Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

22,091 members•41,862 posts

All posts for July 2022

5 years with PMR already

Hi all! I am not new to PMR and had it for 5 years already. My doctor said in the beginning it would be 2 years max! :-( I am now on 4 mg of pred and...

Hi all! I am not new to PMR and had it for 5 years already. My doctor said in ...

Inika

•3 years ago

34 Replies

swollen Ankles

Has anyone suffered with swollen ankles while on Methotrexate? I can’t see it on the side effects list but I’ve only suffered with them since being on...

Has anyone suffered with swollen ankles while on Methotrexate? I can’t see it on...

Phed

•3 years ago

15 Replies

message for Rummy

going to see him this Thursday ☹️ Ware am I at now Symptoms I have had Headaches. Jaw. Sore tongue. OutVery tired and we’rey. Out of breath. Blocked up...

going to see him this Thursday ☹️ Ware am I at now Symptoms I have had Head...

Ronzy

•3 years ago

17 Replies

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Omeprazole concerns

Hi, I'm new to the forum. I have ALS and a bad posture and I was starting to have indigestion and coughing, but no acid reflux. My GP put me on 20mg...

Hi, I'm new to the forum. I have ALS and a bad posture and I was starting to h...

Louise64A

•3 years ago

11 Replies

Evenity treatment for osteoporosis

I'm on steroids for the rest of my life for another illness, which have been one of the causes of the osteoporosis. Because my scan result is very severe for...

I'm on steroids for the rest of my life for another illness, which have been on...

youvegotmail

•3 years ago

26 Replies

newbie

I’m fairly new to PMR . I’m find this site very helpfull. I seem to be getting really bad brain fog with the prednisone. Do others hv this problem? . So nice...

I’m fairly new to PMR . I’m find this site very helpfull. I seem to be getting r...

LilyRose19

•3 years ago

16 Replies

Thank You

I have been posting since 2014 on behalf of my mum but sadly she passed away on 23 July a few weeks before her 97th birthday. I just wanted to thank everyone...

I have been posting since 2014 on behalf of my mum but sadly she passed away on ...

4sibbs

•3 years ago

31 Replies

muscle aches

hi todat I have muscle aches all over. I went swimming Friday didn’t really swim just a few exercises in water. Yesterday ok today omg killing me. Have I...

hi todat I have muscle aches all over. I went swimming Friday didn’t really swim...

Uglow

•3 years ago

99 Replies

5th Anniversary

I just thought I'd put on record that exactly 5 years ago today, 31st July 2017, I saw my rheumatologist who told me that I had GCA and PMR. I well remember...

I just thought I'd put on record that exactly 5 years ago today, 31st July 2017...

Marijo1951

•3 years ago

34 Replies

Statins and PMR

hi all, previously asked if you could take statins with pred, perhaps would have been better to have asked, with PMR. Gp now prescribed Atorvastatin over...

hi all, previously asked if you could take statins with pred, perhaps would h...

Poshdog

•3 years ago

68 Replies

Yellow Eye

My left eye has gone quite yellow, I have had several episodes of Scleritis. Currently on 6.5 pred and 15mg MTX. Will be ringing the GP tomorrow but has anyone...

My left eye has gone quite yellow, I have had several episodes of Scleritis. Cur...

Abbey17

•3 years ago

16 Replies

another flare

had tapered to 2/1,5 . A week ago I had yet another flare. Went back to 5 for a few days and then dropped to 3. Been taking 3 for 5 days but pain isn’t...

had tapered to 2/1,5 . A week ago I had yet another flare. Went back to 5 for ...

Suffererc

•3 years ago

15 Replies

pred and covid

Hi Well I have finished my 7days isolation.Still coughing but getting better slowly.I reduced my pred back to 5mg as Dr said I .have been quite headachey and...

Hi Well I have finished my 7days isolation.Still coughing but getting better s...

Raewynne

•3 years ago

6 Replies

Blood Supply, Poor Balance and Low Energy.

For several days i have been trying to unravel what is happening and why. I have been feeling stable on 22.5mg and on agreement with advice to reduce at that...

For several days i have been trying to unravel what is happening and why. I hav...

cycli

•3 years ago

23 Replies

Reasonable Adjustments?

I have just returned to work after two months off due to chronic fatigue. I work three days a week. My work involves driving one hour to the area I work in,...

I have just returned to work after two months off due to chronic fatigue. I wor...

Spittal9

•3 years ago

33 Replies

shingles vaccination

My question is , I haveread that prednisolone dampens immune ,system given that what would your advice be on having a shingles jab?. Thank you .

My question is , I haveread that prednisolone dampens immune ,system given t...

Purplecheeks

•3 years ago

6 Replies

Just need to vent!

I was put up to 15mg in April.Struggling with many health issues.Thrush won't go aft three weeks if Nystatin so I tried to start to lower Prednisone.Really...

I was put up to 15mg in April.Struggling with many health issues.Thrush won't g...

Hunter134

•3 years ago

24 Replies

UTIs & D mannose

I'm currently having recurring infections- 2 different abx in just a few weeks. Due to see yet another gynae in early September re bladder prolapse. Tried...

I'm currently having recurring infections- 2 different abx in just a few weeks...

Portobello

•3 years ago

11 Replies

Not understanding

Hi I've been on Pred for nearly 3 weeks and newly diagnosedwith diabetes at same time so medication for that also . My PMR started of as a very low back...

Hi I've been on Pred for nearly 3 weeks and newly diagnosedwith diabetes at ...

rachelbell

•3 years ago

16 Replies

Losing weight whilst tapering

Not sure if I have mentioned this before on a previous post but has anyone else lost weight and muscle tone whilst tapering? I first went on prednisolone in...

Not sure if I have mentioned this before on a previous post but has anyone else...

Karendeena

•3 years ago

17 Replies

INTERNATIONAL SURVEY. Date commenced August 2008.

I have noticed lately there are quite a number of postings re 'why t has PMR< GCA come along and what has caused it. So I thought some of you might just be...

I have noticed lately there are quite a number of postings re 'why t has PMR< G...

jinasc

•3 years ago

6 Replies

Pred and pancreatitis

A friend whose mother has PMR has just contacted me to ask me about prednisolone and whether it can be a cause of pancreatitis. I have no idea. Her mother...

A friend whose mother has PMR has just contacted me to ask me about prednisolone...

LemonZest11

•3 years ago

33 Replies

Down to 2 mg PRED but now have numb tingling toes

I am down to 2 mg of PRED after 20 months treatment for PMR. I have had slight numbness in my toes for a few weeks, particularly noticable in bed at night....

I am down to 2 mg of PRED after 20 months treatment for PMR. I have had slight ...

Versaman

•3 years ago

14 Replies

Late diagnoses Male aged 75 in UK

I was diagnosed with PMR after repeatedly telling the Doctor my symptoms which he said was caused by my osteoarthritis which was found over a yera before my...

I was diagnosed with PMR after repeatedly telling the Doctor my symptoms which ...

Supertiger303

•3 years ago

39 Replies

sunshine

need sun advice Iam tapering down was on 15mg prednisone go down to 12.5mg then last tow weeks down to 10mg pain in my right shoulder so intense shall I go...

need sun advice Iam tapering down was on 15mg prednisone go down to 12.5mg then ...

Bowred

•3 years ago

28 Replies

Melanoma and pred

I've just been diagnosed with a malignant melanoma. The dermatology nurse said taking steroids for a long time can make this more likely because of the...

I've just been diagnosed with a malignant melanoma. The dermatology nurse said ...

Sanekate

•3 years ago

26 Replies

Can quitting prednisone too soon lead to GCA?

A close relative was diagnosed with PMR four months ago, had a temporal artery biopsy that was negative, and started on 15 mg of prednisone. She reduced it by...

A close relative was diagnosed with PMR four months ago, had a temporal artery ...

Mcdurmott

•3 years ago

17 Replies

Not sure if GCA flare?Input please!

hi.Have call into rheumy but we're fast up to weekend so might not hear and I welcome any input.Two weeks ago I tapered from 35 to 30 mg prednisone. .Rough...

hi.Have call into rheumy but we're fast up to weekend so might not hear and I...

Cobalt2sister

•3 years ago

4 Replies

Might be of interest…

https://www.practicalpainmanagement.com/pain/myofascial/inflammatory-arthritis/latest-advances-diagnosis-treatment-polymyalgia-rheumatica?fbclid=IwAR0LzLt0ltQhM

https://www.practicalpainmanagement.com/pain/myofascial/inflammatory-arthritis/l...

Burroughs123

•3 years ago

1 Reply

Update and questions!

Good Morning Everyone! Well it's about 11 am here. I've already been out for a morning walk but didn't get to far! I have been trying to taper from 12.5mg to...

Good Morning Everyone! Well it's about 11 am here. I've already been out for a m...

catdance

•3 years ago

30 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2022

5 years with PMR already

swollen Ankles

message for Rummy

Omeprazole concerns

Evenity treatment for osteoporosis

newbie

Thank You

muscle aches

5th Anniversary

Statins and PMR

Yellow Eye

another flare

pred and covid

Blood Supply, Poor Balance and Low Energy.

Reasonable Adjustments?

shingles vaccination

Just need to vent!

UTIs & D mannose

Not understanding

Losing weight whilst tapering

INTERNATIONAL SURVEY. Date commenced August 2008.

Pred and pancreatitis

Down to 2 mg PRED but now have numb tingling toes

Late diagnoses Male aged 75 in UK

sunshine

Melanoma and pred

Can quitting prednisone too soon lead to GCA?

Not sure if GCA flare?Input please!

Might be of interest…

Update and questions!

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2022

5 years with PMR already

swollen Ankles

message for Rummy

Omeprazole concerns

Evenity treatment for osteoporosis

newbie

Thank You

muscle aches

5th Anniversary

﻿Statins and PMR

Yellow Eye

another flare

﻿pred and covid

Blood Supply, Poor Balance and Low Energy.

Reasonable Adjustments?

﻿shingles vaccination

﻿Just need to vent!

﻿UTIs & D mannose

﻿Not understanding

﻿Losing weight whilst tapering

INTERNATIONAL SURVEY. Date commenced August 2008.

Pred and pancreatitis

﻿ Down to 2 mg PRED but now have numb tingling toes

Late diagnoses Male aged 75 in UK

sunshine

﻿Melanoma and pred

Can quitting prednisone too soon lead to GCA?

﻿Not sure if GCA flare?Input please!

Might be of interest…

Update and questions!

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Statins and PMR

pred and covid

shingles vaccination

Just need to vent!

UTIs & D mannose

Not understanding

Losing weight whilst tapering

Down to 2 mg PRED but now have numb tingling toes

Melanoma and pred

Not sure if GCA flare?Input please!