Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,313 members • 38,050 posts

All posts for November 2015

GP's opinion

Hi again everyone. Re my post of 3days ago, I have been to discuss MTX with my GP today. He listened very sympathetically and took on board all that I had to...

Hi again everyone. Re my post of 3days ago, I have been to discuss MTX with my ...

Sandybo

•8 years ago

4 Replies

T-Score

Finally! After more than two months I have been given my T-score. It is -2.0. Not sure what the implications of that are, but perhaps not a dire as the...

Finally! After more than two months I have been given my T-score. It is -2.0. ...

HeronNS

•8 years ago

11 Replies

POST WRITTEN ...

I have written a post AND clicked SUBMIT ! So ... Why am I seeing that I have NOT written a post yet ???

I have written a post AND clicked SUBMIT ! So ... Why am I seeing that I have N...

Polylinc

•8 years ago

3 Replies

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Fatigue with GCA

Hello, My main symptom related to my current conditon has been a constant headache with pain and tenderness over my right superficial temporal artery. This...

Hello, My main symptom related to my current conditon has been a constant heada...

Hidden

•8 years ago

13 Replies

Maidstone Meeting

Hi I would like to attend the next meeting in Maidstone. Would some one kindly forward on details? Whilst writing could I also enquire into what was said...

Hi I would like to attend the next meeting in Maidstone. Would some one kindly f...

LJhome

•8 years ago

5 Replies

I have moved to a new computer with windows 10 and have stopped receiving the weekly digest. How do I get it back, please?

I have moved to a new computer with windows 10 and have stopped receiving the we...

Trenny

•8 years ago

6 Replies

Methotrexate...again!

Hi friends, since my last post about 2 months ago when I mentioned that my rhuemy wanted me to have my aorta scanned to check on giant cells ( my CRP &ESR had...

Hi friends, since my last post about 2 months ago when I mentioned that my rhuem...

Sandybo

•8 years ago

11 Replies

Results!!

A brief summery; burning, pressure type head pain in temple there 24/7 no respite right side, back, shoulder and neck pain - bloods clear. Deterioration of...

A brief summery; burning, pressure type head pain in temple there 24/7 no respit...

Shaz029

•8 years ago

11 Replies

Is this a GCA flare?

Hi, I was diagnosed GCA by a positive biopsy in July 13 and have been tapering from 60mg to 4mg. I have not had a flare in this time apart from a short lived...

Hi, I was diagnosed GCA by a positive biopsy in July 13 and have been tapering f...

Mythemm

•8 years ago

1 Reply

GCA concerns

I've had pmr for two years and was checkered for GCA which wasn't proven. My esr recently rose to 67 and crp is 9. I've had an awful virus the last week which...

I've had pmr for two years and was checkered for GCA which wasn't proven. My esr...

Chynnamoss

•8 years ago

13 Replies

New drugs trial for GCA

https://www.gsk.com/en-gb/media/press-releases/2015/gsk-announces-start-of-phase-iii-study-of-sirukumab-in-giant-cell-arteritis/ Someone posted this in the...

https://www.gsk.com/en-gb/media/press-releases/2015/gsk-announces-start-of-phase...

Hidden

•8 years ago

Be the first to reply

Ulcers and prednisone

I have recently started on prednisone and wondered whether I need to be taking another medication to prevent stomach ulcers. I take the prednisone with food...

I have recently started on prednisone and wondered whether I need to be taking a...

Bramwater

•8 years ago

12 Replies

Andrographolide for GCA?

Hello everyone, As usual I am being my scientific self and doing research with our good friend Dr. Google. As always, I really appreciate the guidance I...

Hello everyone, As usual I am being my scientific self and doing research with ...

Hidden

•8 years ago

18 Replies

More blood tests used to diagnose GCA

Hello everyone, Just an update on my current situation. I finally have a temporal artery biopsy scheduled for December 1, 2015 and am happy to know that I can...

Hello everyone, Just an update on my current situation. I finally have a tempor...

Hidden

•8 years ago

4 Replies

Update on my alternative therapies

I wrote a long post yesterday but it appears not to have posted successfully, so forgive me if this turns out to be a duplication. PMR: I have had my fourth...

I wrote a long post yesterday but it appears not to have posted successfully, so...

HeronNS

•8 years ago

Be the first to reply

Alendronate

My doctors have written to me telling me I need calcium and vit D supplement to go with the Alendronate. This is fine why not tell me earlier when I started...

My doctors have written to me telling me I need calcium and vit D supplement to ...

Hurtinpat

•8 years ago

12 Replies

Maidstone support group

Hi. Following my first meeting yesterday I took on board what people were saying regarding vitamin d levels and luckily today I was due to see my G.P so he has...

Hi. Following my first meeting yesterday I took on board what people were saying...

pmrdec112014

•8 years ago

4 Replies

New Rheumy!!

Happy day yesterday! Started out with a phone call from the rheumy I’ve been seeing cancelling my appointment today claiming that they were “not allowed” to...

Happy day yesterday! Started out with a phone call from the rheumy I’ve been see...

PamelAnneCT

•8 years ago

6 Replies

Zoledronic Acid 2

The info I had from the Rheumy nurse last week warned of a rare compllication of the ZA treatment (osteonecrosis of the jaw) and told me to see my dentist...

The info I had from the Rheumy nurse last week warned of a rare compllication of...

Annodomini

•8 years ago

2 Replies

Advice please

I having been up and down on preds for various reasons. As high as 40mg and as low as 9mg. Currently I am taking 15mg of pred and 20mg of leflonumide. Since...

I having been up and down on preds for various reasons. As high as 40mg and as l...

Griggser

•8 years ago

6 Replies

Maidstone support group

Hi, I've just got home from attending my first support group. It was well worth travelling the distance to get there and nearly ending up in London on my way...

Hi, I've just got home from attending my first support group. It was well wort...

Angex05

•8 years ago

15 Replies

Weakness and pain with GCA

I was diagnosed with GCA in September 2014 and am now down to 7.5 pred a day and 15 Methotrexate a week. I have had the usual side effects of pred, in...

I was diagnosed with GCA in September 2014 and am now down to 7.5 pred a day and...

PenelopeVita-Finzi

•8 years ago

19 Replies

Pred tapering for first time

15 mg for 5 weeks for PMR. 3 days ago reduced to 13.5 mg. - pain in neck, joints increased but not so much as to cause me great discomfort. This morning pain...

15 mg for 5 weeks for PMR. 3 days ago reduced to 13.5 mg. - pain in neck, joint...

cassie1208

•8 years ago

9 Replies

Vision

Hi again ...I posted yesterday about the hair loss & pred...I forgot to mention vision. I have worn glasses for reading since I was a little kid....after...

Hi again ...I posted yesterday about the hair loss & pred...I forgot to mention ...

bert403

•8 years ago

7 Replies

Cushings? Moonface returned

Have GCA. started 60mg Prednisolone in Jan 2015. Tapered, flared. Since May 2015 have been on slow taper. Experienced all the usual side effects of Pred,...

Have GCA. started 60mg Prednisolone in Jan 2015. Tapered, flared. Since May...

Caro12line

•8 years ago

3 Replies

Chemical exposure causing GCA? Genetic testing?

Hello, I posted earlier as a young man (23 years old) who developed temporal arteritis in mid March 2015 after working at a power plant from January 2015...

Hello, I posted earlier as a young man (23 years old) who developed temporal ar...

Hidden

•8 years ago

11 Replies

Should one expect full recovery from temporal arteritis?

Hello, I am due to have a temporal artery biopsy this upcoming week (still have to schedule it) to find out whether or not I have GCA or non-GCA temporal...

Hello, I am due to have a temporal artery biopsy this upcoming week (still have...

Hidden

•8 years ago

6 Replies

Finding a good rheumatologist

I'd really like a second opinion as I'm not happy with the rheumatologist I've been seeing. I wonder if anyone can recommend someone?

I'd really like a second opinion as I'm not happy with the rheumatologist I've b...

Chynnamoss

•8 years ago

8 Replies

Pred & Hair Loss

Hi everyone...haven't posted in a while. I have GCA since Sept 2014...started at 60mg and now down to 10mg...some issues along the way. Started 15mg at the...

Hi everyone...haven't posted in a while. I have GCA since Sept 2014...started a...

bert403

•8 years ago

26 Replies

Side effects of Pred

Hi everyone Do any of you get a racing heart as a side effect of pred. I have been suffering from these for 3 days now and am a bit concerned. I was...

Hi everyone Do any of you get a racing heart as a side effect of pred. I have ...

Nicky1969

•8 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2015

GP's opinion

T-Score

POST WRITTEN ...

Fatigue with GCA

Maidstone Meeting

I have moved to a new computer with windows 10 and have stopped receiving the weekly digest. How do I get it back, please?

Methotrexate...again!

Results!!

Is this a GCA flare?

GCA concerns

New drugs trial for GCA

Ulcers and prednisone

Andrographolide for GCA?

More blood tests used to diagnose GCA

Update on my alternative therapies

Alendronate

Maidstone support group

New Rheumy!!

Zoledronic Acid 2

Advice please

Maidstone support group

Weakness and pain with GCA

Pred tapering for first time

Vision

Cushings? Moonface returned

Chemical exposure causing GCA? Genetic testing?

Should one expect full recovery from temporal arteritis?

Finding a good rheumatologist

Pred & Hair Loss

Side effects of Pred

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