PMRGCAuk | HealthUnlocked

PMRGCAuk

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Decision about resuming Tocilizumab.

My diagnosis is Extra Cranial GCA/LVV. I stopped Tocilizumab 4 weeks ago because...

I've Returned to Work!

Well not quite returned to work! Three years since diagnosis, months of sick le...

How you feeling

Does anyone feel well on their pmr journey I never feel 💯 if I’m not tired I’m ...

Loss

It is with great sadness that I write to say my darling husband has died.

Just Looking Back............... to the day I met a..................

PMRpro, a handshake 🤝 a smile 😊 at the Centre of Life. Who knew...........

Advice on natural meds

Hi all ...My names Maxine . just after some advice on any natural medicines ..I'...

Any advice for newly affected with Polymyalgia Rheumatica

Hi Folks, I was stuck on my back with legs up like a beached crab for weeks. Fi...

Have you been turned down for a fourth Covid jab?

Hello peeps. Hope you're all OK, all things considered. Quick question: I'm due ...

Hair loss

I know it’s seen as vane, but I’m fast approaching baldness at the rate I’m losi...

When does Pred decrease let adrenals kick in?

Hi -- I'm at 6 mg down from 60mg, hopefully with a good shot at zero by this fal...

Tapering, back-update etc.

I have two pieces is that I've continued tapering and am down to 9 mg per day wi...

Advice on steroid use

I saw rheumatologist on Wednesday who was not my usual one. He told me all my p...

Incontinence and Prednisolone

Hello everyone, Does anyone have similar Incontinence problems with Prednisolon...

Meltdown

So this week I had a bit of a tantrum/meltdown The current med regime and makin...

Prednisone as a one off dose

Is it possible to have say 20 or 25mg prednisone for just one day, taken in the ...

PMR and sport?

Hi, I am 58 yrs old and was diagnosed with PMR in Dec 2020. I have always been v...

Advice

Has anyone any experience or advise about Steroid Myopathy? Still on a high dose...

I wondered if you lovely people can help me ?

Hi there I am not sure if I have a flare or not. I am at present tapering from 2...

Just diagnosed with PMR

Doctor has put me on 30mg of prednisolone which I have taking for 28 days. Could...

Did you all think I had deserted you?

So much has happened not least because I have lost my sight and some REmber I ...

Update

Well it seems that my rheumatologist was right and I don’t have PMR but bursitis...

Does this ever go away on its own?

Does anyone ever get over this PMR? if so, can you tell me how long it took? how...

Sleep Apnea

Does anyone have any suggestions in how I can deal with sleep apnea? Looking li...

Painful wrist.

I have had pmr for 3 years, a couple of flares along the way, now down to 6.5mg,...

Polymyalgia rheumatica

Hi I have just been diagnosed with PMR and I’m on 20mg of prednisolone, I have b...

Curveball: Actemra and Fosamax!

I got a second opinion on my PMR situation and the new doc immediately wanted to...

Health insurance for travel to Europe

I’m sure you experienced people will be able to give some advice here. My husban...

Spring Covid booster

If you’re going for your spring booster because you’re immuno suppressed, rememb...

After going off prednisone for GCA, how long do you continue with actemra?

hi..back with another question. I know this nay be so individualized that an ans...

GP won't monitor Leflunomide, has anyone had this issue

I saw Prof Dasgupta privately after being on pred for nearly 5 years and after h...
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About us

Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide informati...

Read more about PMRGCAuk
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All our services to PMR and GCA sufferers, and their families, are offered free of charge. But we are a very small charity and need all the help we can get to carry on our work.