Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for July 2023

Shingles vaccination declined today.

Before vaccination I called surgery to make sure I received non-live vaccine as previously told by them. Talk about third degree by receptionist! After...

Before vaccination I called surgery to make sure I received non-live vaccine as ...

covidcat13

•1 year ago

7 Replies

Advice for a minor flare below 10mg

Having had a previous flare that dropped me back quite a bit, I tapered slowly down, and was very comfortable for a month at 9mg. But when I tried to go to 8,...

Having had a previous flare that dropped me back quite a bit, I tapered slowly d...

papadapadoo

•1 year ago

6 Replies

Dr Subrahmanyam Peddasomayajula, (Dr. Mani) Broomfield Hopsital (NHS), Chelmsford, Essex

In search for a second opinion from my consultant at Whipps Cross Hospital (where even the registrar in ambulatory care suggested I go elsewhere) I today tried...

In search for a second opinion from my consultant at Whipps Cross Hospital (wher...

Sophiestree

•1 year ago

30 Replies

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WOW, noticing today, after some weak days at 5mg prednisone, I am again feeling good and energetic, added meth and hydroxy dropped metformin

I was at 5 a few weeks go, but too hastily dropped and went to 2.5, and on the 3rd day at 2.5 felt terrible. Jumped back to 10 and then 7.5. And since I have...

I was at 5 a few weeks go, but too hastily dropped and went to 2.5, and on the ...

sdowney717

•1 year ago

3 Replies

Campaign to raise awareness of PMR - We need your help!

We are really pleased to launch a campaign to raise awareness of PMR and some of the 'myths' that surround it. We've worked with Dr Sarah Mackie and a group of...

We are really pleased to launch a campaign to raise awareness of PMR and some of...

Fran_Benson

Partner•1 year ago

21 Replies

Tapering below 10mg steroid on MTX and TCZ

Bet there's an answer to my query on the forum already but have failed to find so far. Would be grateful for advice. I started MTX (15mgs weekly) 10+ weeks ago...

Bet there's an answer to my query on the forum already but have failed to find s...

tweety_pie

•1 year ago

8 Replies

Prednisolone and red cheeks and taking hot flushes

This wonderful group has kept me sane over the past months since my mums GCA diagnosis begin March answering many queries ive had along the way.My mum had been...

This wonderful group has kept me sane over the past months since my mums GCA dia...

Buchanan16

•1 year ago

19 Replies

Westham

can you help I’ve been diagnosed with PMI 12 years ago, have been on 2 mg of pred for the last month started getting a symptoms of a flare up three days ago...

can you help I’ve been diagnosed with PMI 12 years ago, have been on 2 mg of pr...

Westham1077

•1 year ago

4 Replies

gca symptoms

i've had pmr for almost five years now. i keep trying to reduce my dosage of prednisolone but each time i reach 8mgs the symptoms flare up again. i'm presently...

i've had pmr for almost five years now. i keep trying to reduce my dosage of pre...

Reclus

•1 year ago

13 Replies

Predisilone and knee op

I have GCA and PMR and am having a knee replacement in October. Have been told to put up my Pred. several days before the operation. I am on 3- 31/2 mg a day....

I have GCA and PMR and am having a knee replacement in October. Have been told ...

christine2715

•1 year ago

8 Replies

Excuse my ignorance

excuse my ignorance but what is si? I googled it and it just mentions artificial intelligence

excuse my ignorance but what is si? I googled it and it just mentions artificial...

Mfaepink1973

•1 year ago

20 Replies

Where is my doctor Pigelette ?

My Doctor will be in the Netherlands !!!!! from the 15th August ! She will continue to be my GP, online and phone consultations! I am in New Zealand . My mind...

My Doctor will be in the Netherlands !!!!! from the 15th August ! She will conti...

Flutterbies57

•1 year ago

42 Replies

Human monocyte-derived suppressive cells (HuMoSC)s in GCA treatment, (lab stage only, but maybe steroid sparing hope for future generations)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9989212/ The experts here have no doubt already read this paper, published in Feb 23. I think the work was done...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9989212/ The experts here have no ...

Dochaz

•1 year ago

3 Replies

update - diet & tapering

diagnosed with PMR early May 2023, put on 20mg pred, tapered after a couple of months to 17.5 and then after 1 month to 15mg, which started yesterday. Started...

diagnosed with PMR early May 2023, put on 20mg pred, tapered after a couple of m...

Thiago1396

•1 year ago

8 Replies

Tapering

This year has not been good. Recovering from Arterial ulcer on left leg, which needed angioplasty to restore the blood flow below the knee. Healing better than...

This year has not been good. Recovering from Arterial ulcer on left leg, which n...

Jocelyn344

•1 year ago

4 Replies

Bruising, Ozempic, Nausea, Depression, Steroids, Facial Hair. You Name It.

Gang, I am in a downward spiral. 1. Death of son so sad a lot. 2. Steroids for PMR led to diabetes II. Also, two half brothers have diabetes. 3. Doc...

Gang, I am in a downward spiral. 1. Death of son so sad a lot. 2. Steroids fo...

Merryfield

•1 year ago

29 Replies

Dizziness

Hello fellow sufferers, Just wondering if anyone else has encountered this. I'm experiencing giddiness upon standing up, and the bouts of fatigue seem to be...

Hello fellow sufferers, Just wondering if anyone else has encountered this. I'm...

Southmead

•1 year ago

13 Replies

Reducing TCZ?

I feel I'm on the home straight with my GCA/PMR, down to 2mg prednisone daily and weekly TCZ, (which I started Nov 21 and buy on private script as...

I feel I'm on the home straight with my GCA/PMR, down to 2mg prednisone daily a...

Happyexplorer

•1 year ago

15 Replies

Just Beginning...

Hi everyone! I'm an Aussie and been diagnosed GCA since last Friday. After four months of headaches, and some weird variable symptoms of joint pain,...

Hi everyone! I'm an Aussie and been diagnosed GCA since last Friday. After four ...

Leafsong66

•1 year ago

46 Replies

anyone trying to get of Tylonol 3

I was prescribed Tylonol 3 two tablets every four hours!!! Because the Family doctor will not agree that my PMR is back? I had five prednisone tablets in my...

I was prescribed Tylonol 3 two tablets every four hours!!! Because the Family ...

Yogikay

•1 year ago

8 Replies

er scare

yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk,...

yesterday I had my worst “episode” ever—after an uneventful start to my day, I s...

Twopies

•1 year ago

22 Replies

Low cortisol

I am feeling that I am suffering a bit from low cortisol levels and just wanted to offload a bit and it might offer insight to others. I am booked in for a...

I am feeling that I am suffering a bit from low cortisol levels and just wanted ...

marionofnorwich

•1 year ago

79 Replies

swollen knee part of a flare up?

l think l am having a flare up. I’ve never had one before . Yesterday l had a very exhausting day. Last night l slept very badly and began to ache all over...

l think l am having a flare up. I’ve never had one before . Yesterday l had a ve...

Trulyscrumpious

•1 year ago

38 Replies

Anemia

I started on 80 mg of Prednisone in October of 2020. I am now taking 11 1/2 mg . I was just diagnosed with anemia. The last time I was diagnosed with anemia...

I started on 80 mg of Prednisone in October of 2020. I am now taking 11 1/2 mg ...

Miacaro45

•1 year ago

6 Replies

PMG tapering advice

I have had pmg since September last year and have now tapped from 15mg to 2mg, however I am now experiencing right side rib area dull ache which is tender to...

I have had pmg since September last year and have now tapped from 15mg to 2mg, h...

Guilluame

•1 year ago

17 Replies

What does "burn itself out" mean?

Greetings fellow pilgrims. My understanding is that PMR is caused by uncontrolled inflamation, and that the lack of control is caused by an inability to...

Greetings fellow pilgrims. My understanding is that PMR is caused by uncontrolle...

BigStory

•1 year ago

11 Replies

Trying to control flare but getting into yo-yoing with pred

I've had PMR and GCA since January 2020 and, with a few flares, have very gradually tapered to 2mg of pred. I got there in early April and was OK for 5...

I've had PMR and GCA since January 2020 and, with a few flares, have very gradu...

PastelsinArt

•1 year ago

7 Replies

Shingles Vaccine

Shingles Vaccine From September 2023 you will be eligible for vaccine from age 65. Advertised on TV yesterday Rose

Shingles Vaccine From September 2023 you will be eligible for vaccine from age ...

Rose54

•1 year ago

49 Replies

Do I or dont I?

Have been home for two weeks now following my stay in hospital after a heart attack. Am on Apixaban, Bisoprolol, Atorvastatin and Ramapril alongside my...

Have been home for two weeks now following my stay in hospital after a heart att...

jaycee444

•1 year ago

9 Replies

Flying after zolendronic acid infusion

I have received an appointment for midday 13 August and due to fly 7am next day. Would it be wise to change the infusion appoint to a later date.I cannot...

I have received an appointment for midday 13 August and due to fly 7am next day...

Nominem

•1 year ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Shingles vaccination declined today.

Advice for a minor flare below 10mg

Dr Subrahmanyam Peddasomayajula, (Dr. Mani) Broomfield Hopsital (NHS), Chelmsford, Essex

WOW, noticing today, after some weak days at 5mg prednisone, I am again feeling good and energetic, added meth and hydroxy dropped metformin

Campaign to raise awareness of PMR - We need your help!

Tapering below 10mg steroid on MTX and TCZ

Prednisolone and red cheeks and taking hot flushes

Westham

gca symptoms

Predisilone and knee op

Excuse my ignorance

Where is my doctor Pigelette ?

Human monocyte-derived suppressive cells (HuMoSC)s in GCA treatment, (lab stage only, but maybe steroid sparing hope for future generations)

update - diet & tapering

Tapering

Bruising, Ozempic, Nausea, Depression, Steroids, Facial Hair. You Name It.

Dizziness

Reducing TCZ?

Just Beginning...

anyone trying to get of Tylonol 3

er scare

Low cortisol

swollen knee part of a flare up?

Anemia

PMG tapering advice

What does "burn itself out" mean?

Trying to control flare but getting into yo-yoing with pred

Shingles Vaccine

Do I or dont I?

Flying after zolendronic acid infusion

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