Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2015

Restless legs syndrome

Has anybody suffered with restless legs syndrome along with PMR? If so how do you deal with it?

Has anybody suffered with restless legs syndrome along with PMR? If so how do yo...

geater16393

•9 years ago

12 Replies

Alendronic Acid

My GP has prescribed AC 70mg once a week as a preventative against bone loss while taking 10mg of prednisolone. I wonder if anyone has feedback about this.

My GP has prescribed AC 70mg once a week as a preventative against bone loss wh...

MarsiJay

•9 years ago

35 Replies

Even further confused!!

I last saw my Rheumy (FRCP)on the 6th & 7th July this year when I was given an injection in each of my shoulders to lessen the pain. 3 months later I received...

I last saw my Rheumy (FRCP)on the 6th & 7th July this year when I was given an i...

violetsnowdrop

•9 years ago

7 Replies

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Thigh swelling, Dr. ordered 20 mgs of medrol as part of treatment

Hi Everyone, hope all are well and getting through the GCA , PMR and pred. A week ago had a major exacerbation of the meralgia paresthetica (femoral cutaneous...

Hi Everyone, hope all are well and getting through the GCA , PMR and pred. A we...

Whittlesey

•9 years ago

4 Replies

Pain in the neck!

I am on 15mg having been diagnosed with Pred 2 weeks ago. It has taken away the pain in my hips and right across shoulders but an area at the base of my neck...

I am on 15mg having been diagnosed with Pred 2 weeks ago. It has taken away the ...

cassie1208

•9 years ago

14 Replies

High white cell count

I was diagnosed in June PMR, and put on 15mg preds. which worked straight away. In September due to a chest infection, (I also have COPD.), my GP put me up to...

I was diagnosed in June PMR, and put on 15mg preds. which worked straight away. ...

elainecleary

•9 years ago

9 Replies

Tired after a holiday

Just been away for a few days but suffering now - I think I overdid it and the long train journey-15mg pred Ok but finding I need to lie flat as I have a dull...

Just been away for a few days but suffering now - I think I overdid it and the l...

cassie1208

•9 years ago

16 Replies

Bowen therapy is NOT a cure for PMR/GCA

Well, I have sat quietly on this site for over 2 years, but today I declare war on this Bowen fad that has overtaken this site. I am a qualified British GP...

Well, I have sat quietly on this site for over 2 years, but today I declare war ...

Hidden

•9 years ago

54 Replies

reducing pred after an operation

I had my second Cochlear implant two days ago. Taking painkillers so not aware of any PMR increase in pain. I did not start reducing to 10mg before the op...

I had my second Cochlear implant two days ago. Taking painkillers so not aware ...

Suetum

•9 years ago

5 Replies

Diabetes following Steroids

I am sure this must have been discussed before. Diagnosed with PMR/GCA June this year, currently just dropped to 20mg (but feeling it in my shoulders and...

I am sure this must have been discussed before. Diagnosed with PMR/GCA June thi...

lesley2015

•9 years ago

8 Replies

Happy

Initially I resisted the diagnosis of PMR, my GP was less than confidence inspiring, and went to a physio for help to get my muscles untied and moving. He did...

Initially I resisted the diagnosis of PMR, my GP was less than confidence inspir...

Hidden

•9 years ago

1 Reply

Bowen therapy

Hi again i'VE successfully got down from 20mg to 15 to 12.5 within 4 weeks of diagnosis. I have been told that I should go down to 10 within next few weeks...

Hi again i'VE successfully got down from 20mg to 15 to 12.5 within 4 weeks of d...

Adnamaxx

•9 years ago

22 Replies

Reversing osteoporosis part 3

Routine visit to GP to get pred prescription renewed. Asked about getting more info from the bone scan as I don't even have the T score. Told that the...

Routine visit to GP to get pred prescription renewed. Asked about getting more ...

HeronNS

•9 years ago

5 Replies

Totally Frustrated

Has anyone else had difficulty getting their symptoms diagnosed. I was booked for a TAB yesterday but when I got there the surgeon said there was no point in...

Has anyone else had difficulty getting their symptoms diagnosed. I was booked fo...

Stillstargazing

•9 years ago

5 Replies

stinging pain in limbs

Hi everyone, I've had RA for 4-5 years and GCA 3+. On reducing dose of 10mg pred from 80mg. Two hip replacements in the last year, followed by bursitis in both...

Hi everyone, I've had RA for 4-5 years and GCA 3+. On reducing dose of 10mg pred...

venezia1

•9 years ago

3 Replies

Pred and thyroxine

Hello I've been reading that thyroxine is affected by taking Pred and calcium. Anyone Know if any current literature on this? Thanks

Hello I've been reading that thyroxine is affected by taking Pred and calcium. A...

Judigardener

•9 years ago

6 Replies

Fibromyalgia

Hi every one,long time no text, I,m inquiring if anyone knows a good forum or site to find out about fibromyalgia as my daughter has just been diagnosed...

Hi every one,long time no text, I,m inquiring if anyone knows a good forum or si...

ritter

•9 years ago

5 Replies

Driving with PMR/GCA

Pred MANIA, nobody explains to you the extreme side effects that you can get, I was told that I was just hypersensitive to Pred. I've been 'hypersensitive' to...

Pred MANIA, nobody explains to you the extreme side effects that you can get, I ...

lillegirl

•9 years ago

14 Replies

What time to take Pred. ?

I am only just noticing that a few people on here have adjusted when they take their Pred. - instead of taking it in the morning, they take it in the evening....

I am only just noticing that a few people on here have adjusted when they take t...

suzy1959

•9 years ago

15 Replies

Feeling better

Hi, saw my Rheumy on Saturday and blood tests all came back as normal. He's working on treating my symptoms so thats good. Told him all the aches and pains...

Hi, saw my Rheumy on Saturday and blood tests all came back as normal. He's wor...

Hidden

•9 years ago

2 Replies

Bioflex

Going to try low level light therapy to help me on my journey of pred reduction. First appointment next week. Curious to see how it goes.

Going to try low level light therapy to help me on my journey of pred reduction....

HeronNS

•9 years ago

12 Replies

One month on from Zero.....

Just to say I'm still feeling great ! No setbacks so far. I've got lots of energy and feel well. No sign of PMR pains returning. Sleeping well. Did start...

Just to say I'm still feeling great ! No setbacks so far. I've got lots of ener...

suzieh

•9 years ago

15 Replies

GCA, Pred and Imuran

Hi all. Diagnosed with GCA 4+ yrs ago. Had relapses at 1, 7, 5 and 4 mg pred/day. When I was on 8mg/d in July this year, Dr advised to take 15mg of...

Hi all. Diagnosed with GCA 4+ yrs ago. Had relapses at 1, 7, 5 and 4 mg pred/da...

tomh

•9 years ago

4 Replies

Ongoing gca

Just wanted to know if anybody gets hip and shoulder pain I have had horrendous hip pain only relief was going to bed with hot water bottle attached after a...

Just wanted to know if anybody gets hip and shoulder pain I have had horrendous...

Vpankhurst

•9 years ago

13 Replies

Just had one of those "enlightening moments"

About a month ago, I started to "go mad". Everyone was baffled (me included) by my odd behaviour. I became paranoid. Thought my family were spying on me,...

About a month ago, I started to "go mad". Everyone was baffled (me included) by...

babssara

•9 years ago

3 Replies

having a flare up

This is my first time on the forum but I have been following it since being dx with PMR October 2014. Starting at 15mg I followed the usual stony path down...

This is my first time on the forum but I have been following it since being dx w...

manjan

•9 years ago

3 Replies

Shoulder pain

I saw my Rheumy 2 weeks ago [ 6 monthly check ] whilst there he sent me for an x/ray re the awful pain in my left shoulder which he didn't think was my PMR....

I saw my Rheumy 2 weeks ago [ 6 monthly check ] whilst there he sent me for an ...

bowler

•9 years ago

11 Replies

ESR and CRP

During my 20 month journey with PMR I have been tested for both ESR and CRP. Below are the readings over the past 12 months. First column is the dose of...

During my 20 month journey with PMR I have been tested for both ESR and CRP. Be...

nuigini

•9 years ago

9 Replies

Skin rash?

Hello all, Has anyone ever suffered a skin rash whole on predict? Dr tells me it's not Shingles or Lymes disease, so awaiting blood test, just wondered if...

Hello all, Has anyone ever suffered a skin rash whole on predict? Dr tells me i...

Grimo

•9 years ago

4 Replies

Mouth ulcers

A week ago, I saw my GP for sores in my mouth. It actually started with a sore throat, but then I noticed white patches in the back of my throat as well as...

A week ago, I saw my GP for sores in my mouth. It actually started with a sore t...

Joyful13

•9 years ago

5 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2015

Restless legs syndrome

Alendronic Acid

Even further confused!!

Thigh swelling, Dr. ordered 20 mgs of medrol as part of treatment

Pain in the neck!

High white cell count

Tired after a holiday

Bowen therapy is NOT a cure for PMR/GCA

reducing pred after an operation

Diabetes following Steroids

Happy

Bowen therapy

Reversing osteoporosis part 3

Totally Frustrated

stinging pain in limbs

Pred and thyroxine

Fibromyalgia

Driving with PMR/GCA

What time to take Pred. ?

Feeling better

Bioflex

One month on from Zero.....

GCA, Pred and Imuran

Ongoing gca

Just had one of those "enlightening moments"

having a flare up

Shoulder pain

ESR and CRP

Skin rash?

Mouth ulcers

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