Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,274 members • 37,962 posts

All posts for April 2022

Could anyone tell me if they have same side effects as me from pred

My breasts have sagged dramatically in the last 2 weeks loosing all firmness. And are so different I am worried that the change could bring on breast...

My breasts have sagged dramatically in the last 2 weeks loosing all firmness. An...

zoey12

•2 years ago

16 Replies

Could I be flaring

I mentioned I have some sort of prolapse.I couldn't get in to my Dr til this Monday.Personally I think iam in too much pain and suspect inflammation again.My...

I mentioned I have some sort of prolapse.I couldn't get in to my Dr til this Mon...

Hunter134

•2 years ago

10 Replies

PTH levels

Good morning a quick question to those of you wroth much more info on this than me. As I posted recently seeing consultant next week re DEXA results which have...

Good morning a quick question to those of you wroth much more info on this than ...

Pawscat11

•2 years ago

4 Replies

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New PMR Sufferer

Hi, as a new PMR sufferer, I am keen to hear from similar sufferers of the condition! I consider my symptoms as moderate and I appear to be managing my...

Hi, as a new PMR sufferer, I am keen to hear from similar sufferers of the condi...

LTDWJ

•2 years ago

19 Replies

Tapering, back-update etc.

I have two pieces is that I've continued tapering and am down to 9 mg per day with no serious issues other than floor scraping exhaustion...I've got sleeping...

I have two pieces is that I've continued tapering and am down to 9 mg per day wi...

Grammy80

•2 years ago

85 Replies

Tests and questions to ask rheum/internist. New PMR male patient diagnosed in March.

Hi Everyone, Hope you’re doing well. I’m new here. Second post. My husband was diagnosed with PMR in March 2022. He is really suffering mostly with left...

Hi Everyone, Hope you’re doing well. I’m new here. Second post. My husband was d...

Popsca

•2 years ago

16 Replies

PMR question

Just wondering if anyone else out there is suffering from this. diagnosed originally with PMR about 3 yrs ago, off of prednisone for one year, now I have...

Just wondering if anyone else out there is suffering from this. diagnosed origi...

remission

•2 years ago

17 Replies

COVID ANTIVIRALS

Covid antivirals going to waste as patients struggle to access drugs...

piglette

•2 years ago

8 Replies

I’ve Lots going on at the moment

Don’t think my pred doing me much good at the moment. Due to my Gilbert syndrome at it worst ASo narrow bile duct. Poo a very pail yellow I’m going to drink...

Don’t think my pred doing me much good at the moment. Due to my Gilbert syndrom...

Ronzy

•2 years ago

10 Replies

UK people. PMR is going to be discussed on BBC Breakfast this morning

Just had this text from mum On morning live bbc 1 at 9 15 they are talking about your condition (cant spell it)…. Bless her. I’m tuning in. What’s the betting...

Just had this text from mum On morning live bbc 1 at 9 15 they are talking about...

Buttonshutton

•2 years ago

36 Replies

Problem

Can someone explain to me why when I first answered the kind messages they went but none that I wrote yesterday seem to have. I spent a long time replying to...

Can someone explain to me why when I first answered the kind messages they went ...

prunus

•2 years ago

28 Replies

Bone Scan advice

Hello all, just a quick query . I've been on pred since the beginning of March , currently 12.5mg. I'm on Alendronic Acid too. I have been on Letrozole since...

Hello all, just a quick query . I've been on pred since the beginning of March ,...

Jigsawlass

•2 years ago

26 Replies

PMR and sport?

Hi, I am 58 yrs old and was diagnosed with PMR in Dec 2020. I have always been very active and continue to play tennis, cycle, attend the gym and play golf. I...

Hi, I am 58 yrs old and was diagnosed with PMR in Dec 2020. I have always been v...

Achyjoints

•2 years ago

76 Replies

Jaw pain

Hello, I started getting pain in my right jaw, the point near the ear where jaw bones meet. It hurt to open mouth wide and very sore eating. I had an emergency...

Hello, I started getting pain in my right jaw, the point near the ear where jaw ...

Fimckenz

•2 years ago

6 Replies

The NHS - the best and the not so good...

At about 9 a.m. on Tuesday last week (19th April) I was peacefully washing the breakfast dishes, when I was suddenly struck with an appalling pain on the left...

At about 9 a.m. on Tuesday last week (19th April) I was peacefully washing the b...

Marijo1951

•2 years ago

23 Replies

Now Off Prednisolone

I was diagnosed with PMR August 2020. Came off prednisolone February 2022 using the slow tapering method. Everything was fine and then I got Covid. I didn’t...

I was diagnosed with PMR August 2020. Came off prednisolone February 2022 using ...

Callymac

•2 years ago

8 Replies

PMR & body odour

I’ve had PMR for 3years now. Started on 60mg now tapered to 4mg. Since I dropped from 5mg my pains & stiffness have increased but also my body odour has...

I’ve had PMR for 3years now. Started on 60mg now tapered to 4mg. Since I dropped...

HCOYS

•2 years ago

7 Replies

Incontinence and Prednisolone

Hello everyone, Does anyone have similar Incontinence problems with Prednisolone side effects as I am experiencing please ? ( Besides Sweating and Weight...

Hello everyone, Does anyone have similar Incontinence problems with Prednisolon...

RoomsonFire

•2 years ago

89 Replies

Update on Rheumatologist Appointment

Hi All, hoping you’re having good, comfortable and pain free days. As promised, I’m reporting back on yesterday’s findings on my second visit to the...

Hi All, hoping you’re having good, comfortable and pain free days. As promised,...

Hidden

•2 years ago

7 Replies

Attitude of others to pmr and limitations of a chronic condition

Thought my pmr journey had ended after 5 yrs but no. A former friend told me she was sick of hearing my troubles………I said thank goodness I now know how you...

Thought my pmr journey had ended after 5 yrs but no. A former friend told me she...

Linlang

•2 years ago

43 Replies

Does Bromoline actually ease pain?

Hi everyone, just wondering if anyone has used bromoline (substance in pineapples) in treating pain associated with PMR and OA? A friend of mine has been...

Hi everyone, just wondering if anyone has used bromoline (substance in pineapple...

lkcreedon

•2 years ago

25 Replies

Could this be caused by PMR ?

I have had PMR for nearly 4 yrs, now down to 5mg pred'. I have now been told after blood tests, I have raised calcium and platelets, could this be connected to...

I have had PMR for nearly 4 yrs, now down to 5mg pred'. I have now been told aft...

HFenton100

•2 years ago

3 Replies

Speeded and restless side effect of Prednisolone?

I take 15 mg prednisolone at 6.30 PM with some yogurt, as I can´t eat first thing in the morning. A few hours later I am speeded and restless like after too...

I take 15 mg prednisolone at 6.30 PM with some yogurt, as I can´t eat first thi...

krillemy

•2 years ago

14 Replies

Loss

It is with great sadness that I write to say my darling husband has died.

prunus

•2 years ago

185 Replies

PMR and Covid

I have been following your advice on slow reduction of prednisolone and am now down to 2mg a day. I have not had a flare for a year, Today I tested positive...

I have been following your advice on slow reduction of prednisolone and am now ...

dolphin39

•2 years ago

12 Replies

GCA or PMR Flare?

Hi all, I've had PMR for 18 months, now tapered to 5mg Prednisone daily. A few days ago out of the blue, severe stabbing pulsing pain in left jaw, left temple,...

Hi all, I've had PMR for 18 months, now tapered to 5mg Prednisone daily. A few d...

Shanahan1

•2 years ago

12 Replies

Touching base 2 years after joining this community.

Hi everyone, I thought I would update you on how I am going after I was initially diagnosed with PMR in early 2020 which was changed to Psoriatic Arthritis 6...

Hi everyone, I thought I would update you on how I am going after I was initiall...

Surami2020

•2 years ago

16 Replies

Sleep Apnea

Does anyone have any suggestions in how I can deal with sleep apnea? Looking likely that I have it, along with the PMR. . I’ve been referred to a sleep clinic...

Does anyone have any suggestions in how I can deal with sleep apnea? Looking li...

Spittal9

•2 years ago

69 Replies

GPs VOTING ON REDUCING THEIR WORKING HOURS!

GPs want to reduce their working hours....

piglette

•2 years ago

21 Replies

Not new - just a new email

Thanks. Just changed email as your address must have been blocked. I have missed the forum since April 14. Think it is fixed with my new email.

Thanks. Just changed email as your address must have been blocked. I have missed...

Saskie86

•2 years ago

1 Reply

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2022

Could anyone tell me if they have same side effects as me from pred

Could I be flaring

PTH levels

New PMR Sufferer

Tapering, back-update etc.

Tests and questions to ask rheum/internist. New PMR male patient diagnosed in March.

PMR question

COVID ANTIVIRALS

I’ve Lots going on at the moment

UK people. PMR is going to be discussed on BBC Breakfast this morning

Problem

Bone Scan advice

PMR and sport?

Jaw pain

The NHS - the best and the not so good...

Now Off Prednisolone

PMR & body odour

Incontinence and Prednisolone

Update on Rheumatologist Appointment

Attitude of others to pmr and limitations of a chronic condition

Does Bromoline actually ease pain?

Could this be caused by PMR ?

Speeded and restless side effect of Prednisolone?

Loss

PMR and Covid

GCA or PMR Flare?

Touching base 2 years after joining this community.

Sleep Apnea

GPs VOTING ON REDUCING THEIR WORKING HOURS!

Not new - just a new email

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