Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,332 members • 38,093 posts

All posts for April 2024

Parkinsons

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my Dr with a few strange symptoms and she thinks I have Parkinsons as well as...

I started with PMR over 2 years ago and have slowly tapered to 4mg. I went to my...

Booklist

•10 minutes ago

Be the first to reply

Benefit of coherent breathing

Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it still occurred about every 25 days. At the start of PMR, I was diagnosed with...

Before PMR, I was experiencing bouts of arrythmia. Even on controlling drugs, it...

PhilFreeToAsk

•47 minutes ago

Be the first to reply

New to PMR

I just wanted to introduce myself and to say thank you for the wealth of information and advice from those on this forum. I was given a diagnosis of PMR by my...

I just wanted to introduce myself and to say thank you for the wealth of informa...

Trentside

•2 hours ago

5 Replies

Want to take advantage of all our features? Just log in!

GCA or Occipital Neauralgia

confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Arteritis . I’ve had a biopsy which came back negative, because previously my...

confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Ar...

Qscrabble8

•3 hours ago

3 Replies

GCA not sure if I have it or not

I started feeling a heartbeat in my temple. It wasn't very often but also my temple would ache sometimes. I contacted Dr. They sent me to fast track...

I started feeling a heartbeat in my temple. It wasn't very often but also my te...

jls12

•6 hours ago

4 Replies

Generic TCZ---is it available in the UK?

My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when...

My friends, Without this forum, my GCA journey would have been entirely differ...

Grammy80

•10 hours ago

2 Replies

Hospital stay: expecting too much?

Two weeks ago I had a successful shoulder replacement op. When I was taken to ward from recovery, a nurse stressed that I should not hesitate to use the...

Two weeks ago I had a successful shoulder replacement op. When I was taken to wa...

IlovePorridge

•11 hours ago

6 Replies

Biopsy Negative for GCA

The vascular surgeon said the biopsy for GCA was negative. I asked him if the biopsy result depends on where he took the biopsy. He said no and that it’s...

The vascular surgeon said the biopsy for GCA was negative. I asked him if the b...

Moaningxcat

•11 hours ago

4 Replies

useful articles and video on PMR by rheumatologists

not sure if these have been noted before, but I recently came across a website called rheumnow. It appears to be for rheumatologists to discuss different...

not sure if these have been noted before, but I recently came across a website c...

Freshairfiend

•13 hours ago

4 Replies

GCA/pmr

blood results CRP 1 ESR 19 up from 7 two weeks ago . How would you experienced people determine this

blood results CRP 1 ESR 19 up from 7 two weeks ago . How would you experienced...

CavalierKC3

•13 hours ago

7 Replies

A&E AGAIN!!

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on...

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks...

Kendrew

•20 hours ago

41 Replies

Synacthen test results

Update on Synacthen test results from 26/4/24. Thought this may be of interest. 9.20 cortisol blood test - 220 (better than cortisol test on 26/3/24 - 131)...

Update on Synacthen test results from 26/4/24. Thought this may be of interest. ...

Bluey-1

•21 hours ago

12 Replies

How to handle a “mild” flare

Hi I was diagnosed mid- January ‘24 and my Rheumy is a bit on the aggressive side. Started at 20 mg and felt amazing. After a mo th we dropped to 15. All...

Hi I was diagnosed mid- January ‘24 and my Rheumy is a bit on the aggressive si...

NCStateLine

•22 hours ago

4 Replies

Stabbing headache..GCA?

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lots of visitors and it's been difficult to keep to our normal low key routine ....

I've been plateauing on 2.5mg prednisolone for the last 2 months as we've had lo...

Clarbeston

•23 hours ago

17 Replies

low carb bread, rolls. Worth trying?

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling tons better. just started VERY slow tapering from 15mg Lots in today’s forum...

greetings lovely people. In to week 5 after confirmed PMR diagnosis. Feeling ton...

Scaredofpred

•23 hours ago

3 Replies

Rheumatologist referral

Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘normal’ reduction plan at first. I was able to get down to 5 mg with reasonable...

Hi everyone I was diagnosed in October 2021 with PMR. I followed the doctors ‘n...

MrsPractical

•1 day ago

11 Replies

Cracked finger tips, could this be caused by prednisolone?

The tips of my fingers are getting cracks, which can be a bit painful but mainly annoying as it makes opening things awkward. Started with a little crack by...

The tips of my fingers are getting cracks, which can be a bit painful but mainly...

Preposterous

•1 day ago

19 Replies

Hot flushes returned since PMR diagnosis

I thought my hot flushes had gone after 8 years of surviving the menopause but since being diagnosed with PMR in March this year they have returned. I wonder...

I thought my hot flushes had gone after 8 years of surviving the menopause but s...

Shadowboxes

•1 day ago

4 Replies

Grateful to be at 10mg finally

Hi everyone, after 21 months of GCA and PMR I am finally down to 10mg. I tried Methotrexate but the side effects were too much. I took weekly injections for 5...

Hi everyone, after 21 months of GCA and PMR I am finally down to 10mg. I tried M...

potterylady

•1 day ago

8 Replies

Impact of a Mediterranean Diet

Hello all I don't post often now but wanted to share some very positive news, that might be useful to some of you. I'm 4.5 years into PMR and am currently...

Hello all I don't post often now but wanted to share some very positive news, th...

Coffeebeans

•2 days ago

36 Replies

Between a rock and a hard place!!

I was so delighted to report that I took my last Prednisolone on 28th April 2024 and wasn’t totally surprised that I experienced the usual ‘drop’ symptoms that...

I was so delighted to report that I took my last Prednisolone on 28th April 2024...

Prof99

•2 days ago

22 Replies

neck pain with clicking and popping when I move

I've had clicking and popping and pain in the muscles of my neck for a couple of months . I just figured it was a stiff neck from reading and looking down and...

I've had clicking and popping and pain in the muscles of my neck for a couple of...

Paperroses

•2 days ago

6 Replies

Turmeric Drink Shots

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... I had my first one at about noon and the aching and pains have gone. Just that...

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... ...

discoballs

•2 days ago

53 Replies

Looking for a private Rheumatologist

Hello, forgive me if I’ve asked this before. Does anyone see a private Rheumatologist who is also practicing in the NHS who will treat the whole person and...

Hello, forgive me if I’ve asked this before. Does anyone see a private Rheumato...

Bramble2000

•2 days ago

14 Replies

PMR flare advice needed

I have messed up with dealing with a recent flare and would love your advice on where to go from here. I was stuck at 11mg Prednisolone for many months and...

I have messed up with dealing with a recent flare and would love your advice on ...

Oh-my

•2 days ago

6 Replies

Dose timing for non-pain symptoms?

I have been on 5mg pred for about five months and my symptoms are fatigue, some head spinning/ balance issues and mood swings, but no pain. I normally take the...

I have been on 5mg pred for about five months and my symptoms are fatigue, some ...

kangaroojohn

•2 days ago

3 Replies

question

Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a...

Does anyone get a pulsating sensation in their head on prednisone? I keep gettin...

Numptybrain

•2 days ago

25 Replies

Holiday!!

Hi everyone, I took advice from my lovely fellow sufferers.....Upped my pred from 8mg to 10mg.. Currently in Spain on hols....its pouring down but I'm happy......

Hi everyone, I took advice from my lovely fellow sufferers.....Upped my pred fro...

Tescohednesford

•2 days ago

16 Replies

5 week taper

I am about to embark upon the 5 week taper plan and would just like to clarify something. When I have reached the fifth week and have taken the new dose all...

I am about to embark upon the 5 week taper plan and would just like to clarify s...

Noni71

•2 days ago

2 Replies

nausea and bloating

Good evening just wondering if anybody started to feel nausea , bloating and burping after almost 2years on Prednisolone !! I have been on 5mg for 10 months...

Good evening just wondering if anybody started to feel nausea , bloating and bur...

5goFlotilla

•3 days ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

Parkinsons

Benefit of coherent breathing

New to PMR

GCA or Occipital Neauralgia

GCA not sure if I have it or not

Generic TCZ---is it available in the UK?

Hospital stay: expecting too much?

Biopsy Negative for GCA

useful articles and video on PMR by rheumatologists

GCA/pmr

A&E AGAIN!!

Synacthen test results

How to handle a “mild” flare

Stabbing headache..GCA?

low carb bread, rolls. Worth trying?

Rheumatologist referral

Cracked finger tips, could this be caused by prednisolone?

Hot flushes returned since PMR diagnosis

Grateful to be at 10mg finally

Impact of a Mediterranean Diet

Between a rock and a hard place!!

neck pain with clicking and popping when I move

Turmeric Drink Shots

Looking for a private Rheumatologist

PMR flare advice needed

Dose timing for non-pain symptoms?

question

Holiday!!

5 week taper

nausea and bloating

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive