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Hughes Syndrome APS Forum

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This might help someone ?

Tennisbum profile image
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Hi Everyone

Just wanted to post some information that might be useful. I have followed 2 Md’s who have what we have what we have been blessed with. Both had strokes in med school - stress - no sleep etc. one is in southern Nj. I have not met him bc his hospital was exclusively using him in their ICU during Covid bc he knew clots better than anyone else. Dr Justin Sciancalepore.

The second is Dr Brooke Goldner I have spoken with her and she had a patient with APS that was able to reduce flares to maybe 2 a year. Both were told no to med school after strokes no kids etc and they are flourishing. Dr Goldner a la green smoothies has free sessions coming up Jan 1 st You can buy her books for maybe 20 dollars or she will guide u through the process. Everyone is different and responds differently but I am constantly hopeful for all of us!

Both are traditional Mds who had to figure it out themselves. As Kelly from Texas reminds us proceed at your own risk even with the tried and true One never knows

Best

Susan in New Jersey it is frozen here ❤️

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Tennisbum
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MajorKrimes profile image
MajorKrimes

thank you for sharing this info.

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