PMRGCAuk

18,353 members • 34,078 posts

Thank you to our volunteers

It's Volunteers Week 2023 and we'd like to say a big thank you to all our volunteers, particularly PMRPro and DorsetLady who put so much time and effort into...

It's Volunteers Week 2023 and we'd like to say a big thank you to all our volunt...

Fran_Benson

Partner•4 days ago

83 Replies

Prednisolone and eyebrow tidy

Hello dear people!I read somewhere that taking prednisolone can cause thinning of the skin. My eyebrows need tidying up. Do others on here have waxing and...

Hello dear people!I read somewhere that taking prednisolone can cause thinning o...

Wouldlovetorun

•3 days ago

74 Replies

Trying to understand my inflammation

Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG, and have weaned down to 12.5 MG at present. Forgive me for being "anal,"...

Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 ...

montebello

•2 days ago

55 Replies

Dr Tim Spector says we are “mugs” buying supplements

At the Hay Festival, Tim Spector gave a talk on supplements and says that 99% have no effect at all. He did say B12 for vegans and vit D were OK, but the rest...

At the Hay Festival, Tim Spector gave a talk on supplements and says that 99% ha...

piglette

•7 days ago

84 Replies

Don't know What's happening to me!!

JanboC

•11 hours ago

20 Replies

Gardening

Dear PMR or Dorset Lady, I have a number of people on my chat site who are all interested in the health benefits of gardening. As I have given them all...

Dear PMR or Dorset Lady, I have a number of people on my chat site who are all ...

bluepuddy

•5 hours ago

13 Replies

Pred for life

Diagnosed with PMR October 2019 , moved to Cyprus in September 2022 . I am continually attempting to taper off pred and am currently alternating 5mg to 4.5mg ....

Diagnosed with PMR October 2019 , moved to Cyprus in September 2022 . I am conti...

Hampit54

•6 days ago

60 Replies

low cortisol

I saw the Rheumy doctor over a month ago and her flippant diagnosis mirrored so many others’. About the same time a random telephone health check from my...

I saw the Rheumy doctor over a month ago and her flippant diagnosis mirrored so ...

AnniesRyder5

•2 days ago

34 Replies

Covid Vaccination

I'm booked to have my next booster vaccination tomorrow. Feeling anxious this time, as I now have PMR affecting my neck, shoulders and arms. Would be...

I'm booked to have my next booster vaccination tomorrow. Feeling anxious this t...

jsc50

•13 days ago

81 Replies

Anyone had back (muscle) spasms? Is it linked to PMR?

My lower and middle back has gone into spasm and I'm finding it very hard to resolve and there isn't much info out there on the internet so am appealing to a...

My lower and middle back has gone into spasm and I'm finding it very hard to res...

tangocharlie

•18 days ago

79 Replies

I've signed up for Tim Spector's ZOE study looking at blood sugars and gut health

I've long had an interest in how the foods we eat affect inflammation and weight and generally follow low -carb eating, although I often lapse and am not as...

I've long had an interest in how the foods we eat affect inflammation and weight...

tangocharlie

•18 days ago

79 Replies

newly diagnosed with PMR

hi, I am 78 year old male, had Covid from Christmas Day 2022, lasted 3 weeks and was dreadful. Afterwards was taking time to fully recover, early March 2023,...

hi, I am 78 year old male, had Covid from Christmas Day 2022, lasted 3 weeks and...

Thiago1396

•1 day ago

20 Replies

Please nominate us to receive £5,000

Hi everyone, please can I ask everyone to take just one minute to nominate us for a £5,000 grant. The voting is open just today through to Friday and all you...

Hi everyone, please can I ask everyone to take just one minute to nominate us fo...

Fran_Benson

Partner•21 days ago

78 Replies

Managing glucose spikes

In case you haven't seen it, a new book by a biochemist on managing spikes. She gave her 3 top tips on TV. 1 Have a savoury not a sweet breakfast - otherwise...

In case you haven't seen it, a new book by a biochemist on managing spikes. She...

Viveka

•6 days ago

40 Replies

Synacthen Test Results and Endocrinologist’s Advice.

I had a Synacthen Test last week and got the results yesterday. I am on 5 mgs of Pred and have been for a long time. I fully expected to fail the Adrenal...

I had a Synacthen Test last week and got the results yesterday. I am on 5 mgs of...

SheffieldJane

•1 month ago

90 Replies

probiotics for people with a compromised immune system.

https://www.medscape.com/viewarticle/992453 Having just bought various forms of probiotic to support me while taking antibiotics, this article gave me pause...

https://www.medscape.com/viewarticle/992453 Having just bought various forms of...

SheffieldJane

•6 days ago

38 Replies

Gabapentin

I was first diagnosed with PMR on October 2021. I finished Prednisilone in April 2023. I have been prescribed Gabapentin for a flare up of my symptoms. Has...

I was first diagnosed with PMR on October 2021. I finished Prednisilone in April...

Kingfisher489

•2 days ago

21 Replies

UPDATE: PMR Symptoms Reoccuring @ 30 mg. Pred or is it GCA?

Seems like I'm on here often lately, but so many issues ongoing. Last night I awoke with what I thought was a fever and turned out to be low body temp at...

Seems like I'm on here often lately, but so many issues ongoing. Last night I aw...

Missus835

•9 hours ago

9 Replies

Mangled and potentially dangerous prescriptions

Department of Anything That Can Go Wrong Will Go Wrong. Letter to my GP, real one with stamp and envelope, since messages appear ill-absorbed. My...

Department of Anything That Can Go Wrong Will Go Wrong. Letter to my GP, real...

Mayadill

•24 days ago

71 Replies

Bit shell shocked !!

it is thirteen years since I was diagnosed with gca. , and to be truthful I have never felt well but have been ok. I still take low dose pred. And...

it is thirteen years since I was diagnosed with gca. , and to be truthful I have...

5lupins

•10 days ago

45 Replies

Victory with scrip mess

I trust. Been told the scrip has been issued. With my luck the chemist's will mislay it. No, I didn't say that. I took on board Body_bonkers' point about...

I trust. Been told the scrip has been issued. With my luck the chemist's will ...

Mayadill

•20 days ago

61 Replies

Prednisolone and osteoarthritis

As I posted recently, after more than a year of taking 2.5 mg of pred daily, at long last I had an appointment with a rheumatologist who advised me to reduce...

As I posted recently, after more than a year of taking 2.5 mg of pred daily, at ...

Marijo1951

•28 days ago

71 Replies

Vitamin supplements

I'm working know making sure I take the right supplements and amount each d ay while on prednisone such as calcium D C turmeric zinc etc. Does anyone know...

I'm working know making sure I take the right supplements and amount each d ay ...

Seal49

•10 days ago

40 Replies

Prolia Injections?

Hello all you lovely people! After 6 years on pred (currently on 10 mgs) my bones have objected (I had osteopenia even before I started). I am now...

Hello all you lovely people! After 6 years on pred (currently on 10 mgs) my bo...

Louisa1840

•9 days ago

39 Replies

PMR flare?

For the first time in about 2 years I successfully tapered down from 10 to 9.5 over 4 weeks, then week 5 just 9.5. I was feeling so good, then àbout 4 days...

For the first time in about 2 years I successfully tapered down from 10 to 9.5 ...

Kiwisufferer2019

•2 days ago

19 Replies

pred causing shaking/cramps

I have posted before asking if anyone had suffered from shakiness while on pred and some lovely people replied but in my mums case it seems to be getting worse...

I have posted before asking if anyone had suffered from shakiness while on pred ...

Buchanan16

•2 days ago

19 Replies

Internal fluttering/racing

I'm down to 4.5 pred and have been getting extreme fluttering when sitting or lying down. Very difficult to describe and not sure where it is coming from....

I'm down to 4.5 pred and have been getting extreme fluttering when sitting or ly...

herdysheep

•9 days ago

36 Replies

I did the Colour Obstacle Rush!!!

Well I did it - I completed the 5k Colour Obstacle Rush for PMRGCAuk!with 4 of my friends and family. I am so pleased I did it and completed every obstacle!!...

Well I did it - I completed the 5k Colour Obstacle Rush for PMRGCAuk!with 4 of m...

Janicecm

•11 days ago

39 Replies

ongoing tapering

Thank you so much for the advice about dropping a couple of steps from 13 to 11.5 and then 10.5. I followed this but wonder how many days I should take 11.5...

Thank you so much for the advice about dropping a couple of steps from 13 to 11....

Motida

•17 days ago

48 Replies

I'm dragging 'my you know what' Low pred? Adrenals?

Hello all, I'm down to 3mg of pred and holding at that until I return from an anticipated trip to Canada before tapering some more. I'll witness my first...

Hello all, I'm down to 3mg of pred and holding at that until I return from an an...

Grammy80

•5 days ago

24 Replies

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A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

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About

Posts

Members

Thank you to our volunteers

Prednisolone and eyebrow tidy

Trying to understand my inflammation

Dr Tim Spector says we are “mugs” buying supplements

Don't know What's happening to me!!

Gardening

Pred for life

low cortisol

Covid Vaccination

Anyone had back (muscle) spasms? Is it linked to PMR?

I've signed up for Tim Spector's ZOE study looking at blood sugars and gut health

newly diagnosed with PMR

Please nominate us to receive £5,000

Managing glucose spikes

Synacthen Test Results and Endocrinologist’s Advice.

probiotics for people with a compromised immune system.

Gabapentin

UPDATE: PMR Symptoms Reoccuring @ 30 mg. Pred or is it GCA?

Mangled and potentially dangerous prescriptions

Bit shell shocked !!

Victory with scrip mess

Prednisolone and osteoarthritis

Vitamin supplements

Prolia Injections?

PMR flare?

pred causing shaking/cramps

Internal fluttering/racing

I did the Colour Obstacle Rush!!!

ongoing tapering

I'm dragging 'my you know what' Low pred? Adrenals?

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