Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,316 members • 38,052 posts

All posts for February 2023

Leflunomide

Last November 2022, after a referral from my GP, to the hospital Rheumatologist, I was given a working diagnosis of Polymyalgia. I had experienced shoulder...

Last November 2022, after a referral from my GP, to the hospital Rheumatologist...

Foxie52

•1 year ago

8 Replies

My CRP is over 100 and last week diagnosed with PMR

The pain has been incredibly intense. Add in the painful foot neuropathy from my diabetes and now on 20mg prednisone with morning glucoses running close to 400...

The pain has been incredibly intense. Add in the painful foot neuropathy from my...

sdowney717

•1 year ago

25 Replies

healing on prednisone

I recently rolled my ankle playing pickle ball. It’s not broken but very swollen and sore. Does being on prednisone slow recovery?

I recently rolled my ankle playing pickle ball. It’s not broken but very swollen...

Whitner

•1 year ago

24 Replies

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what’s going on?

Hi Friends Saw the Spine Dragon who said my spinal stenosis was worse and injected it. It was mortal screaming agony and I levitated off the bed. After a week...

Hi Friends Saw the Spine Dragon who said my spinal stenosis was worse and injec...

EdithWales

•1 year ago

18 Replies

Not a flare, but RA of the hands

I've had PMR since March 2019, managed with Prednisone and Leflunamide. After a slow taper to 3.mg, my hands started swelling last August and were so stiff and...

I've had PMR since March 2019, managed with Prednisone and Leflunamide. After a ...

HelenDaisy

•1 year ago

14 Replies

Chest infection shall I increase steroids for a few days.

I have PMR and GCA diagnosed in 2020. Started on 40 mg then quickly reduced as advised by consultant, which caused a flare. Fortunately found all of you. I...

I have PMR and GCA diagnosed in 2020. Started on 40 mg then quickly reduced as a...

Bibberty

•1 year ago

6 Replies

Funny Name

For Pred..... the Devil's Tic Tac's Funny or Not??? #pred

discoballs

•1 year ago

11 Replies

Could this be PMR?

My friend is visiting me and has just told me the following story. In November 2022 she started getting an aching pain in her right arm. After a few weeks...

My friend is visiting me and has just told me the following story. In November ...

Tinasleepyhead

•1 year ago

13 Replies

Gill Curwen poem called Collateral Damage

This is a poem by a lady called Gill Curwen, who suffers from Long Covid. She posted the poem up on Facebook and someone from Change.org who is campaigning for...

This is a poem by a lady called Gill Curwen, who suffers from Long Covid. She po...

MiniSpec

•1 year ago

4 Replies

Stick where I am or increase?

Good morning folks! Haven't posted in a while, but would love a bit of advice. Been on Actemra for four months and have reduced Pred in that time from 9mgs to...

Good morning folks! Haven't posted in a while, but would love a bit of advice. B...

strawclutching

•1 year ago

12 Replies

off topic - three funerals and......a birth

like many of us here I’ve lost people dear to me. My step Dad AND Dad both passed away on 29th December, step Dad died in hospital aged 87, Daddy died at home...

like many of us here I’ve lost people dear to me. My step Dad AND Dad both pass...

Hidden

•1 year ago

12 Replies

steroids and hip replacement surgery

I’m on steroids for PMR and have had to go back up to 15 for a flare. I’m due to have a hip replacement hopefully in the next couple of months. My question is...

I’m on steroids for PMR and have had to go back up to 15 for a flare. I’m due to...

Holycow2

•1 year ago

20 Replies

Criteria for referral

Does anyone know what criteria are generally used when GPs consider referring patients to a Rheumatologist? Is referral something one should expect or only if...

Does anyone know what criteria are generally used when GPs consider referring pa...

Lclmlbls

•1 year ago

16 Replies

Prednisone

In August 2022 i had several blisters under both feet i was diagnosed with autoimmune imbalance. I was prescribed 40 mg Prednisone daily for 10 days. The...

In August 2022 i had several blisters under both feet i was diagnosed with autoi...

Ishmail

•1 year ago

28 Replies

Knuckle and Knee pain

My partner is down to 5mg prednisone, has been at this for 6 years or so and now has pain and swelling in one hand’s knuckles as well as her knees. Last time...

My partner is down to 5mg prednisone, has been at this for 6 years or so and now...

PPower

•1 year ago

21 Replies

What is going on?

I am at 14 mg ( starting in 2020 at 80 mg ) of Prednisone. I have noticed that there are days when I wake up and my shoulders, arms and hips really hurt. I...

I am at 14 mg ( starting in 2020 at 80 mg ) of Prednisone. I have noticed that t...

Miacaro45

•1 year ago

11 Replies

Palpitations and flare up of PMR symptoms

Hello everyone, I suppose I just want to share what's happening with people who understand! I have been doing a very very slow taper for quite some time and...

Hello everyone, I suppose I just want to share what's happening with people who ...

Sufferinginsilence

•1 year ago

11 Replies

Update Rheumatologist Appointment

what a pleasant surprise. Rheumatologist was very nice, kind, knowledgeable. He wasn’t miffed about me still on Steroids after 5 years. He said what a very...

what a pleasant surprise. Rheumatologist was very nice, kind, knowledgeable. H...

Suffererc

•1 year ago

30 Replies

Weight Loss on prednisolone taper

Hi, I was diagnosed with Polymyalgia in January 2020 and have been on prednisolone, alendronic acid and adcal since then. I am tapering my prednisolone...

Hi, I was diagnosed with Polymyalgia in January 2020 and have been on prednisolo...

Bringonthemusic

•1 year ago

17 Replies

PREDNISONE AS A TEMPORARY PAIN RELIEF A GOOD IDEA

Let me clarify. I have been off prednisone since late last year at the request of the rheumatologist. They do not believe I have PMR. Since I have been off...

Let me clarify. I have been off prednisone since late last year at the request o...

SMH4CRNA

•1 year ago

54 Replies

Tapering from 1mg

I have been slowly tapering and am now down to 1mg and was feeling ok. Have now started to reduce slowly to half mg having followed really slow taper. I know...

I have been slowly tapering and am now down to 1mg and was feeling ok. Have now ...

Healthworrier

•1 year ago

26 Replies

GCA - Symptomatrix Team.

This organision located in the Netherlands, have kept in touch with 1 now not operating support group and PMR GCA Scotland. Please take the time to fill in...

This organision located in the Netherlands, have kept in touch with 1 now not op...

jinasc

•1 year ago

5 Replies

Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor

https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read...

https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Acces...

PMRpro

Ambassador•1 year ago

93 Replies

H-pylori peptic ulcer

just started PPI for this pending results and blood tests this week. I-previously posted that I have not really used NSAIDs much to treat my RA relying more...

just started PPI for this pending results and blood tests this week. I-previous...

Hidden

•1 year ago

24 Replies

The last couple of tapers.

I’m on 1mg of prednisone. Has anyone successfully dropped from 1 to zero instead of going to 1/2 first?

I’m on 1mg of prednisone. Has anyone successfully dropped from 1 to zero instead...

Missmymuscles

•1 year ago

29 Replies

Have a Laugh. Premonition?

I penned this in mid 2020 after my last trip to Almeria(S.Spain) staying at a friends house in March after 2 weeks cycling through the mountains. I took the...

I penned this in mid 2020 after my last trip to Almeria(S.Spain) staying at a fr...

cycli

•1 year ago

65 Replies

Wandering Scot presently living in Mexico and recently diagnosed with PMR

I was diagnosed a few weeks ago with PMR after being first told I had gout and then it was emotional. Pain in my neck and shoulders and exhaustion had been...

I was diagnosed a few weeks ago with PMR after being first told I had gout and t...

emsscot

•1 year ago

10 Replies

Stomach /Bowel pain Update

Hi everyone Well I am now in hospital on a drip getting strong antibiotics for a perforated bowel.My Dr finally got blood tests done and was very alarmed by...

Hi everyone Well I am now in hospital on a drip getting strong antibiotics for ...

Raewynne

•1 year ago

54 Replies

Pain relief

Hi all, just got diagnosed with costochondritis but have been having symptoms for a couple of years now. Can anyone with experience in this ailment suggest an...

Hi all, just got diagnosed with costochondritis but have been having symptoms fo...

mellowyellow111

•1 year ago

7 Replies

Here we go again

After 10 years of ending my drug treatment I am having quite severe pain in my shoulders and back. I don't think I could endure another course of steroids....

After 10 years of ending my drug treatment I am having quite severe pain in my s...

Robertaburns

•1 year ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2023

Leflunomide

My CRP is over 100 and last week diagnosed with PMR

healing on prednisone

what’s going on?

Not a flare, but RA of the hands

Chest infection shall I increase steroids for a few days.

Funny Name

Could this be PMR?

Gill Curwen poem called Collateral Damage

Stick where I am or increase?

off topic - three funerals and......a birth

steroids and hip replacement surgery

Criteria for referral

Prednisone

Knuckle and Knee pain

What is going on?

Palpitations and flare up of PMR symptoms

Update Rheumatologist Appointment

Weight Loss on prednisolone taper

PREDNISONE AS A TEMPORARY PAIN RELIEF A GOOD IDEA

Tapering from 1mg

GCA - Symptomatrix Team.

Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor

H-pylori peptic ulcer

The last couple of tapers.

Have a Laugh. Premonition?

Wandering Scot presently living in Mexico and recently diagnosed with PMR

Stomach /Bowel pain Update

Pain relief

Here we go again

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