PMRGCAuk | HealthUnlocked

PMRGCAuk

20,661 members • 38,829 posts

Cruising not always good

Hi everybody just to let you all know just home from holiday, and feeling well can only say like shit pardon my french, don't think I'll be doing again,...

Hi everybody just to let you all know just home from holiday, and feeling well c...

Harrywogan

•11 days ago

106 Replies

Prednisolone Reduction

Sorry but I am unable to find the very useful advice about reducing Prednisolone. My lovely lady GP has asked me to have blood tests roughly every 6 weeks and...

Sorry but I am unable to find the very useful advice about reducing Prednisolone...

Jomaur

•1 day ago

37 Replies

Milk - what works best?

This may already have been covered but I’d love to know about other people’s milk journey. We know we need calcium but should the milk we drink be full fat...

This may already have been covered but I’d love to know about other people’s mil...

Thelmarina

•14 days ago

103 Replies

Peace of Mind

Over the past several months I've not been quite as active on the forum. This has been because I've been busy attending a host of appointments with different...

Over the past several months I've not been quite as active on the forum. This ha...

Kendrew

•11 days ago

81 Replies

Alendronic acid

New GP has recommended Alendronic acid following Dexa scan which shows problems with lower back. She said to ask Dentist for his opinion - he says OK as far...

New GP has recommended Alendronic acid following Dexa scan which shows problems ...

borednow

•1 day ago

28 Replies

Is this a flair or adrenal insufficiency?

Hello all you knowledgeable people. I would so appreciate some advice. I have been feeling very pleased with myself as managed to taper down to 2mg pred....

Hello all you knowledgeable people. I would so appreciate some advice. I have b...

Loyd

•10 days ago

67 Replies

Please share any experience of meds to try and prevent osteoporosis especially Zoledronic acid and Romosozumab

I've recently had spinal or vertebral compression fractures and am now talking to various health care professionals and researching my options to try and...

I've recently had spinal or vertebral compression fractures and am now talking t...

tangocharlie

•20 days ago

90 Replies

methotrexate

I have been on prednisolone since last August for GCA/PMR and am getting down to lower levels (10mg). Rheumy wants to add methotrexate as need to get off...

I have been on prednisolone since last August for GCA/PMR and am getting down to...

bookbear68

•15 days ago

74 Replies

long term prednisone causing thin skin, labral tears around hip joint, gluteus and hamstring tears, ?

well think I have told my story few times, at the end of my rope, had severe groin pain oct 2022, mri showed labral tears, dr just prescribed t3 sfor pain,...

well think I have told my story few times, at the end of my rope, had severe gro...

arvine

•2 days ago

28 Replies

Has anyone else had their inner demon released by steroids?

Near my 80th birthday and usually when things go wrong I say “Oh well, never mind”. Just recently, on 60 mg Prednisolone, after a usual disrespectful comment...

Near my 80th birthday and usually when things go wrong I say “Oh well, never min...

Rotsky

•6 days ago

43 Replies

Newly Diagnosed and Frightened

Oh Crumbs, I seem to have written my whole introduction as part of my profile. So my main concern at the moment is how do other people cope with the side...

Oh Crumbs, I seem to have written my whole introduction as part of my profile. S...

Blondgrassblowing

•5 days ago

40 Replies

When other people's opinions Count

Well, it's a few months since reducing pred gradually. It's 3 years since diagnosis and a few years more suffering this condition unknowingly. It has to be...

Well, it's a few months since reducing pred gradually. It's 3 years since diagno...

cycli

•1 day ago

17 Replies

Moon face...

I've been steadily reducing prednisolone for GCA since September last year and had not really worried about the weight issue as I was more concerned about my...

I've been steadily reducing prednisolone for GCA since September last year and h...

Gladys911

•13 hours ago

11 Replies

Thank you to our volunteers!

It's volunteers' week this week and we want to thank all our volunteers who help across the charity. Here, on our forum, a big thank you to PMRpro and...

It's volunteers' week this week and we want to thank all our volunteers who help...

Fran_Benson

Partner•28 days ago

75 Replies

Lower stomach pain - an update, plus a flare

This is partly an update on my last post regarding the lower left stomach pain that I’ve been getting and partly a flare. First, the stomach pain. I saw a GP...

This is partly an update on my last post regarding the lower left stomach pain t...

Indigo2417

•11 hours ago

10 Replies

Can PMR last for 5years+?

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR 95.3, ESR 71 which came down quickly after 15mg pred. Reduced to 5mg first...

Hi allI was diagnosed with PMR in March 2019 after sudden onset of symptoms. CPR...

Phoebe12345

•12 days ago

49 Replies

Is it safe to renew my tetanus injection with being on 8mg Pred?

My tetanus injection needs to be topped up. I have an allotment in London which used to be part of a railway embankment and wondered if it is wise to take...

My tetanus injection needs to be topped up. I have an allotment in London whic...

Motida

•2 days ago

22 Replies

Further developments in the 'back muscle strain' saga

Last October when changing bed sheets, I injured my back. Went to A & E in excruciating pain and they sent me off with a single dose of morphine deciding it...

Last October when changing bed sheets, I injured my back. Went to A & E in excru...

strawclutching

•1 month ago

81 Replies

Discharged by rheumy!

I went to my appointment yesterday, full of tales of woe about all my various health problems this year which caused a delay in my tapering. I'm on half a mg...

I went to my appointment yesterday, full of tales of woe about all my various he...

Broseley

•19 days ago

59 Replies

Leflunomide

I have refused to take any more methatrexate and am being prescribed Leflunomide has anyone else been prescribed it, I am down to 12.5 pred after 12 months

I have refused to take any more methatrexate and am being prescribed Leflunomid...

Doublef

•3 days ago

24 Replies

Sick away from home. How much to take before long flight home?

Am at the end of 2 months traveling in Europe from Australia. Have GCA / PMR since 2020 and was on 5 mgs. Caught Covid in week 2 but recovered well the crashed...

Am at the end of 2 months traveling in Europe from Australia. Have GCA / PMR sin...

CathyMeg

•8 hours ago

8 Replies

Ibruphen tablets v gel

hello all well, here “up north” earlier this evening we had the most horrendous thunderstorm lasting 30 mins - and with huge hailstones -and, I kid you not,...

hello all well, here “up north” earlier this evening we had the most horrendous...

Doraflora

•1 month ago

77 Replies

LVV Update

Hello, just getting back with the latest on what appears to be a huge LVV flare. Had the PET Scan on Thursday and doc called yesterday. I have the scan but...

Hello, just getting back with the latest on what appears to be a huge LVV flare....

LemonZest11

•4 days ago

25 Replies

PMR/GCA Elevator Pitch

I’m 7 months into my pmr/gca experience and have yet to find a simple way to explain the condition conversationally. When friends and family, I usually say,...

I’m 7 months into my pmr/gca experience and have yet to find a simple way to exp...

PMRSkier

•20 days ago

57 Replies

Confused and discouraged.

Hello everyone. A month ago I finished a slow taper from 3 to 2 1/2 mg. I was feeling great - no more pain. I was traveling overseas when I finally got to that...

Hello everyone. A month ago I finished a slow taper from 3 to 2 1/2 mg. I was fe...

christi48

•6 days ago

31 Replies

Hot weather intolerance - pmr, Pred or old age?

In a previous life - pre PMR - I was a real sun worshipper, loving every moment I could spend outside no matter how hot. Mediterranean holidays in the mid 30s...

In a previous life - pre PMR - I was a real sun worshipper, loving every moment ...

Mandyq

•8 days ago

36 Replies

New to group

Hi it’s taken six months of agony however today after last round of blood tests I am starting steroids tomorrow. I am very nervous especially as I have...

Hi it’s taken six months of agony however today after last round of blood tests ...

Sunshine8888

•4 days ago

24 Replies

Free of polymyalgia

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took...

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I ...

Rosshigh

•1 month ago

69 Replies

Medications and tiredness

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the symptoms to old injury. I allowed the flare up to get to the point where it...

Hi, I was diagnosed in October 2023 with PMR after ignoring and attributing the ...

MarkC1971

•13 days ago

41 Replies

Returning temporal headaches after stopping Tocilizumab, what to do ?

I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan only) 2 years ago. Only minor symptoms experienced (mainly temporal headache)....

I will try to be brief. UK male aged 70 Diagnosed with GCA (ultra sound scan onl...

ghost123uk

•29 days ago

59 Replies

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Patience

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PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

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