Sticky Blood-Hughes Syndrome Support
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Hello all! I am wondering if anyone is having severe foot pain? If so do u know what is causing it?

I have been waking up at night with sever pain on the bottom of my feet especially the heal. I have no idea why I do not spend a lot of time on my feet and there is nothing that I have been able to figure out that’s causing it or why it’s happening. Every time there is something wrong and I have testing done it’s always my messed up neurological system. The damage to my brain and neurological system has been so bad that it has effected my hearing, my vision, my ability to urinate as needed, my ability to speak, my constant wide spread pain, my balance, my thought process, my memory. I’m sure there is more but I can’t remeber right now. No surprise there. Everything is either damage to my brain or neurological system. So I figure, my feet hurting are probably because nerve damage but I thought I would ask. Does anybody else have this problem? And if so do u know the cause?

Thank you for ur time

Soul Rebel

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Hi, sorry things are a bit rough, I had feet that hurt like this until I treated my Thyroid, I did extensive private testing not just the one size fits all TSH test usually done by the NHS, it is not unusual to have a Thyroid problem with this disease and some develop this, either due to being untreated or not adequately medicated. Also low Vit D can cause pain in the limbs and extremities, or at least it did with me. ezinearticles.com/?Plantar-...

MaryF

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Thank you for replying. I believe I have a thyroid problem in part because I had always been very thin and could eat anything I wanted and not gain weight. I was always under weight and when I had my daughters the dr’s wanted me to gain extra weight because of my thinness. Now I am just barley under being obese! I think it’s been the hardest part for me to deal with but my dr will only run TSH I did get her to run t3 & t4(I think) but still normal range. What other testing should I get. My dr is pretty good at testing as I ask but not always! Anyway what tests do I need to have her order? I will discuss my foot pain and ur experience with her at the time of the request. Of course she won’t have ur name or anyway to look u up. She is not well versed in APS. I’m her first APS patient and she is st retirement age. But she has an open mind and listens to what I have learned and always takes it into consideration. Especially if I can say that other people in my support group had to be tested this way to get correct diagnosis.

Seems really weird to be woken up at night with severe pain n my heals and the souls of my feet.

I will be watching for ur reply.

Soul Rebel

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It is not unusual to have a Thyroid problem with what we already have, and often it is Hashimotos, this can make your thyroid fast or slow! I would personally do private testing as your GP will not have access to the panel of tests needed, this is unfortunate but a lot of us have to do this, usually your GP will only have access to the TSH, perhaps antibodies and not much more. This is the sort of thing you need to do: bluehorizonmedicals.co.uk/t...

MaryF

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I have severe feet problems - not only pain but i was losing flesh that they couldn't identify what it was and it took over a year to totally heal after the huge wound finally closed and i believe as other Dr;s that it was directly related to the APS and also i have many other complex medical dia's also

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I’m sorry to hear that u went thru so much. Lucky for me there are not cuts or lesions, which make it even more odd.

Thank u for your reply! I do hope that the lesion NEVER comes back!

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I am very sorry to read your story and hope that 2018 brings you some relief from what is clearly very traumatic.

Plantar fasciitis is one of the most common causes of heel pain. It involves inflammation of a thick band of tissue that runs across the bottom of your foot and connects your heel bone to your toes (plantar fascia).

My recommendation: go to your doctor for an examination and advice!

With good wishes,

Ros

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Thank you very much for ur reply and suggesting what it could be.

Hope u have a great year!

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Metatarsal fractures are also associated with APS. Hope you are better soon.

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I have severe pain in the foot at night I have limited blood supply to the foot (monosphatic pulse) I believe mine is due to lack of blood supply.

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Hi, you may find that wearing arch supports in your shoes will help. Ask your GP to refer you to a podiatrist. A chiropodist may be able to advise you too.

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I had a bad flair of plsntar fascitis. When my arthritis permits (not lately — knee too bad) I hike with a local hiking club. And many members have had plantatr fascitis, some instances of which were attributed in hind sight to bad shoe/hiking boot choices. And then, 💡 I realized that the pain started the week after those new hiking boots. Ditched the boots, used the RICE treatment, and pain gone in @ 6 weeks. — probably not the source of your problem, but thought I’d mention it.

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Hi Gina. My husband has this too! His Doctor recommended that he put a silicone heel insoles in both shoes. This apparently takes the pressure off the toe joints thus positioning the foot correctly inside the shoe and in turn stops the heels hurting so much. He swears by them.

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Thank you everyone for your replies. The strange thing I find about my pain is the sever pain is only at night when I’m sleeping! After reading everyone’s replies I remembered that I walk or stand somewhat oddly and always wear out my shoes on the outside portion area on my feet. Maybe I need to put more thought into how I am walking as well as start wearing shoes with more cushion. I don’t like to wear shoes and they come off right as I walk in the door and slip into some very flat form fitting house shoes. (I find them the most comfortable because I prefer bare feet but need traction so I fall less) Since I spend almost all my time in my house I should probably get some better more padded house shoes. Might help

Thank you to everyone that replied! 😎

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If your foot wear is on the outside of your foot then u absolutely need to see your chiropodist asap. This happened with me end result was, due to weight gain I was walking more and more on the outside, this caused hip and back issues and I would silently cry evertnight due to the severity of pain in my feet. Turns out my arches had fallen and I became flat footed. I saw my chiropodist and had special inserts made and what a difference! However I soon discovered that it would be so much better if I had a couple pair so one set be in my outside shoes and another made just for sandals or flats. Since I had lost a hundred pounds I can go without the supports for long periods of time but do wear them outside. However I still have issues , three surgeries on one foot alone and waiting for one on the other. My life has been so much better and active since the weight loss and the orthodics.

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While I have gained a LOT of weight since gettn sick. I have always walked that way. I have one leg that is longer then the other so I always assumed that was the cause of the odd shoe wear. Up until about 8 Years ago I was rather thin and wearing my shoes out on the outside.

Thank u so much for replying. I think a I should consider a chiropractor and podiatrist.

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