Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,363 members • 10,557 posts

All posts for November 2017

Completely lost with my APS and what to do next ?

Hi all .. am a new member .. was diagnosed at age 22 with APS after a lung clot . Was living away so when I moved home I never had any follow up .. the past...

Hi all .. am a new member .. was diagnosed at age 22 with APS after a lung clot ...

Linda80OL

•7 years ago

17 Replies

prednisolone

Was put on prednisone today as have so much fatigue and pain still even though I’m on aziophrine 150 mg daily .prof hunt said she would of up the dose of...

Was put on prednisone today as have so much fatigue and pain still even though I...

Tim_Thorpe

•7 years ago

30 Replies

Another interesting paper

http://sciencenordic.com/scientists-can-finally-explain-how-autoimmune-disease-spreads MaryF

http://sciencenordic.com/scientists-can-finally-explain-how-autoimmune-disease-s...

MaryF

Administrator•7 years ago

5 Replies

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Recently diagnosed.. tips ?

Hi everyone. My name is Lou, I'm 28 years old from Australia. Its been a tough road for me since June this year, out of the blue I became quite unwell. Hives,...

Hi everyone. My name is Lou, I'm 28 years old from Australia. Its been a tough ...

loui_maree

•7 years ago

30 Replies

update on autoimmune research meeting

Wasnt sure whether to post this in the existing thread (where it might get lost) or here. Anyways, hope its ok here and Im not now spamming! They seemed...

Wasnt sure whether to post this in the existing thread (where it might get lost)...

charlieab

•7 years ago

12 Replies

Cold skin warm inside

Does anybody else experience this: My skin can feel icy cold but I am hot on the inside like an oven although I do not have a temperature. I have got nerve...

Does anybody else experience this: My skin can feel icy cold but I am hot on the...

Molly100

•7 years ago

9 Replies

What to do now?

I have suffered three early miscarriages in a row. I'm hypo and autoimmune positive. Searching in Internet, I came to know that APS can be reason for that. My...

I have suffered three early miscarriages in a row. I'm hypo and autoimmune posit...

rayhanalopa

•7 years ago

22 Replies

Weird bruising on my fingers and toes.....

I suffer from lupus and APS and for the last few months my fingers and toes have been turning black. I get a pain either in my big toe or in my finger, the...

I suffer from lupus and APS and for the last few months my fingers and toes have...

tiredmum

•7 years ago

15 Replies

Bleeding and wafarin

Hi I have APS & platelet problem. I am on wafarin & foundaparinux injections when INR less than 2.5 I am going through the menopause and for the last four...

Hi I have APS & platelet problem. I am on wafarin & foundaparinux injections whe...

Lind8

•7 years ago

16 Replies

My daily struggle with strokes

I am a 4 time stroke survivor. My daily routine is to walk slowly with a cane or with one in the house. I still have balance issues. Sometimes I can’t wash my...

I am a 4 time stroke survivor. My daily routine is to walk slowly with a cane or...

Prophetess

•7 years ago

7 Replies

Research into why autoimmune conditions take so long to get diagnosed

Hi Ive got a meeting with a university head of department next week concerning a possible research collaboration on a report into why APS and other autoimmune...

Hi Ive got a meeting with a university head of department next week concerning a...

charlieab

•7 years ago

40 Replies

Seronegative APS?

Hello, My wife has had 7 miscarriages at this point, and we're looking for answers. Part of the complication is that she has a paracentric inversion on one of...

Hello, My wife has had 7 miscarriages at this point, and we're looking for answe...

tathougies

•7 years ago

13 Replies

Sjögrens news

Hi all, I do know this is an APS forum but thought I would share the good news re: Sjögrens as there are very often overlaps. It looks like it’s still early...

Hi all, I do know this is an APS forum but thought I would share the good news r...

RazD

•7 years ago

5 Replies

Irregular heart beat

Could irregular heart beat be associated with Hughes syndrome ?

silemoran

•7 years ago

5 Replies

Hughes diagnosed after 40years of symptoms

Hello everyone My story started around 40 years ago I was finally diagnosed a nearly 2 years ago when I saw a different GP in an emergency appointment She was...

Hello everyone My story started around 40 years ago I was finally diagnosed a ne...

Pappp

•7 years ago

37 Replies

pulsating in the neck

Just a quick question. I would sometimes get this throbbing in my neck right where the arteries are or there about. It would go from the bottom of my neck...

Just a quick question. I would sometimes get this throbbing in my neck right wh...

Salmonious

•7 years ago

13 Replies

Help At Last

Hello good people I thought I would post today, instead of lurking as I usually do. I have sero negative APS, but have had trouble with doctors believing in...

Hello good people I thought I would post today, instead of lurking as I usually ...

suntap

•7 years ago

10 Replies

LBC Radio

Literally just heard APS discussed on LBC talk radio. Caller phoned in after a friend advised her following 2 miscarriages.

Literally just heard APS discussed on LBC talk radio. Caller phoned in after a f...

lloydyuk

•7 years ago

6 Replies

Could I have hughes syndrome? Help

Hi guys and thanks for allowing me to join you. My name is Chris I'm 26 years old and have suffered with daily migraines for nigh on 10 years now. In a...

Hi guys and thanks for allowing me to join you. My name is Chris I'm 26 years ol...

Lookingglass91

•7 years ago

22 Replies

DOAC

Anyone else trying apixaban as a warfarin replacement? Opinions please.. 🤗

Rosiek90

•7 years ago

52 Replies

Amplatzer heart implant used to close PFO’s & ASO’s in heart. Causing erosion of heart Tissue on rare instances

I know somebody, forgive me for not remembering who, said that they had a PFO or ASD closure I just wanted to let it be known the the Amplatzer has been known...

I know somebody, forgive me for not remembering who, said that they had a PFO or...

SoulRebel-APS

•7 years ago

24 Replies

Advice about chronic soreness.

Hey everyone. I have been quite active in the last four months. I landed a part time job as a Janitor with a company that decided to take a chance on me...

Hey everyone. I have been quite active in the last four months. I landed a part ...

blizzard2014

•7 years ago

34 Replies

APS talk.

This is pretty informative. Though I found quite a bit of it too hard to understand. https://www.youtube.com/watch?v=XWBYyzLrSEo PS I was charlieab but lost...

This is pretty informative. Though I found quite a bit of it too hard to underst...

charlieagain

•7 years ago

6 Replies

I’ve been prescribed Plavix ( Clopidogrel) in addition to my high intensity Warfarin by my treating Neurologist: A few questions please...

* It’s being Prescribed because I’m continuing to have damage to optic nerves, migraines, and leg and arm vessel clotting. ( but for the true purposes of...

* It’s being Prescribed because I’m continuing to have damage to optic nerves, ...

KellyInTexas

Administrator•7 years ago

41 Replies

Mra vs mri, be sure to have the right testing done or your results may not warrant your needs, they are not the same thing

MRA examine arterial vessels and flow whereas MRI look more at structures such as bones and organs.

MRA examine arterial vessels and flow whereas MRI look more at structures such a...

Wittycjt

•7 years ago

6 Replies

Diet and Supplements with Coumadin

Interesting compendium of data on diet and our drug. Basically, it urges us to quit trying to get healthy and just take the damned drug. I wonder what...

Interesting compendium of data on diet and our drug. Basically, it urges us to q...

DannyBoy1

•7 years ago

10 Replies

Need to find a doctor for Sticky-Blood Hughes Syndrome

Looking for a doctor who is familiar with Hughes Syndrome in my area of the state of Maine, USA.

Looking for a doctor who is familiar with Hughes Syndrome in my area of the stat...

Patatie50

•7 years ago

19 Replies

Article about diagnosing APS

This is an interesting article I found on diagnosing APS and risk of thrombosis on triple positive patients without clots....

This is an interesting article I found on diagnosing APS and risk of thrombosis ...

rottiro

•7 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2017

Completely lost with my APS and what to do next ?

prednisolone

Another interesting paper

Recently diagnosed.. tips ?

update on autoimmune research meeting

Cold skin warm inside

What to do now?

Weird bruising on my fingers and toes.....

Bleeding and wafarin

My daily struggle with strokes

Research into why autoimmune conditions take so long to get diagnosed

Seronegative APS?

Sjögrens news

Irregular heart beat

Hughes diagnosed after 40years of symptoms

pulsating in the neck

Help At Last

LBC Radio

Could I have hughes syndrome? Help

DOAC

Amplatzer heart implant used to close PFO’s & ASO’s in heart. Causing erosion of heart Tissue on rare instances

Advice about chronic soreness.

APS talk.

I’ve been prescribed Plavix ( Clopidogrel) in addition to my high intensity Warfarin by my treating Neurologist: A few questions please...

Mra vs mri, be sure to have the right testing done or your results may not warrant your needs, they are not the same thing

Diet and Supplements with Coumadin

Need to find a doctor for Sticky-Blood Hughes Syndrome

Article about diagnosing APS

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