Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,919 members • 39,404 posts

All posts for August 2024

Prednisone reduction

Been reducing prednisone ok so far at rate of one half mg every weeks. Currently at 8.5 and wanted to know if I should reduce slower as I get lower

Been reducing prednisone ok so far at rate of one half mg every weeks. Currently...

Seal49

•26 minutes ago

1 Reply

Looking for feedback on taking bone meds. with teeth issues.Who has developed necrosis of jaw?

I am finishing the 2 Year bone shot Forteo. I need to start the next medication, something like prolia. Because I have a history of teeth problems, I am...

I am finishing the 2 Year bone shot Forteo. I need to start the next medication...

Linny3

•2 hours ago

1 Reply

Still have symptoms after two weeks of increasing pred

I posted 7 days ago about increasing pred due to a flare and have taken the advice and mostly rested but even after increasing from 8 mg to 10mg for 4 days...

I posted 7 days ago about increasing pred due to a flare and have taken the advi...

simps999

•3 hours ago

7 Replies

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update on advice on treating continued PMR symptoms

I have updated my profile after taking your advice and seeking further advice from a different GP, a registrar and eventually Professor Rod Hughes. After he...

I have updated my profile after taking your advice and seeking further advice fr...

Dresdenplate

•4 hours ago

3 Replies

PMR and low inflammation markers

Hi I’m really not sure what is happening? It took a long time before GP would test blood and then put me on steroids. By that time I could hardly walk, drive...

Hi I’m really not sure what is happening? It took a long time before GP would te...

Sunshine8888

•7 hours ago

9 Replies

Advice on tapering please

Hello wise people, can you help with advice on tapering please? I am just about down to 4mg of prednisolone, following the slow taper plan. I was doing fine...

Hello wise people, can you help with advice on tapering please? I am just about ...

Hedgehogfriend

•8 hours ago

8 Replies

GCA & eyesight

New optometrist appointment yesterday and he used a lot of the latest equipment which luckily provided positive results. On one he showed thickening in one...

New optometrist appointment yesterday and he used a lot of the latest equipment...

NuttyR

•8 hours ago

10 Replies

Update on LVV relapse, and thoughts please?

As you might remember, I have been on Actemra since 2020, prescribed for LVV. At the end of June, blood tests showed that I had relapsed, although I had no...

As you might remember, I have been on Actemra since 2020, prescribed for LVV. A...

LemonZest11

•8 hours ago

17 Replies

Actemra

PMR treated with biologic Actemra in US. Any of you have tried this one? My doctor is inclined in me starting this medication. I was able to stop completely...

PMR treated with biologic Actemra in US. Any of you have tried this one? My doct...

Alliswellforever

•9 hours ago

5 Replies

update I guess

update I stopped Alendronic Acid when had heartburn and after discussion with Consultant stopped taking a couple of months ago. Good Dexa scan . I have reduced...

update I stopped Alendronic Acid when had heartburn and after discussion with Co...

Havanahula

•20 hours ago

10 Replies

Stress effect on Polymyalgia

Hi, I'm 73 and I've had polymyalgia since late 2019. I'd got down to 5 mg of pred and was about to taper again when in April my husband of 79 was diagnosed...

Hi, I'm 73 and I've had polymyalgia since late 2019. I'd got down to 5 mg of p...

townlands

•22 hours ago

16 Replies

does anyone else get frustrated with their GP surgery!!

saw the physio today for the 3rd time about my swollen knee/pain. He’s discharged me from that service and back to the GP for injections or a scan. I’ve...

saw the physio today for the 3rd time about my swollen knee/pain. He’s discharg...

Doraflora

•23 hours ago

22 Replies

To split dose or not to split

I was diagnosed with PMR in June this year and put on 15mg Prednisolone. Last week this was reduced to 12.5. On both doses, I was experiencing pain by the...

I was diagnosed with PMR in June this year and put on 15mg Prednisolone. Last we...

Notimeforpain

•23 hours ago

6 Replies

GCA, Predisolone and Dental Treatment

I am currently tapering 6mg predisolone and taking 17 1/2mg Methotrexate . All is well and no problems. I am due to have a dental crown fitted. The dentist...

I am currently tapering 6mg predisolone and taking 17 1/2mg Methotrexate . All ...

Dancingqueen77

•1 day ago

4 Replies

cortisol test

I’ve been on prednisone for three years and have gradually reduced amount so I’m now taking one mg every four days. I’ve had little or no input from gp or...

I’ve been on prednisone for three years and have gradually reduced amount so I’m...

Ana-16

•1 day ago

29 Replies

Review after 2 years

I had my PMR review this week. I advised the consultant that I was reducing my prednisolone to 3mg despite feeling pain and discomfort. She then recommended...

I had my PMR review this week. I advised the consultant that I was reducing my p...

De-Lay

•1 day ago

5 Replies

Diabetes

I have been pre diabetic for years. With careful management it has stayed at 42. Now, since PMR & Pred from November2023, it's jumped to 46... despite huge...

I have been pre diabetic for years. With careful management it has stayed at 42....

Dinahmite

•1 day ago

21 Replies

Omeprazole and methotrexate

Morning all,I'm on Methotrexate and Omeprazole for GCA. This week I had a message from my GP saying I can't take the Omeprazole any more and have been...

Morning all,I'm on Methotrexate and Omeprazole for GCA. This week I had a messa...

Dance62

•1 day ago

8 Replies

Adrenaline

I have suffered from PMR for the last 3 years 10 months. I am now down to 2 mg of Pred, 1 at 3am ish and 1after breakfast. I recently asked my GP for a blood...

I have suffered from PMR for the last 3 years 10 months. I am now down to 2 mg o...

GrannyJane

•2 days ago

13 Replies

Time interval between Omeprazole and 40mg Pred - seeking advice.

This is a respiratory issue, but since I’m a recent user of Pred for PMR and I know the ladies know their stuff. I finished Pred for PMR in January 2024, but 4...

This is a respiratory issue, but since I’m a recent user of Pred for PMR and I k...

Exflex

•2 days ago

13 Replies

Tests

How often should you have blood tests to check inflammation levels when tapering? Wishing you all a good evening.

How often should you have blood tests to check inflammation levels when tapering...

Blodders2

•2 days ago

17 Replies

Anyone on Azathioprine for PMR

Recently my consultant has suggested that I reduce my steroids and start on this drug at the same time. I am currently on 6mgs of Prednisolone and my pain,...

Recently my consultant has suggested that I reduce my steroids and start on this...

reefswimmer

•2 days ago

11 Replies

Covid-19 Paxlovid and Prednisone

A warm and grateful hello to you all! I so appreciate hearing thoughts and stories about your health and the struggles that PMR creates in our lives. I’m...

A warm and grateful hello to you all! I so appreciate hearing thoughts and stor...

iblue

•2 days ago

7 Replies

CRP levels raised

I was diagnosed with PMR in April 23 , starting on 15 mg Prednisolone reducing to 8mg. Then started with terrible headaches in the morning on waking & a...

I was diagnosed with PMR in April 23 , starting on 15 mg Prednisolone reducing t...

Agapanthous

•2 days ago

14 Replies

How long do I stay at 3 mg after a flare?

Started prednisone August 2022. Starting at 7.5 mg i did long slow taper per guidelines decreasing 0.5 mg each time. I slow tapered to 1.5 mg by April 8....

Started prednisone August 2022. Starting at 7.5 mg i did long slow taper per g...

gingerraspiller

•2 days ago

4 Replies

4:47 AM~ Pred-head Grammy with GCA, Neuro-ophthalmologist update....' Morning...!

Technically, it is Thursday morning. I saw the NO on Tuesday morning, armed with questions and a serious approach. Despite the infusions and taking 60 mg per...

Technically, it is Thursday morning. I saw the NO on Tuesday morning, armed with...

Grammy80

•2 days ago

29 Replies

Advice Please!

Hi all. I was diagnosed for the 2nd time with Pmr last Aug. Was put on 15mg of Pred. The Dr made me do a 1mg a month reduction and have been off Pred since...

Hi all. I was diagnosed for the 2nd time with Pmr last Aug. Was put on 15mg of P...

Attic

•2 days ago

5 Replies

Low dose Naltrexone

Has anyone tried this to help get off PREDNISONE?

Darcy2000

•2 days ago

8 Replies

Fighting for every 1/4 mg drop I get.

Been on pred since 2015. Never was on high doses except one time for pulmonary issues, after the flu shot, when high prednisone doses 40,30,20,10 lasted...

Been on pred since 2015. Never was on high doses except one time for pulmonary i...

Karenjaninaz

•3 days ago

10 Replies

Ro actemera to Tyenne

Hi I’ve done my first Tyenne tocilizumab today . Has anyone else on here been changed over to this??

Hi I’ve done my first Tyenne tocilizumab today . Has anyone else on here been ch...

Devoid

•3 days ago

3 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2024

Prednisone reduction

Looking for feedback on taking bone meds. with teeth issues.Who has developed necrosis of jaw?

Still have symptoms after two weeks of increasing pred

update on advice on treating continued PMR symptoms

PMR and low inflammation markers

Advice on tapering please

GCA & eyesight

Update on LVV relapse, and thoughts please?

Actemra

update I guess

Stress effect on Polymyalgia

does anyone else get frustrated with their GP surgery!!

To split dose or not to split

GCA, Predisolone and Dental Treatment

cortisol test

Review after 2 years

Diabetes

Omeprazole and methotrexate

Adrenaline

Time interval between Omeprazole and 40mg Pred - seeking advice.

Tests

Anyone on Azathioprine for PMR

Covid-19 Paxlovid and Prednisone

CRP levels raised

How long do I stay at 3 mg after a flare?

4:47 AM~ Pred-head Grammy with GCA, Neuro-ophthalmologist update....' Morning...!

Advice Please!

Low dose Naltrexone

Fighting for every 1/4 mg drop I get.

Ro actemera to Tyenne

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