Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,323 members•40,434 posts

All posts for August 2017

Taper from 5mg down...

I'm on MTX as well as pred, and not sure how I want to go down from here. Would it be better to go from 5mg to 4mg on the DSNS method, or just drop from 5mg to...

I'm on MTX as well as pred, and not sure how I want to go down from here. Would ...

tiasbear

•7 years ago

19 Replies

The Lighter Side of PMR - PMR Progress Update, Pred Tapering, The Summer (UK) Flu, and all that Life throws at Us.. ;-)

Sincere Greetings to You Lot here - whether Newbies, Veterans, Aunties, or anyone else who is daft enough to follow my rambles. (For you Newbies, I mean 'You...

Sincere Greetings to You Lot here - whether Newbies, Veterans, Aunties, or anyon...

markbenjamin57

•7 years ago

37 Replies

Still got fatigue.

Hi ive had gca pmr for 4 years now ,im off pred and my hydrocortisone has been restarted for my Addison's Disease. Im on 25mg hydro and a fludrocortisone pill...

Hi ive had gca pmr for 4 years now ,im off pred and my hydrocortisone has been r...

whitleybayfc

•7 years ago

4 Replies

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Stomach issues

Just thought I would share this in case others suffer the same issue. For quite some time now I've been having full fat probiotic live culture yoghurt with...

Just thought I would share this in case others suffer the same issue. For quite ...

Griggser

•7 years ago

7 Replies

RE Research link

Hi I just tried to sign up for the research group and used th address on this site, I received an utomated reply as follows:- This Account is no longer used....

Hi I just tried to sign up for the research group and used th address on this si...

Tigger6717

•7 years ago

3 Replies

Flu vaccines?

This is a quick question. I've taken a flu shot for many years, usually in September. I believe I've read that some vaccinations are contraindicated while on...

This is a quick question. I've taken a flu shot for many years, usually in Sept...

Hindags

•7 years ago

20 Replies

MPRKR

Oh my,found this web site and it's greatly appreciated , symptoms make sense now. Thought I was being a wimp thank you. It's hard for other people doctor...

Oh my,found this web site and it's greatly appreciated , symptoms make sense now...

MaryA_

•7 years ago

5 Replies

Side effects

Nitrofurantion , oh my god what a horrible medicine I have only taken one and I feel 10 times worse , raging headache pains in my arms and legs , feel tight...

Nitrofurantion , oh my god what a horrible medicine I have only taken one and I ...

Winniexx

•7 years ago

13 Replies

Tapering steroids

I'm down from 20mg to 6mg over a 2 year period - so, a slow taper. However, I'm feeling very odd - tired, tearful and a bit remote. Could this be down tobthe...

I'm down from 20mg to 6mg over a 2 year period - so, a slow taper. However, I'm ...

SusieQQ

•7 years ago

9 Replies

Doctors 😬

Thinking about it they gave me. A 6 week program to get down on my Pred. From 15 to 0 in 6 weeks. AND NO MENTION OF WHAT IF. 😱 I'll just go for it.

Thinking about it they gave me. A 6 week program to get down on my Pred. From 1...

Rocketronzy

•7 years ago

15 Replies

How much to push yourself

I've had GCA for 16 months....took prednisone and progressed to only actemra infusions once a month. My main problem has been extreme fatigue. I have been...

I've had GCA for 16 months....took prednisone and progressed to only actemra inf...

Buddyk

•7 years ago

7 Replies

PMR

Hi I have recently posted the trouble I am having with PMR . I am in a lot of pain at the moment and have increased by preds which hasn't made any difference ....

Hi I have recently posted the trouble I am having with PMR . I am in a lot of pa...

KathleenJohnson107

•7 years ago

3 Replies

Associations of fats and carbohydrate intake with cardiovascular disease and mortality ....

Given we hear lots of discussion on this forum regarding the multiple benefits of a low carb diet for people taking Pred - many may find this Lancet journal...

Given we hear lots of discussion on this forum regarding the multiple benefits o...

Rimmy

•7 years ago

22 Replies

Osteoporosis

I am new here but have osteoporosis since 2009 but improved now. Will tell more next time I'm in.

I am new here but have osteoporosis since 2009 but improved now. Will tell more ...

Marjorie52

•7 years ago

1 Reply

Anyone have GI symptoms as precursor to diagnosis?

Hi All - wondering if anyone has had symptoms of both bloating and GI gassiness both in stomach and intestines as a precursor to the GCA? My GCA came on very...

Hi All - wondering if anyone has had symptoms of both bloating and GI gassiness ...

Sandy52

•7 years ago

8 Replies

Questions

Started at 20mg prednisone 14 mo ago, then 10, & then. I've been slowly reducing 1mg a month if no pain, at 3mg daily for August. For more than a month now...

Started at 20mg prednisone 14 mo ago, then 10, & then. I've been slowly reducing...

mo3go7

•7 years ago

3 Replies

Poopadoop!🛎

I don't know if it is connected with your difficulties with the site but I was unable to access your full post, I kept getting a list of recent posts, not...

I don't know if it is connected with your difficulties with the site but I was u...

SheffieldJane

•7 years ago

8 Replies

Urinary tract conditions and Antibiotics

It's a while since I posted an update but I do read others every day which, together with responses, usually answer any concerns I may have had. I have been...

It's a while since I posted an update but I do read others every day which, toge...

Hidden

•7 years ago

15 Replies

New Rheumatologist

Thank you to those that referred me to Dr. Rod Hughes. I saw him today. It was an expensive outing - getting there was very complicated and as a private...

Thank you to those that referred me to Dr. Rod Hughes. I saw him today. It was a...

Slosh

•7 years ago

33 Replies

PMR

Just wondering if you kind people on this forum could give me some advice. Having been quite steady on 10mg for 3 months , when I tried to reduce I had my...

Just wondering if you kind people on this forum could give me some advice. Havin...

KathleenJohnson107

•7 years ago

4 Replies

Need help, I am very confused

I was diagnosed as GCA 5 months ago and was put on 80 mg prednisone. Then prednisone didn't work well for me and they put me on azathioprine 200 mg and...

I was diagnosed as GCA 5 months ago and was put on 80 mg prednisone. Then predni...

Ihsandaakur

•7 years ago

5 Replies

Study regarding milk Kefir and bone resorption/loss

Hi, I hope this is an appropriate and useful post. 11 months ago I had Bone density scans and was shown to be beginning Osteopenic (sp?) in spine and...

Hi, I hope this is an appropriate and useful post. 11 months ago I had Bone dens...

CornishCliff

•7 years ago

23 Replies

Posting links question..

Hi, Being new to the forum (but not new to PMR/Pred :( ) I was wondering what the rules are about links to sources of information that may be of interest or...

Hi, Being new to the forum (but not new to PMR/Pred :( ) I was wondering what th...

CornishCliff

•7 years ago

3 Replies

Experience with infusions of Rituxan and PMR

GM Everyone - I want to write of my experience with infusions of a drug called Rituxan. I was diagnosed this past May with lymphoma and a tumor in my spleen....

GM Everyone - I want to write of my experience with infusions of a drug called R...

nymima01

•7 years ago

2 Replies

Anyone know what to expect downing off pred if I haven't got PMRA. Been on for 6 or 7 years.

What I mean is just coming off pred. 😱😳 Only this weekend talking to a long turm suffera can't seem to get past. 5. At four she feels dreadful Her...

What I mean is just coming off pred. 😱😳 Only this weekend talking to a long...

Rocketronzy

•7 years ago

8 Replies

Vasculitis Research

Suzy on the VasculitsUK forum has just posted this: https://healthunlocked.com/vasculitis-uk/posts/136149660/help-needed-for-a-proposed-research-study. To...

Suzy on the VasculitsUK forum has just posted this: https://healthunlocked.com/v...

PMRpro

Ambassador•7 years ago

6 Replies

Trochanteric Bursitis with PMR

Hi,as if I didn't have enough problems with my normal PMR related pains now I am having incredible pain in the bursa of the Trochanteric muscle (I think that...

Hi,as if I didn't have enough problems with my normal PMR related pains now I am...

Robinre

•7 years ago

17 Replies

Hair Loss Continues

I'm down to 4.5mg prednisone per day and my hair is still falling out! :( Has anyone had any luck with Rogaine? I'm afraid to try it as my hair loss doesn't...

I'm down to 4.5mg prednisone per day and my hair is still falling out! :( Has an...

Bonnig

•7 years ago

20 Replies

2 Weeks in

2 weeks on 15 mg and still having problems in the morning , waking with aching legs and knees , takes me till late morning to get myself going , is this normal...

2 weeks on 15 mg and still having problems in the morning , waking with aching l...

Rosbud

•7 years ago

11 Replies

Advice please

Advice please! My doctor has referred me to Rheumatology at Winchester Hospital in Hampshire although I would have preferred Southampton General. Does anyone...

Advice please! My doctor has referred me to Rheumatology at Winchester Hospital ...

loopeyloo72

•7 years ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

Taper from 5mg down...

The Lighter Side of PMR - PMR Progress Update, Pred Tapering, The Summer (UK) Flu, and all that Life throws at Us.. ;-)

Still got fatigue.

Stomach issues

RE Research link

Flu vaccines?

MPRKR

Side effects

Tapering steroids

Doctors 😬

How much to push yourself

PMR

Associations of fats and carbohydrate intake with cardiovascular disease and mortality ....

Osteoporosis

Anyone have GI symptoms as precursor to diagnosis?

Questions

Poopadoop!🛎

Urinary tract conditions and Antibiotics

New Rheumatologist

PMR

Need help, I am very confused

Study regarding milk Kefir and bone resorption/loss

Posting links question..

Experience with infusions of Rituxan and PMR

Anyone know what to expect downing off pred if I haven't got PMRA. Been on for 6 or 7 years.

Vasculitis Research

Trochanteric Bursitis with PMR

Hair Loss Continues

2 Weeks in

Advice please

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