Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for April 2020

Prednisolone dosage during Covid

Hi New member and have been diagnosed with PMR. Been suffering for 3 years with no diagnosis. Tried all sorts of medication but only a 20mg daily dose took the...

Hi New member and have been diagnosed with PMR. Been suffering for 3 years with ...

Hidden

•5 years ago

22 Replies

Possible tapering tip

I was having great difficulty stopping prednisone-couldn’t budge below 1.5 mg. I developed a bad case of diarrhea and tried saccharomyces boulardii lyo CNCM...

I was having great difficulty stopping prednisone-couldn’t budge below 1.5 mg. ...

Joblow

•5 years ago

6 Replies

Surprise call from the NHS Shielding team

Apologies if this subject has been done to death already Using the Addenbrooke’s flowchart posted on here (and thanks, because it was so helpful) I scored some...

Apologies if this subject has been done to death already Using the Addenbrooke’s...

Mai45

•5 years ago

35 Replies

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How do I manage several conditions without one taking precedence?

Having caught up with other members posts, I felt perhaps I’m just feeling neurotic and should just get on with it. I also wondered where all the familiar...

Having caught up with other members posts, I felt perhaps I’m just feeling neuro...

ClarkB

•5 years ago

50 Replies

Confused and uncertain 3

Inside of left leg

Healthconfused

•5 years ago

4 Replies

Confused and uncertain 2

Here is a better picture.

Healthconfused

•5 years ago

1 Reply

Confused and uncertain?

Hello everyone. I would appreciate your help. I have done a blood test and am awaiting to return to the doctor. I may have to visit a private doctor. I...

Hello everyone. I would appreciate your help. I have done a blood test and am ...

Healthconfused

•5 years ago

1 Reply

Being treated for GCA after 4 years PMR and down to 3 mgs.

Dr Sarah Mackie (my Rheumatologist) has decided on balance to treat me for GCA. Pragmatically she has decided to increase my Pred dose to 30 mgs ( scope to go...

Dr Sarah Mackie (my Rheumatologist) has decided on balance to treat me for GCA....

SheffieldJane

•5 years ago

70 Replies

Numb Toes Debate.

Interesting reading about Numb Toes. & footwear types etc. One of the distinct “Symptoms” I’ve had from almost day 1 since being diagnosed with PMR has been...

Interesting reading about Numb Toes. & footwear types etc. One of the distinct ...

Stifffingers

•5 years ago

20 Replies

Tapering on Prednisone

Hi All, I would appreciate if someone can let me know if I am tapering down from Prednisone effectively. Three weeks ago I had a flare of Polymialgia and my GP...

Hi All, I would appreciate if someone can let me know if I am tapering down from...

misschris

•5 years ago

15 Replies

NHS assesses risk of Covid-19 infection in rheumatology patients

Apologies if this was previously posted. https://www.pharmaceutical-technology.com/comment/rheumatology-patients-covid-19/

Apologies if this was previously posted. https://www.pharmaceutical-technology....

Hidden

•5 years ago

43 Replies

referral required?

I was only diagnosed a couple of months ago after asking my GP to test me for inflammation. I started on 15mg/day now on 10/mg. just wondering - after /if...

I was only diagnosed a couple of months ago after asking my GP to test me for in...

AnniesRyder5

•5 years ago

4 Replies

Reducing dosage knee pain

Anyone experience knee pain while reducing prednisone. Going from 1 mg to 1/2 mg.

Anyone experience knee pain while reducing prednisone. Going from 1 mg to 1/2 ...

CEAGLE

•5 years ago

13 Replies

Yearly subscription?

Fran, how do I subscribe to HU if I live in Germany? Your info was just for UK. Constance

Fran, how do I subscribe to HU if I live in Germany? Your info was just for UK....

Constance13

•5 years ago

14 Replies

Nightime headaches and now ache in jaw. Update.

Thank you all you lovely people for your replies, they have all been really helpful. Yesterday I had a telephone consultation with my rheumatologist who said...

Thank you all you lovely people for your replies, they have all been really help...

cataline

•5 years ago

6 Replies

Does Turmeric Help?

Has anyone had success using Turmeric to reduce pain and inflammation? If yes, what amount per day do you take...any particular brand?

Has anyone had success using Turmeric to reduce pain and inflammation? If yes, w...

Macadoo

•5 years ago

11 Replies

Diagnosis - without any blood tests?

What constitutes a diagnosis? Hello All, am posting on behalf of my older sister (82) who’s a bit of a technophobe and social distancing/geography means I...

What constitutes a diagnosis? Hello All, am posting on behalf of my older sister...

Rokerman

•5 years ago

34 Replies

Help with a flare please!

I would really welcome some advice on how to deal with my first major flare. I was diagnosed last May with atypical PMR at age 51. Quick summary: didn't...

I would really welcome some advice on how to deal with my first major flare. I ...

Andypan

•5 years ago

17 Replies

Letter from Consultant Rheumi in latest PMRGCAUK Newsletter

I was delighted to read the letter from a consultant at the Mayoh Clinic which states that there is no difference in life expectancy, Diabetes, hypertension...

I was delighted to read the letter from a consultant at the Mayoh Clinic which ...

Mindful3

•5 years ago

39 Replies

Stockpiling

Just collected my repeat prescription and find I have been given 224 Pred 1mg and 224 Pred 5mg I am currently on 8mg per day starting to reduce to 7mg next...

Just collected my repeat prescription and find I have been given 224 Pred 1mg a...

Maryis80

•5 years ago

38 Replies

Help and advice on slightly increasing Pred from 2 to 2-1/2 mg

Hi have been down to 2 mg of pred for about 3 weeks now and am getting pains in my shoulders every morning even after trying painkillers. I was very well on...

Hi have been down to 2 mg of pred for about 3 weeks now and am getting pains in ...

Jo1947

•5 years ago

13 Replies

Calling GCA patients: RAIRDA has a new online survey

The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new online survey to make sure that the views and experiences of people with rare...

The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new...

PMRpro

Ambassador•5 years ago

23 Replies

Vit K2

Please help with direction on the best form of Vit K2 for PMR folks... MK4 or MK7. Also grateful for the "why" when choosing one over the other (or another...

Please help with direction on the best form of Vit K2 for PMR folks... MK4 or MK...

4683Louise

•5 years ago

26 Replies

I need info about long-term symptoms and treatment of GCA and vasculitis

Three questions about GCA if you have experienced these situations: 1.)New guidelines state that ultrasound is more accurate than biopsy -- was your diagnosis...

Three questions about GCA if you have experienced these situations: 1.)New guide...

AdoptMeow

•5 years ago

11 Replies

GCA - PMR doing great after 2 months

To recap, I had left temporal headache and PMR symptoms of hip, wrist and elbow arthralgias beginning in January of this year. I had no visual symptoms or jaw...

To recap, I had left temporal headache and PMR symptoms of hip, wrist and elbow ...

Rv8apilot

•5 years ago

18 Replies

PMR and CBD Oils

Research needed. Several months ago I had pains in one hip then another then a knee and then my neck. Within a short time I was in agony, struggled with the...

Research needed. Several months ago I had pains in one hip then another then a k...

Pirm

•5 years ago

13 Replies

Anyone having injections of Depo-Medrone instead of taking prednisolone orally to manage symptoms of PMR?

Anyone having injections of depo-Medrone instead of taking prednisolone by mouth for PMR symptoms? If so, do you prefer this method? How does it work?

Anyone having injections of depo-Medrone instead of taking prednisolone by mouth...

Bennijax

•5 years ago

29 Replies

Vitamin D study

I thought this was an interesting report of a study titled: "Vitamin D linked to COVID-19 mortality" http://www.irishhealth.com/article.html?id=27163 "Vitamin...

I thought this was an interesting report of a study titled: "Vitamin D linked t...

Hidden

•5 years ago

40 Replies

Lupus and GCA/TA?

I have an internet forum friend who has been through the diagnostic mill for several months. She was in a UK hospital for Christmas with what was described as...

I have an internet forum friend who has been through the diagnostic mill for sev...

Pippah45

•5 years ago

11 Replies

GCA and HPV

I have had GCA for over 4 years. I was looking online and came across some research that has shown a significant association between GCA and HPV. Has anyone...

I have had GCA for over 4 years. I was looking online and came across some rese...

Maur1

•5 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2020

Prednisolone dosage during Covid

Possible tapering tip

Surprise call from the NHS Shielding team

How do I manage several conditions without one taking precedence?

Confused and uncertain 3

Confused and uncertain 2

Confused and uncertain?

Being treated for GCA after 4 years PMR and down to 3 mgs.

Numb Toes Debate.

Tapering on Prednisone

NHS assesses risk of Covid-19 infection in rheumatology patients

referral required?

Reducing dosage knee pain

Yearly subscription?

Nightime headaches and now ache in jaw. Update.

Does Turmeric Help?

Diagnosis - without any blood tests?

Help with a flare please!

Letter from Consultant Rheumi in latest PMRGCAUK Newsletter

Stockpiling

Help and advice on slightly increasing Pred from 2 to 2-1/2 mg

Calling GCA patients: RAIRDA has a new online survey

Vit K2

I need info about long-term symptoms and treatment of GCA and vasculitis

GCA - PMR doing great after 2 months

PMR and CBD Oils

Anyone having injections of Depo-Medrone instead of taking prednisolone orally to manage symptoms of PMR?

Vitamin D study

Lupus and GCA/TA?

GCA and HPV

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