The Mind Body Connection with APS and any autoimmune disease

[Madmumma]

Hi again, I’m an Osteopath, Naturopath, Medical Acupuncturist etc and it took 20 years for me to get an APS diagnosis. I was initially diagnosed as having depression, CFS/ME and begrudgingly POTS.

I take my Warfarin. I try hard to stick to my INR. My life is very restricted due to fatigue and pain. I recently started working at a solely naturopathic clinic and it has taken me back to my roots training wise. I was taught then that if you don’t sort out your response to childhood trauma (“ACE” events), if you’re lonely, or feel isolated, your chances of autoimmune disease and serious ill health are massively higher than someone who didn’t have trauma early on. When in fight/flight your body doesn’t do its housekeeping or oxygenate the entire body. All resources are in survival mode. I’ve started listening to Gabor Mate on YouTube again about this (too tired to read) and can highly recommend what he has to say. Maybe it could help you hearing what he has to say. Good luck!

[Pooky7]

Hi. Interesting and it makes sense. I still believe my APS was triggered by the Hepatitis B shot. I have read and talked to other healthcare professionals that see a connection with others as well. Our bodies are resilient, yet fragile ❤️

[MaryF Administrator]

Hi really useful to do detailed testing for Thyroid and B12, I know for myself the NHS was very scanty with it's testing so I paid for private tests and found I did have low Thyroid function and also poor levels of B12, I also stopped eating gluten many years ago which took a lot of irritation out of my situation. MaryF

[ChristaBruno]

Thank you for posting. This makes total sense!

[KellyInTexas Administrator]

I’m glad this helps many- and it’s well documented in the medical community that stress is bad for the body. ( autonomic nervous system, rest and digest, and so on.)

This should be a help to all of us and I a great reminder to all of us to keep our mind/ body in in awareness for optimizing what we can be in control of. It’s a great “add on” for patients who benefit from this balance .

I’d like to caution that sometimes there is a genetic component to autoimmune diseases. If we over simplify, on get to singularly fixate on stress or trauma as a cause, then we may miss the real cause and never seek genetic testing. This can adversely impact our children .

I found out in 2022 that I have a genetic connective tissue disease ( 14th chromosome) called Loeys- Dietz Syndrome. It causes a signaling pathway that causes a problem with collagen not being used .

It weakens connective tissue- in vessels- tissues. Biggest problems that occurs are aneurysms in aorta and brain. Hernias are common, prolapsed organs, sensitivities to medications, foods, ( MCAS),

Loeys- Diets often dis regulates the immune system, and connective tissue auto immune system diseases are often seen as a result. Commonly seen are lupus, MS, Celiac.

Dr Dietz ( medical genetics and I think maybe a pedi cardio thoracic surgeon) is still at Johns Hopkins. His assistant/ research is Gretchen and I have been working with her on behalf of my GP for my scans to check for aneurysms ( none!) and she said they have not seen any APS cases so far.

This is very complicated so I won’t go into it here- but I started with APS at 18 months old . No proir trauma in my life.

Many women around the world have been gas lit , told they must have “ trauma” and therefore these this is manifesting as physical illness - the mind / body connection.

I don’t think you are saying that- just want to make sure we are not saying that-

We are saying :

“ We encourage you to practice good mental health in conjunction with your specialists of APS! 😊

The world needs each of us to be as healthy and as happy as we can be.

Thank you mamma for sharing, and I’m glad you’ve found this and reconnected with this again.

[Skyllark]

What Osteo treatments would be safe for someone with APS?