Ny side for APS i Skandinavia - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Ny side for APS i Skandinavia

Jonr profile image
Jonr
8 Replies

Hei, har akkurat opprettet en gruppe for APS i Skandinavia. Har du lyst og behov for å kommuniserer på Svensk, Norsk eller Dansk kan det være noe for deg? facebook.com/groups/2825949...

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Jonr profile image
Jonr
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8 Replies
MaryF profile image
MaryFAdministrator

Danke, und zu Ihrer Information

Thank you and for your information: ghicworld.org/

Beste Wünsche aus Großbritannien

Best wishes from the UK

MaryF

Jonr profile image
Jonr in reply to MaryF

Thanks.

KellyInTexas profile image
KellyInTexasAdministrator

Hello Jon,

Thanks for reaching out to us from 🇳🇴 Norway!

Many friendly greetings from us here.

You have probably already seen this information, but I’ll go it it again:

ghicworld.org

There is also a Facebook page where people with with APS can listen to specialists ( rheumatologists) from the London lupus Centre

are kind enough to do live Question and Answer sessions about once a month.

Questions can be submitted ahead of time.

Lovely to have you here.

Jonr profile image
Jonr in reply to KellyInTexas

Takk, og velkommen om du kan bidra😌

PauMo profile image
PauMo

Thank you for this. I have now asked to join.

Jonr profile image
Jonr in reply to PauMo

Du er velkommen, slipper deg inn. Godt med folk som kan bidra 😀

Lure2 profile image
Lure2

Hi Jonr, I am from Sweden myself but this site is enough for me.

I wonder if a higher INR over 3.5 made you feel better? Were you tripple-positive with also Lupus Anticoagulant? Then it may be better to keep a higher INR. I need an INR of 4.0 for my leaking heartvalves and pulmonary hypertation (PH) that go with my illness.

First of all I needed that high INR because of my TIAs and microembolies.

Jonr profile image
Jonr in reply to Lure2

Hei, denne siden er utmerket. Men mange setter pris på å få «lokale» tips for Skandinavia. Jeg følger med på flere sider.

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