Hei, har akkurat opprettet en gruppe for APS i Skandinavia. Har du lyst og behov for å kommuniserer på Svensk, Norsk eller Dansk kan det være noe for deg? facebook.com/groups/2825949...
Ny side for APS i Skandinavia - Hughes Syndrome A...
Ny side for APS i Skandinavia
Danke, und zu Ihrer Information
Thank you and for your information: ghicworld.org/
Beste Wünsche aus Großbritannien
Best wishes from the UK
MaryF
Hello Jon,
Thanks for reaching out to us from 🇳🇴 Norway!
Many friendly greetings from us here.
You have probably already seen this information, but I’ll go it it again:
There is also a Facebook page where people with with APS can listen to specialists ( rheumatologists) from the London lupus Centre
are kind enough to do live Question and Answer sessions about once a month.
Questions can be submitted ahead of time.
Lovely to have you here.
Thank you for this. I have now asked to join.
Hi Jonr, I am from Sweden myself but this site is enough for me.
I wonder if a higher INR over 3.5 made you feel better? Were you tripple-positive with also Lupus Anticoagulant? Then it may be better to keep a higher INR. I need an INR of 4.0 for my leaking heartvalves and pulmonary hypertation (PH) that go with my illness.
First of all I needed that high INR because of my TIAs and microembolies.