Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for January 2019

Question about ramping up or down antidepressants

Hello, Looking for any experience or advice. I had been holding steady at 17 mgs prednisone- trying to reduce 1 mg a month or so according to the advice on the...

Hello, Looking for any experience or advice. I had been holding steady at 17 mgs...

kellykel

•5 years ago

19 Replies

Aching shin

Just wondering if anyone else suffers from this symptom. Have had problem with knees, particularly my left knee but now have aching shin on same leg. I have...

Just wondering if anyone else suffers from this symptom. Have had problem with k...

Lochy

•5 years ago

22 Replies

Cooking with Angst

No wonder Jean Paul was so grouchy.

coda123

•5 years ago

6 Replies

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Worry of Adrenal function

I don’t know whether anyone knows anything about the adrenal function but I’m quite worried. I have been reducing Pred over 2 years now and got it down to 5mg...

I don’t know whether anyone knows anything about the adrenal function but I’m qu...

Suffolklady

•5 years ago

84 Replies

Pain in strange places

Does anyone else get pmr pain in the lower abdomen/pubic area or the breastbone? When I first became ill the pain was worse in my arms,neck, inside thigh area...

Does anyone else get pmr pain in the lower abdomen/pubic area or the breastbone?...

Suet3942

•5 years ago

65 Replies

Confused Carer back again

Well, we have got to the bottom of my mum's groin pain. The day after our trip to A&E she fell and broke her hip (opposite to the painful leg) and has had to...

Well, we have got to the bottom of my mum's groin pain. The day after our trip ...

tyga60

•5 years ago

11 Replies

Sight and GCA

Can some people just suddenly loose their sight without any warning when they have GCA or is it like I had when it comes and goes? What have other people...

Can some people just suddenly loose their sight without any warning when they ha...

prunus

•5 years ago

35 Replies

Weighted vests!

Hi, Last week I read a post about weighted vests being available in Aldi for a good price. I can't find the post again but I'm wondering if anyone has bought...

Hi, Last week I read a post about weighted vests being available in Aldi for a g...

Pmrruth

•5 years ago

12 Replies

Boots gone up in my estimation

For those following the saga I just had a call from the local investigator at Boots. He apologised for the incident, said it should not have happened and...

For those following the saga I just had a call from the local investigator at Bo...

Marijo1951

•5 years ago

13 Replies

Resolutions!!! Tough January over!! Oh! Well! ..Rock On!

Pear shaped Resolutions! Hope yours went better! Made little progress here!! This is or maybe a reporter from the front line somewhere! Photo! Pinched from...

Pear shaped Resolutions! Hope yours went better! Made little progress here!! T...

Hidden

•5 years ago

7 Replies

Unsure and worried

Hi all Sorry to repeat my previous query, but not feeling good today and feel I need some support. Having got PMR in September 2018, been diagnosed in December...

Hi all Sorry to repeat my previous query, but not feeling good today and feel I ...

Liskeard

•5 years ago

18 Replies

Winter has arrived

Beats my view!

Constance13

•5 years ago

14 Replies

Problems after finishing steroids

A year ago I was diagnosed with PMR my symptoms I could not describe as very painful I had overheated muscles in my legs but felt like I had flu blood test...

A year ago I was diagnosed with PMR my symptoms I could not describe as very pai...

Dwellard

•5 years ago

11 Replies

The More Philosophical / Reflective Side: My PMR / GCA and a Chance Meeting with a Stranger who made me Think...

Greetings All As some of You Lot know, I appear to be quite an outgoing and usually frivolous contributor here. But (believe it or not), I’m not one for...

Greetings All As some of You Lot know, I appear to be quite an outgoing and us...

markbenjamin57

•5 years ago

37 Replies

Shingles!

Can anyone tell me about avoiding people with shingles please. My friend was diagnosed with shingles in November shortly gave up the painkillers as they...

Can anyone tell me about avoiding people with shingles please. My friend was di...

isabella2015

•5 years ago

24 Replies

More or less steroids

I have been trying to word a question for some time as a sort to rehearsal for a later treatment review with a GP I'm not looking for a definitive answer...

I have been trying to word a question for some time as a sort to rehearsal for ...

survivalist

•5 years ago

7 Replies

Clinic Note: GCA patient is completely non compliant with my excellent treatment plan.

I'm disappointed. Even though I'm not completely surprised by the viewpoints expressed by my rheumatologist, seeing his judgement of me written in a clinic...

I'm disappointed. Even though I'm not completely surprised by the viewpoints exp...

Blurry62

•5 years ago

73 Replies

"Don’t Shoot… I’m an American!"

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/01/30/dont-shoot-im-an-american/ Warning: Please note, this blog piece is not directly...

Those that can't do... RANT! https://rantingsofamadwomanblog.com/2019/01/30/dont...

Hidden

•5 years ago

109 Replies

Good morning from Cheshire UK

Woke up to this from my bedroom window this morning. A gentle Duvet day I think!

Woke up to this from my bedroom window this morning. A gentle Duvet day I think...

Oxford8

•5 years ago

41 Replies

Flying with GCA

Does anyone have any experience when it comes to flying with newly diagnosed GCA when your steroid meds are still high , has anyone’s Doctor advised against it...

Does anyone have any experience when it comes to flying with newly diagnosed GCA...

Gaz227

•5 years ago

24 Replies

Methotrexate and GCA

Sharing an article from Medpage (USA) January 29, 2019: https://www.medpagetoday.com/rheumatology/arthritis/77629

Sharing an article from Medpage (USA) January 29, 2019: https://www.medpagetoday...

JanetGarrettN

•5 years ago

6 Replies

Stress and GCA

I'm certain that many us have tried to ascertain why we have developed gca. I had been in very high stress mode for two years At the time of gca onset and...

I'm certain that many us have tried to ascertain why we have developed gca. I ha...

Blurry62

•5 years ago

31 Replies

Who won the GBW ? Follow up Post to the PDog and Bee Bird Watch Challenge and more events to help your PMR Friendly Wildlife Spotting

Thanks to the huge response from forum members to the posts by Pepperdoggie and myself about the RSPB Bird Watch , and how Wildlife Spotting can be a great...

Thanks to the huge response from forum members to the posts by Pepperdoggie and ...

Blearyeyed

•5 years ago

116 Replies

Name it

Polywotsit so much better than PMR - I was calling it Polything!

Daffodilia

•5 years ago

24 Replies

Got smug about tapering....and bingo!!!

Dropped from 35 mg at the end of August to 8 last week and was thinking "I can do this"....until this morning when I can barely lift my coffee cup. Agh! So...

Dropped from 35 mg at the end of August to 8 last week and was thinking "I can d...

Cairocat

•5 years ago

14 Replies

Sweating Profusely

Just started sweating after reducing to 10mg pred. Started on 60mg in August after being diagnosed with GCA, biopsy confirmed. I don't have night sweats,...

Just started sweating after reducing to 10mg pred. Started on 60mg in August af...

chanel2

•5 years ago

28 Replies

Good morning from sunny Toronto

A picture of my back yard this morning, to cool down my Australian friends.

Mikb

•5 years ago

26 Replies

Pain relief

Hi everyone. I have osteoporosis in my hips knees spine &rib cage awful pain at times ...I also have ckd +heart failure and thyrodism <&I’m worn out trying to...

Hi everyone. I have osteoporosis in my hips knees spine &rib cage awful pain at...

Peggy76

•5 years ago

20 Replies

Will I or won’t I??.

Morning all Some of you may remember that I have been waiting months for a scan on my renal artery as the docs have noticed a narrowing. Months ago I went for...

Morning all Some of you may remember that I have been waiting months for a scan ...

Suet3942

•5 years ago

12 Replies

Boots - further installment

I just had a phone call from Toby, a manager at Boots head office apologising for the incident at their St Pancras branch and for the fact that my complaint...

I just had a phone call from Toby, a manager at Boots head office apologising fo...

Marijo1951

•5 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for January 2019

Question about ramping up or down antidepressants

Aching shin

Cooking with Angst

Worry of Adrenal function

Pain in strange places

Confused Carer back again

Sight and GCA

Weighted vests!

Boots gone up in my estimation

Resolutions!!! Tough January over!! Oh! Well! ..Rock On!

Unsure and worried

Winter has arrived

Problems after finishing steroids

The More Philosophical / Reflective Side: My PMR / GCA and a Chance Meeting with a Stranger who made me Think...

Shingles!

More or less steroids

Clinic Note: GCA patient is completely non compliant with my excellent treatment plan.

"Don’t Shoot… I’m an American!"

Good morning from Cheshire UK

Flying with GCA

Methotrexate and GCA

Stress and GCA

Who won the GBW ? Follow up Post to the PDog and Bee Bird Watch Challenge and more events to help your PMR Friendly Wildlife Spotting

Name it

Got smug about tapering....and bingo!!!

Sweating Profusely

Good morning from sunny Toronto

Pain relief

Will I or won’t I??.

Boots - further installment

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