Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

10,436 members • 18,970 posts

All posts for September 2012

IM 43 went to the gp with jaw and ear ache as well as a bad headache which i had for a few day the said i could have cga or prm

i also have painful jips knees and shoulders and neck i have been on steroids now for 5 weeks and i have just got a appointment with hospital tomorrow im...i also have painful jips knees and shoulders and neck i have been on steroids...

How much discomfort should I tolerate??? Recent flare @ 5mg. My Rheumy put me back to 10 mg. and I feel better and have less pain overall.

On a scale of 1-10 I am @ 3-4. She also added methotrexate @ small dosage once a week along with folic acid tablet daily. I was @ 8 while @ 5mg. I still feel...On a scale of 1-10 I am @ 3-4. She also added methotrexate @ small dosage once a...

Update of the week..

Morning everyone. Being a night owl yet again - will I ever have a nights sleep. Just only ever seem to get a few hours at a time, the most I manage is 3/4...Morning everyone. Being a night owl yet again - will I ever have a nights sle...

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can pmr affect eye sight

my eye sight is a bit blurry at night could this be just the pmr ?my eye sight is a bit blurry at night could this be just the pmr ?

Have I actually got PMR?

Having had a tentative diagnosis of either PMR or Reactive Arthritis and having been given an intramuscular steriod injection at the end of August, I saw the...Having had a tentative diagnosis of either PMR or Reactive Arthritis and having ...

Under the weather?

My joints usually tell me when the weather takes a turn for the worse. An osteopath once told me that this is because a decrease in atmospheric pressure causes...My joints usually tell me when the weather takes a turn for the worse. An osteop...

Rheumatologist now not sure I have PMR?!

After 6 months of Prednislone and several trips to outpatients, blood tests and xrays, my Rheumatologist thinks it may not be PMR after all. As ESR rate not...After 6 months of Prednislone and several trips to outpatients, blood tests and ...

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Flare up

Hi everyone, I hope you are all doing good. I am back up to 20mg pred for the past 3 days after trying to drop to 17.5mg did not go to plan. Yesterday was my...Hi everyone, I hope you are all doing good. I am back up to 20mg pred for the p...

We did it! Team PMRGCAuk completes the Carrots Night Walk

Yesterday, or was it this morning? Jennifer, our East Anglia support group organiser, completed the 6 mile night walk in London, from the BFI Imax on the...Yesterday, or was it this morning? Jennifer, our East Anglia support group orga...

PolywotsitPMRGCAuk team member•

PMR

this is going to sound really silly what tests and how do they know if its is PMR or something else? Ive been inso much pain the last few days since my...this is going to sound really silly what tests and how do they know if its is PM...

I am a 58 yr. old male with recent PMR diagnosis. Up and down with Pred. What can I take instead of this drug, it has so many side effects?

My son, who is 34 also has similar symptoms, he got off of pred. and takes oxycodone daily, any help???My son, who is 34 also has similar symptoms, he got off of pred. and takes oxyco...

coping with the pred drop

Hi all, I hope you are all relatively good. I have now been on 17.5mg pred for 3 days after buying a tablet cutter. Hopefully the doc with give me different...Hi all, I hope you are all relatively good. I have now been on 17.5mg pred for 3...

Struggles With Uncoated Pred

Haven taken advice from this website I reduced the pred to 4.5 which involved two uncoated pills. Despite beefing up my breakfast my stomach was upset. Within...Haven taken advice from this website I reduced the pred to 4.5 which involved tw...

anyone working ?

is anyone with PMR working ? I have had PMR for 3 years now and have also now got Spondylosis, i used to care for my Mum but since she passed away i was sent...is anyone with PMR working ? I have had PMR for 3 years now and have also now go...

Reduction

Hi Every one thanks for all the info regarding PMR .this has increase my knowledge an understanding regarding this illness we all have in common.I am now in my...Hi Every one thanks for all the info regarding PMR .this has increase my knowled...

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Fee for GP referral to specialist.

One of our members has raised a very interesting point. She has said that in order for her GP to refer her to a specialist, he has to pay a fee. Is this...One of our members has raised a very interesting point. She has said that in or...

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I have had GCA for some time now -reduced dosage of preds from 15mg to 12.5mg on Sunday as advised by GP now feel really rough -

spaced out doesn't really describe it - keep falling asleep - severe headache over temple - balance gone to pot. Should I go back to 15mg - cannot mix tablets...spaced out doesn't really describe it - keep falling asleep - severe headache ov...

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I have had PMR for 2 years and have now developed GCA. Was on 60mg steroids for 3 weeks, now on 40mg for 1 week.

Now have numb fingers and numb tingly feet and when tired feel very spaced out and strange. Has anyone else had this?Now have numb fingers and numb tingly feet and when tired feel very spaced out a...

chest pain

i have pmr i am getting pain around my ribs ant top of chest does anyone else get this problemi have pmr i am getting pain around my ribs ant top of chest does anyone else ge...

Rinio Hump

Has any one heard of Rinio Hump? i was seen by the doctor this afternoon about my sicknote and before i got the chance to ask if i can be phased back to work...Has any one heard of Rinio Hump? i was seen by the doctor this afternoon about m...

Still Puzzled....

Afternoon Still feeling stuck, puzzled, not sure what the words are.. Been to see the Maxillofacial Consultant today - referred by my Rheumy Consultant...Afternoon Still feeling stuck, puzzled, not sure what the words are.. Been...

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pred drop from tomorrow

Hi all, I have been on 20mg for a few weeks now and I feel quite good. I do have a little stiffness in my neck but nothing drastic. My doc just rang me and has...Hi all, I have been on 20mg for a few weeks now and I feel quite good. I do have...

Temporal arthritis ?

Iv been on steroids since July had temporal biopsys 25th Aug they phoned today to biopsy negative but they thought they would be after being on steroids for...Iv been on steroids since July had temporal biopsys 25th Aug they phoned today t...

Please help PMRGCAuk raise money for GCA research!

Hi. This forum is free, free, free and always will be. However, PMRGCAuk is run on a shoestring and our shoestring is wearing a bit thin! We desperately need...Hi. This forum is free, free, free and always will be. However, PMRGCAuk is run...

PolywotsitPMRGCAuk team member•

Be the first to reply

Is it better to take pain relief or try to put up with the pain?

I've always been one who hates taking medication as I'm aware of all the nasty side effects these chemicals might produce and I'm already taking so many pills...I've always been one who hates taking medication as I'm aware of all the nasty s...

Can temporal arteritis be diagnosing without a biopsy

Hi All, I would like to start by thanking everyone's contribution on this community. I was google searching about TA as I want to understand my mothers...Hi All, I would like to start by thanking everyone's contribution on this co...

concernedaughter•

Pred reduction

Well down to 3.5mg this morning ,been here before so I am a bit wary but this time around it is 0.5mg reduction every 4 weeks and it seems to be working...Well down to 3.5mg this morning ,been here before so I am a bit wary but this ti...

don't you just love opinionated folk.

Over the past few weeks I have been on here blogging away about all my problems lol. I really look forward to reading all other blogs and questions and log on...Over the past few weeks I have been on here blogging away about all my problems ...

Another two forums you might like to visit.

http://pmrandgca.forumup.co.uk and http://www.patient.co.uk/forums/discuss/browse/polymyalgia-rheumatica-and-gca-1708http://pmrandgca.forumup.co.uk and http://www.patient.co.uk/forums/discuss/...

Feel like your getting better and THEN bangIs PMR and Type 2Diebitice linked

Just an update,my PMR seemed to be better and my pain in left knee and hip where ok and then it started,pain in hip leg knee and thigh,all left hand...Just an update,my PMR seemed to be better and my pain in left knee and hip where...