PMRGCAuk | HealthUnlocked

PMRGCAuk

21,638 members•41,040 posts

Glucose Goddess 'Eat smart' progs on Channel 4 - for those interested in ways of controlling blood sugar levels

I watched an episode last night, part 2 of a series. Using volunteers as case studies/guinea pigs, she (Jessie Inchauspe) extols the 'hacks' she sets out in...

I watched an episode last night, part 2 of a series. Using volunteers as case s...

tangocharlie

•3 days ago

67 Replies

Adrenalin glands still working or is it Prednisone

Now that I’ve been on prednisone for almost 13 weeks, I’ve noticed that some of the negative effects from the prednisone are quite strong at times. The...

Now that I’ve been on prednisone for almost 13 weeks, I’ve noticed that some of...

Gatorchief

•2 days ago

56 Replies

Magazines can print inaccurate information too!

I've just been reading a well known women's weekly magazine, and come across this!! Oh dear! Somewhat worrying and yet another reminder of the lack of...

I've just been reading a well known women's weekly magazine, and come across thi...

Kendrew

•15 hours ago

30 Replies

Off topic …but related…

Hello dear PMR group. I want to expose an anecdote and would love to hear your opinions on this matter… Two days ago, during a 4.5 hour flight, my husband and...

Hello dear PMR group. I want to expose an anecdote and would love to hear your o...

Alliswellforever

•7 days ago

87 Replies

Tapering prednisone advice

I have GCA since 2011 and have been on prednisone since then, 13 years. I am at 20 mg and have been for quite some time but need to get lower or off of pred...

I have GCA since 2011 and have been on prednisone since then, 13 years. I am at...

Sally001

•6 days ago

75 Replies

Bad news from Rheumy just now.,😱

Bit like Spike Milligan on his headstone,,,,,told you I was ill!Shouldn’t be so blaise about it but just had phonecall from Consultant with regards to results...

Bit like Spike Milligan on his headstone,,,,,told you I was ill!Shouldn’t be so ...

Angelsmummy

•4 days ago

63 Replies

Has anyone signed up to an alarm button scheme.

Did you find it reassuring or annoying. Because I had that fall in my kitchen when I didn't have my mobile phone on me I've been looking at a scheme run by my...

Did you find it reassuring or annoying. Because I had that fall in my kitchen wh...

Pris80

•3 days ago

44 Replies

Re Vitamin K2

Have been taking vitamin K2 for a few months having read that many of you also take them along with other supplements. Is anyone aware of any contraindications...

Have been taking vitamin K2 for a few months having read that many of you also t...

Ana-16

•8 days ago

75 Replies

We fell in love when I was 15 and now he's gone

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the last 3 years of deterioration and caring came to an end.Still coping on 3.5mgs...

New Year's Eve 2024 was when he died. Heart finally succumbed to flu and the las...

Poshdog

•10 hours ago

17 Replies

Feeling low and trying not to spoil Christmas.

Hi everyone think IAM just needing a moan, down at 1, 1/2 mg pred and feeling very low, could be because my daughter's are going there in-laws for Xmas and...

Hi everyone think IAM just needing a moan, down at 1, 1/2 mg pred and feeling ve...

Harrywogan

•25 days ago

116 Replies

Happy New Year

Hi all. Not had the best Christmas. Last time I was on I mentioned headaches, problem with my eye kids and feelings of weakness. On advice from some of you...

Hi all. Not had the best Christmas. Last time I was on I mentioned headaches, pr...

Bridekirk

•14 days ago

80 Replies

LVV GCA and monitoring

14 years and oh dear, the journey is not over yet! After 7 months off all meds, had a PET scan Xmas eve which showed GCA in my aorta from heart to abdomen....

14 years and oh dear, the journey is not over yet! After 7 months off all meds,...

PMR2011

•4 days ago

40 Replies

Steroid injection

I am coming up to year 3 of PMR journey and, at the moment, am on 9.5 mg of Pred. In that time, I have undergone 2 Carpal Tunnel Syndrome (CTS) operations...

I am coming up to year 3 of PMR journey and, at the moment, am on 9.5 mg of Pred...

tempusfugi

•2 days ago

29 Replies

PMR burned out? How do you know

I have never showed inflammation in my blood. I have had a PET scan which showed the inflammation, so I know I have PMR! I had the PET scan as I developed...

I have never showed inflammation in my blood. I have had a PET scan which showed...

Phoebenooby

•13 hours ago

15 Replies

Complicated GCA, no light at the end of the tunnel

Hello All, I was diagnosed with GCA on March 2024 following a 3.5 years with PMRA. My starting dose of prednisone was 60mg/day for 5 weeks. Tapering went...

Hello All, I was diagnosed with GCA on March 2024 following a 3.5 years with PM...

Vikinga

•2 days ago

28 Replies

Dexa scan & Alendronic Acid

A couple of months ago I wrote a post asking why my GP was trying to persuade me to take Omeprazole and Alendronic Acid before knowing if I needed them. I...

A couple of months ago I wrote a post asking why my GP was trying to persuade me...

CocoaChanel

•4 days ago

35 Replies

Seeking a Recommended Rheumatologist

Please may I ask if anyone can recommend a good Rheumatologist in Cheshire or further afield that has actually helped them? I'm really struggling with...

Please may I ask if anyone can recommend a good Rheumatologist in Cheshire or fu...

AncientAunt

•2 days ago

28 Replies

Help with GCA diagnosis

Hello, my first time here, hoping for some help! I developed symptoms of GCA (temple pain, scalp pain, headache, jaw claudication, swollen squiggly temple...

Hello, my first time here, hoping for some help! I developed symptoms of GCA (te...

Curlacious

•20 days ago

79 Replies

GCA flare or not flare

Hello All. A week ago I posted my concerns regarding aneurisms that may develop when having extracranial GCA (Large Vessel Vasculitis). Thanks to PMROpro...

Hello All. A week ago I posted my concerns regarding aneurisms that may devel...

Vikinga

•12 days ago

60 Replies

Professor Bhaskar Dasgupta

Has anyone ever been seen by Professor Bhaskar Dasgupta? If so, what was he like and where did you see him?

Has anyone ever been seen by Professor Bhaskar Dasgupta? If so, what was he like...

Tappo

•9 hours ago

11 Replies

Joining PMRGCAuk

I just thought I would take a minute to point out something that I didn't realise. I have been a Forum member for just over two years now (fours years into...

I just thought I would take a minute to point out something that I didn't realis...

marionofnorwich

•7 days ago

41 Replies

Chronic sinusitis or GCA

Now I’m confused again. The PMR I’m dealing with and my nearly entire focus on it has me forgetting that there may be another cause for my ear aches and...

Now I’m confused again. The PMR I’m dealing with and my nearly entire focus o...

Gatorchief

•14 days ago

57 Replies

Norwich support group

Hi, does anyone know the date of the next Norwich support group meeting, thank you

Hi, does anyone know the date of the next Norwich support group meeting, thank y...

purplesprouting

•17 hours ago

13 Replies

travel insurance companies!!

so we contacted our travel insurers today to update them on my husband’s appointment with the consultant last week, who has referred him for a CT scan for the...

so we contacted our travel insurers today to update them on my husband’s appoint...

Doraflora

•1 month ago

89 Replies

My Ten Years on the Forum

Hi, Jackoh posted recently about having been on pred for ten years, which made me to realise that is almost exactly ten years since I was diagnosed with PMR....

Hi, Jackoh posted recently about having been on pred for ten years, which made...

Charlie1boy

•19 days ago

64 Replies

Could Statins be behind my recent woes? I Wonder ?

Hi I`m here almost weekly!! Apologies ! As some of you know, as youve replied , in the past few months I feel my situation has deteriorated quite...

Hi I`m here almost weekly!! Apologies ! As some of you know, as youve replied...

Marek1

•11 days ago

50 Replies

PMRpro recommends the Royal Institution Christmas Lectures

If you are in the UK and you didn't watch them I suggest you look for them on iPlayer, BBC4. For everyone else they are already available on YouTube which is...

If you are in the UK and you didn't watch them I suggest you look for them on iP...

PMRpro

Ambassador•11 days ago

49 Replies

Polymyalgia Rheumatica (PMR) Summary

As soon as I was diagnosed with PMR I concentrated all my spare time into reading everything I could find on the subject. I became totally immersed for three...

As soon as I was diagnosed with PMR I concentrated all my spare time into readin...

CocoaChanel

•1 month ago

86 Replies

Prof Baskhar Dasgupta MBE

I am under instructions from jinasc to post the information in the statement by the NHS about the NHS recipients of Honours in the New Year Honours List:...

I am under instructions from jinasc to post the information in the statement by ...

PMRpro

Ambassador•16 days ago

57 Replies

Rheumy f2f after flare

Update...as advised, raised from 3.25 to 8mg and rang Rheumy Dept to inform them of flare. Was offered an f2f appt today. Not my usual Rheumy, but very...

Update...as advised, raised from 3.25 to 8mg and rang Rheumy Dept to inform the...

Temoral

•8 days ago

39 Replies

See all posts

Write a post or ask a question

Pinned Posts

See all

Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

Message from PMRGCAuk Admin

Community Guidelines for our PMRGCAuk HealthUnlocked Forum

About us

Polymyalgia Rheumatica and Giant Cell Arteritis UK (PMRGCAuk) is a UK-wide charity set up to provide informati...

Support us!

All our services to PMR and GCA sufferers, and their families, are offered free of charge. But we are a very small charity and need all the help we can get to carry on our work.

Donate now