Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

12,972 members • 23,537 posts

All posts for June 2020

Anyone else finding that some posts won’t open, your own posts are disappearing and posts failing to appear in your in-box?

I’ve had a day or two of this. I don’t know if it is my iPad or the forum.

I’ve had a day or two of this. I don’t know if it is my iPad or the forum.

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Can PMR last a lifetime?

I have had this condition for around nine years now since I was aged 59. It took some time to be diagnosed but the relief from prednisolone was miraculous and...

I have had this condition for around nine years now since I was aged 59. It took...

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Problem with links should now be fixed

Hi everyone, there's been a problem with links in posts today. A technical glitch which HU tech team have now sorted. Let me know though if you experience any...

Hi everyone, there's been a problem with links in posts today. A technical glitc...

Fran_BensonAdministrator

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PMR & Corona Waves

Hi all, After going back up to 10mg from 5mg due to being very poorly 4 months ago it has now been confirmed by my Doctor I had Coronavirus having had a...

Hi all, After going back up to 10mg from 5mg due to being very poorly 4 months a...

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Lowering Prednisolone Doses

Has anyone experienced insomnia as soon as they reduce their dosage. My GP suggested lowering the dose ie take 7 and then on alternate days 6 and then the...

Has anyone experienced insomnia as soon as they reduce their dosage. My GP sugg...

Birdboxinthegarden

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Soft swelling follow up

Thankyou for all your helpful replies. I have spoken to my GP and sent her pictures, she does not think it is the prednisolone, more likely thyroid. She has...

Thankyou for all your helpful replies. I have spoken to my GP and sent her pictu...

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Is this lump caused by Pred?

Is this soft swelling between my collarbones caused by Pred? I think it probably is but would like reassurance as ‘shielding’ gives you loads of time to dwell...

Is this soft swelling between my collarbones caused by Pred? I think it probably...

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Concussion and PMR.

I haven’t posted for a long time having been coping pretty well, but would like advice from anyone who has experience of being concussed while reducing Pred....

I haven’t posted for a long time having been coping pretty well, but would like ...

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Concussion and PMR.

I haven’t posted for a long time having been coping

I haven’t posted for a long time having been coping

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My education continues

Good afternoon to anyone reading the forum.Just wondered what any of you might think regarding my post. Since I first joined six months ago I have read many...

Good afternoon to anyone reading the forum.Just wondered what any of you might t...

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Calcium - how much?

Just beginning my first dose of pred - I realise I need to take calcium too. My question is, is there enough in my daily multi vit or do I need more?

Just beginning my first dose of pred - I realise I need to take calcium too. My ...

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Blood tests.

Just a quick question.Is it necessary to have blood taken for testing if one is feeling fine?Obviously I haven’t had one for quite a few months because of The...

Just a quick question.Is it necessary to have blood taken for testing if one is ...

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Paliptations

I am having a few bouts of feeling a fluttering in my chest, I guess this is what they call palpitations. Having had no problems since starting Pred 3 weeks...

I am having a few bouts of feeling a fluttering in my chest, I guess this is wha...

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hi I have g.c.a. and am on prednisolone was on 60mg. but now reduceing every month now on 20mg,1 july will go down til 15mg.i get very worry

at nite I lie in bed with all different things going on in my head. can someone give some advice please.thank you.

at nite I lie in bed with all different things going on in my head. can someone ...

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Vegetarian and PMR

Has anyone gone vegetarian and if so did they find that helped with the PMR. Just read one doctor suggesting it is the best thing for auto immune diseases...

Has anyone gone vegetarian and if so did they find that helped with the PMR. Ju...

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My ongoing battle

Hi everyone, I am continuing my battle on 2 fronts still. Firstly with my symptoms and secondly with my GP. I have been tapering down my Prednisolone by 1mg...

Hi everyone, I am continuing my battle on 2 fronts still. Firstly with my sympto...

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Local Support Groups

I know it’s scary going out and seeing people again. Like many here I don’t go out much and I know that it’s still more than some of you. But I am so looking...

I know it’s scary going out and seeing people again. Like many here I don’t go o...

DogAgilityObsessed

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Early Morning Aching

Hello All You Lovely People! I have had PMR for over 3 years and am tapering, using DSNS method, down to 6 and a half from 7 mgs pred. I also have...

Hello All You Lovely People! I have had PMR for over 3 years and am tapering, us...

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PMR + type 2 diabetes

Diagnosed with pmr last week and after IV prednisilone am now on reducing plan. Problem is my type 2 diabetes, which has been under control for 5 years with...

Diagnosed with pmr last week and after IV prednisilone am now on reducing plan. ...

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Fatigue relief with increased prednisone??

I have been suffering from the deathly fatigue associated with PMR for some time now and have been slowly increasing my pred dose from 9 mg per day to12 mg per...

I have been suffering from the deathly fatigue associated with PMR for some time...

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Sensitive Teeth

Hi I've been taking 20mgs of prednisolone since the beginning of December 2019. This last couple of weeks I've developed sensitivity in most of my teeth if...

Hi I've been taking 20mgs of prednisolone since the beginning of December 2019. ...

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Is this a flare up of PMR

Advice please about a possible flare up- I was diagnosed with PMR last December and given 20mgs of Pred. I went to Spain in February and slowly I was able to...

Advice please about a possible flare up- I was diagnosed with PMR last December ...

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Sudden pain in jawPred

This is a very odd pain which has happened twice in the last few weeks , the second time this morning . Th I was diagnosed with GCA Nov 2018 and PMR a year...

This is a very odd pain which has happened twice in the last few weeks , the sec...

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Should I expect to feel discomfort for a few days each time I reduce Pred ?

I've been feeling such benefit from 15mg Pred for last 4 weeks after 6 months of suffering. I'm walking average 4 miles a day and pretty much life back to...

I've been feeling such benefit from 15mg Pred for last 4 weeks after 6 months o...

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answer to Jeromekjerome re Leflunomide

trying to answer JeromekJerome about Leflunomide but couldn't pull up the link so hope this helps: I've been on it for almost a year, but I did quit it for 6...

trying to answer JeromekJerome about Leflunomide but couldn't pull up the link s...

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Wondering about Leflunomide side effects

Hi Everyone I started Leflunomide a week ago. I thought all was going well until yesterday. I hurt from head to toe and today is even worse, plus I have not...

Hi Everyone I started Leflunomide a week ago. I thought all was going well unti...

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Update on tingling fingers.

I thought it might be helpful to post an update on a question that I asked on here two years ago.I was getting tingling ,numbness and swelling in my hands.It...

I thought it might be helpful to post an update on a question that I asked on he...

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Swelling around collarbone

So is swelling around the front of my collarbones from prednisone or PMR?

So is swelling around the front of my collarbones from prednisone or PMR?

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Scared

Finally got a diagnosis of PMR this week - 3 rheumatologists arguing it out. All the classic symptoms but blood not confirming it. Anyway, now I'm terrified...

Finally got a diagnosis of PMR this week - 3 rheumatologists arguing it out. All...

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European Headache Federation recommendations for neurologists managing giant cell arteritis - 17 Mch 2020

I found this today which I hope is useful as it is very recent....

I found this today which I hope is useful as it is very recent....

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