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PMRGCAuk

21,314 members•40,415 posts

Concentration

Hello. Could someone help me to understand why it is so difficult to concentrate? Is it the Pred or the PMR? I have been trying to balance my bank statement...

Hello. Could someone help me to understand why it is so difficult to concentrate...

LadyJayne68

•3 days ago

65 Replies

Lieutenant Columbo moment - tapering steroids

OK, so I've picked up a fair bit of knowledge about PMR as I've had it 12 years so far and read and taken in everything I've read on here for about the last 6...

OK, so I've picked up a fair bit of knowledge about PMR as I've had it 12 years ...

tangocharlie

•1 month ago

185 Replies

Passing

Life is so unfair, my wife passed away yesterday we have been together for 59 years

Life is so unfair, my wife passed away yesterday we have been together for 59 ye...

Doublef

•14 days ago

122 Replies

Rheumatologists and other Medics.

Until I developed GCA and PMR I had never seen one of these professionals. To be honest I had no idea what to expect, just like these two delightful...

Until I developed GCA and PMR I had never seen one of these professionals. To be...

cycli

•11 days ago

99 Replies

Thoughts

I am on my own for three days with time to think and reflect. I can't go out as it is snowing and I can't risk falling. I realise my attitude and approach...

I am on my own for three days with time to think and reflect. I can't go out as ...

LadyJayne68

•2 days ago

42 Replies

Another Week of Good News

A visit to the opticians for my annual check up on Thursday. He said my eyes in real terms were in excellent condition, yes a slight deterioration, first in...

A visit to the opticians for my annual check up on Thursday. He said my eyes in ...

Bcol

•4 days ago

49 Replies

Stomach pain saga- another update and Rheumy appointment

Another update in my stomach pain saga. Had blood test which has ruled out Coeliac disease, so the GP is thinking IBS. Has prescribed Mebeverine 135mg 3x a...

Another update in my stomach pain saga. Had blood test which has ruled out Coeli...

Indigo2417

•2 days ago

36 Replies

eye test and vision

I went for a routine eye test yesterday as I’ve been having a lot of eye strain lately (I still maintain my current specs haven’t been right since I got them...

I went for a routine eye test yesterday as I’ve been having a lot of eye strain ...

Doraflora

•13 days ago

89 Replies

Protection colds, flu

Hello, how do you protect yourself against colds, coughs and flu? I currently have a sore throat, am at 6.9 pred

Hello, how do you protect yourself against colds, coughs and flu? I currently ha...

Swizzly

•4 days ago

45 Replies

Travel Insurance claim advice please

Hi, sorry, long post!I had to cancel my holiday in July on the day of departure as I woke up with terrible left side groin pain, coupled with a painful right...

Hi, sorry, long post!I had to cancel my holiday in July on the day of departure ...

Broseley

•3 days ago

38 Replies

Sore throat - update

Regarding my previous post wondering if my sore throat could be linked to PMR or pred. I managed to get an appointment Monday to see a GP (but not my usual...

Regarding my previous post wondering if my sore throat could be linked to PMR or...

Strippy

•21 hours ago

19 Replies

spinal stenosis and now trochanteric bursitis

maybe some of you will remember me posting a while back about hubby’s chronic degenerative spine (& spinal stenosis). He’s been having pain in his hip and...

maybe some of you will remember me posting a while back about hubby’s chronic de...

Doraflora

•7 days ago

51 Replies

What can I take for this pain?

I am currently on 4mg Pred for GCA having tapered down from 60mg. Seem to be doing OK on a very slow taper. Problem is I think I have injured my neck/shoulder...

I am currently on 4mg Pred for GCA having tapered down from 60mg. Seem to be doi...

Janeval

•22 hours ago

18 Replies

line up, line up! Which op first?

Hello. I don’t know if I am writing for advice or some of your caring encouraging words. First of all I am in a deep state of grieving. My 44 year old daughter...

Hello. I don’t know if I am writing for advice or some of your caring encouragin...

Nightingales

•9 days ago

54 Replies

Covid and antivirals (Paxlovid)

Hi, I thought I’d write a follow up to my post a month ago re. taking antivirals for Covid in case someone finds themself in the same position as me. I...

Hi, I thought I’d write a follow up to my post a month ago re. taking antivirals...

Tiggy70

•12 days ago

55 Replies

Adrenal Insufficiency Testing

I apologize in advance for asking this question because I'm sure it's been asked loads of times before, but I simply cannot find answers via searching. I was...

I apologize in advance for asking this question because I'm sure it's been asked...

montebello

•2 days ago

25 Replies

Alendronic acid

I have been on alendronic acid for about 10 weeks. I have had side effects slowly getting worse. Mostly painful bones. Last couple of days I have had painful...

I have been on alendronic acid for about 10 weeks. I have had side effects slo...

Cocopopslover

•12 days ago

50 Replies

Tips for specialist apptm

Having become totally fed up with all the waiting around for tests, answers and follow ups - which didn't give the same advice as I read here - I have booked a...

Having become totally fed up with all the waiting around for tests, answers and ...

CJDLSR

•25 days ago

73 Replies

Another question......

.......before I see the rheumatologist pleaseWhen I was diagnosed with 'suspected PMR' back in August I was given 15mg Prednisolone and all the pain went away...

.......before I see the rheumatologist pleaseWhen I was diagnosed with 'suspecte...

LadyJayne68

•5 days ago

31 Replies

Update! Me and my liver back home after 15 dats in hospital!

I was so poorly and Yellow that at times i would happily away with the Grim Reaper came knocking@The Head Homcho reckond all the time it was HepA, eventualy...

I was so poorly and Yellow that at times i would happily away with the Grim Reap...

MamaBeagle

•1 month ago

79 Replies

Another Adrenal insufficiency question.

Thank you for bringing Dorset Lady's Adrenal post up again. I noticed in the symptoms of a problem is stomach issues. I am not stranger to these but at the...

Thank you for bringing Dorset Lady's Adrenal post up again. I noticed in the sy...

Pippah45

•2 days ago

18 Replies

Adrenals? Will I ever feel like myself again?

I know a lot of people struggle with adrenals at lower doses but this is really getting on top of me! I am shaky and panicky a lot of the time and have next to...

I know a lot of people struggle with adrenals at lower doses but this is really ...

Nextoneplease

•28 days ago

73 Replies

Pmr and long covid and tapering prednisolone

Hi, Question of the day - does anyone else have long covid before pmr? Did you manage to taper off prednisolone successfully? Just a musing really - glossing...

Hi, Question of the day - does anyone else have long covid before pmr? Did you ...

Claremarie83

•2 days ago

17 Replies

Flare up?

Now in my 17th year of PMR and still not sure how to deal with flare ups. At present on 3mg but have a throbbing intermittent pain in right bicep. Is it worth...

Now in my 17th year of PMR and still not sure how to deal with flare ups. At pre...

KCRoyals

•8 days ago

36 Replies

An easy-to-read guide to lowering blood sugar levels and risk of diabetes - especially useful for us on steroids

Useful for those who've been told they are in the pre-diabetes or even diabetes range or worried about weight gain and/or raised blood sugar levels due to...

Useful for those who've been told they are in the pre-diabetes or even diabetes ...

tangocharlie

•8 days ago

35 Replies

Does anyone here feel really well taking steroids?

Hello, I was diagnosed with PMR at end of July with inflammatory marker at 82, and been on 15mg prednisolone. The inflammation dropped down to 'borderline'...

Hello, I was diagnosed with PMR at end of July with inflammatory marker at 82,...

Strippy

•1 month ago

73 Replies

Award for research that confirms something we've said for a long time - when GCA relapses, it can look very different from when it started!

https://www.nnuh.nhs.uk/news/chetan-mukhtyar-wins-top-award/ You may be surprised at this. This is something we as patients have suspected for a long time so...

https://www.nnuh.nhs.uk/news/chetan-mukhtyar-wins-top-award/ You may be surpris...

PMRpro

Ambassador•16 days ago

50 Replies

problems with Calcium Tablets

I started my PMR in mid July 2024 and eventually was put on Preds by my GP on 27 August. Unfortunately my GP overlooked that I’m on Phenytoin for epilepsy and...

I started my PMR in mid July 2024 and eventually was put on Preds by my GP on 27...

Ginntonic

•16 days ago

50 Replies

shingles vaccination

I’m due for my shingles vaccination next week but I have reservations as I’ve read that it might not be a good idea to have it with an auto immune disease...

I’m due for my shingles vaccination next week but I have reservations as I’ve re...

PamJCam

•9 days ago

36 Replies

Steroid Moon face

Hi Just wondered when people started to notice the 'moon face' starting and on what dose of steroid? Thanks

Hi Just wondered when people started to notice the 'moon face' starting and on ...

Glynawel

•5 days ago

26 Replies

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Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

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