Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,311 members • 38,047 posts

All posts for May 2021

Free of morning pain?

I was provisionally instantly diagnosed by my GP a month ago. Blood tests seem to have confirmed it. I've been on 15mg pred daily for 3 weeks with...

I was provisionally instantly diagnosed by my GP a month ago. Blood tests seem t...

Trainy

•3 years ago

9 Replies

Reminder - if you haven't already done so, don't forget to nominate PMRGCAuk for this year's Ecclesiastical charity awards! Only 2 weeks ..

https://www.ecclesiastical.com/movement-for-good/?utm_source=Communicator&utm_medium=Email&utm_content=buttonLink38&utm_campaign=Our+%c2%a31m+giving+programme+l

https://www.ecclesiastical.com/movement-for-good/?utm_source=Communicator&utm_me...

PMRpro

Ambassador•3 years ago

7 Replies

Forgot dose

I forgot to take my daily dose of prednisone . Should I take it now, 15 hours later or wait til morning? I am really in pain. I am on 6 mg a day.

I forgot to take my daily dose of prednisone . Should I take it now, 15 hours la...

Baileyw06

•3 years ago

8 Replies

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Can't get 1mg prednisolone - trying to taper

Does anyone else live in a country where 1mg prednisolone is unavailable, only 5mg. If so, how do you handle tapering? I'm currently on 7.5mg. Yesterday I...

Does anyone else live in a country where 1mg prednisolone is unavailable, only 5...

Pr0jection

•3 years ago

17 Replies

Frustrated

Hi all as the sun was out I thought I would Potter about in garden just weeding few pots sat at the table and was going well then got up and fell down 3 steps...

Hi all as the sun was out I thought I would Potter about in garden just weeding ...

Hidden

•3 years ago

23 Replies

Splitting dose of Pred

PMR for about 3 months starting on 15 mg with a scare of GCA when they put me up to 40mg and then dropped me off completely after a week and then back onto...

PMR for about 3 months starting on 15 mg with a scare of GCA when they put me up...

Maudie19

•3 years ago

30 Replies

Blood Tests

Hello lovely people I hope everyone is enjoying the sunshine. My brother has decided to get on my case (again. he has GCA) and is horrified that I am not...

Hello lovely people I hope everyone is enjoying the sunshine. My brother has de...

Pippah45

•3 years ago

16 Replies

Struggling with Methotrexate side effects

GCA diagnosed a year ago this month, started on 60 Pred, bad flare end January when on 10mg so back up to 40mg (now 17.5) started MTX 5 weeks ago 15mg by self...

GCA diagnosed a year ago this month, started on 60 Pred, bad flare end January w...

HappyDiamonds

•3 years ago

8 Replies

Advice please from our experts

I am supposed to be coming to the end of my pred journey. I have been taking 1 mg for 6 weeks now but noticed about a month ago I was getting pains around the...

I am supposed to be coming to the end of my pred journey. I have been taking 1 m...

Gunflash

•3 years ago

14 Replies

Prednisone dosage and time frame to take # mths?

How long on steroids????

Nurseacw

•3 years ago

25 Replies

Covid vaccine Q&A - Tim Spector

I thought people who haven't seen this might be interested about vaccines: https://www.youtube.com/watch?v=tE47JhlV39g and this one...

I thought people who haven't seen this might be interested about vaccines: https...

PMRpro

Ambassador•3 years ago

5 Replies

Prednisolone doses

I was diagnosed with PMR about two months ago, I saw a consultant who sent me a copy of his report with instructions of how many preds I should take I started...

I was diagnosed with PMR about two months ago, I saw a consultant who sent me a ...

Gardenbay

•3 years ago

15 Replies

Reminder to new MTX users - your sensitivity to the sun is likely to be increased.

The weather has been so awful that I had forgotten that I had read about this side-effect. Yesterday, I enjoyed a lovely, lazy day watching the bees buzzing...

The weather has been so awful that I had forgotten that I had read about this si...

Hidden

•3 years ago

7 Replies

Storing Prednisolone

I sometimes wonder about this - the information on the packet says store below 25degrees - not always easy in very hot weather and presumably effects efficacy...

I sometimes wonder about this - the information on the packet says store below 2...

jaycee444

•3 years ago

15 Replies

I’m new here. PMR since September 2020.

Came across this site by chance & so glad I did. Was diagnosed with PMR last September after 2 months of debilitating pain. Started on 20mg of prednisolone &...

Came across this site by chance & so glad I did. Was diagnosed with PMR last Sep...

Cact

•3 years ago

11 Replies

Reduced 15-14mg but getting dull aches and night sweats - do I pause?

Hi Everyone, I have been using the lovely Dorset Lady's slow-taper - taking 5 weeks to get from initial dose of Pred 15mg to 14mg. Just finished with the...

Hi Everyone, I have been using the lovely Dorset Lady's slow-taper - taking 5 we...

Hopingsail

•3 years ago

9 Replies

Risedronate

Hi all, anyone take risedronate 5mg daily instead of alendronic acid? How do u get on with it? Side effects etc

Hi all, anyone take risedronate 5mg daily instead of alendronic acid? How do u g...

Hidden

•3 years ago

29 Replies

Whay should l do please?

I have been on prednisolone for the last 14 months and have been tapering down the last few months and l am now done to 4mg daily. I have been ill for last...

I have been on prednisolone for the last 14 months and have been tapering down t...

Teacup777

•3 years ago

5 Replies

Yet another flare

About two weeks ago I had a really bad flare. Pain in neck, both shoulders and down my arms including my fingers. I was currently doing a VERY slow reduction...

About two weeks ago I had a really bad flare. Pain in neck, both shoulders and d...

Janann25

•3 years ago

10 Replies

Nightshades

I've recently come across information that nightshades, potatoes, tomatoes, sweet peppers, etc, COULD be a cause of inflammation. Does anyone know if there's...

I've recently come across information that nightshades, potatoes, tomatoes, swee...

ChrisinNam

•3 years ago

52 Replies

Split dose not working

Well it's 6.30 am & I've been up since 5 am again having had to somehow launch myself out of bed in absolute agony. My shoulders & tops of arms are frozen & so...

Well it's 6.30 am & I've been up since 5 am again having had to somehow launch m...

JEMOK

•3 years ago

16 Replies

Dizzness/lightheaded

Hi all, always had some dizzness but today it really bad and neck is stiff as well, went up from 13 to 14 today cause of yhe results of my hip x-ray showing...

Hi all, always had some dizzness but today it really bad and neck is stiff as we...

Hidden

•3 years ago

4 Replies

Diabetes Type 2

In the Observer on 16th May 2021, there is a long article on page 44 of the magazine. I quote : Professor Roy Taylor who 10 years ago revolutionised treatment...

In the Observer on 16th May 2021, there is a long article on page 44 of the maga...

jinasc

•3 years ago

3 Replies

Pfizer vaccine temporarily stopped my PMR symptoms

I developed PMR symptoms in late March. I woke up one day with extreme pain/stiffness in both hips and shoulders which lasted most of the day. The next 4...

I developed PMR symptoms in late March. I woke up one day with extreme pain/sti...

GC12343

•3 years ago

15 Replies

Insulin and prednisolone problems

How do I manage my blood sugars on Prednisolone at 15 mg per day. I am a type 2 diabetic on insulin injections 4 times a day, plus Metformin 2 gms. My blood...

How do I manage my blood sugars on Prednisolone at 15 mg per day. I am a type 2 ...

butterflyfarm

•3 years ago

26 Replies

Had anyone had the Covid antibody test?

Saw a webinar in which it was suggested that a fairly small study showed people taking tocilizumab, mycophenelate, predisilone or methatrixate might only be...

Saw a webinar in which it was suggested that a fairly small study showed people ...

christine2715

•3 years ago

23 Replies

Smiling back behind the mask

Amongst other annoying little features of an autoimmune condition I have struggled with angular cheilitis , sore red sometimes broken skin at the corners of my...

Amongst other annoying little features of an autoimmune condition I have struggl...

Zebedee44

•3 years ago

18 Replies

Clicking sound in throat while lying down.

Not sure if this has anything to do with Polymyalgia, but thought I would ask anyway. I have a clicking sound in my neck when lying down, it started on one...

Not sure if this has anything to do with Polymyalgia, but thought I would ask an...

Lico

•3 years ago

4 Replies

Doctor's appointment

Good news from my appointment today. Thorough examination, full array of blood tests to be done, results and advice to come in a few days. I don't have...

Good news from my appointment today. Thorough examination, full array of blood t...

Mazxstitch

•3 years ago

3 Replies

PMR question

Has anyone tried Adaptogens ? Sounds like it might help and or it could just be another scheme for companies to get rich off of people with ailments. Tks

Has anyone tried Adaptogens ? Sounds like it might help and or it could just b...

remission

•3 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2021

Free of morning pain?

Reminder - if you haven't already done so, don't forget to nominate PMRGCAuk for this year's Ecclesiastical charity awards! Only 2 weeks ..

Forgot dose

Can't get 1mg prednisolone - trying to taper

Frustrated

Splitting dose of Pred

Blood Tests

Struggling with Methotrexate side effects

Advice please from our experts

Prednisone dosage and time frame to take # mths?

Covid vaccine Q&A - Tim Spector

Prednisolone doses

Reminder to new MTX users - your sensitivity to the sun is likely to be increased.

Storing Prednisolone

I’m new here. PMR since September 2020.

Reduced 15-14mg but getting dull aches and night sweats - do I pause?

Risedronate

Whay should l do please?

Yet another flare

Nightshades

Split dose not working

Dizzness/lightheaded

Diabetes Type 2

Pfizer vaccine temporarily stopped my PMR symptoms

Insulin and prednisolone problems

Had anyone had the Covid antibody test?

Smiling back behind the mask

Clicking sound in throat while lying down.

Doctor's appointment

PMR question

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