Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,314 members • 38,051 posts

All posts for July 2016

This pmr and gca

To all, this forum is amazing, especially when you have PMR PRO and DORSET LADY with you. My thanks to you both. After a year,starting with 40mgs, now down to...

To all, this forum is amazing, especially when you have PMR PRO and DORSET LADY ...

morrison

•8 years ago

18 Replies

PMR vs Polymyalgic-onset rheumatoid disease

Update to my PMR vs naltrexone comments posted here: As I concluded at the end of those comments, I actually have polymyalgic-onset rheumatoid...

Update to my PMR vs naltrexone comments posted here: As I concluded at the end ...

Julie_R

•8 years ago

9 Replies

5 years of PMR and reducing again - need help please

My PMR diagnosis was 5 years ago when ESR was 66. I was feeling awful in May this year on 4 mgs. On 21st June 2016 after 2 x 6 weekly checks it had risen to...

My PMR diagnosis was 5 years ago when ESR was 66. I was feeling awful in May thi...

ricardian1

•8 years ago

2 Replies

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Bloods HCA

Hello does anyone know what they test for HCA bloods Jan

Mistyscot

•8 years ago

2 Replies

What to eat with very early morning Pred?

I've always taken my Pred with breakfast at around 7.30 to 8. I'm having a flare at the moment after a serious car accident in April and now having to take...

I've always taken my Pred with breakfast at around 7.30 to 8. I'm having a flare...

linda49

•8 years ago

40 Replies

Asthma steroid inhalers and prednisone

Just wanted to share that many asthma inhalers contain steroids, and adjusting their dose can cause problems with the amount of Pred you need for PMR. Twice,...

Just wanted to share that many asthma inhalers contain steroids, and adjusting t...

Meg1711b

•8 years ago

8 Replies

So many symptoms; so little info

I've been dealing with pmr/gca since March '16. I stayed on 60 then 50 mg prednisone for about six weeks and am down to 20 now. My feet are swollen twice...

I've been dealing with pmr/gca since March '16. I stayed on 60 then 50 mg predn...

minecreek

•8 years ago

1 Reply

Need Advice about my going up to 20 mg

I am so sorry to be such a pest BUT you folks have truly saved my sanity. OK I saw a doctor today that knows nothing of what I have but was very willing to...

I am so sorry to be such a pest BUT you folks have truly saved my sanity. OK I s...

Hidden

•8 years ago

4 Replies

starting date pred for GCA.

I am interested in hearing how fellow sufferers first experienced GCA and what happened? 10 years ago, whilst working as a live-in carer, I woke up with the...

I am interested in hearing how fellow sufferers first experienced GCA and what ...

karools16

•8 years ago

20 Replies

Back up to 20mgs from 10mgs Yikes!

My headache is no better so ended up in clinic this a.m. And the doc wanted to know when the break thru pain started and what dose. Well it started when I...

My headache is no better so ended up in clinic this a.m. And the doc wanted to k...

Hidden

•8 years ago

7 Replies

alternative therapy take 2, monthly update

For those who haven't read my other posts on alternative therapy please refer to my profile. This is just an update as I know a couple of people have been...

For those who haven't read my other posts on alternative therapy please refer to...

HeronNS

•8 years ago

5 Replies

PMR and Naltrexone

Diagnosed PMR April 2016 after a year of fatigue, muscle weakness and pain in shoulders, hips and thighs. Got worse in February after being given the...

Diagnosed PMR April 2016 after a year of fatigue, muscle weakness and pain in sh...

sweiss72

•8 years ago

19 Replies

Tray

I have not posted anything for ages although I still read most of the posts daily. My 76 year old father has just been to see a rhemy who has confirmed he does...

I have not posted anything for ages although I still read most of the posts dail...

pmrdec112014

•8 years ago

4 Replies

GCA and feeling miserable

I am cutting down the Pred at 5mg per week having started at 60 and now down to 30, reducing in 2 1/2 mg intervals , ie half a tablet. Have been really ill...

I am cutting down the Pred at 5mg per week having started at 60 and now down to ...

christine2715

•8 years ago

13 Replies

Yorkshire, Trains and Planes….

I spent last Friday and Saturday in Ilkley in North Yorkshire working and despite Northern England having a modest reputation for good weather the sun shone...

I spent last Friday and Saturday in Ilkley in North Yorkshire working and despit...

Anne-NRAS

•8 years ago

1 Reply

Surgery and steroids

I am due for surgery for hip replacement next Thursday ..the hip surgeon wants me on a low dose of steroids, I had managed to taper down to 7mg but due to the...

I am due for surgery for hip replacement next Thursday ..the hip surgeon wants m...

Jeanjean16

•8 years ago

7 Replies

PMG & Statins?

I started full PMG Sept.2015. All the classic symptoms plus weight loss, malaise and changed bowel movement. Checked out for cancer, finally diagnosed. Started...

I started full PMG Sept.2015. All the classic symptoms plus weight loss, malaise...

Iannewebb

•8 years ago

7 Replies

Fear over 4-5 day headache

Ok I found you all while back in pain at 7 mg pred.. Actually started at 9 then 8 but my focus was get off as fast as I can then I will be well.. So now with a...

Ok I found you all while back in pain at 7 mg pred.. Actually started at 9 then ...

Hidden

•8 years ago

6 Replies

Frustrated after 1st rheumatology appt

Suicidal more like .... Her opening line was at 54yrs I was too young for pmr or gca . I had gone prepared with short written history . Clearly sectioned meds...

Suicidal more like .... Her opening line was at 54yrs I was too young for pmr or...

Determineddebbie

•8 years ago

33 Replies

ANCA blood test

Good morning everyone I have just recieved a call from one of the GP's at my surgery to let me know my ANCA blood test was positive, it read 20. I asked what...

Good morning everyone I have just recieved a call from one of the GP's at my su...

MARION7

•8 years ago

12 Replies

Advice for 1st Rheumatology appointment tomorrow

1st Rhumatologist appointment tomorrow and would value advice as dreading it . I've had scan for gca after 2 weeks on 40 mg prendisalone (inconclusive)...

1st Rhumatologist appointment tomorrow and would value advice as dreading it . I...

Determineddebbie

•8 years ago

10 Replies

Strange Eye Closure

My wife has GCA for a little over 1 1/2 years. After many up & downs, she is down to 29 mgs tapering and generally going well. But recently when she turns her...

My wife has GCA for a little over 1 1/2 years. After many up & downs, she is dow...

Jim-CJ

•8 years ago

7 Replies

New experience of fatigue

I have had a really easy ride so far with PMR. Diagnosed in mid January. Put on 20mg prednisolone with fantastic affect on pain within 8 hours or so. Have...

I have had a really easy ride so far with PMR. Diagnosed in mid January. Put on...

Mary63

•8 years ago

7 Replies

New member just diagnosed with PMR

Hello from Scotland. For 6-7 months I complained of getting up in morning feeling battered. Got to the stage I couldnt lift my arm in morning to answer the...

Hello from Scotland. For 6-7 months I complained of getting up in morning feelin...

kiltylyn

•8 years ago

36 Replies

Warty patches on my face and body.

To avoid seeing the faint exasperation on my GP's face, I have noticed a skin condition worsen over the weeks. Little, not very noticeable rough warts on my...

To avoid seeing the faint exasperation on my GP's face, I have noticed a skin co...

SheffieldJane

•8 years ago

19 Replies

Bath Cafe Meet Up Group

The next meeting of the Bath Group will be at 2pm on Monday August 1st in Garfunkels, Orange Grove, Bath, BA1 1LP when one of the trustees will be joining us....

The next meeting of the Bath Group will be at 2pm on Monday August 1st in Garfun...

Hidden

•8 years ago

2 Replies

Niggling jaw.

Niggling jaw! Hi. Am on 6mgs of Pred. Not without problems with muscle pain in thighs, hips etc but not too bad. Have tried to lower the dose but think this is...

Niggling jaw! Hi. Am on 6mgs of Pred. Not without problems with muscle pain in t...

wendyanne49

•8 years ago

13 Replies

Doctors and Doctors...

In this month's edition of Scope, the magazine for the Institute of Physics and Engineering in Medicine, there is a historical article about the man who...

In this month's edition of Scope, the magazine for the Institute of Physics and...

PMRpro

Ambassador•8 years ago

35 Replies

Laughing with the prednisolone

Doing my weekly tablet allocation this morning I saw that the label on my new 5mg pack read 'Reducing curse as advised by doctor' ! How apt!

Doing my weekly tablet allocation this morning I saw that the label on my new 5m...

maria40

•8 years ago

6 Replies

Patient edication

In Norway, where I live, the health care system offers patient education courses to many different chronic diagnoses. E.g PMR/GCA. YOU only pay a small fee,...

In Norway, where I live, the health care system offers patient education courses...

Bittebitt

•8 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2016

This pmr and gca

PMR vs Polymyalgic-onset rheumatoid disease

5 years of PMR and reducing again - need help please

Bloods HCA

What to eat with very early morning Pred?

Asthma steroid inhalers and prednisone

So many symptoms; so little info

Need Advice about my going up to 20 mg

starting date pred for GCA.

Back up to 20mgs from 10mgs Yikes!

alternative therapy take 2, monthly update

PMR and Naltrexone

Tray

GCA and feeling miserable

Yorkshire, Trains and Planes….

Surgery and steroids

PMG & Statins?

Fear over 4-5 day headache

Frustrated after 1st rheumatology appt

ANCA blood test

Advice for 1st Rheumatology appointment tomorrow

Strange Eye Closure

New experience of fatigue

New member just diagnosed with PMR

Warty patches on my face and body.

Bath Cafe Meet Up Group

Niggling jaw.

Doctors and Doctors...

Laughing with the prednisolone

Patient edication

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