Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for April 2021

Can I have info on Alendronic Acid?

GP rang to say that recalculations had been done on my Dexa Scan and now I have osteoporosis in both my hips! I asked for time to make my decision, so all...

GP rang to say that recalculations had been done on my Dexa Scan and now I have ...

merril

•4 years ago

29 Replies

Good COVID antibody result for immune compromised

Hi My wife who has RA and has been on methotrexate (12.5mg) and prednisolone (5 mg at present) for many years, had a score of > 2,500 four weeks after her...

Hi My wife who has RA and has been on methotrexate (12.5mg) and prednisolone (5 ...

Mota1

•4 years ago

3 Replies

Wierd bright arch in left eye

GCA diagnosed aug 2020, 9 mg pred. I may have inadvertently been looking at bright lights over cooker, as now have bright floaters in left eye and bright arch...

GCA diagnosed aug 2020, 9 mg pred. I may have inadvertently been looking at brig...

RoadTrip

•4 years ago

79 Replies

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Adrenal glands

Hi Everyone, Hope you are all ok. I am at present working towards 4 mg of pred from 4 1/2 on the slow taper . I have been very tired this week , taking lots of...

Hi Everyone, Hope you are all ok. I am at present working towards 4 mg of pred f...

Jlml

•4 years ago

9 Replies

Methotrexate to get of Prednisolone

I have just seen a new Rhemy and she is concerned by long term steroid use for what was originally diagnosed as PMR and now 5 years later is still undiagnosed....

I have just seen a new Rhemy and she is concerned by long term steroid use for w...

Mamamia21

•4 years ago

16 Replies

Alternative meds for PMR

I have osteoporosis 10years plus....my last meds being a Prolia jab, which I suspect kicked off my now pmr . Not keen on taking steroids as they are bad for...

I have osteoporosis 10years plus....my last meds being a Prolia jab, which I sus...

Bonesnjoints

•4 years ago

2 Replies

Anyone experiencing possible tendon or ligament lower back of leg and ankle discomfort? Can't determine. Can it be diabetes symptoms?

I'm on 13mls. liquid pred. Just tapered from 15mls. Have been having these new symptoms the last few weeks. Last blood tests elevated glucose. Also...

I'm on 13mls. liquid pred. Just tapered from 15mls. Have been having these new...

pomeranion

•4 years ago

7 Replies

Update on my question about another steroid side-effect

Well, my telephone conversation today with a doctor didn’t help much. He said that dizziness and feelings of being very vague could be caused by many things....

Well, my telephone conversation today with a doctor didn’t help much. He said th...

Janann25

•4 years ago

4 Replies

Taper symptoms

Just wondering if this is normal pred tapering. I have been following the taper chart religiously., probably for a bout 6 months or more. I have gone from 9...

Just wondering if this is normal pred tapering. I have been following the taper...

Southmead

•4 years ago

5 Replies

No Antibodies

Hi all I had the Quest lab antibody test that looks for the Spike Protein as opposed to the other unreliable ones and I have none after being double vaccinated...

Hi all I had the Quest lab antibody test that looks for the Spike Protein as opp...

bluegirl7

•4 years ago

14 Replies

Is omeprazole necessary?

Now that my GP has their own pharmacist I had a conversation with one the other day. She was concerned I wasn’t taking omeprazole and I explained my reasoning...

Now that my GP has their own pharmacist I had a conversation with one the other ...

Lochy

•4 years ago

60 Replies

Occasional sin - carbs

I have been really good on a very low carb no sugar regime. Does anyone else have a day/meal that involves lots of carbs. Tempted to occasionally have fish and...

I have been really good on a very low carb no sugar regime. Does anyone else hav...

Rosina1871

•4 years ago

25 Replies

Underwear

Hi all, can anyone recommend the easiest bras to get on, normal wired back fastening is a nightmare. I'm quite large so something with support would be best...

Hi all, can anyone recommend the easiest bras to get on, normal wired back faste...

Hidden

•4 years ago

93 Replies

GallBladder bites back!

Now I have a new tiny problem for you to solve... about 2 years ago (on prednisone with Pmr) I had a gallbladder attack. TERRIBLE! like a spear through my...

Now I have a new tiny problem for you to solve... about 2 years ago (on prednis...

yogabonnie

•4 years ago

13 Replies

MRI Results

Rheumy phoned me this morning with my recent MRI of my head results. Good news is nothing sinister found and no GCA evident, which is to be expected as the...

Rheumy phoned me this morning with my recent MRI of my head results. Good news ...

HappyDiamonds

•4 years ago

3 Replies

Antibody test

Just to let yogabonnie and any others who are interested know, that I was offered an antibody test a few weeks ago by the National Child Development Study...

Just to let yogabonnie and any others who are interested know, that I was offer...

Kendrew

•4 years ago

20 Replies

Weight problem

Hi I have suffered with pmr for 2 years and am weaning off the prednisolone and trying to lose the weight I have put on I’m doing alternate 3/4 mg daily but...

Hi I have suffered with pmr for 2 years and am weaning off the prednisolone and ...

Tillylosh2021

•4 years ago

11 Replies

Advice please - I have GCA and an onset of different symptoms.

Looking for a bit of guidance on new symptoms. For the past two months, after being up and about for a few hours in the morning, I get a sudden onset of all...

Looking for a bit of guidance on new symptoms. For the past two months, after be...

Horsewhisper

•4 years ago

8 Replies

Pros and cons of HRT when on steroids

Hi I am on prednisolone for PMR. I have also been on HRT for several years. I recently made the decision to reduce and come off HRT but now I am not so sure...

Hi I am on prednisolone for PMR. I have also been on HRT for several years. I ...

Charmollie

•4 years ago

6 Replies

New and unsure of PMR journey 🤔

Good morning everyone, Quick question. I’ve tapered from 15mg (1 month) to 12.5 (in 2nd week). When I wake up I feel my symptoms are resurfacing but after a...

Good morning everyone, Quick question. I’ve tapered from 15mg (1 month) to 12.5...

Pangolin43

•4 years ago

5 Replies

Just seen 4 th physio and not happy

I am now 4 months off pred and generally feeling ok except - was diagnosed with left shoulder rotator cuff strain last December. Saw lovely physio and was...

I am now 4 months off pred and generally feeling ok except - was diagnosed with ...

Arflane97G

•4 years ago

8 Replies

Has anyone tried acupuncture to relieve PMR pain? Does it work?

Acupuncture for PMR pain?

Cmmw

•4 years ago

11 Replies

Information for people in the UK on Tocilizumab (Ro-Actemra) injections

Hello, and apologies for not posting for such a long time. As one of the few (and greatly privileged) LVV-GCA sufferers in the UK lucky enough to have been...

Hello, and apologies for not posting for such a long time. As one of the few (a...

Suzita76

•4 years ago

17 Replies

Micro vascular angina

Could anyone, who has this condition, give me advice on the symptoms they have and how they were diagnosed please.

Could anyone, who has this condition, give me advice on the symptoms they have a...

Sylvia1990

•4 years ago

2 Replies

Bread Bug! As opposed to Bed Bug!

Made a plaited loaf which looks like a pregnant bug so turned it into one!! 🤣 Also a spelt and walnut loaf 🍞 and a dozen choc muffins. All for the freezer......

Made a plaited loaf which looks like a pregnant bug so turned it into one!! 🤣 A...

diana1998

•4 years ago

23 Replies

PMR info

Not sure if this might be of assistance to anyone else out there, but I have been taking CBD oil to help with anxiety and pain and it wasn’t doing much for my...

Not sure if this might be of assistance to anyone else out there, but I have bee...

remission

•4 years ago

6 Replies

PMR PRO

I always listen to PMR PRO and love all her researched, practical, sometimes edgy, suffers fools lightly, funny, and always accurate, responses. BUT this is my...

I always listen to PMR PRO and love all her researched, practical, sometimes edg...

yogabonnie

•4 years ago

10 Replies

Suboptimal prescribing of osteoporosis medications in people with PMR

https://rheumatology.medicinematters.com/bsr-2021/polymyalgia-rheumatica-/suboptimal-prescribing-osteoporosis-medications-people-with-pmr/19112232?utm_source=On

https://rheumatology.medicinematters.com/bsr-2021/polymyalgia-rheumatica-/subopt...

PMRpro

Ambassador•4 years ago

16 Replies

Depression and PMR

Has anyone suffered depression as a result of the chronic pain from the PMR, my mood changed significantly lower in February this year, I was diagnosed with...

Has anyone suffered depression as a result of the chronic pain from the PMR, my ...

Littlejan22

•4 years ago

70 Replies

Empty blister packs

Just discovered that empty pill blister packs can be recycled. Superdrug pharmacies have a box into which they can be put. As lots of us take multiple pills,...

Just discovered that empty pill blister packs can be recycled. Superdrug pharma...

Maryis80

•4 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2021

Can I have info on Alendronic Acid?

Good COVID antibody result for immune compromised

Wierd bright arch in left eye

Adrenal glands

Methotrexate to get of Prednisolone

Alternative meds for PMR

Anyone experiencing possible tendon or ligament lower back of leg and ankle discomfort? Can't determine. Can it be diabetes symptoms?

Update on my question about another steroid side-effect

Taper symptoms

No Antibodies

Is omeprazole necessary?

Occasional sin - carbs

Underwear

GallBladder bites back!

MRI Results

Antibody test

Weight problem

Advice please - I have GCA and an onset of different symptoms.

Pros and cons of HRT when on steroids

New and unsure of PMR journey 🤔

Just seen 4 th physio and not happy

Has anyone tried acupuncture to relieve PMR pain? Does it work?

Information for people in the UK on Tocilizumab (Ro-Actemra) injections

Micro vascular angina

Bread Bug! As opposed to Bed Bug!

PMR info

PMR PRO

Suboptimal prescribing of osteoporosis medications in people with PMR

Depression and PMR

Empty blister packs

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