If you have GCA now, when were you diagnosed? Please reply - this will help us on Tuesday at the NICE meeting!
KateGilbert9 months agoPOPULAR
How do you view video? Seen our video of Prof Dasgupta speaking at the AGM? What device(s) do you prefer to watch video material online?
KateGilbert2 years ago
How old were you when diagnosed with GCA?
KateGilbert3 years agoPOPULAR
How old were you when diagnosed with PMR?
Would you prefer regular rheumatology clinic visits, OR phone appointments with a specialist nurse and access to a rapid access clinic ?
Has your doctor (GP, rheumy, ophthalmologist) ever warned you about prednisolone raising your blood sugar levels?
KateGilbert4 years ago
I would benefit/ have benefitted from a moderated online forum for people with PMR and/or GCA to share experiences/provide support
Dev_Director4 years ago
I would benefit (or have benefitted) from a telephone Helpline that provides support on dealing with PMR and/or GCA.
I would like to attend a local support group to meet other people with PMR and/or GCA, and have practical advice from expert speakers
Dev_Director4 years agoPOPULAR
I need emotional support on dealing with PMR and/or GCA from people with experience and knowledge of these illnesses. Agree/disagree?
I need practical support on dealing with PMR and/or GCA in addition to any support I receive from medical professionals. Agree/disagree?
Having PMR and/or GCA made me feel isolated. Do you agree/disagree?
23 Replies1 Like
Here's another. Methotrexate is now used routinely to replace or reduce steroids in RA. Have you ever had the choice of MTX for PMR or GCA?
KateGilbert5 years agoPOPULAR
To what extent do you agree? "I would rather take the risks of side-effects from medication than lower my quality of life with PMR symptoms.
32 Replies1 Like
We long for warmer weather, but when it comes, does it do any good for our symptoms? Do you feel better or worse in the hot weather?
KateGilbert5 years ago
For members with GCA, how old were you when GCA was first diagnosed?
KateGilbert6 years ago
5 Replies1 Like
For members with GCA, how long have you had GCA?
For members with PMR - how long have you had PMR
For PMR sufferers - When you were diagnosed with PMR, were the risks of Giant Cell Arteritis explained to you?
For PMR sufferers, how old were you when PMR was first diagnosed?
Overall, how satisfied are you with your treatment for GCA?
Overall, how satisfied are you with your treatment for PMR?
Since being on steroids, have you had a bone scan?
If you have PMR, who is treating you?
KateGilbert6 years agoPOPULAR
If you have GCA, who is treating you?
Are you on statins to reduce cholesterol?
KateGilbert7 years ago
If you have PMR or GCA, what colour are your eyes?
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