Oxygen Therapy: Has anyone tried Oxygen... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Oxygen Therapy

WendyWoo50 profile image
6 Replies

Has anyone tried Oxygen Therapy for their headaches? Did it help? When your APS is active and your INR is low are your SATs low?

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WendyWoo50 profile image
WendyWoo50
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HollyHeski profile image
HollyHeskiAdministrator

I've heard that oxygen therapy helps with cluster headaches but I dont know in relationship with APS, so will be interested in your replies.

Great question..

MaryF profile image
MaryFAdministrator

Hi, I have two friends that use it, and find it useful, but although they have dire migraines, one with cluster headaches, neither have a diagnosis for Hughes Syndrome/APS. I would be terribly interested to know it if helped anybody, seeing as 'the impaired oxygenation gets mentioned in this paper, with the sludge blood etc: the-rheumatologist.org/arti...

Mary F

KellyInTexas profile image
KellyInTexasAdministrator

Following with interest. I think it’s a very important question.

It’s been discussed in our family for a couple of years, in fact.

WendyWoo50 profile image
WendyWoo50 in reply toKellyInTexas

Hi Kelly, how are you doing?

I expected to hear from lots of people who have tried it but as yet I’ve not heard from anyone. 😢

WendyWoo50 profile image
WendyWoo50

Does anyone have low oxygen saturation when their INR is low?

KellyInTexas profile image
KellyInTexasAdministrator in reply toWendyWoo50

Mine is chronically low- only by blood draw, never by finger monitor.

I’ve never had a blood draw where it did not flag low.

But this happens even when INR is in range...

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