Aps Specialist near Daytona Beach FL? - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Aps Specialist near Daytona Beach FL?

Piscesdreamer profile image
5 Replies

UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!

Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight, and recently tested negative for Sjogrens.

Please help!

Thank you ♡

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Piscesdreamer
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MaryF profile image
MaryFAdministrator

Hi try looking on here: ghicworld.org/ Many doctors listed across the world, also I am sure some of our members in the USA will respond with localised knowledge, also KellyInTexas is the oracle for the USA on such matters!!! MaryF

KellyInTexas profile image
KellyInTexasAdministrator

Sadly Florida seems to be as dry as Sjögren’s when it comes to APS specialists...

I got Nothin’!

Piscesdreamer profile image
Piscesdreamer in reply to KellyInTexas

Lol, thank you ♡

HollyHeski profile image
HollyHeskiAdministrator

Try your APS specialist if you can't find SS one? Sero negative SS is very common, as no one blood test fits. (Originally it was my APS specialist that picked up my SS and then sent me to a SS specialist)Even with a specialist diagnoses can be hard - schiemer eye test, as well as lip biopsy!Your dentist may also be able to help.

Also the sjogrens forum on here is also very informative.

Piscesdreamer profile image
Piscesdreamer in reply to HollyHeski

Thank you ♡

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