Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk
10,985 members19,991 posts

All posts for April 2020

Prednisolone dosage during Covid

Hi New member and have been diagnosed with PMR. Been suffering for 3 years with ...

Possible tapering tip

I was having great difficulty stopping prednisone-couldn’t budge below 1.5 mg. ...

Surprise call from the NHS Shielding team

Apologies if this subject has been done to death already Using the Addenbrooke’s...
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How do I manage several conditions without one taking precedence?

Having caught up with other members posts, I felt perhaps I’m just feeling neuro...

Confused and uncertain 3

Inside of left leg

Confused and uncertain 2

Here is a better picture.

Confused and uncertain?

Hello everyone. I would appreciate your help. I have done a blood test and am ...

Being treated for GCA after 4 years PMR and down to 3 mgs.

Dr Sarah Mackie (my Rheumatologist) has decided on balance to treat me for GCA....

Numb Toes Debate.

Interesting reading about Numb Toes. & footwear types etc. One of the distinct ...

Tapering on Prednisone

Hi All, I would appreciate if someone can let me know if I am tapering down from...

NHS assesses risk of Covid-19 infection in rheumatology patients

Apologies if this was previously posted. https://www.pharmaceutical-technology....

referral required?

I was only diagnosed a couple of months ago after asking my GP to test me for in...

Reducing dosage knee pain

Anyone experience knee pain while reducing prednisone. Going from 1 mg to 1/2 ...

Yearly subscription?

Fran, how do I subscribe to HU if I live in Germany? Your info was just for UK....

Nightime headaches and now ache in jaw. Update.

Thank you all you lovely people for your replies, they have all been really help...

Does Turmeric Help?

Has anyone had success using Turmeric to reduce pain and inflammation? If yes, w...

Diagnosis - without any blood tests?

What constitutes a diagnosis? Hello All, am posting on behalf of my older sister...

Help with a flare please!

I would really welcome some advice on how to deal with my first major flare. I ...

Letter from Consultant Rheumi in latest PMRGCAUK Newsletter

I was delighted to read the letter from a consultant at the Mayoh Clinic which ...

Stockpiling

Just collected my repeat prescription and find I have been given 224 Pred 1mg a...

Help and advice on slightly increasing Pred from 2 to 2-1/2 mg

Hi have been down to 2 mg of pred for about 3 weeks now and am getting pains in ...

Calling GCA patients: RAIRDA has a new online survey

The Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) has just launched a new...

Vit K2

Please help with direction on the best form of Vit K2 for PMR folks... MK4 or MK...

I need info about long-term symptoms and treatment of GCA and vasculitis

Three questions about GCA if you have experienced these situations: 1.)New guide...

GCA - PMR doing great after 2 months

To recap, I had left temporal headache and PMR symptoms of hip, wrist and elbow ...

PMR and CBD Oils

Research needed. Several months ago I had pains in one hip then another then a k...

Anyone having injections of Depo-Medrone instead of taking prednisolone orally to manage symptoms of PMR?

Anyone having injections of depo-Medrone instead of taking prednisolone by mouth...

Vitamin D study

I thought this was an interesting report of a study titled: \"Vitamin D linked ...

Lupus and GCA/TA?

I have an internet forum friend who has been through the diagnostic mill for sev...

GCA and HPV

I have had GCA for over 4 years. I was looking online and came across some rese...