Ladies, here’s looking at you.
My GP in Kerrville, has asked me to ask you for the specific levels of The various vitamins you ask us to keep an eye on.
This conversation came about because :
1. My ferritin was at 16 and no one caught it but Lynn. My hematologist wasn’t even running the specific ferritin level. My GP did .
2. I showed my heme and he agreed was too low- and said GP could start infusing me- GP is local and heme is in SA and if GP can do it locally it’s better for me if I don’t have to drive almost 2 hours in one way.
3. Thyroid is low. T-3/ T-4 is flagging low. Progressing into lazy thyroid problem. THS total free ( over all regulator like the thermostat on air conditioning/ heating system is ok and that’s the most important thing to look at was ok - the others are just “ snap shots in time” I was told by endo so not important numbers because they change so much. He compared to rooms in a house... vents off the main system but look at main regulator of thermostat?)
Vitamins D, B’s, etc, all the things you mention on here as they pertain to APS / Hughes patients in particular. Specifically, as we have specific needs. For example, Vitamin D helps with not clotting. ( we are no longer as humans in the sun as much as we used to be when we were hunting and gathering societies.)
I was his first APS patient ever. Now he has a small handful! Funny how that works... He has had his “ hands on and clinical application” common sense education through you ladies - through me.
He knows you are patients also if Dr Hughes and that you are keepers of the publications.
He values your experience and expertise. “ what is this patient teaching us?” He has scoured Dr Hughes book, Highways and Byways. His nurse is a PhD researcher. She devoured it.
INR Level Low
Tired of this Merry Go Round....DOES IT END????
Sleep disturbance resulting in painful headaches
