Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,578 members • 38,655 posts

All posts for June 2024

Milk - what works best?

This may already have been covered but I’d love to know about other people’s milk journey. We know we need calcium but should the milk we drink be full fat...

This may already have been covered but I’d love to know about other people’s mil...

Thelmarina

•41 minutes ago

1 Reply

methotrexate

I have been on prednisolone since last August for GCA/PMR and am getting down to lower levels (10mg). Rheumy wants to add methotrexate as need to get off...

I have been on prednisolone since last August for GCA/PMR and am getting down to...

bookbear68

•3 hours ago

11 Replies

Hand inflamation following PMR

Hi there, I suffered bad PMR for nearly three years, strating on 30mg of pred. Tapering down until about six weeks ago... maybe too fast towards the end, the...

Hi there, I suffered bad PMR for nearly three years, strating on 30mg of pred. T...

Kiyomasa

•3 hours ago

1 Reply

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ESR elevated, normal CRP

Hi there, I haven't posted for a while as I successfully came off the prednisolone in January this year (well, I thought successfully).Since then (on March...

Hi there, I haven't posted for a while as I successfully came off the prednisolo...

Karendeena

•4 hours ago

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Pred Withdrawal??

My question is simple...I have reduced my Pred down to 2mg ( down from 8 mg 12 months ago) I am now tapering further so have been taking 1 mg every 3 rd...

My question is simple...I have reduced my Pred down to 2mg ( down from 8 mg 12...

Matua

•4 hours ago

2 Replies

Shingles and PMR

Hi All, after a couple of days of feeling quite ordinary, I developed a horrible rash which was raised and blistered . My immediate thought was Shingles. I...

Hi All, after a couple of days of feeling quite ordinary, I developed a horribl...

Louisa1840

•6 hours ago

7 Replies

disastrous appointment with new nurse practitioner

saw new nurse practitioner because I feel sick a lot…runny nose, puffy eyes, sneezing, etc. bright red fingers. Generally weak and lethargic, can’t walk too...

saw new nurse practitioner because I feel sick a lot…runny nose, puffy eyes, sne...

Twopies

•16 hours ago

17 Replies

Dysthermia (temperature dysregulation)

Does anyone out there have it? For me, it's basically that I get overheated very easily - typically in situations with high humidity and higher (but not...

Does anyone out there have it? For me, it's basically that I get overheated ver...

winfong

•16 hours ago

9 Replies

Follow-up with Rheumatologist Re: Pred Tapering

I wanted to give an update from my last post, since so many of you were kind enough to offer suggestions, about my concerns regarding my rheumatologist’s...

I wanted to give an update from my last post, since so many of you were kind eno...

Moaningxcat

•17 hours ago

5 Replies

Oh no not me again!😱Update on TCZ and LFT results

Good evening everyone,posting yet AGAIN regarding the above.Mainly for PMR pro and DL.Probably bored everybody else!😂Anyway,phonecall from rheumys...

Good evening everyone,posting yet AGAIN regarding the above.Mainly for PMR pro ...

Angelsmummy

•18 hours ago

24 Replies

painful hands finger joints , arthritis or pred withdrawal?

seems my hands started hurting within days after starting taper from 5 to 4 mgs of pred, coincidence? i have been on 4 mgs now over a month or so, since pred...

seems my hands started hurting within days after starting taper from 5 to 4 mgs ...

arvine

•23 hours ago

8 Replies

Blood test to DL and PMRpro

ESR 26.00- range 0.00-30.00 C-reactive protein 0.70- range 0.00-0.99

Aqua47

•24 hours ago

4 Replies

Advice on alendronic acid please

Hi all, I was diagnosed with PMR a year ago and have tapered down to 4.5mg of Pred. Going very slowly! The DEXA scan I had last year showed I was one point...

Hi all, I was diagnosed with PMR a year ago and have tapered down to 4.5mg of Pr...

Hedgehogfriend

•1 day ago

13 Replies

Basal cortisol test result

Following my previous post, I had blood taken on 10 June and have just phoned my GP surgery for the result, which was given as 396nmol/l. The GP had noted “no...

Following my previous post, I had blood taken on 10 June and have just phoned my...

Billswife

•1 day ago

6 Replies

Blood test results

I got my results last week from rheumatologist visit (9 different tests). The nurse sent a message and told me results were normal, but continue orders to...

I got my results last week from rheumatologist visit (9 different tests). The nu...

Aqua47

•1 day ago

2 Replies

An update on my post “Sudden foot pain”

The site references given to me have proven to be spot on and full of very helpful information. I have followed the advice and done the exercises and the...

The site references given to me have proven to be spot on and full of very helpf...

Nanatoo

•1 day ago

1 Reply

NHS pre diabetic programme- Second Nature

This is more on the helpful pre diabetic theme, currently running. I wonder if anyone has been offered this programme? I was called up, by my surgery, for a...

This is more on the helpful pre diabetic theme, currently running. I wonder if a...

Trulyscrumpious

•1 day ago

11 Replies

BONE DENSITY BETTER. same machine. Yippee Skippy.

Spine Results !!!! that is from doing HEEL DROPS (no meds! ) I do 50 a day. sometimes a couple times. for last year or year and 1/2 RESULT LUMBAR SPINE...

Spine Results !!!! that is from doing HEEL DROPS (no meds! ) I do 50 a day. so...

yogabonnie

•2 days ago

28 Replies

GCA, Afib, heart failure

I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested bloods for BNP plus CRP/ ESR which hadn’t been done since March. I have had...

I was concerned my Afib following a TIA Aug 23 wasn’t controlled. GP requested b...

Bluey-1

•2 days ago

11 Replies

Seronegative arthritis

Is it possible to be medically retired if you have seronegative arthritis and trigeminal neuralgia?

Is it possible to be medically retired if you have seronegative arthritis and tr...

PurpleDuckie

•2 days ago

2 Replies

Dexa scan normal but wedge fractures anyway!!

A visit to the Pain Clinic finally produced an MRI scan of my thoracic spine. The result show wedge fractures which the doctor described as “significant”. Also...

A visit to the Pain Clinic finally produced an MRI scan of my thoracic spine. Th...

Omanain

•2 days ago

2 Replies

start tapering?

I was started on Pred 2 weeks ago initially 15mg and increased to 25mg 6 days later. Been relatively pain free last few days. The doctor said I needed to...

I was started on Pred 2 weeks ago initially 15mg and increased to 25mg 6 days la...

Gooner12

•2 days ago

10 Replies

Kinds of pain

I'm trying to decide which pain is which, and therefore how to improve things. I've been on Pred since 2016, never free of stiffness, but spent few years...

I'm trying to decide which pain is which, and therefore how to improve things. ...

ponai

•2 days ago

17 Replies

Breathless

8 months on Pred. Currently at 8.5. I am getting increasingly breathless on even a very short walk or going up the stairs. The fatigue is also worse. I have...

8 months on Pred. Currently at 8.5. I am getting increasingly breathless on even...

Dinahmite

•2 days ago

38 Replies

Tapering on low dose

I’ve been on 1.5 mgs for 4 weeks ( started on 15 mgs 3 years ago)… tried to reduce by a quarter yesterday.. cutting a 2.5 pill in half. Woke this morning with...

I’ve been on 1.5 mgs for 4 weeks ( started on 15 mgs 3 years ago)… tried to redu...

Bedwell

•2 days ago

13 Replies

help please - Im day 10 of 15 mg Prednisolone

hello all, im so glad you are out there. Im on day 10 of meds - 15 mg Prednisolone and its sadly not a magic wand. But i do feel some changes. My night time...

hello all, im so glad you are out there. Im on day 10 of meds - 15 mg Prednisolo...

JessJess21

•2 days ago

20 Replies

Reporting in to DL after a week of upping pred to 10!

Good morning folks.After superb help and comments from DL and PMRpro,I raised pred to 10 mg for a week which is up today.Still have fullness in ear ,groin pain...

Good morning folks.After superb help and comments from DL and PMRpro,I raised pr...

Angelsmummy

•2 days ago

14 Replies

Another update to Advice Please.

PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointment to see the Rheumatologist Wednesday afternoon. She said blood test showed...

PMRpro, SnazzyD and DorsetLady. I had a Blood test done Tuesday, and an appointm...

pmrgcavictim

•3 days ago

4 Replies

K2 dosage

I take accrete D3 twice daily and have been taking one Vitamin K2 (90 ug) per day. Just wondering if this is enough? It says to take 1-2 a day on the box.

I take accrete D3 twice daily and have been taking one Vitamin K2 (90 ug) per da...

Suzan62

•3 days ago

15 Replies

P M Rheumatica

asking for advice please? I started with PMR last October, as soon as I was prescribed 15 ml Prednisolone I felt like I had been given a magic wand. The...

asking for advice please? I started with PMR last October, as soon as I was pr...

Winnie311

•3 days ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2024

Milk - what works best?

methotrexate

Hand inflamation following PMR

ESR elevated, normal CRP

Pred Withdrawal??

Shingles and PMR

disastrous appointment with new nurse practitioner

Dysthermia (temperature dysregulation)

Follow-up with Rheumatologist Re: Pred Tapering

Oh no not me again!😱Update on TCZ and LFT results

painful hands finger joints , arthritis or pred withdrawal?

Blood test to DL and PMRpro

Advice on alendronic acid please

Basal cortisol test result

Blood test results

An update on my post “Sudden foot pain”

NHS pre diabetic programme- Second Nature

BONE DENSITY BETTER. same machine. Yippee Skippy.

GCA, Afib, heart failure

Seronegative arthritis

Dexa scan normal but wedge fractures anyway!!

start tapering?

Kinds of pain

Breathless

Tapering on low dose

help please - Im day 10 of 15 mg Prednisolone

Reporting in to DL after a week of upping pred to 10!

Another update to Advice Please.

K2 dosage

P M Rheumatica

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