A Huge Thank you

[geoff0702]

Thank you to everybody on the forum, for all their help and advice. Although thank you doesn't seem enough!

My wife has felt a huge weight lifted off her shoulders and seems to be a little better, dispite not starting her new dose yet.

I feel vindicated, in that I was correct all this time. Now that we have a diagnosis of Hughes Syndrome and the hospital in Sheffield are taking it seriously. Needless to say the next time I feel that she is unwell, like the other weekend. She will be sent to our local hospital, with letters in hand to ensure she is treated for Hughes and not FND.

She is been tested for sjögren's (if I've spelt it right)

Thank you for keeping me sain, all your advice and wonderful words.

Will keep you all updated when she starts her new dosage, hopefully great things will occur. If not just the ability to move all her limbs will be great. Then we can make a slow start to her walking 😆

[MaryF Administrator]

Thank you for the feedback, I hope your wife continues to feel better every day, and best wishes to yourself also. MaryF

[geoff0702 in reply to MaryF]

Your very welcome, I don't think we would've got to this stage without everybody's help and advice! When I joined a was seriously low and at the end of my tether! Everybody's replies helped greatly

[MaryF Administrator in reply to geoff0702]

Well it is all about team work on here, I am delighted that things feel better. I also have have a lovely life partner, who would do anything for me and has a very good over view of life which always helps in terms of joined up thinking and problem solving. Have a lovely week-end. MaryF

[geoff0702]

Thank you, we will keep going until everything is sorted. Yes I do love my wife so much, we are literally 2 halves of one soul. I've even married her twice in one of the oldest churches in England, on the same day and time 15 years apart. In the last 5 years i've been everything from full time carer, nurse, doctor and consultant, lol

[judes]

I’m so glad that things are moving in the right direction. It’s also great to hear that you have a good relationship with your wife over many years. I failed miserably in that department I have long conversations with the kits get a shock if they answered me back lol

With my very best to you both

[Wittycjt]

Please be sure to do “Passive Range of motion exercises” on all the joints she is not able to move herself it will help in her recovery process.

[KellyInTexas Administrator in reply to Wittycjt]

Great advice