PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,054 posts

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•4 days ago

93 Replies

Coopersmummy7

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long...

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and f...

Angelsmummy

•22 hours ago

37 Replies

New & Confused with GCA

Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank,...

Hello, I’m asking for help and advice as the wife (and carer) for my husband who...

Hidden

•23 days ago

158 Replies

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived...

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for t...

123-go

•2 days ago

42 Replies

More Challenges to Overcome!

Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker...

Some of you may recall that for some years, I've frequently experienced ectopic ...

Kendrew

•22 days ago

129 Replies

From Prednisone to Morphine

I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s...

I was wondering if anyone had been offered Morphine as an alternative to Prednis...

Chelseadog

•15 hours ago

22 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•6 days ago

64 Replies

GCA? or something else?

Yesterday was an even more stressful day than most others. I had worked, as I usually do, for about 4 hours online, when I got a twinge of a headache in my...

Yesterday was an even more stressful day than most others. I had worked, as I u...

agingfeminist

•3 days ago

40 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•5 days ago

52 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•6 days ago

57 Replies

Severe mental reaction to prednisolone

As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and...

As you can see if you read my profile I have spent almost the whole of the last ...

tinlid

•3 days ago

38 Replies

GCA, tinnitus etc

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzzing in one ear 24/7 which comes & goes with vibrations in head. I have now...

has anyone been diagnosed with pulsatile tinnitus, to do with GCA. I have buzz...

CavalierKC3

•2 days ago

33 Replies

Ozempic?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the weight gain from predizone?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the...

fairtree

•3 days ago

35 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•9 days ago

61 Replies

Hi, just wanted to introduce myself and say hello

Hi, having been diagnosed with PMR in March and joining this fantastic forum around the same time, I’ve finally got round to completing my profile! I am an...

Hi, having been diagnosed with PMR in March and joining this fantastic forum aro...

GRB8

•1 day ago

21 Replies

Good bye and good luck to you all !

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung cancer that has moved into the bones. The NHS cannot cure only seek containment....

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung ca...

DevonMichael

•26 days ago

95 Replies

After PMR---energy and strength

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ugly head again. Hubby ceased taking Pred in September 2022 and the...

Hi everyone, I haven't posted on here for quite a long time but I'm rearing my ...

piggylovesgolf

•1 month ago

104 Replies

Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•4 days ago

34 Replies

1978? - 2023?

If you're having a bad day, just thought this might cheer you up a bit. I think we can all relate to a couple of these! 😄

If you're having a bad day, just thought this might cheer you up a bit. I think ...

Kendrew

•2 days ago

24 Replies

Is it a flare or not??

In August I will have had PMR for 4 years but I still struggle knowing whether I’m flaring or not. I have trouble reducing my Prednisolone dose despite doing...

In August I will have had PMR for 4 years but I still struggle knowing whether I...

Tiggy70

•15 days ago

63 Replies

Here is a new idea: "The Patient Knows Best ..."

There are doctors, rheumatologists even, who have confirmed something we often suspect: The patient may well know what they need better than their doctor. And...

There are doctors, rheumatologists even, who have confirmed something we often ...

PMRpro

Ambassador•3 days ago

29 Replies

How cortisone/pred works - a new study reports on a potential target to replace steroids

I thought you'd be interested in this article about a study from Germany which has worked out how pred works - and knowing that is the basis for developing...

I thought you'd be interested in this article about a study from Germany which h...

PMRpro

Ambassador•9 days ago

48 Replies

Results of brain scan…

Had brain scan last week, doctor just rang, asked how I felt, told him still on 5 mg, surprisingly said if it gives you a quality of life that’s good. Mumbled...

Had brain scan last week, doctor just rang, asked how I felt, told him still on ...

Longtimer

•1 month ago

93 Replies

Knee Replacement Yesterday

Thanks to those of you who wished me well yesterday. I had full knee replacement surgery yesterday afternoon. On the advice of the surgical team I had my...

Thanks to those of you who wished me well yesterday. I had full knee replacemen...

Janet57

•6 hours ago

8 Replies

Finally off Prednisolone and methotrexate

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly after was prescribed Methotrexate. I am pleased to say that finally I have been...

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly ...

Sorop

•19 days ago

64 Replies

Weight loss

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary advice found on the forum for around 1 week.Over the past 3 weeks I have lost 10...

Recently diagnosed taking 15mg predisilone per day. .I have followed dietary adv...

Shires123

•1 month ago

86 Replies

Cramps

Has anyone had trouble with leg cramps, especially at night? I am getting bad cramp in both ankle joints & reaching up the shin especially on right leg. It is...

Has anyone had trouble with leg cramps, especially at night? I am getting bad cr...

Claremont2023

•6 days ago

36 Replies

UPDATE ON CATARACT SURGERY

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much...

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peez...

Missus835

•18 days ago

61 Replies

Please vote for us to win £5,000!

Hi everyone, there is a limited-time draw running for us to be in with a chance of winning £5,000. Please help us and vote for us by clicking on the link...

Hi everyone, there is a limited-time draw running for us to be in with a chance ...

Fran_Benson

Partner•5 days ago

30 Replies

Confused

Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginning of December 2023 I had a loss of vision in my left eye, as well as a terrible...

Hello to all, I am a 61 year old man living in Madrid (Spain). At the beginnin...

Azulmarino

•14 days ago

48 Replies

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Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

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