Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,755 members • 39,019 posts

All posts for June 2024

long term prednisone causing thin skin, labral tears around hip joint, gluteus and hamstring tears, ?

well think I have told my story few times, at the end of my rope, had severe groin pain oct 2022, mri showed labral tears, dr just prescribed t3 sfor pain,...

well think I have told my story few times, at the end of my rope, had severe gro...

arvine

•21 days ago

28 Replies

GCA and Cough/Interstitial Lung Disease?

Does anyone with GCA have a dry, sometimes productive, cough? It feels like a bronchial irritation and I cough more when I speak. The cough comes and goes....

Does anyone with GCA have a dry, sometimes productive, cough? It feels like a b...

Moaningxcat

•22 days ago

14 Replies

Heading for a relapse?

Having had a pretty textbook experience with PMR, pred and tapering to zero over a couple of years, I have enjoyed a return of energy levels and fitness over...

Having had a pretty textbook experience with PMR, pred and tapering to zero over...

Lovebikes

•22 days ago

8 Replies

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Life after Tocilizumab?

I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health...

I've been off steroids since mid-May. Continuing to take methotrexate (15mg week...

tweety_pie

•22 days ago

2 Replies

Increased inflammation-flare?

In September last year my rheumatologist asked if while I was at Mayo Clinic I could see an endocrinologist about a possible testosterone issue. That was ok...

In September last year my rheumatologist asked if while I was at Mayo Clinic I c...

1951grumpa

•22 days ago

7 Replies

Scalp pan and vision disturbances in GCA

Because my cro never goes up (genetic thing) and sed only up when i have a high fever, docs refuse to discuss further all my symptoms of both PMR and GCA which...

Because my cro never goes up (genetic thing) and sed only up when i have a high ...

SkinNBones

•22 days ago

9 Replies

"Roaming" mild pain and stiffness, unilateral, but in GCA/PMR areas, when on a low dose of Prednisone

Is this just due to the aging process or a sign of a possible flare after a taper? The non-bilateral element tends to make me think it's more about getting on...

Is this just due to the aging process or a sign of a possible flare after a tape...

Dochaz

•22 days ago

13 Replies

Is it safe to renew my tetanus injection with being on 8mg Pred?

My tetanus injection needs to be topped up. I have an allotment in London which used to be part of a railway embankment and wondered if it is wise to take...

My tetanus injection needs to be topped up. I have an allotment in London whic...

Motida

•22 days ago

22 Replies

Slightly elevated liver enzymes

Been on MTX and Preds for a few years. My liver tests come back slightly elevated but stay in that range. I have reduced both meds slowly and I am now down to...

Been on MTX and Preds for a few years. My liver tests come back slightly elevate...

gowa69

•22 days ago

2 Replies

reducing/stopping Omeprazole

I have been taking 20 mg of Omeprazole a day since start of Prednisolone originally 40mg 4months ago after GCA diagnosis. I am now reducing and at 9 mg of...

I have been taking 20 mg of Omeprazole a day since start of Prednisolone origina...

Havanahula

•22 days ago

11 Replies

is this PMR

morning, I have now finished my 2 year Prednisolone taper for GCA. I was under Chetan Mukthyr. However much pain & stiffness I was in he always ruled out PMR...

morning, I have now finished my 2 year Prednisolone taper for GCA. I was under C...

CavalierKC3

•22 days ago

14 Replies

Speedy taper after relapse - safe?

I recently experienced my first GCA/PMR flare about 10 weeks after having reached zero pred. So, either went too fast, or too far or both. Rheumy has now...

I recently experienced my first GCA/PMR flare about 10 weeks after having reache...

Optim11

•23 days ago

12 Replies

Leflunomide

I have refused to take any more methatrexate and am being prescribed Leflunomide has anyone else been prescribed it, I am down to 12.5 pred after 12 months

I have refused to take any more methatrexate and am being prescribed Leflunomid...

Doublef

•23 days ago

24 Replies

Forgot

Meant to say I had a second Total Hip Replacement in January 2024.

Blodders2

•23 days ago

2 Replies

Hello

Hi I have just been diagnosed with PMR, also I am hypothyroid was diagnosed many years ago so take thyroxine every day I also have psoriasis, feeling a bit low...

Hi I have just been diagnosed with PMR, also I am hypothyroid was diagnosed many...

Blodders2

•23 days ago

11 Replies

taper question

hi-I came on a few weeks ago and wanted to get some advice and give an update. I had my dr appointment and she said to continue the 30 mg until I had zero...

hi-I came on a few weeks ago and wanted to get some advice and give an update. I...

Hwle

•23 days ago

10 Replies

LVV Update

Hello, just getting back with the latest on what appears to be a huge LVV flare. Had the PET Scan on Thursday and doc called yesterday. I have the scan but...

Hello, just getting back with the latest on what appears to be a huge LVV flare....

LemonZest11

•23 days ago

25 Replies

looking for diagnosis

Have had a tough last 2 years with elevated liver enzymes, bad fatigue, headaches initially balance problems and now a constant headache and forehead artery is...

Have had a tough last 2 years with elevated liver enzymes, bad fatigue, headache...

Oztrax

•23 days ago

19 Replies

New to group

Hi it’s taken six months of agony however today after last round of blood tests I am starting steroids tomorrow. I am very nervous especially as I have...

Hi it’s taken six months of agony however today after last round of blood tests ...

Sunshine8888

•23 days ago

24 Replies

Taking Prednisone at evening meal instead of mornings

Having taken Prednisone for 3 months now and tapered from 20mg to 9mg am getting increasingly tired during the day. Does anyone take their medication at their...

Having taken Prednisone for 3 months now and tapered from 20mg to 9mg am getting...

Gioielli5

•24 days ago

9 Replies

From aquafit to weights?

Advice needed please. I do regular aquafit, 4x45minute sessions. a week mostly, with very good instructors. According to the noditrax machine my core muscle...

Advice needed please. I do regular aquafit, 4x45minute sessions. a week mostly,...

MamaBeagle

•24 days ago

14 Replies

Flare under control?

so I had a flare a few weeks ago. CRP was slightly elevated- higher than my normal but still in ‘normal range’. I upped my methylprednisolone from 3mg to...

so I had a flare a few weeks ago. CRP was slightly elevated- higher than my nor...

Italybound62

•24 days ago

22 Replies

Sluggish adrenals or PMR

I was diagnosed in June 2022 and have spent the past 2 years tapering down to current level of 1.5 mg. I have tapered slowly the entire time going at least...

I was diagnosed in June 2022 and have spent the past 2 years tapering down to cu...

gingerraspiller

•24 days ago

16 Replies

What does reducing look like for a person with no adrenal function?

I have just had an awful couple of days trying to reduce. I was at 3 and reduced one quarter one day. 4 days later I started having anxiety which magnesium...

I have just had an awful couple of days trying to reduce. I was at 3 and reduced...

bunnymom

•24 days ago

23 Replies

Palpitations with tapering

I wonder if it is usual to have palpitations when reducing Prednisolone. I have successfully managed to get down to 5 mgms (last 7 weeks), albeit with the...

I wonder if it is usual to have palpitations when reducing Prednisolone. I have...

Plantmad

•24 days ago

8 Replies

PMG? Gone or not?

after 6 months of thinking getting older was horrid, I got to a point I couldn’t get in and out of the bath, stairs were awful and ending with me sleeping...

after 6 months of thinking getting older was horrid, I got to a point I couldn’t...

Hlpaitch

•24 days ago

14 Replies

struggling with pain in stomach from Prednisone

Hello all, I have continued to struggle with pains in my feet and ankles since my last posts several months ago. Since then the stress- my favorite friend -...

Hello all, I have continued to struggle with pains in my feet and ankles since ...

bluegirl7

•24 days ago

11 Replies

Oh dear, GCA symptoms on 0.5 to 0.25 taper

Hi folks Very disappointed. Started with GCA 3 years 4 months ago. Doing a slow taper of 0.25 a month since I was on 2.5. No GCA symptoms for a year. Across...

Hi folks Very disappointed. Started with GCA 3 years 4 months ago. Doing a slow...

Viveka

•24 days ago

7 Replies

Should I go back on 1 or 2 mg prednisone due to fatigue?

Hello friends! After a four year term of GCA, while doing a very slow taper of prednisone l have been off of prednisone for several months. Occasionally if...

Hello friends! After a four year term of GCA, while doing a very slow taper o...

Snerd

•24 days ago

11 Replies

Newly Diagnosed and Frightened

Oh Crumbs, I seem to have written my whole introduction as part of my profile. So my main concern at the moment is how do other people cope with the side...

Oh Crumbs, I seem to have written my whole introduction as part of my profile. S...

Blondgrassblowing

•24 days ago

45 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

long term prednisone causing thin skin, labral tears around hip joint, gluteus and hamstring tears, ?

GCA and Cough/Interstitial Lung Disease?

Heading for a relapse?

Life after Tocilizumab?

Increased inflammation-flare?

Scalp pan and vision disturbances in GCA

"Roaming" mild pain and stiffness, unilateral, but in GCA/PMR areas, when on a low dose of Prednisone

Is it safe to renew my tetanus injection with being on 8mg Pred?

Slightly elevated liver enzymes

reducing/stopping Omeprazole

is this PMR

Speedy taper after relapse - safe?

Leflunomide

Forgot

Hello

taper question

LVV Update

looking for diagnosis

New to group

Taking Prednisone at evening meal instead of mornings

From aquafit to weights?

Flare under control?

Sluggish adrenals or PMR

What does reducing look like for a person with no adrenal function?

Palpitations with tapering

PMG? Gone or not?

struggling with pain in stomach from Prednisone

Oh dear, GCA symptoms on 0.5 to 0.25 taper

Should I go back on 1 or 2 mg prednisone due to fatigue?

Newly Diagnosed and Frightened

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