Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,363 members • 10,557 posts

All posts for March 2019

I’ve been having this headache for 5months and I’m really scared it feels like someone is pushing down on my head hurts behind head

Headache for 5 months

Headache for 5 months

•5 years ago

A Huge Thank you

Thank you to everybody on the forum, for all their help and advice. Although thank you doesn't seem enough! My wife has felt a huge weight lifted off her...

Thank you to everybody on the forum, for all their help and advice. Although tha...

•5 years ago

A Case of Acute Budd-Chiari Syndrome Complicating Primary Antiphospholipid Syndrome

https://www.hindawi.com/journals/crirh/2016/9565427/ MaryF

https://www.hindawi.com/journals/crirh/2016/9565427/ MaryF

Administrator•5 years ago

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Dropping INR

Been on Warfarin and stable for months since diagnosis and now for no reason i.e. no diet changes no lifestyle changes but last self test had dropped to 2.0...

Been on Warfarin and stable for months since diagnosis and now for no reason i.e...

•5 years ago

Thyroid Thursday, via Thyroid UK

Today some of the tests on Medichecks, are discounted today, This is a good panel, with a reduction today:...

Today some of the tests on Medichecks, are discounted today, This is a good pan...

Administrator•5 years ago

Part 2

Please read from part one

Please read from part one

•5 years ago

Part 1

I’m going to post two of these together see if it works so I don’t have to rewrite again and again

I’m going to post two of these together see if it works so I don’t have to rewri...

•5 years ago

Warfarin, plavix and alcohol?

The dr’s say don’t drink. The pharmacist says don’t drink but only because over use of alcohol can cause a stomache bleed. Last yr and this yr (like ever yr)...

The dr’s say don’t drink. The pharmacist says don’t drink but only because over ...

•5 years ago

Received my medical records in full interesting!

Hi all hope you are all well. A few weeks back I requested my full medical records and they arrived in the post today. A few things are worrying me a bit and I...

Hi all hope you are all well. A few weeks back I requested my full medical recor...

•5 years ago

Migraine Reupdate

Hi all!!! Hope this finds u well and HAPPY! I still have Migraine and Neurologist told me to go to my eye doctor since they told me I have ocular migraines! So...

Hi all!!! Hope this finds u well and HAPPY! I still have Migraine and Neurologis...

•5 years ago

Iron

A friend of mine sally works in TV but also does a vlog . She is doing it at the moment on iron deficiency which she has . There is a very good interview with...

A friend of mine sally works in TV but also does a vlog . She is doing it at the...

•5 years ago

Some more advice please

I have an endoscopy coming up, so naturally asked my new Hematologist what I needed to do regards my LWMH injection. I currently take it at 6 pm. He has...

I have an endoscopy coming up, so naturally asked my new Hematologist what I nee...

•5 years ago

Lupus Anticoagulant positive update 3

Well meeting with haematology and neurology was postponed on 21st, it's now on the 7th. As you can imagine wasn't happy. Slowly collating all the paperwork...

Well meeting with haematology and neurology was postponed on 21st, it's now on t...

•5 years ago

Leg Discoloration

Hi Everyone I hope someone has a name for this. I’ve had this discoloration on both lower legs for 17 years now. That’s when I started Warfarin....

Hi Everyone I hope someone has a name for this. I’ve had this discoloration on...

•5 years ago

Do I have a right to see my test results?

Hi there, I went for my first haematology appointment in December 18 where they ran a number of blood tests. Last week 3 months after my first appointment I...

Hi there, I went for my first haematology appointment in December 18 where they...

•5 years ago

Supplements

Hi can everyone tell me what supplements they take . I take B12 VitD Just ordered folic acid

Hi can everyone tell me what supplements they take . I take B12 VitD Just order...

•5 years ago

Advice wanted please I’m lost

Hi all I’m currently undiagnosed with anything. It all stared when my mum passed away in July My eye started to swell and twitches I went to se the opticians...

Hi all I’m currently undiagnosed with anything. It all stared when my mum passe...

•5 years ago

Upping therapeutic range

Hi, my therapeutic range has been set at 2 - 3. I asked my heamatologist if we could aim for the 3 end and she said yes. The nurse checked with her and she...

Hi, my therapeutic range has been set at 2 - 3. I asked my heamatologist if we c...

•5 years ago

Lupus Anticoagulant query-part 3!

Several of you were helpful enough to comment on my previous posts, where my rheum had dismissed by two positive LA results, as I don’t have a history of...

Several of you were helpful enough to comment on my previous posts, where my rhe...

•5 years ago

Update on Migraine

Hi Y'all! Another one bites the dust!!! My Neurologist who's been wonderful has tried everything to help me with Migraine, but nothing working! My primary...

Hi Y'all! Another one bites the dust!!! My Neurologist who's been wonderful has ...

•5 years ago

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