PMRGCAuk | HealthUnlocked

PMRGCAuk

21,835 members•41,430 posts

Hello newly diagnosed and awaiting referral

Hello my gp is fairly convinced I have GC and has referred me urgently to opthalmology. Been a few days and not heard anything. She started me on 40mg of...

Hello my gp is fairly convinced I have GC and has referred me urgently to opthal...

Dee101

•8 days ago

127 Replies

Actemra Side Effects

Hello, on Wednesday I have an appointment with my Rheumy who insists I should take Actemra. I have been taking prednisone for 4 years, initially for PMRA and...

Hello, on Wednesday I have an appointment with my Rheumy who insists I should t...

Vikinga

•2 days ago

43 Replies

Prednisone , endoscopy and colonoscopy.

Good morning. Some of you may remember me and how the grinch has been following me around for a while. You were all so caring and wonderful when my daughter...

Good morning. Some of you may remember me and how the grinch has been following ...

Nightingales

•1 day ago

21 Replies

What a difference a doctor makes

Good morning I was contacted this morning by my registered GP who I have been with for many years. He gave me some advice which made sense and echoed things I...

Good morning I was contacted this morning by my registered GP who I have been w...

Groggrim

•1 day ago

21 Replies

Rheumatologist thinks I might not have PMR

I have recently been diagnosed with a recurrence of breast cancer and due to have a mastectomy within the next few weeks. I consulted a GP as to what I should...

I have recently been diagnosed with a recurrence of breast cancer and due to hav...

Smithson

•2 days ago

27 Replies

Low BP, Vertigo and Adrenals, Dehydration

I'm concerned about adrenal insufficiency, but can't get GP to hear me. My BP has been what I would call low, since at least before Christmas. Two days ago it...

I'm concerned about adrenal insufficiency, but can't get GP to hear me. My BP ha...

Missus835

•6 days ago

45 Replies

fuzzy headed in the morning

I have had a pmr diagnosis for about 10 weeks now. When I get up in the morning, generally, I feel fine, but as I start to do jobs, I feel overwhelmed by...

I have had a pmr diagnosis for about 10 weeks now. When I get up in the morning,...

jennycat

•1 month ago

100 Replies

Prednisolone and hair issues

Good morning everyone This is sheer vanity. I am who I am and this is me. However since being on Prednisolone for nearly 6 months my lovely curly hair has...

Good morning everyone This is sheer vanity. I am who I am and this is me. Howev...

Groggrim

•16 days ago

72 Replies

GCA NEWBIE

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journey so far. Hitting my first major bump in the road and you guessed it, tapering....

GCA Newbie and my first post. Diagnosed 4 October 2024. Classic text book journe...

Raisinwheat

•3 hours ago

7 Replies

What is a FLARE? and when is a Flare not a Flare ????

Having been on this PMR road for almost 3 years, I have spent lots of time reading all of the helpful posts on this Forum and have received and taken some very...

Having been on this PMR road for almost 3 years, I have spent lots of time readi...

Golf-1

•8 days ago

45 Replies

We fell in love when I was 15 and now he's gone

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the last 3 years of deterioration and caring came to an end.Still coping on 3.5mgs...

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the las...

Poshdog

•1 month ago

92 Replies

tummy issues

hi everyone I’m down to 1 mg pred now but I notice that as I decrease my IBS flares. Anyone else have this problem please. Thanks janet

hi everyone I’m down to 1 mg pred now but I notice that as I decrease my IBS fla...

Uglow

•24 days ago

77 Replies

Unbelievable

My husband went to pick up my tablets yesterday and there was no prednisolone when I rang them up I was told I had been on them to long so I wasn't getting...

My husband went to pick up my tablets yesterday and there was no prednisolone wh...

Sydneychihuahua

•19 days ago

67 Replies

Leg pain update and advice

Hi, I posted a few weeks ago about pain in my lower legs and wondering if it could be PMR related before I contacted my GP. I had a face to face appointment...

Hi, I posted a few weeks ago about pain in my lower legs and wondering if it cou...

GreatGranny4

•5 days ago

33 Replies

Another disappointment..😥

Thought I was on the right track, besides rapid hair loss. I was at 12.5 with a CRP of 2, reduced to 10. Now my CRP is 31.3 second highest reading since...

Thought I was on the right track, besides rapid hair loss. I was at 12.5 with a ...

GivenUp24

•2 days ago

20 Replies

Hello again HealthUnlocked!

Hi everyone! This is Kate Gilbert, checking back in to the forum after a loooong time away. It actually feels good to be back, and I'm amazed and impressed at...

Hi everyone! This is Kate Gilbert, checking back in to the forum after a loooong...

Polywotsit

PMRGCAuk team member•13 days ago

52 Replies

Itching.

can anyone help with itching prob? Skin so sensitive.. legs particularly . On 1mg still. Rheumy says no symptoms show pmr?!?!

can anyone help with itching prob? Skin so sensitive.. legs particularly . On 1m...

Bedwell

•6 days ago

36 Replies

Dental treatment following Zolendronate Infusions

I was unable to continue on Alendronic tablets so was switched to annual infusions. The regime was one infusion per year over three years and my last one was...

I was unable to continue on Alendronic tablets so was switched to annual infusio...

Nuts25

•4 days ago

29 Replies

Does anyone wear a medical wristband for Polymyalgia / Steroids?

I’m just curious to know if anyone wears one and if I should get one for myself. Thank you.

I’m just curious to know if anyone wears one and if I should get one for myself...

AncientAunt

•21 days ago

63 Replies

exercise

Diagnosis last June and I’m currently on 9mg of pred. Struggling to get my head and body round the day to day swings in my condition. Following recommendations...

Diagnosis last June and I’m currently on 9mg of pred. Struggling to get my head ...

Jakey67

•10 days ago

42 Replies

private Consultation

Good afternoon I just thought I would share this mornings experience as it may be helpful to others. I had a private consultation with Dr Andrew Barr at the...

Good afternoon I just thought I would share this mornings experience as it may ...

5goFlotilla

•2 days ago

18 Replies

Inflammation

Thank you for the excellent webinar with Prof Dasgupta yesterday - next time could he look at screen so we can hear better? I asked a question that wasn’t...

Thank you for the excellent webinar with Prof Dasgupta yesterday - next time cou...

Daffodilia

•5 days ago

29 Replies

Tapering prednisone advice

I have GCA since 2011 and have been on prednisone since then, 13 years. I am at 20 mg and have been for quite some time but need to get lower or off of pred...

I have GCA since 2011 and have been on prednisone since then, 13 years. I am at...

Sally001

•1 month ago

75 Replies

PMR - 2 years on and Flare?

Coming up to my 2 year anniversary on prednisolone and I seem worse than ever. On 6 mg daily atm. A lot has gone on in the last few months, a 3 week trip to...

Coming up to my 2 year anniversary on prednisolone and I seem worse than ever. ...

Gimme

•9 days ago

36 Replies

West Norfolk support group

The first meeting of west Norfolk support group will be held on Friday 7th March 2.30 in Thetford Garden Centres cafe/resteraunt This venue has a large car...

The first meeting of west Norfolk support group will be held on Friday 7th March...

purplesprouting

•3 days ago

20 Replies

Bad news from Rheumy just now.,😱

Bit like Spike Milligan on his headstone,,,,,told you I was ill!Shouldn’t be so blaise about it but just had phonecall from Consultant with regards to results...

Bit like Spike Milligan on his headstone,,,,,told you I was ill!Shouldn’t be so ...

Angelsmummy

•1 month ago

67 Replies

Glucose Goddess 'Eat smart' progs on Channel 4 - for those interested in ways of controlling blood sugar levels

I watched an episode last night, part 2 of a series. Using volunteers as case studies/guinea pigs, she (Jessie Inchauspe) extols the 'hacks' she sets out in...

I watched an episode last night, part 2 of a series. Using volunteers as case s...

tangocharlie

•1 month ago

67 Replies

Is this normal with Pred?

After reducing to 3mg Pred ( for GCA) before Xmas, then having a flare & back up to 25mg I am struggling. I feel constantly tired, no energy, not sleeping...

After reducing to 3mg Pred ( for GCA) before Xmas, then having a flare & back up...

Janeval

•7 days ago

30 Replies

Holiday to Rome - tips please!

We are going to Rome for 7 days next week for the first time. I'm told that the average person walks 25000 steps a day while there. My average is more like...

We are going to Rome for 7 days next week for the first time. I'm told that the ...

Broseley

•1 month ago

62 Replies

I Don't Believe This!

I recently responded to "Toolmart" who complained of stiffness at 2 mgs of pred. I said "We could be twins!" as the symptoms he described were almost...

I recently responded to "Toolmart" who complained of stiffness at 2 mgs of pred....

Louisa1840

•14 days ago

42 Replies

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