ago

12 Replies

Atorvastatin

Hi All, I wonder whether the forum had any experience or views of a potential link between Atorvastatin and myalgia? I’m on 80mg of the stuff and for some...

Hi All, I wonder whether the forum had any experience or views of a potential li...

7DaysinMay

•5 months ago

22 Replies

Going in the right direction

Since joining the PMR journey in Aug, I’ve been off work as I get grips with the condition, the use of Pred and rehabilitation. I am 52. This week, at my...

Since joining the PMR journey in Aug, I’ve been off work as I get grips with the...

SpaghettiWestern99

•5 months ago

10 Replies

learning to live with GCA/PMR

Hi everyone I've never joined an online forum before but the PMRGCAuk helpline said this was a good one so here goes. I was diagnosed with GCA and PMR in late...

Hi everyone I've never joined an online forum before but the PMRGCAuk helpline ...

bookbear68

•5 months ago

4 Replies

PMR weight loss

My first PMR symptoms, (which were severe and immediately diagnosed and addressed by 15 mg Prednisolone) occurred 7 and half years ago. Prior to that I had...

My first PMR symptoms, (which were severe and immediately diagnosed and addresse...

Cycleman

•5 months ago

32 Replies

Exhausted now that I’m down to 7mg

Well I’m finally down to 7 mg Prednisone and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR...

Well I’m finally down to 7 mg Prednisone and I’m feeling exhausted. Doing ok as...

rocketman42

•5 months ago

53 Replies

Can you describe a flare?

I know this may seem like a daft question to some of you experienced PMR sufferers but when you say flare, does this mean returning to the days of chronic pain...

I know this may seem like a daft question to some of you experienced PMR suffere...

Markandevie

•5 months ago

19 Replies

Recent blood test

Took the advice on here and increased my pred by 5mg to combat pmr flare. On day 9 I had a blood test and the esr was 6. I have now dropped to 8mg and will see...

Took the advice on here and increased my pred by 5mg to combat pmr flare. On day...

camshall

•5 months ago

4 Replies

Do i have PMR

Hi all i follow this site for help and advice .i appoligise in advance for bad spelling after having a stroke . In Feb this yr i was sent to see a specialist...

Hi all i follow this site for help and advice .i appoligise in advance for bad s...

pink123floyd

•5 months ago

27 Replies

latest DEXA scan

Just had my 7 year anniversary of my PMR diagnosis. The last couple years have gone well with a couple minor flares but I've been at 1 mg and in a holding...

Just had my 7 year anniversary of my PMR diagnosis. The last couple years have ...

Raven1955

•5 months ago

14 Replies

Question about muscle weakness

Hi all, I've been suffering from GCA for about 16 months now, and I've been wondering about a few things relating to muscle weakness, breathlessness, and the...

Hi all, I've been suffering from GCA for about 16 months now, and I've been won...

montebello

•5 months ago

24 Replies

Waiting for adrenals to kick in

I have been taking pred now for 10 years this Christmas for PMR now down to 5 mg for the last month should my adrenals be waking up yet or is it wishful...

I have been taking pred now for 10 years this Christmas for PMR now down to 5 mg...

Mollymandy3

•5 months ago

3 Replies

Completing profile to 100%

Success! Just had to add some reasonable dates. And there is a category called Investigational treatment if one is not actually receiving any treatment for a...

Success! Just had to add some reasonable dates. And there is a category called ...

HeronNS

•5 months ago

9 Replies

am not receiving post since the update. Can I re-join

been asking for help received some help did what was recommended did not work. Please the advice is what saving me because the PMR is crazy and when I read...

been asking for help received some help did what was recommended did not work. ...

M1222

•5 months ago

4 Replies

PMR & GCA: A Survival Guide

Book arrived yesterday afternoon - thank you to all who referenced it in your posts to me - it's read and about to be re-read! It's the first engaging piece of...

Book arrived yesterday afternoon - thank you to all who referenced it in your po...

Hopeful66

•5 months ago

31 Replies

Rheumatologist Visit after 9 months

Hi its been a couple of months since my last post and my mums skin flap has healed really well and thankfully apart from the usual bruises there have been no...

Hi its been a couple of months since my last post and my mums skin flap has heal...

Buchanan16

•5 months ago

9 Replies

Struggling with pain during post -op recovery

Good morning all you lovely people, reaching out as in need of some supportive and wise advice. I am 4 weeks post complex foot surgery and am hobbling around...

Good morning all you lovely people, reaching out as in need of some supportive a...

Heron82

•5 months ago

11 Replies

Think I've made a big mistake over flu vaccine!

The short story is that I got the flu vaccine in France from the pharmacist as I wasn't well enough to have it at administered at the time. I took it with me...

The short story is that I got the flu vaccine in France from the pharmacist as I...

Frenchduck

•5 months ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

Frozen shoulder?

Raised calcium levels on prednisolone for pmr and long term lithium

Zolendroic acid after discovering compression fractures. Osteoporosis.

Prof Tim Noakes and low carb diet benefits

what to do?

alcohol as a diagnostic tool

PMR - Leg Pain?

Fostair

Headaches with GCA

Does anyone skin condition with PMR?

What’s The Cause?

Has prevnar13( pneumonia vaccine ) caused a trigger for people with existing inflammatory conditions?

After 2 yes and a taper to half a mg daily, now have infections and started a full flare up

Atorvastatin

Going in the right direction

learning to live with GCA/PMR

PMR weight loss

Exhausted now that I’m down to 7mg

Can you describe a flare?

Recent blood test

Do i have PMR

latest DEXA scan

Question about muscle weakness

Waiting for adrenals to kick in

Completing profile to 100%

am not receiving post since the update. Can I re-join

PMR & GCA: A Survival Guide

Rheumatologist Visit after 9 months

Struggling with pain during post -op recovery

Think I've made a big mistake over flu vaccine!

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