microbleeds : Hi I wondered if any of... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,355 members10,542 posts

microbleeds

chelb29 profile image
3 Replies

Hi I wondered if any of you have had micro bleeds in the brain and had to therefore come of warfarin? We’re you put on clexane/fragmin etc? How has that worked for you and what was ongoing treatment? Also have you flown ok post bleeds on a plane? TIA

Written by
chelb29 profile image
chelb29
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Funinthesun profile image
Funinthesun

Hi I had a big brain bleed 3.5 years ago, I was taken off warfarin and put on clexane. I’m still on clexane and haematologist has said will be long term. It’s a fine balancing act to keep you coagulated enough to not clot but not over coagulated so you have further bleeds. Hope this helps

KellyInTexas profile image
KellyInTexasAdministrator in reply to Funinthesun

I’ve not had a brain bleed on warfarin. I wish you the very best. Stay in close contact with a hematologist who has strong / heave case load of APS patients if possible.

MaryF profile image
MaryFAdministrator

Hi, many on here are on different medication to Warfarin, Fragmin or Clexane seems to be often prescribed and hopefully your main consultant will keep a very close eye on your new regime. I have had 3 brain bleeds after an accident, but am allowed to fly now, however I only go short haul, and that is my own preference and not too often. MaryF

You may also like...

Rooting for my brother - please join me

@[1779854] is waiting for tests for internal bleed (INR had shot up suddenly) and so on in an ICU...

BRIDGING MY BLOOD THINNER FOR COLONOSCOPY

procedure. I have had a colonoscopy before but not since being diagnosed with APS. I don't want to...

Has anyone had a dental implant?

afterwards etc.? Did you have conscious sedation? Or just the regular injections? And I...

Follow up to Appointment

last year. He said he could not put me on a blood thinner as I have not had a thrombotic event and...

itchy sores that don't ever go away!!!

anyone else have this kind of skin problem and if you do, do you know what it is so that I have...