Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for January 2013

I have read that rebounders are highly effective in treating a variety of rheumatological conditions. Does anyone have any experience?

hawkeye1

•12 years ago

2 Replies

Need advice re pain relief

Hi, I am curious to know if anyone else has "bad days" in between "good days". I am 47 and still work full-time. I find that when I have been very busy at...

Hi, I am curious to know if anyone else has "bad days" in between "good days". ...

Runrig01

•12 years ago

18 Replies

Help! increasing the pred doesn't seem to be working.

I am really stuck and don't know what I should do now. When finally diagnosed and put on 15mg pred.on 1st December, within 3 days ALL the pain was gone. 10...

I am really stuck and don't know what I should do now. When finally diagnosed a...

suzy1959

•12 years ago

6 Replies

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diagnosis

hello everyone. Its ages since been onm here due to ill health. The past few months have been a roller coaster for me. I WAS DROPPING ON THE STERIODS TWO...

hello everyone. Its ages since been onm here due to ill health. The past few m...

jinnyone

•12 years ago

10 Replies

Any consensus on amount of exercise: aerobic, stretching and resistance types that are considered optimal for PMR? To each his own?

hawkeye1

•12 years ago

9 Replies

Any consensus on exercise for PMR? I am finding that medium exertion with stretching, aerobics or resistance all reliably flare symptoms.

I have had PMR for probably 2-3 years, but diagnosed just 10 weeks ago. Prednisone dose now 10 mg/d from initially 50 mg/d. Problem is, I have pre-existing...

I have had PMR for probably 2-3 years, but diagnosed just 10 weeks ago. Predniso...

hawkeye1

•12 years ago

1 Reply

funny old week

Hi all, how are you? Not in to much pain I hope. I have had a funny old week to be honest. I came down another 1mg of pred last Monday and was expecting to be...

Hi all, how are you? Not in to much pain I hope. I have had a funny old week to...

Sue8

•12 years ago

15 Replies

When does one have a normal head again. I'd like to get back to planet earth.

Hi guys, can anyone give me some help. I have come from 30mg of Ped, done to 8mg over a period of 12 months. Although I have had PMR for 16 months, but...

Hi guys, can anyone give me some help. I have come from 30mg of Ped, done to 8m...

Buenavista

•12 years ago

3 Replies

info pack

Hi Kate have not received my information pack yet I sent you my address almost 2weeks ago,is this a normal time scale please.ritter many thanks.

Hi Kate have not received my information pack yet I sent you my address almost 2...

ritter

•12 years ago

3 Replies

meeting

Hi ritter here can anyone let me know were the meetings take place in the north east,I believe the next meeting is March but do not know were.many thanks...

Hi ritter here can anyone let me know were the meetings take place in the north ...

ritter

•12 years ago

1 Reply

New clinical trial planned in Giant Cell Arteritis (GCA)

Pharma company Roche are planning a clinical trial of tocilizumab (TCZ) with GCA to start in a few months time. TCZ has been trialled with success in the...

Pharma company Roche are planning a clinical trial of tocilizumab (TCZ) with GCA...

Polywotsit

PMRGCAuk team member•12 years ago

2 Replies

What causes PMR? (poly myalgic rheumatica - translated from doctor speak as many muscle aches!!!)

hi i have just found this site i was lucky to be diagnosed with PMR as chief suspect on my first visit to my GP complaining of pains in arms legs and...

hi i have just found this site i was lucky to be diagnosed with PMR as chief sus...

onzoom

•12 years ago

9 Replies

esr

my ESR levels have gone right down at the mo im still in pain and stiffness im on 12mg of steriods, does this mean i dont have pmr im confused? does anyone...

my ESR levels have gone right down at the mo im still in pain and stiffness im o...

steph1

•12 years ago

15 Replies

Does working through the pain of pmr aggravate the condition?

francesm

•12 years ago

12 Replies

When does the moon face usually disappear?

JUDEAPUDE

•12 years ago

4 Replies

Could i have GCA?

Hi, I am new to this group. I am 47 years old and have had neck, shoulder and pelvic pain and stiffness for 15 months. It came on 4 days after having flu...

Hi, I am new to this group. I am 47 years old and have had neck, shoulder and pe...

Runrig01

•12 years ago

16 Replies

I have been feeling lightheaded at times, even when in bed. could this be related to steroid reduction. 3mgs now, was 40mgs last January.

Quine57

•12 years ago

3 Replies

Zeusa

Diagnosed with PMR in September, on 15mg, for 1 week, down to 10 for 1 week then up to 15 for 3 weeks then up to 30 for 1 week,, (to Blitz the doc said) which...

Diagnosed with PMR in September, on 15mg, for 1 week, down to 10 for 1 week the...

Zeusa

•12 years ago

6 Replies

From the heart

I wish I could feel normal Just for one more day That I could go do normal things That Gracie and I could play From the outside I look normal But from...

I wish I could feel normal Just for one more day That I could go do normal thi...

lynabelle

•12 years ago

9 Replies

PMRGCAuk North West Support Group ready to launch!

Ann Chambers, whose mother suffers with PMR, has pulled out all the stops to set up a support group in the North West region. The first meeting will be at the...

Ann Chambers, whose mother suffers with PMR, has pulled out all the stops to set...

Polywotsit

PMRGCAuk team member•12 years ago

7 Replies

Dropping

I'm down to 3mg of pred at last! I took it easy for a few weeks, 3 and 4 on alternate days, and it now seems to be going OK after a week on 3. I had a routine...

I'm down to 3mg of pred at last! I took it easy for a few weeks, 3 and 4 on alte...

Annodomini

•12 years ago

6 Replies

Qualify for lower rate disability allowance

I have qualified for lower rate disability allowance but it seems to be more on the depression side than the gca-pmr side of things, the woman from hmrc rang...

I have qualified for lower rate disability allowance but it seems to be more on ...

lynabelle

•12 years ago

1 Reply

Today 1 yr. on steroids.

I can not beleive it has been one year since I decided to start on Steroids for my PMR. ( I was exhauseted and tired of crying from the pain just from trying...

I can not beleive it has been one year since I decided to start on Steroids for ...

Lawrie

•12 years ago

9 Replies

With a nasty virus do I need to increase my pred?

I've got a really horrible virus and possible chest infection(seeing GP tomorrow)but am getting a lot of pain in my calves,knees and mid-back- I also cracked...

I've got a really horrible virus and possible chest infection(seeing GP tomorrow...

suzy1959

•12 years ago

7 Replies

Hi i have been treated for PMR for nearly 3 years now and I am 47

i caught a nasty cold 3 wees ago which has coincided with a flare up so my GP has put me back on 30mg of prednisolone. i wonder can anyone tell me is there a...

i caught a nasty cold 3 wees ago which has coincided with a flare up so my GP ha...

AliR

•12 years ago

17 Replies

Does anyone else with PMR, have a problem with there hands.

I have had PMR for the last 15 months, I started on 30mg of Prednisone and have managed to get down to 10mg. I also take 3 x 25mg of Enantyum liquid...

I have had PMR for the last 15 months, I started on 30mg of Prednisone and have ...

Buenavista

•12 years ago

27 Replies

A few queries/worries - How/when is it best to take pred tablets? Also, holiday advice/reassurance please about Steroids? Palpitations?

Only into my 3rd week of pills- started on 20mg reduced to 15mg after 4 days as 20mg was making me feel jittery. Currently still taking 15mg - no pains at all...

Only into my 3rd week of pills- started on 20mg reduced to 15mg after 4 days as ...

suzieh

•12 years ago

13 Replies

What symptoms does GCA cause in your vision?

I am a bit paranoid about developing this (I have PMR) so because the sight in one eye seems a bit blurred (rather like having a greasy mark on my glasses) I...

I am a bit paranoid about developing this (I have PMR) so because the sight in o...

HelenJC

•12 years ago

9 Replies

pmr update

HI ALL DOWN TO 11MG PRED A DAY GOING WELL NEXT WEEK DOWN TO 10 MG HAVE TO STAY ON 10 FOR 4 WEEK THEN DOWN TO 9 FINGERS CROSSED, ONE BIT OF BAD NEWS JUST TOLD I...

HI ALL DOWN TO 11MG PRED A DAY GOING WELL NEXT WEEK DOWN TO 10 MG HAVE TO STAY O...

yusuf

•12 years ago

7 Replies

Lets hope that this is a good year!!!!!

happy new year everyone , thank god christmas is over and everyone has gone home and back to work and school, now at least i get back a bit of me time during...

happy new year everyone , thank god christmas is over and everyone has gone home...

lynabelle

•12 years ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2013

I have read that rebounders are highly effective in treating a variety of rheumatological conditions. Does anyone have any experience?

Need advice re pain relief

Help! increasing the pred doesn't seem to be working.

diagnosis

Any consensus on amount of exercise: aerobic, stretching and resistance types that are considered optimal for PMR? To each his own?

Any consensus on exercise for PMR? I am finding that medium exertion with stretching, aerobics or resistance all reliably flare symptoms.

funny old week

When does one have a normal head again. I'd like to get back to planet earth.

info pack

meeting

New clinical trial planned in Giant Cell Arteritis (GCA)

What causes PMR? (poly myalgic rheumatica - translated from doctor speak as many muscle aches!!!)

esr

Does working through the pain of pmr aggravate the condition?

When does the moon face usually disappear?

Could i have GCA?

I have been feeling lightheaded at times, even when in bed. could this be related to steroid reduction. 3mgs now, was 40mgs last January.

Zeusa

From the heart

PMRGCAuk North West Support Group ready to launch!

Dropping

Qualify for lower rate disability allowance

Today 1 yr. on steroids.

With a nasty virus do I need to increase my pred?

Hi i have been treated for PMR for nearly 3 years now and I am 47

Does anyone else with PMR, have a problem with there hands.

A few queries/worries - How/when is it best to take pred tablets? Also, holiday advice/reassurance please about Steroids? Palpitations?

What symptoms does GCA cause in your vision?

pmr update

Lets hope that this is a good year!!!!!

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