Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for September 2021

GCA culprit with possible plaque in artery

Has anybody had stents put in with GCA being the main culprit? I went for a scan and got the results and I can't find anything that means it's good or bad....

Has anybody had stents put in with GCA being the main culprit? I went for a sca...

luv2read

•3 years ago

9 Replies

Can D&V be a symptom of steroid withdrawal?

Cannot find a definitive answer to this- have been instructed to reduce pred fairly quickly, 2 weeks each on 17.5mg, 15mg, and 12.5 mg. Now just on to 12.5mg....

Cannot find a definitive answer to this- have been instructed to reduce pred fai...

Sharitone

•3 years ago

9 Replies

Trying to cope😊

The ends of my thumbs are numb, and sometimes it is more than usual, has any one experienced this? Also my upper arms are numb. I thought that accupuncure was...

The ends of my thumbs are numb, and sometimes it is more than usual, has any one...

Poodleshrimp

•3 years ago

3 Replies

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Cortisol blood test

Hello again. I am even more bewildered now and am always grateful for comments and advice given on this forum. I am currently taking 20mg Prednisolone and have...

Hello again. I am even more bewildered now and am always grateful for comments a...

maxxgarry

•3 years ago

5 Replies

New to PMR

I am newly diagnosed (last night) after going for an appointment for osteoarthritis. I had a steroid injection in my bottom which seems to have improved the...

I am newly diagnosed (last night) after going for an appointment for osteoarthri...

Elizabethjane7861

•3 years ago

38 Replies

Levothyroxine recalled

Anyone out there taking Levothyroxine 50mcg tablets with the following details needs to be aware that they have been recalled: batch XATA30 expiration date Jan...

Anyone out there taking Levothyroxine 50mcg tablets with the following details n...

CT-5012

•3 years ago

21 Replies

Good DXA results - no more Alendronic Acid!

After 6 years with PMA and still on 10mg prednisolone, I was pleased to get a normal bone density report and very surprised to read on it the advice to stop...

After 6 years with PMA and still on 10mg prednisolone, I was pleased to get a no...

scrambledegg

•3 years ago

8 Replies

Just another little gift

Thank you so much, PMR for your generous gift of a new health scourge. The ever-growing scaly lesions that have now inhabited my body and spreading all over my...

Thank you so much, PMR for your generous gift of a new health scourge. The ever-...

Singr

•3 years ago

20 Replies

New GP

Recently moved and saw a new GP yesterday. He was bewildered that I had been having headaches, blurred and double vision for months before and following my pmr...

Recently moved and saw a new GP yesterday. He was bewildered that I had been hav...

Stickgal316

•3 years ago

21 Replies

Update on stress

GP rang am. Queried with her whether I am supposed to give Lanzaprole a holiday. She said I had been on L for a long time. I told her I get excess acid when...

GP rang am. Queried with her whether I am supposed to give Lanzaprole a holiday...

Suffererc

•3 years ago

3 Replies

Delayed reaction to Ist Moderna shot

Can one have a delayed reaction? I had it last Friday and felt fine, but Tuesday, Wed and today awful. Achy, exhausted, lower back pain and off balance....

Can one have a delayed reaction? I had it last Friday and felt fine, but Tuesda...

Jane424

•3 years ago

2 Replies

Cortisol Blood Test

I'm down to 2mgs of pred and I feel 100% ready to go to 1.5 but I wanted to check my adrenal function just for confidence. The function test request was...

I'm down to 2mgs of pred and I feel 100% ready to go to 1.5 but I wanted to chec...

Underpars

•3 years ago

9 Replies

Blurred vision in left eye and feeling muzzy...

Hi Everyone, Haven't posted for advice/help for a while as things seemed to be going quite well on DL's slow taper: reduced from 15mg to 12 OK and now 3 weeks...

Hi Everyone, Haven't posted for advice/help for a while as things seemed to be g...

Hopingsail

•3 years ago

15 Replies

PHLEM

Anyone bothered with green phlem in morning can't get rid of it now 6months on still there after antibiotics. on 4mg of pred.

Anyone bothered with green phlem in morning can't get rid of it now 6months on s...

Harrywogan

•3 years ago

13 Replies

Turning Point?

Today, 30th sept.2021. The best I have felt physically and mentally in over 12 months. I genuinely feel like I once did when "normal". Even the slight hip...

Today, 30th sept.2021. The best I have felt physically and mentally in over 12 m...

cycli

•3 years ago

10 Replies

Lower back pain

Hi all just when I was feeling fantastic after 2 weeks back on Pred and suddenly have a severe lower back pain ??? Can’t remember pulling it! Could this be...

Hi all just when I was feeling fantastic after 2 weeks back on Pred and suddenly...

Toobusyforthis

•3 years ago

11 Replies

The slow slow method for PMR

Hi I have had Ploymyalgia for 18 months and had several setbacks. All because I wanted to stop taking the pred. My doctor and ruemy have both said it was up to...

Hi I have had Ploymyalgia for 18 months and had several setbacks. All because I ...

paintpots

•3 years ago

12 Replies

struggling with meds

Id really like some advice from the kind people on here as cannot get to speak to my GP and i think rheumatology at my local hospital are getting a bit fed up...

Id really like some advice from the kind people on here as cannot get to speak t...

Hidden

•3 years ago

3 Replies

Stressed

Just had call from Pharmacist re medication review (2nd one this month). asking what medication I was taking. (My OH had to speak for me because she spoke so...

Just had call from Pharmacist re medication review (2nd one this month). asking ...

Suffererc

•3 years ago

9 Replies

Fed up with Pred tapering not working

Really fed up and frustrated with pred now 😔 Got as low as 8.5mg in half stages and was pleased but then had a flare. Went back to 12mg for 10 days and then...

Really fed up and frustrated with pred now 😔 Got as low as 8.5mg in half stages...

choirsinger1986

•3 years ago

1 Reply

Swelling in neck and vacvibatiobsy

Hi folks just been to see gp and he is sending me for scan on neck which is good but came out ready to cry as asked about 3rd primary vaccination and booster...

Hi folks just been to see gp and he is sending me for scan on neck which is good...

Rosshigh

•3 years ago

59 Replies

Nose sores

Morning all I've managed to taper down to 7mg (2nd day at this dose so not a done deal yet) and I'm suffering with all the fatigue as expected around this dose...

Morning all I've managed to taper down to 7mg (2nd day at this dose so not a don...

Coffeebeans

•3 years ago

29 Replies

Hot and sweating

Hi all, just checking whether Pred has an effect on body temperature. I am known as the person 'who doesn't feel the cold' (even before PMR) but lately I have...

Hi all, just checking whether Pred has an effect on body temperature. I am known...

SanG55

•3 years ago

26 Replies

A question please …

Since having a mini setback after getting to .5mg pred and pushing TCZ out to four weeks, I appear to be back on track. I went to 4mgs for 1 week, 3mgs and...

Since having a mini setback after getting to .5mg pred and pushing TCZ out to fo...

LemonZest11

•3 years ago

38 Replies

Actemra Side effects

Due to a mix up between my doctor and pharmacy I have not had my Actemra for 2.5 weeks. I usually was having one shot weekly. Has anyone had side effects...

Due to a mix up between my doctor and pharmacy I have not had my Actemra for 2.5...

alvertta

•3 years ago

4 Replies

Hiatal hernia and esophagitis ~~ surprise, surprise~!

The gift that keeps on giving....prednisone, I guess? When I check the boxes of comorbidities and the meds, how do I know what causes what? I don't and I...

The gift that keeps on giving....prednisone, I guess? When I check the boxes o...

Grammy80

•3 years ago

18 Replies

Palpitations

I am now reducing to 5.5 mg pred and last Friday started to get palpitations which last all day but don’t disturb me during the night. I am concerned about...

I am now reducing to 5.5 mg pred and last Friday started to get palpitations whi...

Bubble56

•3 years ago

14 Replies

Pred a d blood pressure

I have had PMR now for 11 years 76 years old and here I am again trying to do slow reduction from 9mgs and grateful for all advice I read here .but does pred...

I have had PMR now for 11 years 76 years old and here I am again trying to do sl...

Livlife1972

•3 years ago

10 Replies

Forever on the line-Part two.

So, here I am, I finally got to speak to my Homecare delivery service today after 2hrs. The man I spoke to seemed aghast that I didn't have any medication...

So, here I am, I finally got to speak to my Homecare delivery service today afte...

lindyloy

•3 years ago

1 Reply

Raised ESR

I have been tapering down the prednisolone now for quite a few weeks. Going down 1mg every 2 weeks, now on 4mg. My doctor has ran some tests as I have bee...

I have been tapering down the prednisolone now for quite a few weeks. Going down...

Karendeena

•3 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2021

GCA culprit with possible plaque in artery

Can D&V be a symptom of steroid withdrawal?

Trying to cope😊

Cortisol blood test

New to PMR

Levothyroxine recalled

Good DXA results - no more Alendronic Acid!

Just another little gift

New GP

Update on stress

Delayed reaction to Ist Moderna shot

Cortisol Blood Test

Blurred vision in left eye and feeling muzzy...

PHLEM

Turning Point?

Lower back pain

The slow slow method for PMR

struggling with meds

Stressed

Fed up with Pred tapering not working

Swelling in neck and vacvibatiobsy

Nose sores

Hot and sweating

A question please …

Actemra Side effects

Hiatal hernia and esophagitis ~~ surprise, surprise~!

Palpitations

Pred a d blood pressure

Forever on the line-Part two.

Raised ESR

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